Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 asked:> > Has anyone here had experience with Remicade? Hi . I have been on remicade for 2 or 3 years.. lost track. I get 500 mg every 8 weeks by infusion. It seems to help a lot. I used to have problems with slow wound healing at first. The infusion needle marks were usually still there at the next treatment time. They always watch my blood pressure carefully. One time it went up to 180 over something for a while. they are also watching my liver enzymes. They are higher than they should be but they are stable so we are ok for now---- My joints are pretty stable at this point though I'm really late in getting my meds as I've been away from home. Based on my experience I do recommend remmy-- of course different things work better for certaini people. He was going to put me on humira but said why when the remmy was working so well. Any other questions.. pleae don't hesitate to ask. Liz ~~~~~~ " Happiness comes of the capacity to feel deeply, to enjoy simply, to think freely, to risk life, and to be needed. " **Storm on** ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ EMAIL: juliette@... **ICQ 49746198** MSN-LizKP1952@... PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK ADDult ADD GROUP PAGE: http://members.tripod.com/~LizK/addult.htm ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 > Has anyone here had experience with Remicade? I just started Humira a > month ago, but was just diagnosed with Crohn's, so the > gastroenterologist and I have been talking about switching to > Remicade instead. I was wondering how Remicade was for anyone here. > > ~ I used Remicade for two years and now I've been on humira for a year. I have had more improvement on humira than remicade, but I have ReA and Fibro and I'm male. It also took more than a few months before the humira startedto work. I also take humira once a week, rather than the normal every other week. If we just where all alike, it would be so simple to say how something is going to work on each of us? Helwig Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 , Have been on remicaide for almost 3 years. This drug has been a miracle for me as I often tell people " I have my life back. " No side affects what so ever; however, when the infusion is to fast I tend to get migraines, but once the rate is slowed down the headaches usually dissipate quickly. Hope this helps. Regards, Bob Alberta, Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 well tiffanie just had her first one yesterday. she was tired durring because of the benedryl... they said we might not notice a differance right away... however i do. she had that sickly, tired look all the time; but today she looks like a normal kid. energy is a bit up. i am not sure if that is from the steroids they inject before they give the remicade or if it is because of the remicade... so far tho i think i am very glad to have switched. good luck to you! Tiffanie 4yrs old systemic > seeing as we are thinking of switching Nick from enbrel to remicade I > have a questions for those taking it, especially any systemics. > > has the remicade helped any way with the fatigue issue??? does it give > you more engery??? not seems as tired???? > > has remicade made anyone MORE fatigued??? > > hugs Helen and (8,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 my son started remicaide about 20 months ago, after enbrel did not work. I was told that for some kids it does make a difference even the first month. For us it took about 6 months to notice a change. He started by having less fatigue, then his joints started to get better. I do notice that he is very tired the day of the infusion from the benedryl, but his energy level is 100% better overall. His inflammation is way down, and he is doing so much better!! Good luck if you switch, I hope it works for you guys as well as it did for us. Mahala and Ethan(8, polyarticular JRA)hburger64 <hburger64@...> wrote: seeing as we are thinking of switching Nick from enbrel to remicade I have a questions for those taking it, especially any systemics.has the remicade helped any way with the fatigue issue??? does it give you more engery??? not seems as tired????has remicade made anyone MORE fatigued???hugs Helen and (8,systemic)__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 The infusion exhausts Abbie for about 24 hours. But other than that, no change in energy level. Christy (Abbie, 16 systemic and spondy) remicade question > seeing as we are thinking of switching Nick from enbrel to remicade I > have a questions for those taking it, especially any systemics. > > has the remicade helped any way with the fatigue issue??? does it give > you more engery??? not seems as tired???? > > has remicade made anyone MORE fatigued??? > > hugs Helen and (8,systemic) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 Hello Everyone, I had my first Remicade infusion on Tuesday. So far so good! The only real side effect I had is that I was very tired...so tired that I slept all night Tuesday night! There has been no other change in my condition, but of course I was not expecting anything yet. One thing I have noticed is that I am extremely thirsty. I don't see where this is a listed side effect of the Remicade. Has anyone else had this problem with Remicade? I figured if this is still going on on Monday I might give my rhuemy a call. Any thoughts anyone? Thanks, Ronda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 They did give me Benadryl right before my Remicade infusions. Also, I was advised by my dermatologist to take Benadryl before taking Humira. -L Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.