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Re: New here with results, looking for advice (in the UK)

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I know we forget but when you end up in the ER like I did 2x's you don't forget

after that.

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Re: New here with results, looking for advice (in the

UK)

>

> Date: Thursday, June 3, 2010, 3:03 PM

> Thanks Phil

>

> I feel that the cold has hit me for six and immediately

> before that i had 2 teeth out and was on anti biotics.

>

> perhaps the variation in drive etc is part of this. 

> it seems q extreme that's all, gone from one end of the

> spectrum to the other these last few days.  also i was

> on codeine for the teeth so i wonder if that has disturbed

> everythign.  i'll let everything settle down a bit i

> think, and take a bit more hc.  i should have really

> upped the hc doses at first signs of a cold but i forgot too

> for some reason

>

> thanks

>

> Chris

>

>

> >

> > > From: <chrisjtaylor46@...>

> > > Subject: Re: New here with

> results, looking for advice (in the UK)

> > >

> > > Date: Thursday, June 3, 2010, 9:50 AM

> > > Hi

> > >

> > > Is it possible for hormone problems to be

> cyclical in

> > > nature?  My problems seem sometimes to come in

> cycles,

> > > eg, having no 'interest' say for weeks, then

> going the other

> > > way as it were with over interest.  Perhaps this

> is an

> > > anomoly but it seems like this sometimes

> happens.  I

> > > have just got over a cold and wonder if this has

> really

> > > taxed my adrenals.  I wonder if i've not been on

> enough

> > > adrenal support and my endogenous thyroid that's

> produced is

> > > just pooling in my blood as it can't get into the

> cells and

> > > giving me these symptoms which feel like the ones

> i used to

> > > have when i took t3 and may be related to hyper

> thyroid in

> > > the blood?

> > >

> > > has anyone got any thoughts on this please? 

> could it

> > > be more adrenal causing this problem right

> > > now?   i have just thought to try taking

> > > extra hc to see if this helps. 

> > >

> > > thanks

> > >

> > > chris

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

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  • 2 weeks later...
Guest guest

Hi

I am due to see an endo on Saturday

Is there anything I should ask him to check just in case he doesn't? I don't

mean tell him what he should be doing but if he doesn't mention any test say is

it worth my raising it?

i don't want there to be a delay in treatment but i fear there may be. endo has

talked about possiblity of 'metabolc syndrome' but don't know if he plans to

medicate this or give me a diet

endo has results of fsh, lsh and tsh and T from about a month ago, but not

prolactin or estrogen or DHT say

am i right to seek treatment with these levels or am i wasting my time?

i feel very low and am losing the will to live.i am putting my hope in this dr

and have been told he's very good but what if he doesn't help me or doesn't

think there's anything wrong? i guess i can't think too clearly right now.

went to gym earlier and think that was a mistake as feel really low now, despite

not doing much.

thanks

chris

> > >

> > > > From: <chrisjtaylor46@>

> > > > Subject: New here with results,

> > looking for advice (in the UK)

> > > >

> > > > Date: Thursday, May 20, 2010, 4:04 AM

> > > > Hello

> > > >

> > > > I am new here, I am wondering if I could get some

> > advice

> > > > please on my results and to see if they indicate

> > low

> > > > testosterone levels worthy of being treated?

> > > >

> > > > I am male 31, 5 ft 11, about 260lbs

> > (overweight). 

> > > > These results were taken last week at about

> > 9.40am. 

> > > >

> > > > Serum Testosterone: 10.7 mmol/L    range 7.6 -

> > > > 31.4

> > > > Serum TSH (thyroid) 0.57  miu/L    range 0.3

> > > > - 4.2

> > > > Serum FSH level     2.5 iu/L 

> > > >      male range: 1.5-12.4 iu/L

> > > > Serum LH level      2.2 iu/L   

> > > >    range 1.7 - 8.6 

> > > > Serum SHBG          18

> > > > nmol/l      range 15-64

> > > >

> > > > Also I had a test last year and the results were

> > about 9.2

> > > > mmol/L.  A free saliva testosterone test about 4

> > weeks

> > > > ago showed my free saliva testosterone levels

> > were 72.9

> > > > pg/mL range 70-250 pg/mL.

