Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 It sure sounds like an allergic reaction. Buhner, f I'm remembering correctly, said that if you experience an allergic reaction, andrographis is the most likely culprit. Perhaps you should back off on it (if you're taking it) and see if the hives go away. D. Meg Chaney <i_am_not_crazy_08@...> wrote: > > Hi everybody, > > Yesterday I woke up with a welt-like rash on my face. It looked kind of like bug bites and was really itchy and almost burned. After an hour or so, it started spreading. I took some benadryl and it calmed down for a little while. It came back some last night, and this morning it's even worse (it's pretty much everywhere now except for my calves and feet.) I can even feel a spot on the *inside* of my eyelid (not a place you can easily soothe). I was just wondering if anybody has had a similar experience and any suggestions besides typical anti-itch creams. I thought I remembered reading something about rashes and Lyme (aside from the EM rash, that is), but I can't seem to find it now. My mom suggested bed bugs (gross!), but since I was getting new spots hours after being in bed, I didn't figure that was worth considering. I remember reading about one woman who had Lyme and got itchy rashes during treatment, and asked her doctor about it and he said it was toxins escaping > through the skin? I thought about the possibility of it being something I'm applying to my skin, eating, or touching, but I haven't changed *anything* of that sort recently. No new detergent, lotion, soap, *nothing*, which is why I was wondering if it might not be Lyme related, or possibly an allergic reaction to one of the herbs I'm taking (though I've been on most of these for almost a month now with no ill effects)? Anyway, I just thought I'd pick your brains for ideas (which sounds almost as gross as bed bugs), since many of you have been dealing with all this stuff a lot longer than I have and thus obviously have much more experience! > > Thanks! > > -Meg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 Allergic reaction was my first thought too! But it just didn't make sense to me; I hadn't been taking any of my pills the day prior to waking with the rash, and was starting back at a low dose that day. In fact, until yesterday night, I hadn't been taking any of my stuff for a couple of days (to see if it would do anything for the insomnia I've been experiencing). The other thing is that it comes and goes very regularly; I had a spot on my back several inches long and about 1 1/2 wide earlier, then it disappeared, and I got another huge one somewhere else. Most of the spots are small in appearance, but I usually have one large one somewhere. It's just strange. And parts of me itch that have no visible rash, too. Allergic reaction *sounds* right, but I just can't figure out what it would be a reaction *to*. Thanks for the suggestion though! -Meg DeMarco <@...> wrote: It sure sounds like an allergic reaction. Buhner, f I'm remembering correctly, said that if you experience an allergic reaction, andrographis is the most likely culprit. Perhaps you should back off on it (if you're taking it) and see if the hives go away. D. Meg Chaney <i_am_not_crazy_08@...> wrote: > > Hi everybody, > > Yesterday I woke up with a welt-like rash on my face. It looked kind of like bug bites and was really itchy and almost burned. After an hour or so, it started spreading. I took some benadryl and it calmed down for a little while. It came back some last night, and this morning it's even worse (it's pretty much everywhere now except for Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 Hi Meg, Don't have anything that useful to add except that my husband had a spreading, bumpy rash when he took Mepron for babesiosis. We never knew if it was an allergic reaction or a herx, but he just took benadryl to get through it (and went off the Mepron). Later he tried Mepron again and didn't have the reaction. He was having night sweats too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 Meg, My husband got that exact thing--covered in hives/rash all over his body--it started on his hands and moved from there. I think it lasted about a week. We think it might have been the andrographis, even though he had also been on it for at least a month or so. He stopped it for about two weeks, and then started back on it, and has since had no problems...right now he is even at the max dosage, taking 4, 4x a day. Another thing we think it might have been was a reaction between alcohol and the herbs, as he had had a beer earlier...but who knows...could