Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 I know we forget but when you end up in the ER like I did 2x's you don't forget after that. Co-Moderator Phil > From: <chrisjtaylor46@...> > Subject: Re: New here with results, looking for advice (in the UK) > > Date: Thursday, June 3, 2010, 3:03 PM > Thanks Phil > > I feel that the cold has hit me for six and immediately > before that i had 2 teeth out and was on anti biotics. > > perhaps the variation in drive etc is part of this. > it seems q extreme that's all, gone from one end of the > spectrum to the other these last few days. also i was > on codeine for the teeth so i wonder if that has disturbed > everythign. i'll let everything settle down a bit i > think, and take a bit more hc. i should have really > upped the hc doses at first signs of a cold but i forgot too > for some reason > > thanks > > Chris > > > > > > > From: <chrisjtaylor46@...> > > > Subject: Re: New here with > results, looking for advice (in the UK) > > > > > > Date: Thursday, June 3, 2010, 9:50 AM > > > Hi > > > > > > Is it possible for hormone problems to be > cyclical in > > > nature? My problems seem sometimes to come in > cycles, > > > eg, having no 'interest' say for weeks, then > going the other > > > way as it were with over interest. Perhaps this > is an > > > anomoly but it seems like this sometimes > happens. I > > > have just got over a cold and wonder if this has > really > > > taxed my adrenals. I wonder if i've not been on > enough > > > adrenal support and my endogenous thyroid that's > produced is > > > just pooling in my blood as it can't get into the > cells and > > > giving me these symptoms which feel like the ones > i used to > > > have when i took t3 and may be related to hyper > thyroid in > > > the blood? > > > > > > has anyone got any thoughts on this please? > could it > > > be more adrenal causing this problem right > > > now? i have just thought to try taking > > > extra hc to see if this helps. > > > > > > thanks > > > > > > chris > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 Hi I am due to see an endo on Saturday Is there anything I should ask him to check just in case he doesn't? I don't mean tell him what he should be doing but if he doesn't mention any test say is it worth my raising it? i don't want there to be a delay in treatment but i fear there may be. endo has talked about possiblity of 'metabolc syndrome' but don't know if he plans to medicate this or give me a diet endo has results of fsh, lsh and tsh and T from about a month ago, but not prolactin or estrogen or DHT say am i right to seek treatment with these levels or am i wasting my time? i feel very low and am losing the will to live.i am putting my hope in this dr and have been told he's very good but what if he doesn't help me or doesn't think there's anything wrong? i guess i can't think too clearly right now. went to gym earlier and think that was a mistake as feel really low now, despite not doing much. thanks chris > > > > > > > From: <chrisjtaylor46@> > > > > Subject: New here with results, > > looking for advice (in the UK) > > > > > > > > Date: Thursday, May 20, 2010, 4:04 AM > > > > Hello > > > > > > > > I am new here, I am wondering if I could get some > > advice > > > > please on my results and to see if they indicate > > low > > > > testosterone levels worthy of being treated? > > > > > > > > I am male 31, 5 ft 11, about 260lbs > > (overweight). > > > > These results were taken last week at about > > 9.40am. > > > > > > > > Serum Testosterone: 10.7 mmol/L range 7.6 - > > > > 31.4 > > > > Serum TSH (thyroid) 0.57 miu/L range 0.3 > > > > - 4.2 > > > > Serum FSH level 2.5 iu/L > > > > male range: 1.5-12.4 iu/L > > > > Serum LH level 2.2 iu/L > > > > range 1.7 - 8.6 > > > > Serum SHBG 18 > > > > nmol/l range 15-64 > > > > > > > > Also I had a test last year and the results were > > about 9.2 > > > > mmol/L. A free saliva testosterone test about 4 > > weeks > > > > ago showed my free saliva testosterone levels > > were 72.9 > > > > pg/mL range 70-250 pg/mL. > > > > > > > > To me these results sound low but my doctor says > > they are > > > > normal. They are i suppose low normal. > > > > > > > > Should i treat at these levels? If there is > > anyone > > > > here in the UK, have they been treated on the NHS > > with these > > > > levels? > > > > > > > > Thanks > > > > > > > > Chris > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 Hi there Chris One thing here you may not be aware of. If you request a test, the results are broken down to include DHT. They