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Horrible vertigo again has me down....and both Evan and I have a neurosurgical

consult for Chiari ( we may need skull decompression surgery) this Mon and

Tuesday. I have been taking Knotweed/resveratrol and Sarsaparilla for about?2

months? at the 3-5 tabs/caps per day ( divided into 2-3 doses) stage. This in

addition to minocycline suspended almond oil and suprax.

The question is : should I need surgery ,are these to be stopped and for how

long?? The Drs have no clue about the herbs.

IF any of you need to,to ask Buhner or another more experienced at this,or to

post this elsewhere,?please do so on my behalf.

Evan had to stop all Buhner herbs and has been taking Bromelain, quercetin for

inflammation along with high dosed Suprax...any info re: these supps having to

be stopped also appreciated!!

I have had to resort to asking a few neighbors who stop by to type these emails

and for my kids when around to print off and/or read to me...so PLEASE answer

via my email at finrussak@... because there is no way I can get others to

scroll through websites/postings on boards.( and if you post on my behalf,

please alert those answering to use my email as well for responses!!!!)

thanks as always ( and a good thought or prayer for us both getting through the

3-4 hour trip to Manhasset, NY and 2 grueling days of evaluations and testing

would be very welcome!!)

Finette

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Hi Finette,

Please know that you both are very much in our family prayers. We will keep you

in our thoughts in this and every day.

Peace and good health to you,

, Tucker, Cole, Haeden

[ ] urgent answers needed please

Horrible vertigo again has me down....and both Evan and I have a neurosurgical

consult for Chiari ( we may need skull decompression surgery) this Mon and

Tuesday. I have been taking Knotweed/resveratrol and Sarsaparilla for about?2

months? at the 3-5 tabs/caps per day ( divided into 2-3 doses) stage. This in

addition to minocycline suspended almond oil and suprax.

The question is : should I need surgery ,are these to be stopped and for how

long?? The Drs have no clue about the herbs.

IF any of you need to,to ask Buhner or another more experienced at this,or to

post this elsewhere,?please do so on my behalf.

Evan had to stop all Buhner herbs and has been taking Bromelain, quercetin for

inflammation along with high dosed Suprax...any info re: these supps having to

be stopped also appreciated!!

I have had to resort to asking a few neighbors who stop by to type these

emails and for my kids when around to print off and/or read to me...so PLEASE

answer via my email at finrussak@... because there is no way I can get

others to scroll through websites/postings on boards.( and if you post on my

behalf, please alert those answering to use my email as well for responses!!!!)

thanks as always ( and a good thought or prayer for us both getting through

the 3-4 hour trip to Manhasset, NY and 2 grueling days of evaluations and

testing would be very welcome!!)

Finette

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  • 2 weeks later...

Hello,

I'm a newly joined member with a request from Fin.

I talked to her today and she asked me to put out feelers for anything

known about a Dr.Max DeShaw in town NJ.

She has heard that he might be " Lyme friendly " even though he's an

Infectious Disease doc, who are normally not Lyme friendly.

If you prefer to email me privately, my email address is cave76g@...

She is still 'hanging in there' after a stressful visit (her and her

son) to doctors who have dx'd Chiari malformation. Her son's case is

not as serious as her's and the docs there said that treating Lyme

aggressively might reduce his problems by reducing the

inflammation/pressure.

Fin's story is not as simple. She will be using me as a go-between for

any messages people here may have for her. She's unable to sit at the

computer except for very brief periods---- almost none.

So---- any information about the doctor is appreciated.

Thank you.

>

>

>

>

> Horrible vertigo again has me down....and both Evan and I have a

neurosurgical consult for Chiari ( we may need skull decompression

surgery) this Mon and Tuesday. I have been taking Knotweed/resveratrol

and Sarsaparilla for about?2 months? at the 3-5 tabs/caps per day (

divided into 2-3 doses) stage. This in addition to minocycline

suspended almond oil and suprax.

>

> The question is : should I need surgery ,are these to be stopped and

for how long?? The Drs have no clue about the herbs.

>

> IF any of you need to,to ask Buhner or another more experienced at

this,or to post this elsewhere,?please do so on my behalf.

>

> Evan had to stop all Buhner herbs and has been taking Bromelain,

quercetin for inflammation along with high dosed Suprax...any info re:

these supps having to be stopped also appreciated!!

>

> I have had to resort to asking a few neighbors who stop by to type

these emails and for my kids when around to print off and/or read to

me...so PLEASE answer via my email at finrussak@... because there is

no way I can get others to scroll through websites/postings on

boards.( and if you post on my behalf, please alert those answering to

use my email as well for responses!!!!)

>

> thanks as always ( and a good thought or prayer for us both getting

through the 3-4 hour trip to Manhasset, NY and 2 grueling days of

evaluations and testing would be very welcome!!)

>

> Finette

>

>

>

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