have also been a herx. I know he was in a lot of distress at the time, here are some of the things he tried: oatmeal baths, benadryl, cold showers, anti-itch cream, aloe, and also some devil's claw and nettle. Good luck, and I hope it doesn't last long. --------------------------------- Bored stiff? Loosen up... Download and play hundreds of games for free on Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 When this happens to me I know I'm herxing or something has caused some bacteria to come to the surface. In the beginning of treating myself it would happen when I used the sauna. When things were really bad (near death) it was different but I believe along the same lines. If i experienced any stress, any level of stress, I would swell somewhere. One morning I looked like someone slugged me in the face. My lip was so big! Anyway, I use to take Benadryl for it before I was diagnosed, but now I know what it is and I don't worry, it goes away. I just itch sometimes like crazy and sometimes it's just one spot somewhere. I think it's the critters coming out. I don't know, I don't think anyone really does. I don't like taking any drugs, but benadryl does help if you need relief. We also carry Epie Pens just in case cause we do have history of asthma & severe reactions to some foods. Hope you find relief soon. I believe the sauna has made a tramendous difference. Meg Chaney <i_am_not_crazy_08@...> wrote: Allergic reaction was my first thought too! But it just didn't make sense to me; I hadn't been taking any of my pills the day prior to waking with the rash, and was starting back at a low dose that day. In fact, until yesterday night, I hadn't been taking any of my stuff for a couple of days (to see if it would do anything for the insomnia I've been experiencing). The other thing is that it comes and goes very regularly; I had a spot on my back several inches long and about 1 1/2 wide earlier, then it disappeared, and I got another huge one somewhere else. Most of the spots are small in appearance, but I usually have one large one somewhere. It's just strange. And parts of me itch that have no visible rash, too. Allergic reaction *sounds* right, but I just can't figure out what it would be a reaction *to*. Thanks for the suggestion though! -Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 Thanks, Stephany! Maybe I'll stay off the andro a little longer and see if this doesn't clear up. So far today there's no difference, and I also noticed one spot that hasn't changed at all that looks an awful lot like an EM rash to me. But I could just be delusional. :-P (Does anybody know if it's possible to get a *second* secondary EM rash? I never had one in the beginning as far as I know, but I did get what I'm pretty sure was one this past November...and now this.) Thanks again! -Meg Stephany <stedfast81@...> wrote: Meg, My husband got that exact thing--covered in hives/rash all over his body--it started on his hands and moved from there. I think it lasted about a week. We think it might have been the andrographis, even though he had also been on it for at least a month or so. He stopped it for about two weeks, and then started back on it, and has since had no problems...right now he is even at the max dosage, taking 4, 4x a day. Another thing we think it might have been was a reaction between alcohol and the herbs, as he had had a beer earlier...but who knows...could have also been a herx. I know he was in a lot of distress at the time, here are some of the things he tried: oatmeal baths, benadryl, cold showers, anti-itch cream, aloe, and also some devil's claw and nettle. Good luck, and I hope it doesn't last long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 In a message dated 2/27/07 2:32:52 AM, i_am_not_crazy_08@... writes: > Does anybody know if it's possible to get a *second* secondary EM rash? > Meg, I've read that EM rashes can come and go anytime (and can be differring shapes and sizes). Ann ************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Yes, it's very possible to get multiple EM rashes. I had several of them that only started manifesting towards the end of nearly two years of treatment (years after initial infection), and they were all over my body. They didn't itch, but they sometimes burned. They generally took on the standard bulls-eye shape, but not always (they came and went every single day for months). It's hard to say what exactly would be causing this -- whether it's an allergic reaction or something more along the lines of a herx. Stephany mentioned in an earlier comment about suspecting a possible reaction between alcohol