> > > >

> > > > To me these results sound low but my doctor says

> > they are

> > > > normal.  They are i suppose low normal.

> > > >

> > > > Should i treat at these levels?  If there is

> > anyone

> > > > here in the UK, have they been treated on the NHS

> > with these

> > > > levels?

> > > >

> > > > Thanks

> > > >

> > > > Chris

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > >

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Guest guest

Hi there Chris

One thing here you may not be aware of. If you request a test, the results are

broken down to include DHT. They do not always appear on the practice

print-outs, but if your GP looks on Pathlinks it will be on there. It is a

little bit like Cortisol. That is, if your doc has requested an FBC check, the

print out from the practice only shows a few items - namely the haem levels etc.

However, if you then go on to check Pathlinks it does have cortisol under the

FBC check. All doctors have access to this so please do not be concerned about

this. I do not think he would test you for prolactin unless there is a need to

do so.

When you do see the doc, you will find that he has an A4 sheet full of blood

tests on which he will indicate the relevant ones for you. I think you may well

find he suggests having a lot more when he does see you.

I certainly have not found a problem with any endocrine specialists being in the

UK. My doc very much has my best interest at heart and has yet to let my faith

in him down. He tends to look at the patient as a whole and not simply focus on

low T or one symptom in particular. My dad also saw him just recently and while

he did not diagnose low T, he did pick up the fact that my dad has low iron

levels. His GP missed that little factoid completely. He has changed some of

dad's regular medications and even with just a day on a new protocol he feels

like a different person. Back in the early 90s I was treated by de

Mowbray in London. What he spoke of then with regards to testosterone treatment

is almost identical to what a lot of mavericks in this forum speak of now. The

same applies to Bayliss before he retired. The only issue you may find

in the UK is that endos are few and far between. London has the most, followed

by Sheffield. The doctor I see was based at Mansfield when he had an NHS clinic

and if you consider that distance from where I live, you can get a good idea

about the size of his catchment.

Rest assured - this doc will help you.

All the best

Ade

From: Chris

Sent: Tuesday, June 15, 2010 9:14 PM

Subject: Re: New here with results, looking for advice (in the

UK)

Hi

I am due to see an endo on Saturday

Is there anything I should ask him to check just in case he doesn't? I don't

mean tell him what he should be doing but if he doesn't mention any test say is

it worth my raising it?

i don't want there to be a delay in treatment but i fear there may be. endo has

talked about possiblity of 'metabolc syndrome' but don't know if he plans to

medicate this or give me a diet

endo has results of fsh, lsh and tsh and T from about a month ago, but not

prolactin or estrogen or DHT say

am i right to seek treatment with these levels or am i wasting my time?

i feel very low and am losing the will to live.i am putting my hope in this dr

and have been told he's very good but what if he doesn't help me or doesn't

think there's anything wrong? i guess i can't think too clearly right now. went

to gym earlier and think that was a mistake as feel really low now, despite not

doing much.

thanks

chris

> > >

> > > > From: <chrisjtaylor46@>

> > > > Subject: New here with results,

> > looking for advice (in the UK)

> > > >

> > > > Date: Thursday, May 20, 2010, 4:04 AM

> > > > Hello

> > > >

> > > > I am new here, I am wondering if I could get some

> > advice

> > > > please on my results and to see if they indicate

> > low

> > > > testosterone levels worthy of being treated?

> > > >

> > > > I am male 31, 5 ft 11, about 260lbs

> > (overweight).

> > > > These results were taken last week at about

> > 9.40am.

> > > >

> > > > Serum Testosterone: 10.7 mmol/L range 7.6 -

> > > > 31.4

> > > > Serum TSH (thyroid) 0.57 miu/L range 0.3

> > > > - 4.2

> > > > Serum FSH level 2.5 iu/L

> > > > male range: 1.5-12.4 iu/L

> > > > Serum LH level 2.2 iu/L

> > > > range 1.7 - 8.6

> > > > Serum SHBG 18

> > > > nmol/l range 15-64

> > > >

> > > > Also I had a test last year and the results were

> > about 9.2

> > > > mmol/L. A free saliva testosterone test about 4

> > weeks

> > > > ago showed my free saliva testosterone levels

> > were 72.9

> > > > pg/mL range 70-250 pg/mL.

