Fw: Response from the bioethics commission....another waste of taxpayer money

[Guest guest]

From: OS Info, Bioethics (Bioethics) <Info@...>

Subject: RE:

" janet fitzgerald " <janetbfitzgerald@...>

Date: Thursday, 10 March, 2011, 15:36

 

 

From: janet fitzgerald [mailto:janetbfitzgerald@...]

Sent: Tuesday, March 01, 2011 7:24 AM

OS Info, Bioethics (Bioethics)

Subject:

 

It is a crime the way long term chronic Lyme patients are made to suffer without

medical treatment of any kind.  Because of unreliable tests patients are often

miss-diagnosed or have their diagnoses delayed, which means that the standard

course of antibiotics is not effective.  Country the world over dutifully follow

the IDSA guidelines which fail to address chronic Lyme.  This is a scandal. 

Patent's are condemned to a life of pain.  They can no longer participate in

their lives the way they did before the disease. 

I was infected with Lyme in 2007, in Ireland.  I was not diagnosed until a year

and a half later.  I got a month of Doxycycline.  Too little.  Too late.

I suffer with pain every day of my life now, since doctors in Ireland failed to

diagnose me in time for effective treatment.  My early Lyme test came back

negative, because it was taken early and I had not yet developed antibodies. 

Doctors did not re-test, instead they spent a year and a half investigating me

for MS and Lupus.  Then finally a doctor requested a new test.  It was a roaring

positive.  But the little treatment I got from disease specialists in Ireland

has not been effective.

Please do something to help those of us who, through no fault of our own, suffer

from chronic Lyme.

 

Janet Fitzgerald

Ireland

 

[Guest guest]

From: OS Info, Bioethics (Bioethics) <Info@...>

Subject: RE:

" janet fitzgerald " <janetbfitzgerald@...>

Date: Thursday, 10 March, 2011, 15:36

 

 

From: janet fitzgerald [mailto:janetbfitzgerald@...]

Sent: Tuesday, March 01, 2011 7:24 AM

OS Info, Bioethics (Bioethics)

Subject:

 

It is a crime the way long term chronic Lyme patients are made to suffer without

medical treatment of any kind.  Because of unreliable tests patients are often

miss-diagnosed or have their diagnoses delayed, which means that the standard

course of antibiotics is not effective.  Country the world over dutifully follow

the IDSA guidelines which fail to address chronic Lyme.  This is a scandal. 

Patent's are condemned to a life of pain.  They can no longer participate in

their lives the way they did before the disease. 

I was infected with Lyme in 2007, in Ireland.  I was not diagnosed until a year

and a half later.  I got a month of Doxycycline.  Too little.  Too late.

I suffer with pain every day of my life now, since doctors in Ireland failed to

diagnose me in time for effective treatment.  My early Lyme test came back

negative, because it was taken early and I had not yet developed antibodies. 

Doctors did not re-test, instead they spent a year and a half investigating me

for MS and Lupus.  Then finally a doctor requested a new test.  It was a roaring

positive.  But the little treatment I got from disease specialists in Ireland

has not been effective.

Please do something to help those of us who, through no fault of our own, suffer

from chronic Lyme.

 

Janet Fitzgerald

Ireland