do not always appear on the practice print-outs, but if your GP looks on Pathlinks it will be on there. It is a little bit like Cortisol. That is, if your doc has requested an FBC check, the print out from the practice only shows a few items - namely the haem levels etc. However, if you then go on to check Pathlinks it does have cortisol under the FBC check. All doctors have access to this so please do not be concerned about this. I do not think he would test you for prolactin unless there is a need to do so. When you do see the doc, you will find that he has an A4 sheet full of blood tests on which he will indicate the relevant ones for you. I think you may well find he suggests having a lot more when he does see you. I certainly have not found a problem with any endocrine specialists being in the UK. My doc very much has my best interest at heart and has yet to let my faith in him down. He tends to look at the patient as a whole and not simply focus on low T or one symptom in particular. My dad also saw him just recently and while he did not diagnose low T, he did pick up the fact that my dad has low iron levels. His GP missed that little factoid completely. He has changed some of dad's regular medications and even with just a day on a new protocol he feels like a different person. Back in the early 90s I was treated by de Mowbray in London. What he spoke of then with regards to testosterone treatment is almost identical to what a lot of mavericks in this forum speak of now. The same applies to Bayliss before he retired. The only issue you may find in the UK is that endos are few and far between. London has the most, followed by Sheffield. The doctor I see was based at Mansfield when he had an NHS clinic and if you consider that distance from where I live, you can get a good idea about the size of his catchment. Rest assured - this doc will help you. All the best Ade From: Chris Sent: Tuesday, June 15, 2010 9:14 PM Subject: Re: New here with results, looking for advice (in the UK) Hi I am due to see an endo on Saturday Is there anything I should ask him to check just in case he doesn't? I don't mean tell him what he should be doing but if he doesn't mention any test say is it worth my raising it? i don't want there to be a delay in treatment but i fear there may be. endo has talked about possiblity of 'metabolc syndrome' but don't know if he plans to medicate this or give me a diet endo has results of fsh, lsh and tsh and T from about a month ago, but not prolactin or estrogen or DHT say am i right to seek treatment with these levels or am i wasting my time? i feel very low and am losing the will to live.i am putting my hope in this dr and have been told he's very good but what if he doesn't help me or doesn't think there's anything wrong? i guess i can't think too clearly right now. went to gym earlier and think that was a mistake as feel really low now, despite not doing much. thanks chris > > > > > > > From: <chrisjtaylor46@> > > > > Subject: New here with results, > > looking for advice (in the UK) > > > > > > > > Date: Thursday, May 20, 2010, 4:04 AM > > > > Hello > > > > > > > > I am new here, I am wondering if I could get some > > advice > > > > please on my results and to see if they indicate > > low > > > > testosterone levels worthy of being treated? > > > > > > > > I am male 31, 5 ft 11, about 260lbs > > (overweight). > > > > These results were taken last week at about > > 9.40am. > > > > > > > > Serum Testosterone: 10.7 mmol/L range 7.6 - > > > > 31.4 > > > > Serum TSH (thyroid) 0.57 miu/L range 0.3 > > > > - 4.2 > > > > Serum FSH level 2.5 iu/L > > > > male range: 1.5-12.4 iu/L > > > > Serum LH level 2.2 iu/L > > > > range 1.7 - 8.6 > > > > Serum SHBG 18 > > > > nmol/l range 15-64 > > > > > > > > Also I had a test last year and the results were > > about 9.2 > > > > mmol/L. A free saliva testosterone test about 4 > > weeks > > > > ago showed my free saliva testosterone levels > > were 72.9 > > > > pg/mL range 70-250 pg/mL. > > > > > > > > To me these results sound low but my doctor says > > they are > > > > normal. They are i suppose low normal. > > > > > > > > Should i treat at these levels? If there is > > anyone > > > > here in the UK, have they been treated on the NHS > > with these > > > > levels? > > > > > > > > Thanks > > > > > > > > Chris > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 I understand how you feel most of us have felt this way. Try not to get up set it makes things worse. Endo in the UK are much better then Endo's here in the USA. I would not try to tell him to test this or that but ask don't tell you need Estradiol tested DHT and is not a big deal but prolactin and Cortisol is. Stop going to the gym until your feeling better this just holds you down. Co-Moderator Phil > From: <chrisjtaylor46@...