Patient-oriented Lyme research

August 28, 2010

Do you know that most scientific research about Lyme disease in the US relates

to vaccine development? Very little is done to try to cure the folks who already

have Lyme. Scientists who want to do patient-oriented research find it difficult

to get funding.

That's why the California Lyme Disease Association partners with other patients

groups to fund the kind of research patients need. That's why we are devoting

our 2010 CALDA Lymewalks to raising money for Lyme research.

You can help us, even if you can't come to the walks in person. You can make a

fundraising page at our website (free, and easy to do) and email the link to

people you know, telling them why raising money for Lyme research is so

important to you. They, in turn, can make a secure, on-line, tax-deductible

donation to CALDA's research fund. All proceeds from the Lymewalks will go to

patient-oriented research.

To learn more about how you can be involved, please go to:

http://www.lymedisease.org/activism/lyme_events.html

September 8, 2010

There used to be a vaccine:

" The vaccine for Lyme disease is no longer available. It was discontinued by the

manufacturer in 2002, citing low demand. "

http://www.cdc.gov/vaccines/vpd-vac/lyme/default.htm

Lyme is an epidemic that the medical communities ignore. Some day someone will

finally decide it's worth the money to research only after someone one

" important " comes down with it. what a joke......

>

> Do you know that most scientific research about Lyme disease in the US relates

to vaccine development? Very little is done to try to cure the folks who already

have Lyme. Scientists who want to do patient-oriented research find it difficult

to get funding.

September 8, 2010

There used to be a vaccine:

" The vaccine for Lyme disease is no longer available. It was discontinued by the

manufacturer in 2002, citing low demand. "

http://www.cdc.gov/vaccines/vpd-vac/lyme/default.htm

Lyme is an epidemic that the medical communities ignore. Some day someone will

finally decide it's worth the money to research only after someone one

" important " comes down with it. what a joke......

>

> Do you know that most scientific research about Lyme disease in the US relates

to vaccine development? Very little is done to try to cure the folks who already

have Lyme. Scientists who want to do patient-oriented research find it difficult

to get funding.

September 9, 2010

The vaccine was deeply flawed, and made a lot of people very sick. That's why

demand went down -- it was viewed as too dangerous to take -- and it was finally

taken off the market. (Lawsuits had something to do with it, too.)

I think that experience spooked the pharmcos out of trying that again any time

soon, which is why there hasn't been a lot of movement on this since.

But the legacy of this experiment is that the two most accurate proteins you can

use in testing for Lyme were taken out of the Western Blot. They had to do this,

because the vaccine was built on those proteins, so anybody who got the shot

would turn up positive on the test. However, the vaccine has been off the market

for eight years now, and these two proteins (OSP A and have never been put

back into the test.

And this is, quite precisely, why the Lyme tests are so flawed. They can make

far better ones, but they won't put those proteins back into the test as long as

there's the barest hope of ever getting a vaccine out there again. In the

meantime, we're stuck with deliberately crippled tests that miss a huge number

of cases.

Igenex does test for OSP A and B, which is why we trust their tests to be far

more accurate.

Sara

On Sep 7, 2010, at 4:06 03PM, turner146 wrote:

> There used to be a vaccine:

>

> " The vaccine for Lyme disease is no longer available. It was discontinued by

the manufacturer in 2002, citing low demand. "

> http://www.cdc.gov/vaccines/vpd-vac/lyme/default.htm

>

> Lyme is an epidemic that the medical communities ignore. Some day someone will

finally decide it's worth the money to research only after someone one

" important " comes down with it. what a joke......

>

>>

>> Do you know that most scientific research about Lyme disease in the US

relates to vaccine development? Very little is done to try to cure the folks who

already have Lyme. Scientists who want to do patient-oriented research find it

difficult to get funding.

>

> ------------------------------------

>

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>

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>

September 9, 2010