Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 Tell your insurance co. They can NOT and are not allowed to diagnose you. They are not doctors. And tell them you want it in writing that they are not paying because they think your doctor is lying. And you want it today. Faxed. So you will have something to give a lawyer. Then ask for their name and their managers name. They should change their tune. I did that once and it worked. But goof luck. Suzanne Sent from my iPhone On May 19, 2010, at 9:55 AM, Natasha Moiseyev <nmoiseyev@...> wrote: > My older daughter is on a PICC line. she had a positive PCR and an > equivocal Western Blot IgG. Insurance is pretending this means she > does not have Lyme (thanks, IDSA). So that is the first > frustration. The second one is that my two daughters (11 and 13) > are not getting better and I am so tired of them being at home! I > have to work! I have my own business! They are latchkey kids who > refuse to do any school-type work on their own and I can't be in two > places at once. And I would just like one week of normal. Heck, > I'd take a day of normal. It's so frustrating. It's like permanent > last days of summer vacation except that they are supposed to finish > work for school in the next 3 weeks so they won't be held back. > > Augh. > > Just had to vent. > > Natasha > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 Wished you lived in WI - your girls could come over to my house - my 11 year old has been home also!! We ar working on homework right now!! We have until June 20th to get everything in........so frustrating.........Thank God my husband works but because I have not been able too we are having financial problems.......it's all such a pile of poop - there is no darn reason why any of us have to suffer like this!!! They should have lyme centers just like they have cancer centers and people should have compassion for us........for the kids..........what a shame............ hang in there - I am having one of those days also........but, really - wish I could help you with the kids and homework - Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Wed, May 19, 2010 9:55:58 AM Subject: [ ] Venting frustration  My older daughter is on a PICC line. she had a positive PCR and an equivocal Western Blot IgG. Insurance is pretending this means she does not have Lyme (thanks, IDSA). So that is the first frustration. The second one is that my two daughters (11 and 13) are not getting better and I am so tired of them being at home! I have to work! I have my own business! They are latchkey kids who refuse to do any school-type work on their own and I can't be in two places at once. And I would just like one week of normal. Heck, I'd take a day of normal. It's so frustrating. It's like permanent last days of summer vacation except that they are supposed to finish work for school in the next 3 weeks so they won't be held back. Augh. Just had to vent. Natasha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 thanks for the solidarity -- I have neem essentially homeschooling them for two years now and I just am so tired of them resisting -- we HAVE to get the stuff done! They only get their wind in the afternoon, then procrastinate, so I am still there at 8 pm (14 hours into MY day) helping them with their work. At this point I am not even pretending -- I'm just telling them what to do and pushing it through for the sake of turning it in. Wish we had Lymie friends like you nearby too -- what a difference it would make if ANYONE understood what this is like. We live with my parents and my mom DEFINTELY doesn't understand the way Lyme makes you feel. My husband and daughters and I all have it, so it's a Lyme party over here. Your note of good cheer really lifted my spirits. :0) Natasha From: Diane Biel <dkbmama@...> Subject: Re: [ ] Venting frustration Date: Wednesday, May 19, 2010, 9:02 AM  Wished you lived in WI - your girls could come over to my house - my 11 year old has been home also!! We ar working on homework right now!! We have until June 20th to get everything in........so frustrating.........Thank God my husband works but because I have not been able too we are having financial problems.......it's all such a pile of poop - there is no darn reason why any of us have to suffer like this!!! They should have lyme centers just like they have cancer centers and people should have compassion for us........for the kids..........what a shame............ hang in there - I am having one of those days also........but, really - wish I could help you with the kids and homework - Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Wed, May 19, 2010 9:55:58 AM Subject: [ ] Venting frustration  My older daughter is on a PICC line. she had a positive PCR and an equivocal Western Blot IgG. Insurance is pretending this means she does not have Lyme (thanks, IDSA). So that is the first frustration. The second one is that my two daughters (11 and 13) are not getting better and I am so tired of them being at home! I have to work! I have my own business! They are latchkey kids who refuse to do any school-type work on their own and I can't be in two places at once. And I would just like one week of normal. Heck, I'd take a day of normal. It's so frustrating. It's like permanent last days of summer vacation except that they are supposed to finish work for school in the next 3 weeks so they won't be held back. Augh. Just had to vent. Natasha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 Oh, that is such good advice. They are beating me down. And I am a lawyer, no less. I will gird my loins for battle. Thanks