and the herbs. Alcohol could certainly be a culprit (at least if you're drinking it!). I don't know about any specific alcohol/herb interactions off the top of my head that are specific to your situation, but I do know that alcohol increases spirochetal stress proteins (HSPs), and stimulates spirochete activity (possibly enough in your case to cause the EM rash). Alcohol can wreak absolute havoc during any form of Lyme treatment, and MUST be avoided. Treatment + Alcohol = Failed Treatment. Of course, maybe this isn't applicable to you, but if you're like me, not much is better than an occasional glass of wine. Sometimes you have to give up some things in the short term in order to ensure long term success. Anyway, that's something you can consider, among other things. Hope it goes away soon. Oh, and take pictures of the " suspicious " looking rash -- just in case some doctor of yours in the future would like to see them. Meg, > > My husband got that exact thing--covered in hives/rash all over his body--it started on his hands and moved from there. I think it lasted about a week. We think it might have been the andrographis, even though he had also been on it for at least a month or so. He stopped it for about two weeks, and then started back on it, and has since had no problems...right now he is even at the max dosage, taking 4, 4x a day. Another thing we think it might have been was a reaction between alcohol and the herbs, as he had had a beer earlier...but who knows...could have also been a herx. > > I know he was in a lot of distress at the time, here are some of the things he tried: oatmeal baths, benadryl, cold showers, anti-itch cream, aloe, and also some devil's claw and nettle. > > Good luck, and I hope it doesn't last long. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 It's good to know for sure that you *can* get multiple EM rashes. Now that you say it, it seems like I already knew that, but had just completely forgotten. I guess if I'd thought about it logically I might've come to that conclusion on my own though, knowing what I know about the disease. But I really haven't been all that logically lately! This spot that I'm thinking may be an EM rash doesn't itch like the rest of my rashes (and obviously looks different since I'm suspecting its an EM rash) -- it's more of a burning sensation, though most of the time it doesn't feel like anything at all. Okay now... I'm glad you said it, because I knew I needed to stop, but was having trouble forcing myself. But glad or not I must rhetorically ask WHY did you have to tell me that I should stop drinking? I hadn't been doing it at all for a long time (*knowing* it was not a good idea when one has Lyme whether you're being treated or not), and still try not to very often, but I have gotten into the habit of having a glass of wine while I watch 24 every Monday night. Now you're going to be like, Mr. Conscience, sitting on my shoulder scolding me with every sip! So fine. I'll stop. :-P I suppose it couldn't have been put any better when you said, " Sometimes you have to give up some things in the short term in order to ensure long term success. " How true indeed. *blushes* I knew somebody was going to suggest taking a picture of this particular rash sooner or later. Heh. I had thought of that already (especially since I didn't think to take a picture of the one on my collar bone last year until it had almost completely faded), and it's not as if one wouldn't show their *DR* such a rash just because it's in a " sensitive " place, but having a picture of it on my computer is um... not something I'm entirely comfortable with, shall we say? Especially since certain of my family members (who thankfully do not live here anymore, but visit from time to time) have trouble with the concept of personal privacy. Ah-heh. Yeah. Anyway, thanks for the information, and the reminder *not* to be drinking at all (I had taken up the drinking of Pinot Noir, for " medicinal " purposes, on the grounds that Pinot Noir is supposed to have the highest level of resveratrol in it. Haha. Yes, I'm very bad). Excuse me now, while I go cry in my... water, over the loss. :-P -Meg drostollan <drostollan@...