Re: LLMD

[Guest guest]

Hi Sue,

I have the LDA-NJ recommended list of doctor referrals and see no one in

Delaware, what states are you willing to travel to??

Marta

> From: Sue <tlizzy@...>

>

> I'm considering changing LLMDs. If anyone has any recommendations

> (don't want IV yet, but think it's important to have a doc who'll

> recommend that, if necessary), would you please write me privately?

> (tlizzy@...) I live in Wilmington, DE.

>

> Thanks,

> Sue

[Guest guest]

Marta wrote:

> I have the LDA-NJ recommended list of doctor referrals and see no one in

>Delaware, what states are you willing to travel to??

NJ, PA, or MD - don't want to travel over 1-1/2 hrs, but I'll figure

that part of it out if you'd kindly send me the list;-)

Thanks a bunch,

Sue

[Guest guest]

Samm: backchannel me...cannot find your phone no. and live not far from

you...just moved here and will be seeing Dr. M soon.

Donna

[Guest guest]

In a message dated 10/3/01 8:37:18 PM, rod@... writes:

<< Hi Y'all, I need an LLMD name and info near Memphis TN ty

>>

I am writing you privately with info.

sue in nj

sue massie

[Guest guest]

I am from TN lived there my whole life. Email me privately.

Sheryl

--

[Guest guest]

Does anyone know of a LLMD in or near Wasila, Alaska. If you do please contact

me.

Thanks.

[ ] Digest Number 2507

[Guest guest]

>

> Does anyone know of a LLMD in or near Wasila, Alaska. If you do please

contact me.

, I have a friend in Juneau with Neuro Sarc, she sees a Neuro who is

looking into said friend having Lyme. I do not think that there are any

LLMDs in Alaska. If you would like me to get this Drs name/# holler and I

will for you. Take care,

[Guest guest]

Hi

I live in Dillsburg PA (between burg and Gettysburg) and am willing

to drive

WHEREVER I need to go

Thanks so much

[ ] LLMD

>

> -

> Tell us where you live and people will tell you about the LLMDs they know

about. It's the best way to find a real LLMD.

> This is a good beginning...

> Ann

>

>

>

>

>

>

[Guest guest]

Hi Lori,

I was just reading your letter and I'm close to New Orleans Louisiana. If

you are interested perhaps we can make the trip together to split costs - I

m on disability at 44. Email me privately if you are interested.

Thanx,

tanya

-- [ ] LLMD

Hi, my name is Lori. I have been a member for about a year or so. I don't

write a whole lot, but appreciate all of the support from just knowing that

there are other people out there going through this battle too.

I really need some help. I live in south Louisiana, and have been really

sick for about 3 1/2 years now. I was originally diagnosed bus WONDERFUL

doctor in Colorado. He was very good at working with me long distance. ( I.e

Phone appts) I started to get a little bit better, for once, and then my

doctor had to retire!! I continued tx. With another doc in Florida, who was

good at first, but refused to work with the distance thing, and had zero

bedside manner. I ended up relapsing.

Long story short, I haven't had any treatment in about a year, and feel

myself. Fading fast!! I need a good LLMD. I am not looking to find anyone in

La, I have looked into the one in la, and do not think he will be a good fit

for me. I am willing to go ANYWHERE to find a really good LLMD. (preferably

one that takes insurance)

Most importantly someone compassionate and knowledgable about the many

facets of this crazy disease.

I would really appreciate it if you could email me privately and give me

some info on your LLMDS.

Thank you all so much. Take care,

Lori

Sent from Lori's iPod

[Guest guest]

Hi Lori and ,

I also am from Louisiana and would be interested in finding good LLMD and

possibly traveling together to split costs. If not I'd really appreciate any

info that would help me as I also am sick and need treatment. I am 52 female

business owner. Please email me. Thx.....Kerry

On Apr 7, 2009, at 11:49 PM, " tanya " <coprhed@...> wrote:

Hi Lori,

I was just reading your letter and I'm close to New Orleans Louisiana. If

you are interested perhaps we can make the trip together to split costs - I

m on disability at 44. Email me privately if you are interested.

