Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 " pmgamer18 " <pmgamer18@...> wrote: > Today her Thyroid Peroxidase AB was less then 10 range <=35 IUImL > Her Thyroglobulin AB is 24 high range <=20 IUImL. These are good labs! Some report numbers in the 1000s. This says any problems she has today are not from Hashi's antibodies. Probably just undermedicated. What are her FT3 and FT4? > She is on Synthroud generic with T3 1/4 of a 5 mcg pill a day. That would be 1.25 mcg of T3. That's like not taking anything! I'm assuming she can't take more because she feels " hyper. " Dr. no confirmed what others have said on other forums, that iron/ferritin is crucial to thyroid metabolism. If her ferritin is not at least 70, she will not tolerate T3. He also says to optimize B12, Vit D, Vit A, eat a Weston Price diet (meat and fat etc.), take B vitamins, etc. > Now they are talking about trying the new Armour I told her I read people are not doing very good on this and we should find a better brand like ERFA but she would not have this covered by the drug plain we have. I got my head bit off dam if can't get through to her and I think this new Dr. is not any good finding out all he was testing was her TSH. I submitted my ERFA receipt to my Medco plan and was reimbursed for the cost less $15, my co-pay had I gotten Armour here in the states. I was stunned and amazed. Submitted it under foreign drugs or something. It is not that expensive if you use the right pharmacy. Some in Canada are ripping people off, others not. I get a bottle of 500 half-grain Erfa for $54.92+ shipping. You can get $12 off if you use my name as a referral (PM me). But I would be concerned that she wouldn't tolerate the Erfa cause it has T3 in it if she can only tolerate 1.25 mcg now. I would also guess she has high rT3, making her feel worse. I'd want the frees, totals, and rT3. You didn't really mention any symptoms. Are they the hypo symptoms or the hyper or both? > She was talking to the women doing the scan and this women told her she has Hashimoto's thyroiditis and it's bee 20 yrs. She told my wife nothing works. I tried to tell my wife many people with this problem do fine it's about finding the right Dr. Yes, it's just getting your levels to what's optimum for you, and NOT THE TSH! > What can one do do you know of a good way to treat Hashimoto's thyroiditis I read once to take NTH meds and drive down TSH so Anti's stop attacking. > > She said her Dr. said this is not ture. Well this seems like a ridiculous argument given that she hardly has any antibodies! Mine are just over-range, which isn't bad, cause like I said, others have reported numbers in the 1000s, and 10,000s. She needs to find a D.O. that will run the thyroid labs and Vit D, B12, full iron panel, ferritin, etc. And then she needs to combine meds in any way to get her FT3 mid-range or above and FT4 no higher than mid-range. This usually means adding T3 meds and TSH will drop to .0X. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 Thanks Barb, I don't have any labs for her that show Free T3 & T4 they don't test them I tell her to get this tested she will not tell them. She is cold even in the heat of summer at night when the temps come down to about 80 she covers up watching TV. She dose not sleep good and your right she can't take much T3. I am going to push her to test her Ferritin and Iron levels with RT3. It's hard to talk to her about doing something we as a family feel she likes to complain more then look for a way to get better. She will not see a Dr. that will test and treat her hormones with Bio hormones. Even people in her family that do this and tell her she will not listen. Last yr. I got her to get a 4 x's in a day cortisol saliva test and it came back one of the best I have seen not a problem. I think your on to something here she can't even take much NTH meds and it's the T3 makes here feel hyper once we had to rush her to the ER she felt like she was having a Heart Attack it was too much Thyroid Armour at the time. Co-Moderator Phil > > > Today her Thyroid Peroxidase AB was less then 10 range > <=35 IUImL > > Her Thyroglobulin AB is 24 high range <=20 IUImL. > > These are good labs! Some report numbers in the > 1000s. This says any problems she has today are not > from Hashi's antibodies. Probably just undermedicated. > What are her FT3 and FT4? > > > She is on Synthroud generic with T3 1/4 of a 5 mcg > pill a day. > > That would be 1.25 mcg of T3. That's like not taking > anything! I'm assuming she can't take more because she > feels " hyper. " Dr. no confirmed what others have > said on other forums, that iron/ferritin is crucial to > thyroid metabolism. If her ferritin is not at > least 70, she will not tolerate T3. He also says > to optimize B12, Vit D, Vit A, eat a Weston Price diet (meat > and fat etc.), take B vitamins, etc. > > > Now they are talking about trying the new Armour I > told her I read people are not doing very good on this and > we should find a better brand like ERFA but she would not > have this covered by the drug plain we have. I got my > head bit off dam if can't get through to her and I think > this new Dr. is not any good finding out all he