> wrote: Yes, it's very possible to get multiple EM rashes. I had several of them that only started manifesting towards the end of nearly two years of treatment (years after initial infection), and they were all over my body. They didn't itch, but they sometimes burned. They generally took on the standard bulls-eye shape, but not always (they came and went every single day for months). It's hard to say what exactly would be causing this -- whether it's an allergic reaction or something more along the lines of a herx. Stephany mentioned in an earlier comment about suspecting a possible reaction between alcohol and the herbs. Alcohol could certainly be a culprit (at least if you're drinking it!). I don't know about any specific alcohol/herb interactions off the top of my head that are specific to your situation, but I do know that alcohol increases spirochetal stress proteins (HSPs), and stimulates spirochete activity (possibly enough in your case to cause the EM rash). Alcohol can wreak absolute havoc during any form of Lyme treatment, and MUST be avoided. Treatment + Alcohol = Failed Treatment. Of course, maybe this isn't applicable to you, but if you're like me, not much is better than an occasional glass of wine. Sometimes you have to give up some things in the short term in order to ensure long term success. Anyway, that's something you can consider, among other things. Hope it goes away soon. Oh, and take pictures of the " suspicious " looking rash -- just in case some doctor of yours in the future would like to see them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 Two days ago I woke up feeling worse than I have in a long time, and I too was covered in rashes. They were round-ish to oval, with central clearing, but only one ring. They faded by nightfall and haven't come back. But I am aching and feeling a little like I have the flu - just sore all over, slight scratchy throat, tired. Otherwise, doing well. I had been on doxy for a very long time, then stopped for a week because I wanted to see if any of my symptoms were caused by the doxy. The rashes appeared about a week after I went back on the doxy. I think it's a herx. So, now I'm not sure what to do. I was about to quit the abx and go over to just herbs. But it looks like the doxy is killing stuff right now. So I kinda hate to stop just yet. I guess I'll ride it out a while longer. D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Meg: I get a rash that resembles the first onset of my Lyme after a Rife session that is effective and causes die-off. It does not itch and only is a cosmetic problem, most people report no itching with this type of lyme rash. It also subsides after a few days and gone in a few weeks. Likewise it doesn't travel down to other body parts during the flairup, it appears isolated, but may appear next time in another location after another treatment. Yours sounds like a different rash...........I'd see a doc Meg Chaney <i_am_not_crazy_08@...> wrote: Hi everybody, Yesterday I woke up with a welt-like rash on my face. It looked kind of like bug bites and was really itchy and almost burned. After an hour or so, it started spreading. I took some benadryl and it calmed down for a little while. It came back some last night, and this morning it's even worse (it's pretty much everywhere now except for my calves and feet.) I can even feel a spot on the *inside* of my eyelid (not a place you can easily soothe). I was just wondering if anybody has had a similar experience and any suggestions besides typical anti-itch creams. I thought I remembered reading something about rashes and Lyme (aside from the EM rash, that is), but I can't seem to find it now. My mom suggested bed bugs (gross!), but since I was getting new spots hours after being in bed, I didn't figure that was worth considering. I remember reading about one woman who had Lyme and got itchy rashes during treatment, and asked her doctor about it and he said it was toxins escaping through the skin? I thought about the possibility of it being something I'm applying to my skin, eating, or touching, but I haven't changed *anything* of that sort recently. No new detergent, lotion, soap, *nothing*, which is why I was wondering if it might not be Lyme related, or possibly an allergic reaction to one of the herbs I'm taking (though I've been on most of these for almost a month now with no ill effects)? Anyway, I just thought I'd pick your brains for ideas (which sounds almost as gross as bed bugs), since many of you have been dealing with all this stuff a lot longer than I have and thus obviously have much more experience! Thanks! -Meg --------------------------------- No need to miss a message. Get email on-the-go with for Mobile. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Wow, Thanks . I didn't know you could get the EM rash after so many yrs. It makes a lot of sense and even looks like one. I've taken pictures to show Doc. Thanks for your insight. Diane drostollan <drostollan@...