Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 After seeing that the number one complaint of people is GI issue. Only on a few occassions do we pick it up in the blood or even allergic to wheat. The proper testing is through a stool or saliva sample throu lab entero labs. When people come in with GI issues I focus mainly on the gut as well as check for malaborption and pathogenic bacteria or candida. Once you have all the data an elimation diet is commenced as well as properly treating for any other imbalances that may have been found. Constant monitoring of patients symptoms and other hormone levels are essential due to potential fluctuation from the protocol as the gut balances out. > > Barb, do you know much about celiac disease/gluten intolerance?? I've just been dx. with RA and Mixed connective tissue disorder. Started ob plaquenil just five days ago. I've had several people from another group tell me that these disorders could be related to celiac disease but no one can tell me what to do to test. I've had allergy testing and the results came back with no reaction to gluten, casein/whey or candida. Wouldn't these results reflect a problem with intolerance if I truly had a problem? I also had another member send a " gluten screning quiz " my way and I score very very high on the quiz. Any insight would be appreciated. > > Also sorry if this is way too O/T. If so, then please email me in private if you can be of some help. I'm obviously having some T conversion to E as well. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 you can post anything you want here. Co-Moderator Phil > From: <cinkourk@...> > Subject: celiac - E2 ?? > > Date: Monday, January 10, 2011, 1:12 PM > Barb, do you know much about celiac > disease/gluten intolerance?? I've just been dx. with > RA and Mixed connective tissue disorder. Started ob > plaquenil just five days ago. I've had > several people from another group tell me that these > disorders could be related to celiac disease but no one can > tell me what to do to test. I've had allergy testing > and the results came back with no reaction to gluten, > casein/whey or candida. Wouldn't these results reflect > a problem with intolerance if I truly had a problem? I > also had another member send a " gluten screning quiz " > my way and I score very very high on the quiz. Any > insight would be appreciated. > > Also sorry if this is way too O/T. If so, then please > email me in private if you can be of some help. I'm > obviously having some T conversion to E as well. > > Thanks, > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Thanks Phil. Some groups are very strict about staying on topic so didn't want to break any rules. > From: <cinkourk@...> > Subject: celiac - E2 ?? > > Date: Monday, January 10, 2011, 1:12 PM > Barb, do you know much about celiac > disease/gluten intolerance?? I've just been dx. with > RA and Mixed connective tissue disorder. Started ob > plaquenil just five days ago.   I've had > several people from another group tell me that these > disorders could be related to celiac disease but no one can > tell me what to do to test. I've had allergy testing > and the results came back with no reaction to gluten, > casein/whey or candida. Wouldn't these results reflect > a problem with intolerance if I truly had a problem? I > also had another member send a " gluten screning quiz " > my way and I score very very high on the quiz. Any > insight would be appreciated. > > Also sorry if this is way too O/T. If so, then please > email me in private if you can be of some help. I'm > obviously having some T conversion to E as well. > > Thanks, > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Anyone with autoimmune disease can be more inclined to have celiac. I know some here have Hashi's and Marc is getting tested for celiac genes. You got tested for allergies, that is not the same as celiac, which is autoimmune. You need to test for antibodies, specifically TTG or tissue transglutaminase. More expensive would be to test for the genes, and then you can have intestinal biopsies, etc. I just read a book called Celiac Disease for Dummies, and my TTG was negative, but I still have some symptoms, so I could be gluten intolerant, which is similar but different. Just being hypo can cause poor gut health, and the resultant leaky gut, which could lead to gluten intolerance. Symptoms are iron deficiency anemia, osteoporosis, gastrointestinal problems. HTH, Barb > > Barb, do you know much about celiac disease/gluten intolerance?? I've just been dx. with RA and Mixed connective tissue disorder. Started ob plaquenil just five days ago. I've had several people from another group tell me that these disorders could be related to celiac disease but no one can tell me what to do to test. I've had allergy testing and the results came back with no reaction to gluten, casein/whey or candida. Wouldn't these results reflect a problem with intolerance if I truly had a problem? I also had another member send a " gluten screning quiz " my way and I score very very high on the quiz. Any insight would be appreciated. > > Also sorry if this is way too O/T. If so, then please email me in private if you can be of some help. I'm obviously having some T conversion to E as well. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 I feel the only rule broken here is some one sitting in the back ground not feel well and not posting for help. Co-Moderator Phil > > > From: <cinkourk@...