> > > >

> > > > To me these results sound low but my doctor says

> > they are

> > > > normal. They are i suppose low normal.

> > > >

> > > > Should i treat at these levels? If there is

> > anyone

> > > > here in the UK, have they been treated on the NHS

> > with these

> > > > levels?

> > > >

> > > > Thanks

> > > >

> > > > Chris

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > >

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Guest guest

I understand how you feel most of us have felt this way. Try not to get

up set it makes things worse. Endo in the UK are much better then Endo's here

in the USA. I would not try to tell him to test this or that but ask don't tell

you need Estradiol tested DHT and is not a big deal but prolactin and Cortisol

is. Stop going to the gym until your feeling better this just holds you down.

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Re: New here with results, looking for advice (in the

UK)

>

> Date: Tuesday, June 15, 2010, 4:14 PM

> Hi

>

> I am due to see an endo on Saturday

>

> Is there anything I should ask him to check just in case he

> doesn't?  I don't mean tell him what he should be doing

> but if he doesn't mention any test say is it worth my

> raising it?

>

> i don't want there to be a delay in treatment but i fear

> there may be.  endo has talked about possiblity of

> 'metabolc syndrome' but don't know if he plans to medicate

> this or give me a diet

>

> endo has results of fsh, lsh and tsh and T from about a

> month ago, but not prolactin or estrogen or DHT say

>

> am i right to seek treatment with these levels or am i

> wasting my time?

>

> i feel very low and am losing the will to live.i am putting

> my hope in this dr and have been told he's very good but

> what if he doesn't help me or doesn't think there's anything

> wrong?  i guess i can't think too clearly right

> now.  went to gym earlier and think that was a mistake

> as feel really low now, despite not doing much.

>

> thanks

>

> chris

>

>

> > > >

> > > > > From: <chrisjtaylor46@>

> > > > > Subject: New here with

> results,

> > > looking for advice (in the UK)

> > > > >

> > > > > Date: Thursday, May 20, 2010, 4:04 AM

> > > > > Hello

> > > > >

> > > > > I am new here, I am wondering if I

> could get some

> > > advice

> > > > > please on my results and to see if they

> indicate

> > > low

> > > > > testosterone levels worthy of being

> treated?

> > > > >

> > > > > I am male 31, 5 ft 11, about 260lbs

> > > (overweight). 

> > > > > These results were taken last week at

> about

> > > 9.40am. 

> > > > >

> > > > > Serum Testosterone: 10.7 mmol/L   

> range 7.6 -

> > > > > 31.4

> > > > > Serum TSH (thyroid) 0.57  miu/L   

> range 0.3

> > > > > - 4.2

> > > > > Serum FSH level     2.5 iu/L 

> > > > >      male range: 1.5-12.4 iu/L

> > > > > Serum LH level      2.2 iu/L   

> > > > >    range 1.7 - 8.6 

> > > > > Serum SHBG          18

> > > > > nmol/l      range 15-64

> > > > >

> > > > > Also I had a test last year and the

> results were

> > > about 9.2

> > > > > mmol/L.  A free saliva testosterone

> test about 4

> > > weeks

> > > > > ago showed my free saliva testosterone

> levels

> > > were 72.9

> > > > > pg/mL range 70-250 pg/mL.

> > > > >

> > > > > To me these results sound low but my

> doctor says

> > > they are

> > > > > normal.  They are i suppose low

> normal.

> > > > >

> > > > > Should i treat at these levels?  If

> there is

> > > anyone

> > > > > here in the UK, have they been treated

> on the NHS

> > > with these

> > > > > levels?

> > > > >

> > > > > Thanks

> > > > >

> > > > > Chris

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > >

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Guest guest

Thanks Phil, I will bear all this in mind.

Just trying to hang on now until saturday and see what happens.

Thanks for your support

Chris

>

> I understand how you feel most of us have felt this way. Try not to get

up set it makes things worse. Endo in the UK are much better then Endo's here

in the USA. I would not try to tell him to test this or that but ask don't tell

you need Estradiol tested DHT and is not a big deal but prolactin and Cortisol

is. Stop going to the gym until your feeling better this just holds you down.