Thanx,

tanya

[Guest guest]

Hi Kerry,

That would be great....hopefully we can find a way to get there...I need

help desperately.

Lets exchange info etc and go from there. My address is coprhed@...

-- Re: [ ] LLMD

Hi Lori and ,

I also am from Louisiana and would be interested in finding good LLMD and

possibly traveling together to split costs. If not I'd really appreciate any

info that would help me as I also am sick and need treatment. I am 52 female

business owner. Please email me. Thx.....Kerry

On Apr 7, 2009, at 11:49 PM, " tanya " <coprhed@...> wrote:

Hi Lori,

I was just reading your letter and I'm close to New Orleans Louisiana. If

you are interested perhaps we can make the trip together to split costs - I

m on disability at 44. Email me privately if you are interested.

Thanx,

tanya

[Guest guest]

Kerry,

I think that's a great idea. I would like to talk further, but didn't see your

email address.

Sent from Lori's iPod

[Guest guest]

On Dec 15, 2009, at 5:20 58PM, Young wrote:

> <You may want to start quietly looking for an LLMD in your area and set

> up an appointment for <February. Odds are good that's where you're

> headed.

>

> I live in land; does anyone know an LLMD in the area??

You'll no doubt be hearing off-list from people.

> I have spent a bit of time reading the article you forwarded - interesting

read. After just losing my dog who was on medication to suppress his immune

system, I should have remembered why I shouldn't take steroids )) Strange

thing; he had lyme dysease, then came down with GME, a form of encephalitis; one

thought was the lyme had crossed the barrier into the brain. It really is a

nasty disease!

I'm sorry about your dog. Yeah, the steroids probably didn't help him much,

either.

>

> My doctor has only given me 21 days of doxy, but it looks like 30 is standard

treatment - I have an appointment for a revisit after the 21 days, but it will

be two days after finishing the doxy. I think I will recontact her about adding

another week.

Thirty days is only " standard treatment " to doctors who don't know any better.

That usually works fine if it's been less than 8-10 weeks since you were bit.

Since you're well beyond that, it's virtually certain that you've now got

disseminated Lyme, which exists in three different forms in the body.

For later-stage Lyme, you need to be taking a penicillin or cephalosporin-class

drug for the spirochetes; a second- or third-generation macrolide (doxy is a

first-gen) for the intracellular Lyme that hides in the macrophages of cells,

causing fatigue; and an anti-fungal like Flagyl to bust up the cysts, which are

otherwise pretty impervious to antibiotics and can live dormant in your system

for years. (Failure to treat the cysts is the biggest reason we relapse.) These

three drugs need to be taken at the same time, so the germs have nowhere in the

body to hide. And this treatment needs to be continued for anywhere between one

and three years.

The Official Party Line among infectious disease doctors is that the latter two

forms don't even exist, and therefore don't require treatment. They hold fast to

this belief despite reams of peer-reviewed studies that show very clearly that

this is happening.

It will be a wonderful surprise if your current doctor is up for taking you into

long-term treatment once this one-month course is over.

> I had to laugh when I saw the psychiatrist note....my previous dr wanted to

send me there before trying to find out what was wrong. I shared this with the

new doctor; she seems genuinely concerned about the sever symptoms that I am

having at the moment...hopefully she will continue to be as compassionate.

>

> The thread on lyme being a cousin to syphilis was also interesting.... When I

was told that lyme was one of the diseases that had to be reported to the Health

Department, I never though of it as being similar to an STD!

There are only eight or ten spirochete illnesses known, and only three or four

of those hit humans. Leptospirosis and syphilis, IIRC, are the only other two.

>

> Thanks again, and I'll keep reading...want to educate myself - sometimes we

are our only advocate ))

Nowhere, unfortunately, is self-advocacy more important than in Lyme.