> > > Subject: celiac - E2 ?? > > > > Date: Monday, January 10, 2011, 1:12 PM > > Barb, do you know much about celiac > > disease/gluten intolerance?? I've just been dx. > with > > RA and Mixed connective tissue disorder. Started ob > > plaquenil just five days ago. I've had > > several people from another group tell me that these > > disorders could be related to celiac disease but no > one can > > tell me what to do to test. I've had allergy > testing > > and the results came back with no reaction to gluten, > > casein/whey or candida. Wouldn't these results > reflect > > a problem with intolerance if I truly had a problem? > I > > also had another member send a " gluten screning > quiz " > > my way and I score very very high on the quiz. Any > > insight would be appreciated. > > > > Also sorry if this is way too O/T. If so, then > please > > email me in private if you can be of some help. I'm > > obviously having some T conversion to E as well. > > > > Thanks, > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Thanks Hard, Can I order from the lab you mention on my own??  I don't really have any gut issues to speak of but I do understand that I could still have problems.  If this test cannot be ordered myself, who is the first person I should seek to possibly get this done? Can a registered nutritionist order this test or do I need to see a Gastro guy? From: hardasnails1973 <hardasnails1973@...> Subject: Re: celiac - E2 ?? Date: Monday, January 10, 2011, 1:41 PM  After seeing that the number one complaint of people is GI issue. Only on a few occassions do we pick it up in the blood or even allergic to wheat. The proper testing is through a stool or saliva sample throu lab entero labs. When people come in with GI issues I focus mainly on the gut as well as check for malaborption and pathogenic bacteria or candida. Once you have all the data an elimation diet is commenced as well as properly treating for any other imbalances that may have been found. Constant monitoring of patients symptoms and other hormone levels are essential due to potential fluctuation from the protocol as the gut balances out. > > Barb, do you know much about celiac disease/gluten intolerance?? I've just been dx. with RA and Mixed connective tissue disorder. Started ob plaquenil just five days ago. I've had several people from another group tell me that these disorders could be related to celiac disease but no one can tell me what to do to test. I've had allergy testing and the results came back with no reaction to gluten, casein/whey or candida. Wouldn't these results reflect a problem with intolerance if I truly had a problem? I also had another member send a " gluten screning quiz " my way and I score very very high on the quiz. Any insight would be appreciated. > > Also sorry if this is way too O/T. If so, then please email me in private if you can be of some help. I'm obviously having some T conversion to E as well. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Thanks Barb.  So, you answered my question. I just thought since the allergy testing was alright then I was fine. I really don't have any gut issues that I'm aware of but I guess that doesn't always mean I don't have problems. I think it might be worth a try to go gluten free just to see if my symptoms improve. Maybe this is a factor in the balancing of the hormones for sure.  From: Barb <baba@...> Subject: Re: celiac - E2 ?? Date: Monday, January 10, 2011, 2:19 PM  Anyone with autoimmune disease can be more inclined to have celiac. I know some here have Hashi's and Marc is getting tested for celiac genes. You got tested for allergies, that is not the same as celiac, which is autoimmune. You need to test for antibodies, specifically TTG or tissue transglutaminase. More expensive would be to test for the genes, and then you can have intestinal biopsies, etc. I just read a book called Celiac Disease for Dummies, and my TTG was negative, but I still have some symptoms, so I could be gluten intolerant, which is similar but different. Just being hypo can cause poor gut health, and the resultant leaky gut, which could lead to gluten intolerance. Symptoms are iron deficiency anemia, osteoporosis, gastrointestinal problems. HTH, Barb > > Barb, do you know much about celiac disease/gluten intolerance?? I've just been dx. with RA and Mixed connective tissue disorder. Started ob plaquenil just five days ago. I've had several people from another group tell me that these disorders could be related to celiac disease but no one can tell me what to do to test. I've had allergy testing and the results came back with no reaction to gluten, casein/whey or candida. Wouldn't these results reflect a problem with intolerance if I truly had a problem? I also had another member send a " gluten screning quiz " my way and I score very very high on the quiz. Any insight would be appreciated. > > Also sorry if this is way too O/T. If so, then please email me in private if you can be of some help. I'm obviously having some T conversion to E as well. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Thanks again Phil. I'm a member of several groups and I learn from each of them daily. It's great that you are open minded. > > > From: <cinkourk@...> > > Subject: celiac - E2 ?? > > > > Date: Monday, January 10, 2011, 1:12 PM > > Barb, do you know much about celiac > > disease/gluten intolerance?? I've just been dx. > with > > RA and Mixed connective tissue disorder. Started ob > > plaquenil just five days ago.   