again for the priceless advice. Best Natasha > My older daughter is on a PICC line. she had a positive PCR and an > equivocal Western Blot IgG. Insurance is pretending this means she > does not have Lyme (thanks, IDSA). So that is the first > frustration. The second one is that my two daughters (11 and 13) > are not getting better and I am so tired of them being at home! I > have to work! I have my own business! They are latchkey kids who > refuse to do any school-type work on their own and I can't be in two > places at once. And I would just like one week of normal. Heck, > I'd take a day of normal. It's so frustrating. It's like permanent > last days of summer vacation except that they are supposed to finish > work for school in the next 3 weeks so they won't be held back. > > Augh. > > Just had to vent. > > Natasha > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 Natasha, you may have done this all ready but when I was very ill I had a heart-to-heart with my Lyme daughters about how I needed their help in getting things done. My eldest told me she didn't know I needed help (to my surprise) and they both agreed they would start doing things to help me and to help themselves, rather than depending on me to do everything all the time. Amazingly, they did take responsibility for getting their work done and even offered to help me with other things too. They do still need reminders but they are usually willing. Barbara From: Natasha Moiseyev <nmoiseyev@...> Subject: [ ] Venting frustration Date: Wednesday, May 19, 2010, 7:55 AM  My older daughter is on a PICC line. she had a positive PCR and an equivocal Western Blot IgG. Insurance is pretending this means she does not have Lyme (thanks, IDSA). So that is the first frustration. The second one is that my two daughters (11 and 13) are not getting better and I am so tired of them being at home! I have to work! I have my own business! They are latchkey kids who refuse to do any school-type work on their own and I can't be in two places at once. And I would just like one week of normal. Heck, I'd take a day of normal. It's so frustrating. It's like permanent last days of summer vacation except that they are supposed to finish work for school in the next 3 weeks so they won't be held back. Augh. Just had to vent. Natasha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 Hi Natasha, If you're able to consider finding a homeschool umbrella rather than schooling through your state or county it might allow you more flexibility and a more relaxed atmosphere at home. We homeschool under an umbrella which is very relaxed so it allows me the freedom to let my child rest & not do school on days when she can't. Then when she's feeling better she does a little extra. The stress is not good for their immune systems. Usually what a child learns one year is repeated each year up until high school so even if they didn't study 100% of their books they really wouldn't be behind. I know on my bad Lyme days I just don't want to do anything. I couldn't imagine having to study and do school work. Just a thought. My prayers are with you. Tricia > > My older daughter is on a PICC line. she had a positive PCR and an equivocal Western Blot IgG. Insurance is pretending this means she does not have Lyme (thanks, IDSA). So that is the first frustration. The second one is that my two daughters (11 and 13) are not getting better and I am so tired of them being at home! I have to work! I have my own business! They are latchkey kids who refuse to do any school-type work on their own and I can't be in two places at once. And I would just like one week of normal. Heck, I'd take a day of normal. It's so frustrating. It's like permanent last days of summer vacation except that they are supposed to finish work for school in the next 3 weeks so they won't be held back. > > Augh. > > Just had to vent. > > > > > > > > > > > Natasha > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 Hi Natasha, If you're able to consider finding a homeschool umbrella rather than schooling through your state or county it might allow you more flexibility and a more relaxed atmosphere at home. We homeschool under an umbrella which is very relaxed so it allows me the freedom to let my child rest & not do school on days when she can't. Then when she's feeling better she does a little extra. The stress is not good for their immune systems. Usually what a child learns one year is repeated each year up until high school so even if they didn't study 100% of their books they really wouldn't be behind. I know on my bad Lyme days I just don't want to do anything. I couldn't imagine having to study and do school work. Just a thought. My prayers are with you. Tricia > > My older daughter is on a PICC line. she had a positive PCR and an equivocal Western Blot IgG. Insurance is pretending this means she does not have Lyme (thanks, IDSA). So that is the first frustration. The second one is that my two daughters (11 and 13) are not getting better and I am so tired of them being at home! I have to work! I have my own business! They are latchkey kids who refuse to do any school-type work on their own and I can't be in two places at once. And I would just like one week of normal. Heck, I'd take a day of normal. It's so frustrating. It's like permanent last days of summer vacation except that they are supposed to finish work for school in the next 3 weeks so they won't be held back. > > Augh. > > Just had to vent. > > > > > > > > > > > Natasha > > > Quote Link to comment Share on other sites More sharing options...
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