Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Dr Grim Doesn't having one renin test on .15 and one a few weeks later having it 7 seen adnormal? > > > > > > > >> > > > >> Do any of you also have a high cortisol and ACTH level? I have had > > > >> three cortisol tests and only one has been high when I was feeling > > > >> really bad and before low salt diet. I'm wondering if the possible > > > >> PA caused higher levels of cortisol and ACTH? Or possibly they are > > > >> independent of each other? > > > >> > > > >> > > > >> I have some symptoms and tests that point to Cushings and some > > > >> symptoms and tests that point to PA. Is it possible to have both? I > > > >> know salt has something to do with both... > > > >> > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 not if conditions/drugs/diet/lab have changed.CE Grim MDOn Feb 19, 2010, at 12:55 PM, Francis Bill wrote:Dr Grim Doesn't having one renin test on .15 and one a few weeks later having it 7 seen adnormal?> > > >> > > >>> > > >> Do any of you also have a high cortisol and ACTH level? I have had > > > >> three cortisol tests and only one has been high when I was feeling > > > >> really bad and before low salt diet. I'm wondering if the possible > > > >> PA caused higher levels of cortisol and ACTH? Or possibly they are > > > >> independent of each other?> > > >>> > > >>> > > >> I have some symptoms and tests that point to Cushings and some > > > >> symptoms and tests that point to PA. Is it possible to have both? I > > > >> know salt has something to do with both...> > > >>> > > >> > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 not if conditions/drugs/diet/lab have changed.CE Grim MDOn Feb 19, 2010, at 12:55 PM, Francis Bill wrote:Dr Grim Doesn't having one renin test on .15 and one a few weeks later having it 7 seen adnormal?> > > >> > > >>> > > >> Do any of you also have a high cortisol and ACTH level? I have had > > > >> three cortisol tests and only one has been high when I was feeling > > > >> really bad and before low salt diet. I'm wondering if the possible > > > >> PA caused higher levels of cortisol and ACTH? Or possibly they are > > > >> independent of each other?> > > >>> > > >>> > > >> I have some symptoms and tests that point to Cushings and some > > > >> symptoms and tests that point to PA. Is it possible to have both? I > > > >> know salt has something to do with both...> > > >>> > > >> > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymand@... wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again. We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again. We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 I suggest you both get tested for OSA-obstructive Sleep apnea. Also make folks get up to pee a lot. Do you snore as well?CEGOn Feb 19, 2010, at 3:36 PM, moseleymand@... wrote:Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again.We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 I suggest you both get tested for OSA-obstructive Sleep apnea. Also make folks get up to pee a lot. Do you snore as well?CEGOn Feb 19, 2010, at 3:36 PM, moseleymand@... wrote:Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again.We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Not that I know of, I've been single for quite a long time. Parents never mentioned, I lived there for a while when I first fell ill.Okay, ill mention to my GPI've also got (on the right side too) flatterned nasal cartilage, trouble breathing out the right side (frequent sinus problems). When they did mri to check for a stroke, I had a big cyst in my lower sinus on the right side, apparently very common though.At the begining when I had this massive massive onset or the straw finally broke (after operation, made redundant,lots of antibiotics) etc I had a seizure after drinking alcohol..Thanks, Dr.Grim Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 16:01:33 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol I suggest you both get tested for OSA-obstructive Sleep apnea. Also make folks get up to pee a lot. Do you snore as well?CEGOn Feb 19, 2010, at 3:36 PM, moseleymandhotmail (DOT) co.uk wrote:Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again.We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Not that I know of, I've been single for quite a long time. Parents never mentioned, I lived there for a while when I first fell ill.Okay, ill mention to my GPI've also got (on the right side too) flatterned nasal cartilage, trouble breathing out the right side (frequent sinus problems). When they did mri to check for a stroke, I had a big cyst in my lower sinus on the right side, apparently very common though.At the begining when I had this massive massive onset or the straw finally broke (after operation, made redundant,lots of antibiotics) etc I had a seizure