I've had > > several people from another group tell me that these > > disorders could be related to celiac disease but no > one can > > tell me what to do to test. I've had allergy > testing > > and the results came back with no reaction to gluten, > > casein/whey or candida. Wouldn't these results > reflect > > a problem with intolerance if I truly had a problem? > I > > also had another member send a " gluten screning > quiz " > > my way and I score very very high on the quiz. Any > > insight would be appreciated. > > > > Also sorry if this is way too O/T. If so, then > please > > email me in private if you can be of some help. I'm > > obviously having some T conversion to E as well. > > > > Thanks, > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Hi . I see you're looking into going gluten-free. I wish you the best and hope this can shed some light on some of the issues you're having. There are many things that gluten can affect. Yes, you can order the Enterolab testing yourself without a doctor. That's what I did. The panel that does stool + the gene testing is a good one and it's pretty thorough. Through that testing I found out I have a gene marker for Celiac. Although, I think the most conclusive thing anyone can do is to go 100% gluten-free and see what happens. That was all the proof I needed as I noticed an improvement in many things. And I also get deathly ill when I get into a tiny amount of gluten once I removed it, so gluten is totally out of my diet! When you do decide to go gluten-free please go through the extra steps to make sure you do it 100%. There's no amount of gluten you can have on a gluten-free diet. With the possibility of gut damage you don't want a trace sneaking in to damage your gut or hold you back from feeling better. This list of what to do is SO helpful: http://forums.realthyroidhelp.com/viewtopic.php?f=15 & t=12054 At least with the internet you can get answers in seconds about a product. I can't imagine what it was like going gluten-free before there was that or all the choices appearing at your local supermarket. I was going to mention that there are false negatives with testing. You can have negative blood antibodies and still have a major problem with gluten. You can also have a negative biopsy and just have the villi damaged somewhere else in the gut. So, that's another reason why going gluten-free is suggested regardless of test results. But I do understand how anyone would prefer to have have results saying there is a problem than just " trusting their gut. " Also, some sites suggest holding off a gluten-free diet till you get tested. But, this only applies to BLOOD testing and stool antibody testing can be done up to a certain time when already on a gluten-free diet and this won't cause the results to go negative. You can do gene testing at any time. -Nigel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 I believe you can. I am not positive. > > > > Barb, do you know much about celiac disease/gluten intolerance?? I've just been dx. with RA and Mixed connective tissue disorder. Started ob plaquenil just five days ago. I've had several people from another group tell me that these disorders could be related to celiac disease but no one can tell me what to do to test. I've had allergy testing and the results came back with no reaction to gluten, casein/whey or candida. Wouldn't these results reflect a problem with intolerance if I truly had a problem? I also had another member send a " gluten screning quiz " my way and I score very very high on the quiz. Any insight would be appreciated. > > > > Also sorry if this is way too O/T. If so, then please email me in private if you can be of some help. I'm obviously having some T conversion to E as well. > > > > Thanks, > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 Nigel,  Thank you so much for your help and suggestions.   I've had thyroid/adrenal problems for years and now taking this new anti-biotic for the RA I can feel it is really hitting my adrenals hard.  After talking with you and a couple of my other friends that are gluten-free I feel this is something that I should totally give a try. Thanks for the advice about the testing. I would rather avoid the testing and dive into the GF instead of risking the false pos/neg in order to see if I am truly having gluten problems. The link you included was very informative...I added it to my favorites. Last day for the new RA drugs and on to GF. Thanks again! From: nachohypo <nachonigel@...> Subject: Re: celiac - E2 ?? Date: Monday, January 10, 2011, 4:29 PM  Hi . I see you're looking into going gluten-free. I wish you the best and hope this can shed some light on some of the issues you're having. There are many things that gluten can affect. Yes, you can order the Enterolab testing yourself without a doctor. That's what I did. The panel that does stool + the gene testing is a good one and it's pretty thorough. Through that testing I found out I have a gene marker for Celiac. Although, I think the most conclusive thing anyone can do is to go 100% gluten-free and see what happens. That was all the proof I needed as I noticed an improvement in many things. And I also get deathly ill when I get into a tiny amount of gluten once I removed it, so gluten is totally out of my diet! When you do decide to go gluten-free please go through the extra steps to make sure you do it 100%. There's no amount of gluten you can have on a gluten-free diet. With the possibility of gut damage you don't want a trace sneaking in to damage your gut or hold you back from feeling better. This list of what to do is SO helpful: http://forums.realthyroidhelp.com/viewtopic.php?f=15 & t=12054 At least with the internet you can get answers in seconds about a product. I can't imagine what it was like going gluten-free before there was that or all the choices appearing at your local supermarket. I was going to mention that there are false negatives with testing. You can have negative blood antibodies and still have a major problem with gluten. You can also have a negative biopsy and just have the villi damaged somewhere else in the gut. So, that's another reason why going gluten-free is suggested regardless of test results. But I do understand how anyone would prefer to have have results saying there is a problem than just " trusting their gut. " Also, some sites suggest holding off a gluten-free diet till you get tested. But, this only applies to BLOOD testing and stool antibody testing can be done up to a certain time when already on a gluten-free diet and this won't cause the results to go negative. You can do gene testing at any time. -Nigel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 Hi Nigel I can't tell you how happy I am to see you join here I need all the help I can get. Nigel posts a lot at the Thyroid Forum I am a mod at he is a great guy full of tons of good info. Welcome to the forum Nigel. Co-Moderator Phil > From: nachohypo <nachonigel@...