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Kay - I'm not sure of your lymes background, but my herx's only consist of what

you've mentioned here. I don't get any aches at all. I may get some

generalized muscle aches, but for the most part, I also feel totally gagged

especially underneath my chin at the very top of my throat. My glands feel like

they're choking me and I get much more confused and lightheaded. Also

breathless so that I have to move very slowly otherwise I'll faint. The nausea

is terrible I know. And the sleeping - I wake every other hour nearly and wake

very early and have the worst nightmares and palpitations so that they wake me.

I can' say medically what's happening, but if it helps, what you're experiencing

is exactly what a herx is to me.

Vicki S, NJ

[Lyme-aid] herx?

>From: " Kay " <b10g7@...>

>

>

>

>thanks for your reply marta.

>

>the only symptoms i am having is SLEEPING, gagging feeling, nausea (a

>little), light headed, more confused than usual.

>

>if this is a herx shouldn't i be having aches in my joints?

>

>i don't know if i want to do this.

>

>i was functioning before the abx, i feel like this is not an option.

>Christmas coming, nothing done ahead and i have spent about 5 hours awake

>each of the past 3 days.

>

>i see my internist tuesday, he will treat me with whatever abx. i want. i am

>43, i have been infected for at least 25 years.

>

>i have had terrible, horrible times in my level of function, but recently i

>was doing pretty well...

>

>i am afraid, and i do mean afraid, that i will attack the little buggers and

>then not ever feel even marginally well again.

>

>sorry to ramble and moan, but i don't know what to do!

>

>health,

>kay

>

>---------------------------

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thanks vicki!

your post was so helpful. i can't tell you.

health,

kay

>>>I can' say medically what's happening, but if it helps, what you're

experiencing is exactly what a herx is to me.

Vicki S, NJ

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Hi Kay,

I know lots of Lyme victims who do not suffer pain with their disease, I

sure do envy them. Be grateful for this, I know it is hard to see it that

way when you feel so rotten. I wonder why it happens that way??? Do some

of us have better genes or something, or a stronger constitution? Presently

I am off abx, and have been for more than one month till I go for bloodwork

on Wednesday. I am having pain as I type this, the bone crushing type, and

I am on strong pain meds. It could be my cycle thing, my spirochetes may be

dying a natural death???

I do hope you feel better real soon,

Hugs,

Marta NJ

>From: " Kay " <b10g7@...>

>

>>little), light headed, more confused than usual.

>

>if this is a herx shouldn't i be having aches in my joints?

>

>i don't know if i want to do this.

>

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  • 5 weeks later...

In a message dated 12/28/99 10:53:25 PM Eastern Standard Time, tab@...

writes:

<<

ALso have been breaking out in bruises - look like have been beaten up! >>

Christie, you may have to think about looking into Hemex's testing. Berg has

mentioned that Fibromyalgia has fibrin building up at trigger points and when

it builds up in some places, the small clotting effect can show bruising. If

your doctor feels it's to address these problems, your testing should be

covered by your insurance...he just leaves out the DX for the test.

Gail

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NORMAL BOWEL FLORA

The " good " bacteria, which are killed by the use of antibiotics, are

necessary in the bowel to help with absorption of nutrients from our

food. Symptoms of lack of good bacteria in the bowel include constipation

and easy bruising. Every day, while on antibiotics, replenish the bowel

with a product that contains " good " bacteria. Do not take it at the same

time as you take your antibiotic, however. Many good products can be

found at the health food store. These contain transient bacteria; i.e.,

Lactobacillus acidophilus, Bifidobacterium, etc. and/or human strains of

acidophilus such as Kyodophilus by Kyolic and Maxidophilus by Ethical

Nutrients.

I got this off of Shasta.com, dont know if this is what is causing your

bruising

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I agree with but isn't a little red wine good for killing of some of the bad

bacteria.

LOL

steve

green1585@... wrote:

> From: green1585@...