> wrote: Yes, it's very possible to get multiple EM rashes. I had several of them that only started manifesting towards the end of nearly two years of treatment (years after initial infection), and they were all over my body. They didn't itch, but they sometimes burned. They generally took on the standard bulls-eye shape, but not always (they came and went every single day for months). It's hard to say what exactly would be causing this -- whether it's an allergic reaction or something more along the lines of a herx. Stephany mentioned in an earlier comment about suspecting a possible reaction between alcohol and the herbs. Alcohol could certainly be a culprit (at least if you're drinking it!). I don't know about any specific alcohol/herb interactions off the top of my head that are specific to your situation, but I do know that alcohol increases spirochetal stress proteins (HSPs), and stimulates spirochete activity (possibly enough in your case to cause the EM rash). Alcohol can wreak absolute havoc during any form of Lyme treatment, and MUST be avoided. Treatment + Alcohol = Failed Treatment. Of course, maybe this isn't applicable to you, but if you're like me, not much is better than an occasional glass of wine. Sometimes you have to give up some things in the short term in order to ensure long term success. Anyway, that's something you can consider, among other things. Hope it goes away soon. Oh, and take pictures of the " suspicious " looking rash -- just in case some doctor of yours in the future would like to see them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Hello, My son has been on  antibotics for 5 months now for lyme. He never had the bullseye rash. He had little sporadic patches of rashes that erupted all over his body. Well, the rashes went away a few weeks into the treatment and are now back.  Does anyone have any insight into this? His fatigue has gone away, as well as his headaches and leg pains, but still is very moody and has lots of " ocd bad thoughts " I'm guessing it takes longer to cure the neuropsychiatric symptoms than the physical? thanks Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 definitely longer to treat the neuropsych stuff, as I am coming to find out with my younger daughter. Might he have coinfections? We just saw our LLMD and he said my daughter's Lyme symptoms have subsided (for now -- retrenching? gone cystic?) but the Bartonella is kicking up a huge fight. Natasha From: jchabot <jchabot@...> Subject: [ ] rashes Date: Wednesday, March 10, 2010, 5:13 AM  Hello, My son has been on  antibotics for 5 months now for lyme. He never had the bullseye rash. He had little sporadic patches of rashes that erupted all over his body. Well, the rashes went away a few weeks into the treatment and are now back.  Does anyone have any insight into this? His fatigue has gone away, as well as his headaches and leg pains, but still is very moody and has lots of " ocd bad thoughts " I'm guessing it takes longer to cure the neuropsychiatric symptoms than the physical? thanks Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 How old is he if you dont mind me asking ? From: jchabot <jchabot@...> Subject: [ ] rashes Date: Wednesday, March 10, 2010, 8:13 AM Hello, My son has been on  antibotics for 5 months now for lyme. He never had the bullseye rash. He had little sporadic patches of rashes that erupted all over his body. Well, the rashes went away a few weeks into the treatment and are now back.  Does anyone have any insight into this? His fatigue has gone away, as well as his headaches and leg pains, but still is very moody and has lots of " ocd bad thoughts " I'm guessing it takes longer to cure the neuropsychiatric symptoms than the physical? thanks Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 I was pretty confused at my last visit. We go again on Friday.The doctor thought for sure my son had bartonella but the test was negative. His test for B Duncani was positive. I don't know if this is another name for lyme or a co-infection. They were concerned about him having the gene for arthritis,(HLADR?) anyone know about this? and they were going to give him plaquenil for it until they realized he was on a med that would interact with it. I'm hoping to clear up all this confusion Friday. thanks Judy ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Wed, March 10, 2010 9:51:14 AM Subject: Re: [ ] rashes  definitely longer to treat the neuropsych stuff, as I am coming to find out with my younger daughter. Might he have coinfections? We just saw our LLMD and he said my daughter's Lyme symptoms have subsided (for now -- retrenching? gone cystic?) but the Bartonella is kicking up a huge fight. Natasha From: jchabot <jchabotsnet (DOT) net> Subject: [ ] rashes Date: Wednesday, March 10, 2010, 5:13 AM  Hello, My son has been on  antibotics for 5 months now for lyme. He never had the bullseye rash. He had little sporadic patches of rashes that erupted all over his body. Well, the rashes went away a few weeks into the treatment and are now back.  