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Hi Joan,

        I too am always interested to find out what other people do to cope with

this disease. Being able to cope is huge for me because I have been unable to

make the adjustments and don't know how to cope. The few changes I have made are

of course no alcohol; lots of fruits, veggies and whole grains. Aside from the

small dietary changes I am completely lost and have almost no quality of life to

speak of.

Lori in AZ

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The biggest thing I've found is that I have to pace myself. If I'm having a

good day instead of going gung ho on cleaning and catching up on things I take

it nice and slow just like I do on bad days. If I don't it catches up with me

the next couple of days and knocks me on my ass.

It seems there is no predicting when I'll feel good or bad. Surprisingly

yesterday I felt really good I took minimal pain medication and spent the day

doing very little. No overworking at all, then today all heck broke loose. No

matter what I do I hurt and feel like I got run over by a truck.

Celeste

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