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Hi! I'm new to this group so I thought I'd just say hello. My name is

and my 16 year old daughter, , has lyme disease. She was

diagnosed in September of 2006 based on 29 symptoms she was showing at

the time. We live in Maine and, because the ELILSA came back negative,

we were unable to have a WEstern Blot done. She was being treated in

Boston by Dr. Sam Donta until recently and now, will be treated by Dr.

Jomes out of Connecticut.

still has most of the classic lyme symptoms and , recently has

been showing alot of the symptoms for Bartonella. She's missed most of

the last 2 years of school and has lost most of her friends due to this

illness. It's a brutal disease to young people. I would love to hear

from parents of teenagers especially since I am at a total losss for

how to deal with alot of the neurological issues involved. Some days

are just too tough to face even though we do time and again.

How do you guys deal with the day to day issues from the medical and

lay community regarding this??? has begun to feel like a " freak "

outside her own home and, with the school year approaching, the stress

is really getting to us all....Anyone have any suggestions?

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