Re: What meds are your kids on for BART with Lyme?

[Guest guest]

My son has been treated for almost 2 yrs now.  He recently started a tincture

called Bar-1 (Bartonella).  Combinations he has taken: Rifampin (for almost the

whole time), Tindamax, Cipro, Suprax, Azith, Alinia, Doxy, Septra, Plaqunil,

Rizol My (tincture), Doryx.  He is also on Zoloft and Busbar for the Bart

anxiety.  I agree, the Bart seems to be the toughest to kick.

Best wishes,

Elaine

[Guest guest]

My daughter did well on Cipro and Bactrim. She was on it for 4 years and

the many different stripes went away and symptoms improved. She then

went to IV Doxycycline for a year and a half and then oral zithromax.

She has been on just oral zithro for the past few years and we have been

concerned for the past year that the bartonella may be back. The stripes

are still gone, but GI issues have returned and lab titers are higher

than before. They do not keep going up but bounce from 1:64 up to 1:256.

There are slight stripes back on her back but they fade to nothing. Dr.

J thought a trial of zitho and cipro was a good one to try again. He

thought of minocycline first but as cipro worked before, he went with that.

Good Luck. I wish there was a clear way to tell if the Bartonella was

really gone or back again...

Z

[Guest guest]

My Son took Bactrim + Zithro for 5 months. At month 5, he tested

negative for bart. He is now on minocycline plus Omnicef (for Lyme) and

is doing well. The Zithro was terrible on his stomach. He sees Dr. J.

--Sue

[Guest guest]

Do the Bart stripes get more pronounced after a shower or hot bath?  I have

interesting fan-shaped stripes on my back after showering.  They start in the

center of my lower back and fan out like a peacock tail.  They gradually fade

in

about an hr.  I don't think they're scratch marks.

________________________________

 

[Guest guest]

yes, they can.

________________________________

From: <ecckwalk@...>

Sent: Tue, August 3, 2010 10:27:06 AM

Subject: Re: [ ] What meds are your kids on for BART with Lyme?

Do the Bart stripes get more pronounced after a shower or hot bath? I have

interesting fan-shaped stripes on my back after showering. They start in the

center of my lower back and fan out like a peacock tail. They gradually fade in

about an hr. I don't think they're scratch marks.

________________________________

[Guest guest]

Our daughter took Mino and Rifampin for the bart for about 10 months. Her Bart

marks are gone, but still has symptoms-urine frequency, anxiety, just occasional

headaches. Took low dose Cipro but had to stop due to increased anxiety, weird

head, etc.

Bactrim-- again had to stop after one month as made anxiety to hard to tolerate,

headaches, lightheaded.

Her titers do not drop only increase. Anxiety, nervous, anxious seem to be her

worse symptoms at the present.

>

> My daughter did well on Cipro and Bactrim. She was on it for 4 years and

> the many different stripes went away and symptoms improved. She then

> went to IV Doxycycline for a year and a half and then oral zithromax.

> She has been on just oral zithro for the past few years and we have been

> concerned for the past year that the bartonella may be back. The stripes

> are still gone, but GI issues have returned and lab titers are higher

> than before. They do not keep going up but bounce from 1:64 up to 1:256.

> There are slight stripes back on her back but they fade to nothing. Dr.

> J thought a trial of zitho and cipro was a good one to try again. He

> thought of minocycline first but as cipro worked before, he went with that.

>

> Good Luck. I wish there was a clear way to tell if the Bartonella was

> really gone or back again...

>

> Z

>

[Guest guest]

My son (then...17 mos about) took rifampin with amoxicillin for a month, I

believe. He had already been treated for Lyme and taken off abx when his bart

test came back +. He has since tested negative for everything and is currently

asymptomatic. We were lucky though, and started treatment almost immediately.

>

> I am just curious of the different combos that everybody's using. My kids

have been treated for a coulple of years now, but the Bart remains strong!!!

>

>

>