Sara

[Guest guest]

There are 2 LLMDs in the land area.  Dr. Singleton in Towson who

probably is not seeing new patients.  The premiere doc is Dr. Jemsek in

town.

 Let me know if you have any questions.  My son is severely damaged by lyme. 

He lives in Florida but I live in Columbia, MD.  Best wishes.  Kathy

________________________________

From: Young <kpyoung@...>

Sent: Tue, December 15, 2009 7:20:58 PM

Subject: [ ] LLMD

 

<You may want to start quietly looking for an LLMD in your area and set

up an appointment for <February. Odds are good that's where you're

headed.

I live in land; does anyone know an LLMD in the area??

I have spent a bit of time reading the article you forwarded - interesting read.

After just losing my dog who was on medication to suppress his immune system, I

should have remembered why I shouldn't take steroids ))   Strange thing; he

had lyme dysease, then came down with GME, a form of encephalitis; one thought

was the lyme had crossed the barrier into the brain.  It really is a nasty

disease!

My doctor has only given me 21 days of doxy, but it looks like 30 is standard

treatment - I have an appointment for a revisit after the 21 days, but it will

be two days after finishing the doxy.  I think I will recontact her about

adding another week.

I had to laugh when I saw the psychiatrist note....my previous dr wanted to send

me there before trying to find out what was wrong.  I shared this with the new

doctor; she seems genuinely concerned about the sever symptoms that I am having

at the moment...hopefully she will continue to be as compassionate. 

The thread on lyme being a cousin to syphilis was also interesting. ... When I

was told that lyme was one of the diseases that had to be reported to the Health

Department, I never though of it as being similar to an STD!

Thanks again, and I'll keep reading...want to educate myself - sometimes we are

our only advocate ))

Patti

[Guest guest]

Patti,

I have a free lyme resource CD with lots of information you might find

useful. See the website in my signature.

www.lyme-resource.com

You can lead a person to a fact, but you can't make them think! -

> [ ] LLMD

>

> <You may want to start quietly looking for an LLMD in your

> area and set

> up an appointment for <February. Odds are good that's where you're

> headed.

>

> I live in land; does anyone know an LLMD in the area??

>

> I have spent a bit of time reading the article you forwarded

> - interesting read. After just losing my dog who was on

> medication to suppress his immune system, I should have

> remembered why I shouldn't take steroids ))   Strange

> thing; he had lyme dysease, then came down with GME, a form

> of encephalitis; one thought was the lyme had crossed the

> barrier into the brain.  It really is a nasty disease!

>

> My doctor has only given me 21 days of doxy, but it looks

> like 30 is standard treatment - I have an appointment for a

> revisit after the 21 days, but it will be two days after

> finishing the doxy.  I think I will recontact her about

> adding another week.

>

> I had to laugh when I saw the psychiatrist note....my

> previous dr wanted to send me there before trying to find out

> what was wrong.  I shared this with the new doctor; she seems

> genuinely concerned about the sever symptoms that I am having

> at the moment...hopefully she will continue to be as compassionate. 

>

> The thread on lyme being a cousin to syphilis was also

> interesting.... When I was told that lyme was one of the

> diseases that had to be reported to the Health Department, I

> never though of it as being similar to an STD!

>

> Thanks again, and I'll keep reading...want to educate myself

> - sometimes we are our only advocate ))

>

> Patti

[Guest guest]

where are you located?

________________________________

From: br_andi0809 <branjeff1999@...>

Sent: Wed, November 24, 2010 7:18:10 AM

Subject: [ ] LLMD

I'm trying to find out if there is a LLMD that treats children near me. I see

an LLMD but I want someone who specializes in children. If you could please

send me an email and let me know. Thank you!

[Guest guest]

I'm in san antonio.

Sent on the Sprint® Now Network from my BlackBerry®

[ ] LLMD

I'm trying to find out if there is a LLMD that treats children near me. I see

an LLMD but I want someone who specializes in children. If you could please

send me an email and let me know. Thank you!