Does anyone have any insight into this? His fatigue has gone away, as well as his headaches and leg pains, but still is very moody and has lots of " ocd bad thoughts " I'm guessing it takes longer to cure the neuropsychiatric symptoms than the physical? thanks Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 He is eight. ________________________________ From: Tiffanie <tiffanies_towing@...> Sent: Wed, March 10, 2010 9:58:21 AM Subject: Re: [ ] rashes  How old is he if you dont mind me asking ? From: jchabot <jchabotsnet (DOT) net> Subject: [ ] rashes Date: Wednesday, March 10, 2010, 8:13 AM Hello, My son has been on  antibotics for 5 months now for lyme. He never had the bullseye rash. He had little sporadic patches of rashes that erupted all over his body. Well, the rashes went away a few weeks into the treatment and are now back.  Does anyone have any insight into this? His fatigue has gone away, as well as his headaches and leg pains, but still is very moody and has lots of " ocd bad thoughts " I'm guessing it takes longer to cure the neuropsychiatric symptoms than the physical? thanks Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 In terms of the neuropsych symptoms, it seems from my own experience as a LL psychotherapist and parent of two children with Lyme, that there is a waxing and waning that goes on during treatment.  So much with LD and the co-infections is unique in terms of symptoms and treatment. What is the profile for one is not likely to be the profile for another. With children we need to be cognizant of the incidence of PANDAS - Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep which essentially means that when a child contracts Strep, he or she may experience an onset or increase in neuropsychiatric symptoms. We see this often with those with Tic disorders and Tourette Syndrome, and OCD/other anxiety disorders, ADHD, etc. In my practice treating clients with Lyme, it's been my experience that often a psychiatrist needs to be part of the treatment team to assess for the appropriateness of meds and to help with the neuropsych symptoms.  Particularly with Anxiety disorders, Cognitive Behavioral Therapy may also be helpful in modifying negative, interfering thoughts and training the brain to combat such thoughts that may be troubling to the individual and/or lead to compulsions such as with OCD, or negative behaviors such as with ODD. On another note, my youngest (now 7 and in tx for 2 years with Dr. J) began Tindamax 2 days per week earlier in the year. After three weeks we saw a reemergence of the social phobia and separation anxiety which was a part of his original presentation with Lyme/Bartonella/Ehrlichia.  He also developed tremendous headaches and felt more physically ill than ever before. Dr. J advised us to stop the Tindamax feeling as though it was an allergic reaction to the med as opposed to a Herx. Nothing with Lyme is ever easy. Good luck to all of you. I enjoy reading your posts and learn a great deal from them. Kim ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Hi Kim, Yes, my son has been diagnosed with Lyme, PANDAS, OCD and Tourettes.I wish I had some answers as far as when, and if, these symptoms will go away.Or if he will have the tics and ocd thoughts forever. Hugs judy ________________________________ From: Kim <kimperrymsw@...> Sent: Wed, March 10, 2010 1:03:46 PM Subject: Re: [ ] rashes  In terms of the neuropsych symptoms, it seems from my own experience as a LL psychotherapist and parent of two children with Lyme, that there is a waxing and waning that goes on during treatment.  So much with LD and the co-infections is unique in terms of symptoms and treatment. What is the profile for one is not likely to be the profile for another. With children we need to be cognizant of the incidence of PANDAS - Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep which essentially means that when a child contracts Strep, he or she may experience an onset or increase in neuropsychiatric symptoms. We see this often with those with Tic disorders and Tourette Syndrome, and OCD/other anxiety disorders, ADHD, etc. In my practice treating clients with Lyme, it's been my experience that often a psychiatrist needs to be part of the treatment team to assess for the appropriateness of meds and to help with the neuropsych symptoms.  