> > Subject: Re: New here with results, looking for advice (in the UK) > > Date: Tuesday, June 15, 2010, 4:14 PM > Hi > > I am due to see an endo on Saturday > > Is there anything I should ask him to check just in case he > doesn't? I don't mean tell him what he should be doing > but if he doesn't mention any test say is it worth my > raising it? > > i don't want there to be a delay in treatment but i fear > there may be. endo has talked about possiblity of > 'metabolc syndrome' but don't know if he plans to medicate > this or give me a diet > > endo has results of fsh, lsh and tsh and T from about a > month ago, but not prolactin or estrogen or DHT say > > am i right to seek treatment with these levels or am i > wasting my time? > > i feel very low and am losing the will to live.i am putting > my hope in this dr and have been told he's very good but > what if he doesn't help me or doesn't think there's anything > wrong? i guess i can't think too clearly right > now. went to gym earlier and think that was a mistake > as feel really low now, despite not doing much. > > thanks > > chris > > > > > > > > > > > From: <chrisjtaylor46@> > > > > > Subject: New here with > results, > > > looking for advice (in the UK) > > > > > > > > > > Date: Thursday, May 20, 2010, 4:04 AM > > > > > Hello > > > > > > > > > > I am new here, I am wondering if I > could get some > > > advice > > > > > please on my results and to see if they > indicate > > > low > > > > > testosterone levels worthy of being > treated? > > > > > > > > > > I am male 31, 5 ft 11, about 260lbs > > > (overweight). > > > > > These results were taken last week at > about > > > 9.40am. > > > > > > > > > > Serum Testosterone: 10.7 mmol/L > range 7.6 - > > > > > 31.4 > > > > > Serum TSH (thyroid) 0.57 miu/L > range 0.3 > > > > > - 4.2 > > > > > Serum FSH level 2.5 iu/L > > > > > male range: 1.5-12.4 iu/L > > > > > Serum LH level 2.2 iu/L > > > > > range 1.7 - 8.6 > > > > > Serum SHBG 18 > > > > > nmol/l range 15-64 > > > > > > > > > > Also I had a test last year and the > results were > > > about 9.2 > > > > > mmol/L. A free saliva testosterone > test about 4 > > > weeks > > > > > ago showed my free saliva testosterone > levels > > > were 72.9 > > > > > pg/mL range 70-250 pg/mL. > > > > > > > > > > To me these results sound low but my > doctor says > > > they are > > > > > normal. They are i suppose low > normal. > > > > > > > > > > Should i treat at these levels? If > there is > > > anyone > > > > > here in the UK, have they been treated > on the NHS > > > with these > > > > > levels? > > > > > > > > > > Thanks > > > > > > > > > > Chris > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2010 Report Share Posted June 16, 2010 Thanks Phil, I will bear all this in mind. Just trying to hang on now until saturday and see what happens. Thanks for your support Chris > > I understand how you feel most of us have felt this way. Try not to get up set it makes things worse. Endo in the UK are much better then Endo's here in the USA. I would not try to tell him to test this or that but ask don't tell you need Estradiol tested DHT and is not a big deal but prolactin and Cortisol is. Stop going to the gym until your feeling better this just holds you down. > Co-Moderator > Phil > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2010 Report Share Posted June 16, 2010 Hello Ade Thank you for your post on here I was not aware of that about the full blood count - the GP gave me a referral letter and in it were some results, not all the ones you mention though. Maybe they just pick out the main ones or something? Ok i will try not to think too much and hopefully this doctor will help me, it just feels even waiting until saturday is too long now... thanks Chris > > Hi there Chris > > > One thing here you may not be aware of. If you request a test, the results are broken down to include DHT. They do not always appear on the practice print-outs, but if your GP looks on Pathlinks it will be on there. It is a little bit like Cortisol. That is, if your doc has requested an FBC check, the print out from the practice only shows a few items - namely the haem levels etc. However, if you then go on to check Pathlinks it does have cortisol under the FBC check. All doctors have access to this so please do not be concerned