was testing > was her TSH. > > I submitted my ERFA receipt to my Medco plan and was > reimbursed for the cost less $15, my co-pay had I gotten > Armour here in the states. I was stunned and > amazed. Submitted it under foreign drugs or > something. It is not that expensive if you use the > right pharmacy. Some in Canada are ripping people off, > others not. I get a bottle of 500 half-grain Erfa for > $54.92+ shipping. You can get $12 off if you use my > name as a referral (PM me). > > But I would be concerned that she wouldn't tolerate the > Erfa cause it has T3 in it if she can only tolerate 1.25 mcg > now. I would also guess she has high rT3, making her > feel worse. I'd want the frees, totals, and rT3. > You didn't really mention any symptoms. Are they the > hypo symptoms or the hyper or both? > > > She was talking to the women doing the scan and this > women told her she has Hashimoto's thyroiditis and > it's bee 20 yrs. She told my wife nothing works. > I tried to tell my wife many people with this problem do > fine it's about finding the right Dr. > > Yes, it's just getting your levels to what's optimum for > you, and NOT THE TSH! > > > What can one do do you know of a good way to treat > Hashimoto's thyroiditis I read once to take NTH meds and > drive down TSH so Anti's stop attacking. > > > > She said her Dr. said this is not ture. > > Well this seems like a ridiculous argument given that she > hardly has any antibodies! Mine are just over-range, > which isn't bad, cause like I said, others have reported > numbers in the 1000s, and 10,000s. > > She needs to find a D.O. that will run the thyroid labs and > Vit D, B12, full iron panel, ferritin, etc. > > And then she needs to combine meds in any way to get her > FT3 mid-range or above and FT4 no higher than > mid-range. This usually means adding T3 meds and TSH > will drop to .0X. > > Barb > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 Well obviously the decision to be well or not is hers. Why did she rush to the ER when she thought she was having a heart attack? Because she didn't want to die? If that's the case, then you can argue that being undermedicated on thyroid will cause an early death. There is correlation with heart disease, cancer, dementia, dental problems, not to mention the uncomfortableness of being cold, brain-fogged, etc. My own mother is grossly undermedicated on Synthroid with low FT3 AND FT4 and can't do anything about it, cause she's on the Kaiser plan, and most times they won't even test for that. So I help advise a lot of strangers, but can't help my own mother. *sigh* Barb > > > > > Today her Thyroid Peroxidase AB was less then 10 range > > <=35 IUImL > > > Her Thyroglobulin AB is 24 high range <=20 IUImL. > > > > These are good labs! Some report numbers in the > > 1000s. This says any problems she has today are not > > from Hashi's antibodies. Probably just undermedicated. > > What are her FT3 and FT4? > > > > > She is on Synthroud generic with T3 1/4 of a 5 mcg > > pill a day. > > > > That would be 1.25 mcg of T3. That's like not taking > > anything! I'm assuming she can't take more because she > > feels " hyper. " Dr. no confirmed what others have > > said on other forums, that iron/ferritin is crucial to > > thyroid metabolism. If her ferritin is not at > > least 70, she will not tolerate T3. He also says > > to optimize B12, Vit D, Vit A, eat a Weston Price diet (meat > > and fat etc.), take B vitamins, etc. > > > > > Now they are talking about trying the new Armour I > > told her I read people are not doing very good on this and > > we should find a better brand like ERFA but she would not > > have this covered by the drug plain we have. I got my > > head bit off dam if can't get through to her and I think > > this new Dr. is not any good finding out all he was testing > > was her TSH. > > > > I submitted my ERFA receipt to my Medco plan and was > > reimbursed for the cost less $15, my co-pay had I gotten > > Armour here in the states. I was stunned and > > amazed. Submitted it under foreign drugs or > > something. It is not that expensive if you use the > > right pharmacy. Some in Canada are ripping people off, > > others not. I get a bottle of 500 half-grain Erfa for > > $54.92+ shipping. You can get $12 off if you use my > > name as a referral (PM me). > > > > But I would be concerned that she wouldn't tolerate the > > Erfa cause it has T3 in it if she can only tolerate 1.25 mcg > > now. I would also guess she has high rT3, making her > > feel worse. I'd want the frees, totals, and rT3. > > You didn't really mention any symptoms. Are they the > > hypo symptoms or the hyper or both? > > > > > She was talking to the women doing the scan and this > > women told her she has Hashimoto's thyroiditis and > > it's bee 20 yrs. She told my wife nothing works. > > I tried to tell my wife many people with this problem do > > fine it's about finding the right Dr. > > > > Yes, it's just getting your levels to what's optimum for > > you, and NOT THE TSH! > > > > > What can one do do you know of a good way to treat > > Hashimoto's thyroiditis I read once to take NTH meds and > > drive down TSH so Anti's stop attacking. > > > > > > She said