Particular ly with Anxiety disorders, Cognitive Behavioral Therapy may also be helpful in modifying negative, interfering thoughts and training the brain to combat such thoughts that may be troubling to the individual and/or lead to compulsions such as with OCD, or negative behaviors such as with ODD. On another note, my youngest (now 7 and in tx for 2 years with Dr. J) began Tindamax 2 days per week earlier in the year. After three weeks we saw a reemergence of the social phobia and separation anxiety which was a part of his original presentation with Lyme/Bartonella/ Ehrlichia.  He also developed tremendous headaches and felt more physically ill than ever before. Dr. J advised us to stop the Tindamax feeling as though it was an allergic reaction to the med as opposed to a Herx. Nothing with Lyme is ever easy. Good luck to all of you. I enjoy reading your posts and learn a great deal from them. Kim ____________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Welcome. This group has been great for me and I'm sure will be for you as well. My son is 12. We believe he has had Lyme/Bartonella all his life but didn't get really sick until about age 8 or 9. He was clinically diagnosed with Lyme and tested positive for Bartonella (co-infection) 1 yr ago and was doing very well until we stopped the Bartonella meds. Now he only has psyc symptoms and our LLMD says the Bartonella is fighting back with a vengeance. Good for you to pursue this for your child. I know how you feel and how hard it is to fight when others don't believe you. It's hard to ever know if you're doing the right thing but what I've been doing, and hearing, helps so I figure I must be on the right path. Trust you instincts. Anti-anxiety meds have recently saved my son! He was spiraling down and in such dispare, we started him on zoloft and anti-anx meds. It has helped get him back to deal and somewhat joke about his anxiety. I tell myself it is only temporary and this is what he NEEDS to help him get through this. The critters are in his brain and making him " not who he is " . OCD and moody behaviors could absolutely be related to the Lyme and/ or co-infections. I would suggest you look into Bartonella also. I've heard, in children esp, it presents with GI and psyc symptoms. My son is a classic case of this! I would also suggest you see a doctor who is knowledgeable in treating Lyme. I'm not real confident in Infectious Disease doctors treating Lyme. People on this site can help direct you to a doctor. Hope this helps. Best wishes. Elaine ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 HI, We do detox through our skin.......rashes can mean a sign of toxic blood.....a good probiotic is the liquid Aqua Flora phase 1 for candida.......tastes good too...most of us need detoxing with all the toxins out there....and hydration, blancing our pH, Enzymes as only raw foods have enzymes....and the right balanced minerals for starters and ELIMINATE SUGAR ENTIRELY.....it's a chemical and poison....mary In a message dated 3/15/2010 12:31:01 A.M. Mountain Daylight Time, sajeelshafiq@... writes: My 4 year old son is on GFCF diet. He has fungus in his gut. We started supplementation with Probiotic, Caprylic Acid, Buffered Calcium, Vitamin A and Co-enyme Q10 and Magnesium since last ten days. From last two days red rashes has appeared on his body and face with a lot of itching. Can anyone tell what might be the reason. is it fungal die off or something else. Sajeel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 Somewhat on a solution, to the problem with some rashes, etc. I developed a rash, around my abdomen, seemingly after taking more Vit. D, C, Cal.-Mag., Cutting my sugar intake, (and taking a bit of biotin and ALA here and there, etc.) which became aggravatingly itchy and almost vitality sapping, and I found relief rubbing it with, (drum roll please? Harrumph?) an antiseptic mouthwash. I mean, if you put it in your mouth and swallow it?!. It very much relieved the symptoms, and problem, temporarily, (but it is disappearing! as looking anything like a rash) until I have to apply it again. Two applications a day is doing it for me, though it's not actually gone, yet. It's like, under control, seriously. My daughter just yesterday was diagnosed with a yeast infection and for the heck of it I applied some of the cream she was prescribed on my rash (around my abdomen) and it worked even better, so I must be on to something? with respect to guys, too? Rather than continue to use her cream (and using up her prescription) I put