> > Subject: Re: celiac - E2 ?? > > Date: Monday, January 10, 2011, 5:29 PM > > > > > > Hi . > > I see you're looking into going gluten-free. I wish you the > best and hope this can shed some light on some of the issues > you're having. There are many things that gluten can > affect. > > Yes, you can order the Enterolab testing yourself without a > doctor. That's what I did. The panel that does stool + the > gene testing is a good one and it's pretty thorough. Through > that testing I found out I have a gene marker for Celiac. > > Although, I think the most conclusive thing anyone can do > is to go 100% gluten-free and see what happens. That was all > the proof I needed as I noticed an improvement in many > things. And I also get deathly ill when I get into a tiny > amount of gluten once I removed it, so gluten is totally out > of my diet! > > When you do decide to go gluten-free please go through the > extra steps to make sure you do it 100%. There's no amount > of gluten you can have on a gluten-free diet. With the > possibility of gut damage you don't want a trace sneaking in > to damage your gut or hold you back from feeling better. > This list of what to do is SO helpful: > > http://forums.realthyroidhelp.com/viewtopic.php?f=15 & t=12054 > > At least with the internet you can get answers in seconds > about a product. I can't imagine what it was like going > gluten-free before there was that or all the choices > appearing at your local supermarket. > > I was going to mention that there are false negatives with > testing. You can have negative blood antibodies and still > have a major problem with gluten. You can also have a > negative biopsy and just have the villi damaged somewhere > else in the gut. So, that's another reason why going > gluten-free is suggested regardless of test results. But I > do understand how anyone would prefer to have have results > saying there is a problem than just " trusting their gut. " > > Also, some sites suggest holding off a gluten-free diet > till you get tested. But, this only applies to BLOOD testing > and stool antibody testing can be done up to a certain time > when already on a gluten-free diet and this won't cause the > results to go negative. You can do gene testing at any > time. > > -Nigel > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 ,......yes, you can order the test direct from EnteroLab in Texas. I just did the cheek swab gene test that my doc recommended. No results yet though. He suggested the gene test for some reason, so that is the one I ordered. https://www.enterolab.com/StaticPages/TestInfo.aspx#gene_gluten It is $149.00 plus $25.00 for shipping both ways. They will send the results to your doc, as well as you via e-mail or letter,......your choice. > > Nigel, >  > Thank you so much for your help and suggestions.   I've had thyroid/adrenal problems for years and now taking this new anti-biotic for the RA I can feel it is really hitting my adrenals hard.  After talking with you and a couple of my other friends that are gluten-free I feel this is something that I should totally give a try. Thanks for the advice about the testing. I would rather avoid the testing and dive into the GF instead of risking the false pos/neg in order to see if I am truly having gluten problems. The link you included was very informative...I added it to my favorites. Last day for the new RA drugs and on to GF. > Thanks again! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 Thanks Marc. From: marc200134470 <cfs38@...> Subject: Re: celiac - E2 ?? Date: Tuesday, January 11, 2011, 11:10 AM  ,......yes, you can order the test direct from EnteroLab in Texas. I just did the cheek swab gene test that my doc recommended. No results yet though. He suggested the gene test for some reason, so that is the one I ordered. https://www.enterolab.com/StaticPages/TestInfo.aspx#gene_gluten It is $149.00 plus $25.00 for shipping both ways. They will send the results to your doc, as well as you via e-mail or letter,......your choice. > > Nigel, >  > Thank you so much for your help and suggestions.   I've had thyroid/adrenal problems for years and now taking this new anti-biotic for the RA I can feel it is really hitting my adrenals hard.  After talking with you and a couple of my other friends that are gluten-free I feel this is something that I should totally give a try. Thanks for the advice about the testing. I would rather avoid the testing and dive into the GF instead of risking the false pos/neg in order to see if I am truly having gluten problems. The link you included was very informative...I added it to my favorites. Last day for the new RA drugs and on to GF. > Thanks again! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 Forgot to mention they send you a receipt with an insurance code for you to submit yourself. Most good companies will pay for all or part of it if you are symptomatic. > > Thanks Marc. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 Oh wow, that is great to know. Thanks again, From: marc200134470 <cfs38@...> Subject: Re: celiac - E2 ?? Date: Tuesday, January 11, 2011, 12:04 PM  Forgot to mention they send you a receipt with an insurance code for you to submit yourself. Most good companies will pay for all or part of it if you are symptomatic. > > Thanks Marc. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Thanks, Phil! -Nigel > > Welcome to the forum Nigel. > > > > > Co-Moderator > Phil Quote Link to comment Share on other sites More sharing options...
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