>

> NORMAL BOWEL FLORA

> The " good " bacteria, which are killed by the use of antibiotics, are

> necessary in the bowel to help with absorption of nutrients from our

> food. Symptoms of lack of good bacteria in the bowel include constipation

> and easy bruising. Every day, while on antibiotics, replenish the bowel

> with a product that contains " good " bacteria. Do not take it at the same

> time as you take your antibiotic, however. Many good products can be

> found at the health food store. These contain transient bacteria; i.e.,

> Lactobacillus acidophilus, Bifidobacterium, etc. and/or human strains of

> acidophilus such as Kyodophilus by Kyolic and Maxidophilus by Ethical

> Nutrients.

>

> I got this off of Shasta.com, dont know if this is what is causing your

> bruising

>

> > This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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I wouldnt mind having a little wine, but the last time I drank

alcohol(just 2 beers) it felt like my nervous system was vibrating and I

was bouncing off the walls. where do you live in MO?

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yes I do -- Columbia. I find that if I a doing fairly well a little alchol

dosn't hurt-- .

Steve

where do you live?

green1585@... wrote:

> From: green1585@...

>

> I wouldnt mind having a little wine, but the last time I drank

> alcohol(just 2 beers) it felt like my nervous system was vibrating and I

> was bouncing off the walls. where do you live in MO?

>

> > This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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Hi,

I am better on ABX, but do take diflucan and nystatin now. I have always

bruised easily, but can give acidollophis another try!

Christie

green1585@... wrote:

> From: green1585@...

>

> NORMAL BOWEL FLORA

> The " good " bacteria, which are killed by the use of antibiotics, are

> necessary in the bowel to help with absorption of nutrients from our

> food. Symptoms of lack of good bacteria in the bowel include constipation

> and easy bruising. Every day, while on antibiotics, replenish the bowel

> with a product that contains " good " bacteria. Do not take it at the same

> time as you take your antibiotic, however. Many good products can be

> found at the health food store. These contain transient bacteria; i.e.,

> Lactobacillus acidophilus, Bifidobacterium, etc. and/or human strains of

> acidophilus such as Kyodophilus by Kyolic and Maxidophilus by Ethical

> Nutrients.

>

> I got this off of Shasta.com, dont know if this is what is causing your

> bruising

>

> > This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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  • 4 months later...
Guest guest

In a message dated 00-05-07 19:28:40 EDT, you write:

<< I do have a

question to anyone who will answer. I am beginning my 4tho week of doxy

and lariam. I felt pain free for the last week and a half. I am very

tired, dizzy and have a headache today that is real bad. >>

Dear nne,

I'm not a doc - just a veteran with this damned disease. LOL!

My guess is herxing. Seems to be a cyclical disease - with symptoms

" erupting " about every 30 days or so. Not familiar with Iariam at all. Doxy

has been a " staple " around here for months. Have been told that it can be

very hard on liver. Should talk to doc about adding milk thistle to

supplement regimen. Very gentle liver stimulator.

Daughter's liver was very tender upon exam, she drank a couple of cups of

milk thistle tea (cheaper & higher dose than capsules & has red clover (blood

purifier) & echanacia (immune booster) - & used the qi-gong machine & next

day, liver was no longer tender... (Have link to co that makes qi-gong

machine, or can search for teaching groups who may do free or low cost

healings for practice. If you'd like link or need help finding group, just

say the word, we'll help all we can.)

We were also told that tired, dizzy, etc. can be effect of neurotoxins being

released by dying chetes (herxheimer reaction). Seems with daughter, that

antioxidants help. As one wonderful doc explained, " antioxidants run around

& eat up toxins in body. " Makes a really big difference for daughter...

(She takes special antioxidants from holistic doc & megadoses of vitamin C

with bioflavinoids, as well as slippery elm which we've been told bonds to

toxins to help expel them from body.)

Hope this helps!

Blessings & velcro hugs,

Chris

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  • 2 years later...