> Co-Moderator

> Phil

>

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Guest guest

Hello Ade

Thank you for your post on here

I was not aware of that about the full blood count - the GP gave me a referral

letter and in it were some results, not all the ones you mention though. Maybe

they just pick out the main ones or something?

Ok i will try not to think too much and hopefully this doctor will help me, it

just feels even waiting until saturday is too long now...

thanks

Chris

>

> Hi there Chris

>

>

> One thing here you may not be aware of. If you request a test, the results

are broken down to include DHT. They do not always appear on the practice

print-outs, but if your GP looks on Pathlinks it will be on there. It is a

little bit like Cortisol. That is, if your doc has requested an FBC check, the

print out from the practice only shows a few items - namely the haem levels etc.

However, if you then go on to check Pathlinks it does have cortisol under the

FBC check. All doctors have access to this so please do not be concerned about

this. I do not think he would test you for prolactin unless there is a need to

do so.

>

> When you do see the doc, you will find that he has an A4 sheet full of blood

tests on which he will indicate the relevant ones for you. I think you may well

find he suggests having a lot more when he does see you.

>

> I certainly have not found a problem with any endocrine specialists being in

the UK. My doc very much has my best interest at heart and has yet to let my

faith in him down. He tends to look at the patient as a whole and not simply

focus on low T or one symptom in particular. My dad also saw him just recently

and while he did not diagnose low T, he did pick up the fact that my dad has low

iron levels. His GP missed that little factoid completely. He has changed some

of dad's regular medications and even with just a day on a new protocol he feels

like a different person. Back in the early 90s I was treated by de

Mowbray in London. What he spoke of then with regards to testosterone treatment

is almost identical to what a lot of mavericks in this forum speak of now. The

same applies to Bayliss before he retired. The only issue you may find

in the UK is that endos are few and far between. London has the most, followed

by Sheffield. The doctor I see was based at Mansfield when he had an NHS clinic

and if you consider that distance from where I live, you can get a good idea

about the size of his catchment.

>

> Rest assured - this doc will help you.

>

> All the best

> Ade

>

>

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Guest guest

Hi Chris

I am not entirely sure how that system works myself. Quite recently I asked for

a print out of the last three blood tests for my endocrine appointment and items

such as cortisol were most definitely not present. However, about six months

ago I had my usual series of monthly blood tests (for the renal doctor - nothing

to do with hormones) and because I had to ask about haemoglobin levels the GP I

saw at the time logged into Path Links to obtain the data. All of my blood test

results were on here and he specifically pointed out cortisol. I have never,

ever requested this test. The doc I see did instruct me once to ensure I had a

9 AM blood test so he could check the cortisol level but as the result comes

with the FBC he was able to obtain it all from Path Links. Other test results

do not work in this way. My blood pressure is checked by the practice nurse on

a monthly basis and these results are not available to any doctor other than via

my GP.

Saturday will be here before you know it.

Take care

Ade

From: Chris

Sent: Wednesday, June 16, 2010 8:53 PM

Subject: Re: New here with results, looking for advice (in the

UK)

Hello Ade

Thank you for your post on here

I was not aware of that about the full blood count - the GP gave me a referral

letter and in it were some results, not all the ones you mention though. Maybe

they just pick out the main ones or something?

Ok i will try not to think too much and hopefully this doctor will help me, it

just feels even waiting until saturday is too long now...

thanks

Chris

>

> Hi there Chris

>

>

> One thing here you may not be aware of. If you request a test, the results are

broken down to include DHT. They do not always appear on the practice

print-outs, but if your GP looks on Pathlinks it will be on there. It is a

little bit like Cortisol. That is, if your doc has requested an FBC check, the

print out from the practice only shows a few items - namely the haem levels etc.

However, if you then go on to check Pathlinks it does have cortisol under the

FBC check. All doctors have access to this so please do not be concerned about

this. I do not think he would test you for prolactin unless there is a need to

do so.

>

> When you do see the doc, you will find that he has an A4 sheet full of blood

tests on which he will indicate the relevant ones for you. I think you may well

find he suggests having a lot more when he does see you.