about this. I do not think he would test you for prolactin unless there is a need to do so. > > When you do see the doc, you will find that he has an A4 sheet full of blood tests on which he will indicate the relevant ones for you. I think you may well find he suggests having a lot more when he does see you. > > I certainly have not found a problem with any endocrine specialists being in the UK. My doc very much has my best interest at heart and has yet to let my faith in him down. He tends to look at the patient as a whole and not simply focus on low T or one symptom in particular. My dad also saw him just recently and while he did not diagnose low T, he did pick up the fact that my dad has low iron levels. His GP missed that little factoid completely. He has changed some of dad's regular medications and even with just a day on a new protocol he feels like a different person. Back in the early 90s I was treated by de Mowbray in London. What he spoke of then with regards to testosterone treatment is almost identical to what a lot of mavericks in this forum speak of now. The same applies to Bayliss before he retired. The only issue you may find in the UK is that endos are few and far between. London has the most, followed by Sheffield. The doctor I see was based at Mansfield when he had an NHS clinic and if you consider that distance from where I live, you can get a good idea about the size of his catchment. > > Rest assured - this doc will help you. > > All the best > Ade > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2010 Report Share Posted June 16, 2010 Hi Chris I am not entirely sure how that system works myself. Quite recently I asked for a print out of the last three blood tests for my endocrine appointment and items such as cortisol were most definitely not present. However, about six months ago I had my usual series of monthly blood tests (for the renal doctor - nothing to do with hormones) and because I had to ask about haemoglobin levels the GP I saw at the time logged into Path Links to obtain the data. All of my blood test results were on here and he specifically pointed out cortisol. I have never, ever requested this test. The doc I see did instruct me once to ensure I had a 9 AM blood test so he could check the cortisol level but as the result comes with the FBC he was able to obtain it all from Path Links. Other test results do not work in this way. My blood pressure is checked by the practice nurse on a monthly basis and these results are not available to any doctor other than via my GP. Saturday will be here before you know it. Take care Ade From: Chris Sent: Wednesday, June 16, 2010 8:53 PM Subject: Re: New here with results, looking for advice (in the UK) Hello Ade Thank you for your post on here I was not aware of that about the full blood count - the GP gave me a referral letter and in it were some results, not all the ones you mention though. Maybe they just pick out the main ones or something? Ok i will try not to think too much and hopefully this doctor will help me, it just feels even waiting until saturday is too long now... thanks Chris > > Hi there Chris > > > One thing here you may not be aware of. If you request a test, the results are broken down to include DHT. They do not always appear on the practice print-outs, but if your GP looks on Pathlinks it will be on there. It is a little bit like Cortisol. That is, if your doc has requested an FBC check, the print out from the practice only shows a few items - namely the haem levels etc. However, if you then go on to check Pathlinks it does have cortisol under the FBC check. All doctors have access to this so please do not be concerned about this. I do not think he would test you for prolactin unless there is a need to do so. > > When you do see the doc, you will find that he has an A4 sheet full of blood tests on which he will indicate the relevant ones for you. I think you may well find he suggests having a lot more when he does see you. > > I certainly have not found a problem with any endocrine specialists being in the UK. My doc very much has my best interest at heart and has yet to let my faith in him down. He tends to look at the patient as a whole and not simply focus on low T or one symptom in particular. My dad also saw him just recently and while he did not diagnose low T, he did pick up the fact that my dad has low iron levels. His GP missed that little factoid completely. He has changed some of dad's regular medications and even with just a day on a new protocol he feels like a different person. Back