Jeff,

A herx is short for Herxheimer reaction, discovered by a doctor with that

last name. It means that the body reacts when the Lyme spirochetes are being

killed off by the antibiotics, and it can be very uncomfortable, but because

you know it means the antibiotics are working, you have no choice but to

endure it. Sometimes you have to feel worse, before you can feel better,

when it comes to any type of healing, whether it be the medical route, or the

natural route. I've done both, and found that the natural route with

Sunrider Herbs and diet changes, has given me much better results than the

medical route.

Sue Rauch

Herbal Food Consultant

Sunrider International

(732) 946-2216

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  • 4 years later...
Guest guest

>I find I'm exhausted and more dizzy after just a hot bath/Epsom salt

bath, so a sauna must surely make these symptoms temporarily more

prominent, but yours seems to have lasted a long time, so it could be

that you are taking too much for your body to process at once. I also

wonder about the grapefruit juice, which I know is contraindicated

with several drugs and supplements.

Perhaps while you're on these treatments you should uuse the sauna for

a shorter time; I've read a view that the most useful sweating takes

place in the early part of a sauna session anyway.

Best Wishes,

Carolyn

> I had been prescribed Flagyl & Minocycline, and I took Raintree Cat's

> Claw, plus Stephania Root and Smilax and Japanese Knotweed (all 3 from

> 1st Chinese Herbs, encapsulated myself) and Planetary Herbs Andrographis

> along with the Metronidazole (Flagyl) and Minocycline... and what caused

> me a problem maybe had to do with taking a big dose of vitamin C with

> diluted grapefruit juice before I got in a FIR sauna for an hour. When

> I got out of the sauna, I had vertigo/dizziness so bad I had to lay in

> bed all evening, could not eat, and missed work because I had to lay in

> bed all the next day. I'm still working full time because whatever Lyme

> like bug I have is not affecting me as bad as a lot of other people in

> my Lyme support group. I wonder if this was a herx...was I killing bugs

> more effectively due to the combination of herbs & pharmaceuticals? did

> the sauna increase absorption from the gut and distribution of all

> agents throughout my body? I have to be more careful in the future

> because I have to keep working to pay my doctors. :( But has anyone else

> had vertigo like symptoms and been taking anything similar? I quit the

> herbs for now and will slowly add them back, but I noticed that I got a

> little dizzy after taking saunas this weekend being on only the Flagyl &

> Minocycline. So, the sauna is having some effect synergistically with

> the things I take orally, I believe.

> Jan

>

>

>

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  • 2 years later...
Guest guest

>

> I have late neuro lyme and have been on oral antibiotics for 6 months and IV

clindamyacin for 3, a month ago my LLMD switched me from doxy to zithromax, and

said he hoped I would herx really bad so we would know it is getting really deep

and killing the bugs. Well, I dont know if I am herxing or if being off the doxy

made me have a huge flare up, but I am as bad as I was a year and a half ago

when I first got hit with lyme, I am so faint and dizzy and brain stuff and just

really really sick, not even able to barely walk, it is so bad. Does anyone

know, is this probably a herx or the zithro not working and the lyme is back

with a vengeance?? I honestly feel like I am dying, through the whole treatment

I haven't felt this bad, I was actually about 50 percent better, now back to

square one???

> Thank you in advance

> Bridget

>

Bridget... I think that you are having a Herx reaction. My doctor added

Zithromax to my IV Ceftriaxone and I had a similar reaction as you are

describing. My brain got all fritzy again, seemed like I was worse again, but

in a few days I felt better than I did.

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Guest guest

>

> I have late neuro lyme and have been on oral antibiotics for 6 months and IV

clindamyacin for 3, a month ago my LLMD switched me from doxy to zithromax, and

said he hoped I would herx really bad so we would know it is getting really deep

and killing the bugs. Well, I dont know if I am herxing or if being off the doxy

made me have a huge flare up, but I am as bad as I was a year and a half ago

when I first got hit with lyme, I am so faint and dizzy and brain stuff and just

really really sick, not even able to barely walk, it is so bad. Does anyone

know, is this probably a herx or the zithro not working and the lyme is back

with a vengeance?? I honestly feel like I am dying, through the whole treatment

I haven't felt this bad, I was actually about 50 percent better, now back to

square one???