my chemist hat on and added GSE to the small handful of mouthwash I was rubbing into my skin and it worked even better (!) than my first home-made improvised concoction (Yes! of the primary research!). I should patent this thing? What do you think folks? Man of justice that I am? .. . (You want to know It? I was for a short while using Gold Bond medicated powder for it (the " man's " alternative? for those wanting to ignore yeast? of that " woman's " problem? that " doctors " too often look at it as, I'd be thinkin') and I found this formulation of *mine* works every bit as good without the toxicity of a powder that you might inhale (of such deleterious consequence of as much?) and it smelled better! Gold Bond recommended discontinuing use after a week or so. How could that be a problem with mouthwash (It's " not, " as far as I'm concerned (So is not, *really,* my *writing style,* more or less, as far as I'm concerned... for what I get out of It, I mean (of what I give?!. Not all antiseptic mouthwashes are proving to be the same. I found the one with an ethanol base to be superior to one with an alcohol base. Mine also is menthol flavored, with eucalyptol and menthol as a medicinal ingredient, in it, so that might have something to do with it? Other mouthwashes didn't work nearly so well The company name for the mouthwash is Exact, found at Zehyr's grocery stores here in Canada, where I'm from. I am a cheap some-of-a-gun (of sorts?) who likes to go more " natural " (in a not so natural world?) of " value " so here's hoping this might help others in that respect, of helping each other? perhaps? (of as much? .. . I'm glad where I can help you in that respect, where there's more than meets the eye with *me,* with respect to how and what I communicate? of true communication entails as much as I do, as I Feel I Do, Thereof! (Take It or leave It? where The choice is y/ours, Thereof! of *Intelligence,* (of Justness) but what else, of Understanding More Here's hoping for Us in that respect. Glavic On as much. No socialist without *justice,* first, of the Individual/Constitutional (Thereof.. . Like there is any other *real* world, as far as I'm concerned Leader of *my* world.. (Where I wish as much for you of yours.. . ! Inspiring in a different way?!. Here's more than hoping so, I Feel as Understand. We're entering a new period folks, is my sense of It, of this.. . So I'm a bit of a rash myself? .. . (It's the professionals " also " who need as much, help, as far as I'm concerned.. . A rather lengthy post, where you would have the time, and choice, for as much, of as much? Take what you can from It, leave the rest for others? what I wish for all, of one and All, Thereof Going for It, where you wanted to know what that is, of The phenomena, as far as I'm concerned.. I don't feel I have " forever, " to say all that I understand, that I Feel needs to be said > > My 4 year old son is on GFCF diet. He has fungus in his gut. We started supplementation with Probiotic, Caprylic Acid, Buffered Calcium, Vitamin A and Co-enyme Q10 and Magnesium since last ten days. From last two days red rashes has appeared on his body and face with a lot of itching. Can anyone tell what might be the reason. is it fungal die off or something else. > > > My #4 has had ringworm on her skin. Sometimes it was caused by yeast overgrowth, and sometimes it was caused by die off of internal yeast [it was coming out thru her skin]. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 we are not using sugar from last three months. Sajeel On Mon Mar 15th, 2010 11:03 PM PKT md29again@... wrote: >HI, > >We do detox through our skin.......rashes can mean a sign of toxic >blood.....a good probiotic is the liquid Aqua Flora phase 1 for >candida.......tastes good too...most of us need detoxing with all the toxins out there....and >hydration, blancing our pH, Enzymes as only raw foods have enzymes....and >the right balanced minerals for starters and ELIMINATE SUGAR >ENTIRELY.....it's a chemical and poison....mary > > >In a message dated 3/15/2010 12:31:01 A.M. Mountain Daylight Time, >sajeelshafiq@... writes: > >My 4 year old son is on GFCF diet. He has fungus in his gut. We started >supplementation with Probiotic, Caprylic Acid, Buffered Calcium, Vitamin A >and Co-enyme Q10 and Magnesium since last ten days. From last two days red >rashes has appeared on his body and face with a lot of itching. Can anyone >tell what might be the reason. is it fungal die off or something else. > >Sajeel > > > > Quote Link to comment Share on other sites More sharing options...
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