after drinking alcohol..Thanks, Dr.Grim Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 16:01:33 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol I suggest you both get tested for OSA-obstructive Sleep apnea. Also make folks get up to pee a lot. Do you snore as well?CEGOn Feb 19, 2010, at 3:36 PM, moseleymandhotmail (DOT) co.uk wrote:Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again.We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 My cozaar has increased by 50mg is the only difference. The endo doc ruled out PA because my aldosterone has never been over 10. Even though the cozaar would lower the level. Who knows testing before getting on all these drugs would have been good but I don't have that luxury! DanaSent from my Verizon Wireless BlackBerryFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 14:28:45 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol not if conditions/drugs/diet/lab have changed.CE Grim MDOn Feb 19, 2010, at 12:55 PM, Francis Bill wrote:Dr Grim Doesn't having one renin test on .15 and one a few weeks later having it 7 seen adnormal?> > > >> > > >>> > > >> Do a!ny of you also have a high cortisol and ACTH level? I have had > > > >> three cortisol tests and only one has been high when I was feeling > > > >> really bad and before low salt diet. I'm wondering if the possible > > > >> PA caused higher levels of cortisol and ACTH? Or possibly they are > > > >> independent of each other?> > > >>> > > >>> > > >> I have some symptoms and tests that point to Cushings and some > > > >> symptoms and tests that point to PA. Is it possible to have both? I > > > >> know salt has something to do with both...> > > >>> > > >> > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 My cozaar has increased by 50mg is the only difference. The endo doc ruled out PA because my aldosterone has never been over 10. Even though the cozaar would lower the level. Who knows testing before getting on all these drugs would have been good but I don't have that luxury! DanaSent from my Verizon Wireless BlackBerryFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 14:28:45 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol not if conditions/drugs/diet/lab have changed.CE Grim MDOn Feb 19, 2010, at 12:55 PM, Francis Bill wrote:Dr Grim Doesn't having one renin test on .15 and one a few weeks later having it 7 seen adnormal?> > > >> > > >>> > > >> Do a!ny of you also have a high cortisol and ACTH level? I have had > > > >> three cortisol tests and only one has been high when I was feeling > > > >> really bad and before low salt diet. I'm wondering if the possible > > > >> PA caused higher levels of cortisol and ACTH? Or possibly they are > > > >> independent of each other?> > > >>> > > >>> > > >> I have some symptoms and tests that point to Cushings and some > > > >> symptoms and tests that point to PA. Is it possible to have both? I > > > >> know salt has something to do with both...> > > >>> > > >> > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 CoZar will Inc reninTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 5:09 PM, cowdoc@... wrote: My cozaar has increased by 50mg is the only difference. The endo doc ruled out PA because my aldosterone has never been over 10. Even though the cozaar would lower the level. Who knows testing before getting on all these drugs would have been good but I don't have that luxury! DanaSent from my Verizon Wireless BlackBerryFrom: Clarence Grim <lowerbp2mac> Date: Fri, 19 Feb 2010 14:28:45 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol not if conditions/drugs/diet/lab have changed.CE Grim MDOn Feb 19, 2010, at 12:55 PM, Francis Bill wrote:Dr Grim Doesn't having one renin test on .15 and one a few weeks later having it 7 seen adnormal?> > > >> > > >>> > > >> Do a! ny of yo u also have a high cortisol and ACTH level? I have had > > > >> three cortisol tests and only one has been high when I was feeling > > > >> really bad and before low salt diet. I'm wondering if the possible > > > >> PA caused higher levels of cortisol and ACTH? Or possibly they are > > > >> independent of each other?> > > >>> > > >>> > > >> I have some symptoms and tests that point to Cushings and some > > > >> symptoms and tests that point to PA. Is it possible to have both? I > > > >> know salt has something to do with both...