Re: Medical Coverage - Glass Wolfe

December 6, 2006

Is the " DSS office " a local town office, or an office of your state government?

If it is local, and the Tefra program is not a state program, I would search out

what programs your state offers (some do). Contacting the drug company is a very

good idea, like you are thinking.

Don

Boston

glass_wolfe <nancy@...> wrote:

Any one out there having the same problem as my daughter?

At the age of 9 she was diagnosed with psoritiac arthritis.

Because of my income at the time she did not qualify for Medicade but

she did however qualify for a program called TEFRA which is based on

the same things as Medicade. All her meds and Dr.'s visits were covered.

At the age of 19 she will no longer qualify which will be on Dec.

23rd, 2006. I went to the DSS office in my town to get her new

coverage as an adult only to be told that she would not qualify for

it. She has to be deemed disabled by Social Security to get any help

with her meds and Dr. bills. So... we fill out the paper work only to

be turned down by S.S. which was no surprise to us really. She is a

full time college student and a part time worker. Because of the

Methotrexate and the Enbrel she is taking once a week she is able to

funtion and work and go to school. But the cost of the Enbrel is a

little more than $400.00 a week and with no help from our government

her meds will soon have to be stopped, as no one I know could afford

that kind of weekly meds. bill.

We were basicly told that she needs to quit working, and if she no

longer has her meds then she might be deemed disabled.

What can we do to get her coverage she needs without stopping her meds??

We are in the process of trying to get in touch with the makers of

Enbrel to see if maybe they would give the medicine free of charge? (

Wish us luck!)

Is there anyone out there that knows of other programs that would be

able to help a young woman that is trying to help herself? She just

wants to work and funtion like any other 19 year old.

Thank you.

Glass_wolfe

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