> Thank you in advance

> Bridget

>

Bridget... I think that you are having a Herx reaction. My doctor added

Zithromax to my IV Ceftriaxone and I had a similar reaction as you are

describing. My brain got all fritzy again, seemed like I was worse again, but

in a few days I felt better than I did.

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Guest guest

Yep. That''s what a herx feels like. Really horrid. And Zithro hits Lyme much

harder than Doxy does, so this is a good sign that it's working.

However: I'm recently aware that there's a growing subset of patients who are

nursing the sneaking suspicion that heavy herxes may be damaging over the long

haul -- that they create biochemical imbalances that can create permanent

autoimmune and neurological problems of their own. I'm thinking I may actually

be in this camp myself. Some doctors think that the worse the herx is, the

better the healing; some of us are not so sure.

While any new drug that's being effective can cause a few days or even weeks of

strong herx, there are also people who've had good recovery without any real

experience of herx. So it's not required that you go through this in order to

heal. And, in fact, it may be better for you physically if you can moderate the

effect with the herx helpers we discuss here.

If it gets really unbearable in spite of good self-care, check with your doc

about his feelings about either moderating your dosages, or giving yourself a

day or three off the drugs so you can find your balance again. Mine is very cool

with this if I'm otherwise staying on schedule with the meds. Some docs actually

prefer to pulse the drugs -- a week on, a couple days off, or some other rhythm

depending on the infection and drug being used.

Now you know why the herx helpers matter. If the slammed feeling doesn't start

to lift in two weeks, check in with your doc.

Sara

On Apr 25, 2010, at 9:51 34AM, bridget wrote:

> I have late neuro lyme and have been on oral antibiotics for 6 months and IV

clindamyacin for 3, a month ago my LLMD switched me from doxy to zithromax, and

said he hoped I would herx really bad so we would know it is getting really deep

and killing the bugs. Well, I dont know if I am herxing or if being off the doxy

made me have a huge flare up, but I am as bad as I was a year and a half ago

when I first got hit with lyme, I am so faint and dizzy and brain stuff and just

really really sick, not even able to barely walk, it is so bad. Does anyone

know, is this probably a herx or the zithro not working and the lyme is back

with a vengeance?? I honestly feel like I am dying, through the whole treatment

I haven't felt this bad, I was actually about 50 percent better, now back to

square one???

> Thank you in advance

> Bridget

>

>

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

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Guest guest

Yep. That''s what a herx feels like. Really horrid. And Zithro hits Lyme much

harder than Doxy does, so this is a good sign that it's working.

However: I'm recently aware that there's a growing subset of patients who are

nursing the sneaking suspicion that heavy herxes may be damaging over the long

haul -- that they create biochemical imbalances that can create permanent

autoimmune and neurological problems of their own. I'm thinking I may actually

be in this camp myself. Some doctors think that the worse the herx is, the

better the healing; some of us are not so sure.

While any new drug that's being effective can cause a few days or even weeks of

strong herx, there are also people who've had good recovery without any real

experience of herx. So it's not required that you go through this in order to

heal. And, in fact, it may be better for you physically if you can moderate the

effect with the herx helpers we discuss here.

If it gets really unbearable in spite of good self-care, check with your doc

about his feelings about either moderating your dosages, or giving yourself a

day or three off the drugs so you can find your balance again. Mine is very cool

with this if I'm otherwise staying on schedule with the meds. Some docs actually

prefer to pulse the drugs -- a week on, a couple days off, or some other rhythm

depending on the infection and drug being used.

Now you know why the herx helpers matter. If the slammed feeling doesn't start

to lift in two weeks, check in with your doc.

