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Hi All-

I am the mother of a 3 year old boy that was just diagnosed with

Lyme. His screening test came back positive, and his Western Blot

negative. But I'm sure it is Lyme that he has. (I also have a friend

with Chronic Lyme- and know how hard it can be to diagnose.) Anyway,

woke up a week ago with a limp, next day couldn't walk...

complained of a sore knee. When I started to think about it- he had

limped on other mornings but it never lasted more than minutes in the

morning and it was only maybe once a month. Other clue was 2 months

ago I had him at the dr. for a stomach ache that he had been

complaining about for 4 days. Of course cbc's and urine came back

normal then.

So this time I requested that they do a lyme test. Dr. in the ER

actually said to me " It's too early for ticks to be out. " Like a boy

with arthritis caused by lyme got bit by a tick yesterday! I can't

believe they don't know more about lyme in this area. Northern

Wisconsin... what I'm thinking could compete for the title of Lyme

Capitol USA? Anyway, the nurse practioner prescribed amoxicillin for

3 weeks. Said he should be fine after that and we'd have to watch his

symptoms. I unfortunately knew better and scheduled an appointment

with my dr. and requested he consult the LLMD that was nearby. He

said 4-8 weeks oral amoxicillin. The other LLMD in the area said she

would do IV for 6 weeks. We are trying the oral, hoping that will be

a good start.

I still need to get an appointment with the LLMD to go over other

things we need to be doing. But I know it is a 2 month wait to see

the LLMD.

Question- I've heard about the sugar problem with abx. My 3 year

old (barely 3- he's 37 months old) lives on sugar, and is an

impossibly picky eater. Will for sure have yeast problems if he

doesn't stop the sugar? What should his diet consist of?

Any other advice or help anyone has would be greatly appreciated.

I think most likely has had Lyme since late last summer. He did

have a sick period last March where he had severely high fever 106-

and chills and dr. diagnosed bronchitis- radiologist disagreed. I'm

hoping this wasn't the start of his lyme, for that would mean he's

had it for over a year. He was healthy from April-August with no dr.

appts or issues. It wasn't until last fall the ear infections,

random fevers, a few skin rashes began. And the random limp that

would appear from time to time. I'm kicking myself for not getting

him tested sooner.

One last thing- should I bring him to an optomalogist (sp?) or

neurologist? Is there a way to check for neurological symptoms in a

3 year old? Sorry for the length of this first post. is for

the most part a happy, active 3 year old... with the occasional joint

pain. I'm so praying this can be treated and controlled.

Thanks in advance for your time, and your advice!