her Dr. said this is not ture. > > > > Well this seems like a ridiculous argument given that she > > hardly has any antibodies! Mine are just over-range, > > which isn't bad, cause like I said, others have reported > > numbers in the 1000s, and 10,000s. > > > > She needs to find a D.O. that will run the thyroid labs and > > Vit D, B12, full iron panel, ferritin, etc. > > > > And then she needs to combine meds in any way to get her > > FT3 mid-range or above and FT4 no higher than > > mid-range. This usually means adding T3 meds and TSH > > will drop to .0X. > > > > Barb > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 Barb,.....you are an angel to a lot of folks here and elsewhere I presume. You surely are in my eyes, even though I might not have a thyroid issue in the end. I hope that your mother finds a way to get better somehow. You can only do what you can,....the rest is out of your hands. > > Well obviously the decision to be well or not is hers. Why did she rush to the ER when she thought she was having a heart attack? Because she didn't want to die? If that's the case, then you can argue that being undermedicated on thyroid will cause an early death. There is correlation with heart disease, cancer, dementia, dental problems, not to mention the uncomfortableness of being cold, brain-fogged, etc. > > My own mother is grossly undermedicated on Synthroid with low FT3 AND FT4 and can't do anything about it, cause she's on the Kaiser plan, and most times they won't even test for that. So I help advise a lot of strangers, but can't help my own mother. > > *sigh* > Barb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 Yes big dam " sigh " I just told her about them labs she needs and that here Anti's are low and good. She was put on Iron pills when she had knee surgery and said she hated taking them. I don't know when anyone could hit bottom any lower then she is now. I told her and know I can't keep saying it over and over again she will just block me out. I will have to see what is next with her Dr. he told her is her ultra-sound was not good he would have to take her off meds for 6 weeks and do some kind of test. Give me a break. Co-Moderator Phil > From: Barb <baba@...> > Subject: Re: Barb about my wife's thyroid. > > Date: Wednesday, September 22, 2010, 2:38 PM > Well obviously the decision to be > well or not is hers. Why did she rush to the ER when > she thought she was having a heart attack? Because she > didn't want to die? If that's the case, then you can > argue that being undermedicated on thyroid will cause an > early death. There is correlation with heart disease, > cancer, dementia, dental problems, not to mention the > uncomfortableness of being cold, brain-fogged, etc. > > My own mother is grossly undermedicated on Synthroid with > low FT3 AND FT4 and can't do anything about it, cause she's > on the Kaiser plan, and most times they won't even test for > that. So I help advise a lot of strangers, but can't > help my own mother. > > *sigh* > Barb > > > > > > > > > Today her Thyroid Peroxidase AB was less > then 10 range > > > <=35 IUImL > > > > Her Thyroglobulin AB is 24 high range > <=20 IUImL. > > > > > > These are good labs! Some report numbers in > the > > > 1000s. This says any problems she has today are > not > > > from Hashi's antibodies. Probably just > undermedicated. > > > What are her FT3 and FT4? > > > > > > > She is on Synthroud generic with T3 1/4 of a > 5 mcg > > > pill a day. > > > > > > That would be 1.25 mcg of T3. That's like not > taking > > > anything! I'm assuming she can't take more > because she > > > feels " hyper. " Dr. no confirmed what > others have > > > said on other forums, that iron/ferritin is > crucial to > > > thyroid metabolism. If her ferritin is not at > > > least 70, she will not tolerate T3. He also > says > > > to optimize B12, Vit D, Vit A, eat a Weston Price > diet (meat > > > and fat etc.), take B vitamins, etc. > > > > > > > Now they are talking about trying the new > Armour I > > > told her I read people are not doing very good on > this and > > > we should find a better brand like ERFA but she > would not > > > have this covered by the drug plain we have. I > got my > > > head bit off dam if can't get through to her and > I think > > > this new Dr. is not any good finding out all he > was testing > > > was her TSH. > > > > > > I submitted my ERFA receipt to my Medco plan and > was > > > reimbursed for the cost less $15, my co-pay had I > gotten > > > Armour here in the states. I was stunned and > > > amazed. Submitted it under foreign drugs or > > > something. It is not that expensive if you use > the > > > right pharmacy. Some in Canada are ripping > people off, > > > others not. I get a bottle of 500 half-grain > Erfa for > > > $54.92+ shipping. You can get $12 off if you > use my > > > name as a referral (PM me). > > > > > > But I would be concerned that she wouldn't > tolerate the > > > Erfa cause it has T3 in it if she can only > tolerate 1.25 mcg > > > now. I would also guess she has high rT3, > making her > > > feel worse. I'd want the frees, totals, and > rT3. > > > You didn't really mention any symptoms. Are > they the > > > hypo symptoms