Sara

On Apr 25, 2010, at 9:51 34AM, bridget wrote:

> I have late neuro lyme and have been on oral antibiotics for 6 months and IV

clindamyacin for 3, a month ago my LLMD switched me from doxy to zithromax, and

said he hoped I would herx really bad so we would know it is getting really deep

and killing the bugs. Well, I dont know if I am herxing or if being off the doxy

made me have a huge flare up, but I am as bad as I was a year and a half ago

when I first got hit with lyme, I am so faint and dizzy and brain stuff and just

really really sick, not even able to barely walk, it is so bad. Does anyone

know, is this probably a herx or the zithro not working and the lyme is back

with a vengeance?? I honestly feel like I am dying, through the whole treatment

I haven't felt this bad, I was actually about 50 percent better, now back to

square one???

> Thank you in advance

> Bridget

>

>

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

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Guest guest

I don't know you but you sound like me the same problems to a T and then some .

I don't know how long I've had this stuff years I know that much but Honey you

don't make me feel down . I wish I could help you more but I've been and I'm

still there if they catch this stuff early its like anything else I tested

positive for 3 kinds of tick fever so I can hope they can help me and hope they

can help others but I sometimes wonder if that is what they are after ?????

>

> For a couple of weeks now, I have felt pretty good. A few minor

> aches and pains in the knees and ankles but otherwise good. But now,

> I am experiencing pain in my legs again. Sometimes I am not sure if

> I am going to make it to my destination. My legs start feeling really

> weak and it takes me awhile to get going. At work, there are a flight

> of about 17-20 steps and the first few are so easy, but then after that,

> I feel like an old person trying to get up the stairs to the main

> office. Was this a herx?

>

> My doctor wants me to come back on December 8th and have blood drawn

> to find out if the Doxycycline that was prescribed to me has killed

> all the bacteria. I have an HMO for my insurance and so I need

> referrals if I want to see an Infectious Disease Doctor or get other

> special help. I don't know where to turn or how to feel anymore. I

> just feel like no one gives a crap that I have this disease. Its like

> give them medicine and that will help for awhile. I feel that I would

> like to have a cane with me at all times just in case I am not able

> to hold up on my own. I suppose I will have to ask for that too, just

> so I won't have to pay an arm and leg for one.

>

> Sorry for bringing everyone down.

>

> Anne

>

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Guest guest

I don't know you but you sound like me the same problems to a T and then some .

I don't know how long I've had this stuff years I know that much but Honey you

don't make me feel down . I wish I could help you more but I've been and I'm

still there if they catch this stuff early its like anything else I tested

positive for 3 kinds of tick fever so I can hope they can help me and hope they

can help others but I sometimes wonder if that is what they are after ?????

>

> For a couple of weeks now, I have felt pretty good. A few minor

> aches and pains in the knees and ankles but otherwise good. But now,

> I am experiencing pain in my legs again. Sometimes I am not sure if

> I am going to make it to my destination. My legs start feeling really

> weak and it takes me awhile to get going. At work, there are a flight

> of about 17-20 steps and the first few are so easy, but then after that,

> I feel like an old person trying to get up the stairs to the main

> office. Was this a herx?

>

> My doctor wants me to come back on December 8th and have blood drawn

> to find out if the Doxycycline that was prescribed to me has killed

> all the bacteria. I have an HMO for my insurance and so I need

> referrals if I want to see an Infectious Disease Doctor or get other

> special help. I don't know where to turn or how to feel anymore. I

> just feel like no one gives a crap that I have this disease. Its like

> give them medicine and that will help for awhile. I feel that I would

> like to have a cane with me at all times just in case I am not able

> to hold up on my own. I suppose I will have to ask for that too, just

> so I won't have to pay an arm and leg for one.

>

> Sorry for bringing everyone down.

>

> Anne

>

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  • 7 months later...

I understand that herxing occurs after the start of a new medication but has

anyone ever experienced a herx after stopping just a few meds while still on

some others?

Elaine

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Hi Judy, prior to the month long flu, how has that combination been working for

your son?  Were you targeting bartonella?

Thanks,

michelle

________________________________

From: jchabot <jchabot@...>

Sent: Wed, December 1, 2010 5:50:42 PM

Subject: Re: [ ] Herx?