in the early 90s I was treated by de Mowbray in London. What he spoke of then with regards to testosterone treatment is almost identical to what a lot of mavericks in this forum speak of now. The same applies to Bayliss before he retired. The only issue you may find in the UK is that endos are few and far between. London has the most, followed by Sheffield. The doctor I see was based at Mansfield when he had an NHS clinic and if you consider that distance from where I live, you can get a good idea about the size of his catchment. > > Rest assured - this doc will help you. > > All the best > Ade > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 hi all things are slowly moving along now, my endo wants me off HC for 4 weeks before getting several tests including Testost, GH, cortisol, MRI on pituitary etc. last year i developed sleep apnea after putting on about 60lbs, this was after i started HC, but i started HC after being very fatigued and scroing very low in an saliva test. just wondering - am i likely to have screwed up my hormone levels myself by taking HC? eg, am i to blame for all this? before i took hc i was very fatigued, couldn't work, legs gave out fro under me, and the saliva test was low as mentioned (15.5 -21-41 range , down from 27 18 months before). the point of asking is this: if i get off the HC am i likely to go back to normal, even tho i wasn't normal before HC, and have long had problems? I suppose i'm trying to see if i can let myself off the hook or thinking am i to blame for all this? i think i have long had problems, in my early 20s i went impotent for 2 years after taking tricyclics and slolwly recovered but think i'e had various bouts of adrenal fatigue, sometimes worse than others ( alo t worse) do u think that taking HC messed everyuthing up even more, or that it would have made little difference had thigns already been messed up, which i think they were? i guess it's unlikely if i come off HC that i will suddenly go back to normal? i think personally my body lsted as long as it could until i was 30 and then my adrenals just gave out. sorry half thinking aloud here but it would be good to know whetehr my actions of taking HC helped or hindered? at most i only ever went up to 40mg then felt i needed a lot less almost over night (donw to 30, 20), now only on 5mg, and need to stop it for these tests. thanks chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 I don't feel doing as high as 40 mgs of HC can mess anyone up. Co-Moderator Phil > From: <chrisjtaylor46@...> > Subject: Re: New here with results, looking for advice (in the UK) > > Date: Monday, July 5, 2010, 5:00 PM > hi all > > things are slowly moving along now, my endo wants me off HC > for 4 weeks before getting several tests including Testost, > GH, cortisol, MRI on pituitary etc. > > last year i developed sleep apnea after putting on about > 60lbs, this was after i started HC, but i started HC after > being very fatigued and scroing very low in an saliva test. > > just wondering - am i likely to have screwed up my hormone > levels myself by taking HC? eg, am i to blame for all > this? before i took hc i was very fatigued, couldn't > work, legs gave out fro under me, and the saliva test was > low as mentioned (15.5 -21-41 range , down from 27 18 months > before). > > the point of asking is this: if i get off the HC am i > likely to go back to normal, even tho i wasn't normal before > HC, and have long had problems? I suppose i'm trying > to see if i can let myself off the hook or thinking am i to > blame for all this? > > i think i have long had problems, in my early 20s i went > impotent for 2 years after taking tricyclics and slolwly > recovered but think i'e had various bouts of adrenal > fatigue, sometimes worse than others ( alo t worse) > > do u think that taking HC messed everyuthing up even more, > or that it would have made little difference had thigns > already been messed up, which i think they were? i > guess it's unlikely if i come off HC that i will suddenly go > back to normal? i think personally my body lsted as long as > it could until i was 30 and then my adrenals just gave > out. > > sorry half thinking aloud here but it would be good to know > whetehr my actions of taking HC helped or hindered? at most > i only ever went up to 40mg then felt i needed a lot less > almost over night (donw to 30, 20), now only on 5mg, and > need to stop it for these tests. > > thanks > > chris > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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