I got my daughter back!- thanks to blood thinners

[Guest guest]

Hi All -

Recently my daughter got a blood clot from a failed midline and we had to do 5

weeks of Lovenox injections. She is 9 years old and has Lyme and Bartonella. Her

symptoms are all neurologically and psychologically based - motor, vocal tics,

anger, hostility, aggression, rage, anxiety, ocd, volatility etc. Prior to the

blood clot, she was raging out of the control and we were attempting to put in a

midline to treat with Rocephin intravenously. We were also getting ready to

treat with major psychotropic drugs.

One week into the injections, all of my daughters symptoms subsided. She has

been symptom free since February 3rd. There is no more hostility, anger,

aggression - nothing. For two years, we tried every antibiotic you can imagine -

IVIG, midlines, all of it. And amazingly it took Lovenox to relieve her

symptoms. Based on the limited research I have done, I now understand that she

has coagulation issues and that is why she has not gotten better in the past.

She has not had a Lovenox shot since March 3 and I am told that the Lovenox will

ware off in 5-6 weeks. I am fearful that all of her symptoms will come back at

that time.

So my questions to all of you are:

If you have coagulation issues and use blood thinners, how often do you have to

use the blood thinners?

Can you stay on the Blood Thinners for an extended period of time?

What do the blood thinners do as it relates to Lyme?

Do you have a doctor that you use who prescribes blood thinners? If so, can you

pass on their contact info?

Can you provide any additional research about Coagulation and Lyme?

Are they injections? If not, what do you use?

What blood tests did you run to find out that you had coagulation issues?

Any information that you can pass on is greatly appreciated.

I feel blessed that I have finally figured out a HUGE piece of the puzzle and

know how to heal my daughter. Now, I just need to find a way to continue to give

her blood thinners.

Thanks,