Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Hi I just wanted to share our good day, and ask a question. For the first time in months my daughter left the house today (apart from trips to the hospital). We went to the comic book store & she was THRILLED to be doing something " normal " (the comic book store has parking right outside and a wheelchair entrance, making it easy to get there). She was paralysed and couldn't swallow & was having trouble breathing & speaking 2 months ago, now on Rocephin IV she's made a huge recovery. She's had LD 16 years (congential from me), but got a lot worse from tick bites in 2007 & 2008 in Sydney, Australia. We've just come back after 12 months in the US for treatment, & she had to stop her oral abx due to complications, and she rapidly declined - but is now on the mend (the main problem was finding a Dr in Australia who would treat her for LD on the instructions of Dr H from Hyde Park NY - but we've found someone - who knows nothing of LD, but is willing to learn & follow advice from Dr H). I knew all you mums & dad's would know the thrill that having a good day brings - they are so infrequent at the moment that they are something to be cherished and celebrated. On to my question.... How long have people been on IV Rocephin (Ceftriaxone)?? The Aussie Dr was talking about a few weeks, maybe a month, maybe up to 3 months. It seems from this that people have been on IV treatment for MUCH longer, so I was interested to know about that. If you were on for longer periods did you do it by PICC, or by Hickman's port, or something similar?? Thanks so much - it is great to be able to share. Cheers Nikki (together we can fight Lyme Disease & WIN) Quote Link to comment Share on other sites More sharing options...
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