>

> I certainly have not found a problem with any endocrine specialists being in

the UK. My doc very much has my best interest at heart and has yet to let my

faith in him down. He tends to look at the patient as a whole and not simply

focus on low T or one symptom in particular. My dad also saw him just recently

and while he did not diagnose low T, he did pick up the fact that my dad has low

iron levels. His GP missed that little factoid completely. He has changed some

of dad's regular medications and even with just a day on a new protocol he feels

like a different person. Back in the early 90s I was treated by de

Mowbray in London. What he spoke of then with regards to testosterone treatment

is almost identical to what a lot of mavericks in this forum speak of now. The

same applies to Bayliss before he retired. The only issue you may find

in the UK is that endos are few and far between. London has the most, followed

by Sheffield. The doctor I see was based at Mansfield when he had an NHS clinic

and if you consider that distance from where I live, you can get a good idea

about the size of his catchment.

>

> Rest assured - this doc will help you.

>

> All the best

> Ade

>

>

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  • 3 weeks later...
Guest guest

hi all

things are slowly moving along now, my endo wants me off HC for 4 weeks before

getting several tests including Testost, GH, cortisol, MRI on pituitary etc.

last year i developed sleep apnea after putting on about 60lbs, this was after i

started HC, but i started HC after being very fatigued and scroing very low in

an saliva test.

just wondering - am i likely to have screwed up my hormone levels myself by

taking HC? eg, am i to blame for all this? before i took hc i was very

fatigued, couldn't work, legs gave out fro under me, and the saliva test was low

as mentioned (15.5 -21-41 range , down from 27 18 months before).

the point of asking is this: if i get off the HC am i likely to go back to

normal, even tho i wasn't normal before HC, and have long had problems? I

suppose i'm trying to see if i can let myself off the hook or thinking am i to

blame for all this?

i think i have long had problems, in my early 20s i went impotent for 2 years

after taking tricyclics and slolwly recovered but think i'e had various bouts of

adrenal fatigue, sometimes worse than others ( alo t worse)

do u think that taking HC messed everyuthing up even more, or that it would have

made little difference had thigns already been messed up, which i think they

were? i guess it's unlikely if i come off HC that i will suddenly go back to

normal? i think personally my body lsted as long as it could until i was 30 and

then my adrenals just gave out.

sorry half thinking aloud here but it would be good to know whetehr my actions

of taking HC helped or hindered? at most i only ever went up to 40mg then felt i

needed a lot less almost over night (donw to 30, 20), now only on 5mg, and need

to stop it for these tests.

thanks

chris

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Guest guest

I don't feel doing as high as 40 mgs of HC can mess anyone up.

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Re: New here with results, looking for advice (in the

UK)

>

> Date: Monday, July 5, 2010, 5:00 PM

> hi all

>

> things are slowly moving along now, my endo wants me off HC

> for 4 weeks before getting several tests including Testost,

> GH, cortisol, MRI on pituitary etc. 

>

> last year i developed sleep apnea after putting on about

> 60lbs, this was after i started HC, but i started HC after

> being very fatigued and scroing very low in an saliva test.

>

> just wondering - am i likely to have screwed up my hormone

> levels myself by taking HC?  eg, am i to blame for all

> this?  before i took hc i was very fatigued, couldn't

> work, legs gave out fro under me, and the saliva test was

> low as mentioned (15.5 -21-41 range , down from 27 18 months

> before). 

>

> the point of asking is this: if i get off the HC am i

> likely to go back to normal, even tho i wasn't normal before

> HC, and have long had problems?  I suppose i'm trying

> to see if i can let myself off the hook or thinking am i to

> blame for all this? 

>

> i think i have long had problems, in my early 20s i went

> impotent for 2 years after taking tricyclics and slolwly

> recovered but think i'e had various bouts of adrenal

> fatigue, sometimes worse than others ( alo t worse)

>

> do u think that taking HC messed everyuthing up even more,

> or that it would have made little difference had thigns

> already been messed up, which i think they were?  i

> guess it's unlikely if i come off HC that i will suddenly go

> back to normal? i think personally my body lsted as long as

> it could until i was 30 and then my adrenals just gave

> out. 

>

> sorry half thinking aloud here but it would be good to know

> whetehr my actions of taking HC helped or hindered? at most

> i only ever went up to 40mg then felt i needed a lot less

> almost over night (donw to 30, 20), now only on 5mg, and

> need to stop it for these tests.

>

> thanks

>

> chris

>

>

>

> ------------------------------------

>

>

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