or the hyper or both? > > > > > > > She was talking to the women doing the scan > and this > > > women told her she has Hashimoto's thyroiditis > and > > > it's bee 20 yrs. She told my wife nothing > works. > > > I tried to tell my wife many people with this > problem do > > > fine it's about finding the right Dr. > > > > > > Yes, it's just getting your levels to what's > optimum for > > > you, and NOT THE TSH! > > > > > > > What can one do do you know of a good way to > treat > > > Hashimoto's thyroiditis I read once to take NTH > meds and > > > drive down TSH so Anti's stop attacking. > > > > > > > > She said her Dr. said this is not ture. > > > > > > Well this seems like a ridiculous argument given > that she > > > hardly has any antibodies! Mine are just > over-range, > > > which isn't bad, cause like I said, others have > reported > > > numbers in the 1000s, and 10,000s. > > > > > > She needs to find a D.O. that will run the > thyroid labs and > > > Vit D, B12, full iron panel, ferritin, etc. > > > > > > And then she needs to combine meds in any way to > get her > > > FT3 mid-range or above and FT4 no higher than > > > mid-range. This usually means adding T3 meds > and TSH > > > will drop to .0X. > > > > > > Barb > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2010 Report Share Posted September 23, 2010 Phil both my husband and I take the new armour just fine....I have also read that some people have issues...but it is fine for the both of us. Judy > > She just got back from having a scan on her thyroid her she has Hashimoto's thyroiditis and yrs. ago even had RAI done. For yrs. she was treated by Endo's until she could not take it anymore. > > At STTM's I went to Armour's web site and found a Dr. that use's Armour she was better on this but could only take 90 mgs a day. > > Two days ago just testing TSH he called her in to his office saying her levels are all over the place. I told her TSH is not good for telling what is wrong have them test your Anti's. > > Today her Thyroid Peroxidase AB was less then 10 range <=35 IUImL > Her Thyroglobulin AB is 24 high range <=20 IUImL. > > She is on Synthroud generic with T3 1/4 of a 5 mcg pill a day. > > Now they are talking about trying the new Armour I told her I read people are not doing very good on this and we should find a better brand like ERFA but she would not have this covered by the drug plain we have. I got my head bit off dam if can't get through to her and I think this new Dr. is not any good finding out all he was testing was her TSH. > > She was talking to the women doing the scan and this women told her she has Hashimoto's thyroiditis and it's bee 20 yrs. She told my wife nothing works. I tried to tell my wife many people with this problem do fine it's about finding the right Dr. > > What can one do do you know of a good way to treat Hashimoto's thyroiditis I read once to take NTH meds and drive down TSH so Anti's stop attacking. > > She said her Dr. said this is not ture. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2010 Report Share Posted September 30, 2010 Barb - IÂ echo what Marc said. ________________________________ From: marc200134470 <cfs38@...> Sent: Wed, September 22, 2010 12:00:47 PM Subject: Re: Barb about my wife's thyroid. Â Barb,.....you are an angel to a lot of folks here and elsewhere I presume. You surely are in my eyes, even though I might not have a thyroid issue in the end. I hope that your mother finds a way to get better somehow. You can only do what you can,....the rest is out of your hands. > > Well obviously the decision to be well or not is hers. Why did she rush to the >ER when she thought she was having a heart attack? Because she didn't want to >die? If that's the case, then you can argue that being undermedicated on thyroid >will cause an early death. There is correlation with heart disease, cancer, >dementia, dental problems, not to mention the uncomfortableness of being cold, >brain-fogged, etc. > > My own mother is grossly undermedicated on Synthroid with low FT3 AND FT4 and >can't do anything about it, cause she's on the Kaiser plan, and most times they >won't even test for that. So I help advise a lot of strangers, but can't help my >own mother. > > *sigh* > Barb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2010 Report Share Posted September 30, 2010 Thanks Bill, that means a lot to me. > > > > Well obviously the decision to be well or not is hers. Why did she rush to the > >ER when she thought she was having a heart attack? Because she didn't want to > >die? If that's the case, then you can argue that being undermedicated on thyroid > >will cause an early death. There is correlation with heart disease, cancer, > >dementia, dental problems, not to mention the uncomfortableness of being cold, > >brain-fogged, etc. > > > > My own mother is grossly undermedicated on Synthroid with low FT3 AND FT4 and > >can't do anything about it, cause she's on the Kaiser plan, and most times they > >won't even test for that. So I help advise a lot of strangers, but can't help my > >own mother. > > > > *sigh* > > Barb > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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