 

My son(9) has been on rifampin and zith for 14 months.

 We had to stop the zith for a few days because he had the 24 hour stomach

flu

that was going around, and the zith is so rough on the stomach. His pediatrician

suggested we stop it for a few days.

 His 24 hr bug  turned into a month long flu. He was having vomitting and

nausea, headache, intermittent rashes, and horrific ocd and separation anxiety,

that have still not let up .

I'm sorry you are going through this as well!!!

Judy

________________________________

From: ecckwalk <ecckwalk@...>

Sent: Wed, December 1, 2010 8:04:30 PM

Subject: [ ] Herx?

 

I understand that herxing occurs after the start of a new medication but has

anyone ever experienced a herx after stopping just a few meds while still on

some others?

Elaine

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Hi ,

My son only has lyme.

The combo has been working for all his physical symptoms, but he really has not

had any relief from the mental symptoms.

take care

Judy

________________________________

From: / <win6060@...>

Sent: Wed, December 1, 2010 8:55:50 PM

Subject: Re: [ ] Herx?

 

Hi Judy, prior to the month long flu, how has that combination been working for

your son?  Were you targeting bartonella?

Thanks,

michelle

________________________________

From: jchabot <jchabot@...>

Sent: Wed, December 1, 2010 5:50:42 PM

Subject: Re: [ ] Herx?

 

My son(9) has been on rifampin and zith for 14 months.

 We had to stop the zith for a few days because he had the 24 hour stomach

flu

that was going around, and the zith is so rough on the stomach. His pediatrician

suggested we stop it for a few days.

 His 24 hr bug  turned into a month long flu. He was having vomitting and

nausea, headache, intermittent rashes, and horrific ocd and separation anxiety,

that have still not let up .

I'm sorry you are going through this as well!!!

Judy

________________________________

From: ecckwalk <ecckwalk@...>

Sent: Wed, December 1, 2010 8:04:30 PM

Subject: [ ] Herx?

 

I understand that herxing occurs after the start of a new medication but has

anyone ever experienced a herx after stopping just a few meds while still on

some others?

Elaine

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Thanks Judy.  I'm sorry for you and your son too.  When my son (12 then) went

off Rifampin, w/in 3-4 days he spiraled-- mostly the psyc/anxiety issues.  It

was awful!   And relapses are much worse to come out of.

I think it took almost 7 mths before he was back up to where he was.

take care,

Elaine

________________________________

From: jchabot <jchabot@...>

Sent: Wed, December 1, 2010 5:50:42 PM

Subject: Re: [ ] Herx?

 

My son(9) has been on rifampin and zith for 14 months.

 We had to stop the zith for a few days because he had the 24 hour stomach

flu

that was going around, and the zith is so rough on the stomach. His pediatrician

suggested we stop it for a few days.

 His 24 hr bug  turned into a month long flu. He was having vomitting and

nausea, headache, intermittent rashes, and horrific ocd and separation anxiety,

that have still not let up .

I'm sorry you are going through this as well!!!

Judy

________________________________

From: ecckwalk <ecckwalk@...>

Sent: Wed, December 1, 2010 8:04:30 PM

Subject: [ ] Herx?

 

I understand that herxing occurs after the start of a new medication but has

anyone ever experienced a herx after stopping just a few meds while still on

some others?

Elaine

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Every time my son got a flu, something else changed in his body and he had a new

symptoms. So like one time he had the flu, he developed tachycardia, another

time his stomach stopped working, and another time his personality changed

completely. It was explained that the flu weakened the immune system and allowed

the buggers to move forward and be more destructive. We assumed it was babesia

that made him homebound in April. It was like having the bad flu for months.

Once in treatment, it slowly got better. Oh, and Nate has two viruses we think

were impacting his health. He has been taking an antiviral for 4 months. I often

wonder if that is what helped. We are treating the mycoplasms, too.

So is it a flu, or the new face of Lyme in his body?

Kari

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