> > > >>> > > >> > > >> > > >> > > >> > >> >> Reply to sender | Reply to group Messages in this topic (35) Recent Activity: New Members 8 New Links 1 New Files 3 Visit Your Group Start a New Topic MARKETPLACE Going Green: Your resource for green living Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 CoZar will Inc reninTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 5:09 PM, cowdoc@... wrote: My cozaar has increased by 50mg is the only difference. The endo doc ruled out PA because my aldosterone has never been over 10. Even though the cozaar would lower the level. Who knows testing before getting on all these drugs would have been good but I don't have that luxury! DanaSent from my Verizon Wireless BlackBerryFrom: Clarence Grim <lowerbp2mac> Date: Fri, 19 Feb 2010 14:28:45 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol not if conditions/drugs/diet/lab have changed.CE Grim MDOn Feb 19, 2010, at 12:55 PM, Francis Bill wrote:Dr Grim Doesn't having one renin test on .15 and one a few weeks later having it 7 seen adnormal?> > > >> > > >>> > > >> Do a! ny of yo u also have a high cortisol and ACTH level? I have had > > > >> three cortisol tests and only one has been high when I was feeling > > > >> really bad and before low salt diet. I'm wondering if the possible > > > >> PA caused higher levels of cortisol and ACTH? Or possibly they are > > > >> independent of each other?> > > >>> > > >>> > > >> I have some symptoms and tests that point to Cushings and some > > > >> symptoms and tests that point to PA. Is it possible to have both? I > > > >> know salt has something to do with both...> > > >>> > > >> > > >> > > >> > > >> > >> >> Reply to sender | Reply to group Messages in this topic (35) Recent Activity: New Members 8 New Links 1 New Files 3 Visit Your Group Start a New Topic MARKETPLACE Going Green: Your resource for green living Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 A seizure after alcohol usually means u drank way too much. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 4:25 PM, moseleymand@... wrote: Not that I know of, I've been single for quite a long time. Parents never mentioned, I lived there for a while when I first fell ill.Okay, ill mention to my GPI've also got (on the right side too) flatterned nasal cartilage, trouble breathing out the right side (frequent sinus problems). When they did mri to check for a stroke, I had a big cyst in my lower sinus on the right side, apparently very common though.At the begining when I had this massive massive onset or the straw finally broke (after operation, made redundant,lots of antibiotics) etc I had a seizure after drinking alcohol..Thanks, Dr.Grim Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac> Date: Fri, 19 Feb 2010 16:01:33 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol I suggest you both get tested for OSA-obstructive Sleep apnea. Also make folks get up to pee a lot. Do you snore as well?CEGOn Feb 19, 2010, at 3:36 PM, moseleymandhotmail (DOT) co.uk wrote:Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again.We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 A seizure after alcohol usually means u drank way too much. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 4:25 PM, moseleymand@... wrote: Not that I know of, I've been single for quite a long time. Parents never mentioned, I lived there for a while when I first fell ill.Okay, ill mention to my GPI've also got (on the right side too) flatterned nasal cartilage, trouble breathing out the right side (frequent sinus problems). When they did mri to check for a stroke, I had a big cyst in my lower sinus on the right side, apparently very common though.At the begining when I had this massive massive onset or the straw finally broke (after operation, made redundant,lots of antibiotics) etc I had a seizure after drinking alcohol..Thanks, Dr.Grim Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac> Date: Fri, 19 Feb 2010 16:01:33 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol I suggest you both get tested for OSA-obstructive Sleep apnea. Also make folks get up to pee a lot. Do you snore as well?CEGOn Feb 19, 2010, at 3:36 PM, moseleymandhotmail (DOT) co.uk wrote:Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again.We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Tell her it is good to have a low creatinine. Tell her to drink one for me. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 1:01 PM, moseleymand@... wrote: Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac> Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Tell her it is good to have a low creatinine. Tell her to drink one for me. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 1:01 PM, moseleymand@... wrote: Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac> Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Tell her it is good to have a low creatinine. Tell her to drink one for me. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 1:01 PM, moseleymand@... wrote: Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac> Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 No, I didn't though I had a 3-4 drinks, I've never been a drinker was into my gym too much! It was new years eve that's why I went out....to sit round friends as so fed up about what was going on. Had no idea about foods, salt etc Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 19:20:39 -0600hyperaldosteronism <hyperaldosteronism >Subject: Re: Re: question about cortisol A seizure after alcohol usually means u drank way too much. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 4:25 PM, moseleymandhotmail (DOT) co.uk wrote: Not that I know of, I've been single for quite a long time. Parents never mentioned, I lived there for a while when I first fell ill.Okay, ill mention to my GPI've also got (on the right side too) flatterned nasal cartilage, trouble breathing out the right side (frequent sinus problems). When they did mri to check for a stroke, I had a big cyst in my lower sinus on the right side, apparently very common though.At the begining when I had this massive massive onset or the straw finally broke (after operation, made redundant,lots of antibiotics) etc I had a seizure after drinking alcohol..Thanks, Dr.Grim Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 16:01:33 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol I suggest you both get tested for OSA-obstructive Sleep apnea. Also make folks get up to pee a lot. Do you snore as well?CEGOn Feb 19, 2010, at 3:36 PM, moseleymandhotmail (DOT) co.uk wrote:Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again.We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 No, I didn't though I had a 3-4 drinks, I've never been a drinker was into my gym too much! It was new years eve that's why I went out....to sit round friends as so fed up about what was going on. Had no idea about foods, salt etc Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 19:20:39 -0600hyperaldosteronism <hyperaldosteronism >Subject: Re: Re: question about cortisol A seizure after alcohol usually means u drank way too much. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 4:25 PM, moseleymandhotmail (DOT) co.uk wrote: Not that I know of, I've been single for quite a long time. Parents never mentioned, I lived there for a while when I first fell ill.Okay, ill mention to my GPI've also got (on the right side too) flatterned nasal cartilage, trouble breathing out the right side (frequent sinus problems). When they did mri to check for a stroke, I had a big cyst in my lower sinus on the right side, apparently very common though.At the begining when I had this massive massive onset or the straw finally broke (after operation, made redundant,lots of antibiotics) etc I had a seizure after drinking alcohol..Thanks, Dr.Grim Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 16:01:33 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol I suggest you both get tested for OSA-obstructive Sleep apnea. Also make folks get up to pee a lot. Do you snore as well?CEGOn Feb 19, 2010, at 3:36 PM, moseleymandhotmail (DOT) co.uk wrote:Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again.We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 No, I didn't though I had a 3-4 drinks, I've never been a drinker was into my gym too much! It was new years eve that's why I went out....to sit round friends as so fed up about what was going on. Had no idea about foods, salt etc Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2@...>Date: Fri, 19 Feb 2010 19:20:39 -0600hyperaldosteronism <hyperaldosteronism >Subject: Re: Re: question about cortisol A seizure after alcohol usually means u drank way too much. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 4:25 PM, moseleymandhotmail (DOT) co.uk wrote: Not that I know of, I've been single for quite a long time. Parents never mentioned, I lived there for a while when I first fell ill.Okay, ill mention to my GPI've also got (on the right side too) flatterned nasal cartilage, trouble breathing out the right side (frequent sinus problems). When they did mri to check for a stroke, I had a big cyst in my lower sinus on the right side, apparently very common though.At the begining when I had this massive massive onset or the straw finally broke (after operation, made redundant,lots of antibiotics) etc I had a seizure after drinking alcohol..Thanks, Dr.Grim Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 16:01:33 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol I suggest you both get tested for OSA-obstructive Sleep apnea. Also make folks get up to pee a lot. Do you snore as well?CEGOn Feb 19, 2010, at 3:36 PM, moseleymandhotmail (DOT) co.uk wrote:Well, she definitely snores loud, I don't know about sleep apenea, she visits the loo quite a bit I think.I can see a difference in her physically, along with the personality changes. At the moment she looks bigger, face is full again.We both have periods of bad nightmares and I've slept walked for years. My Mum and Dad said I was screaming in my room one night and there was something going on with what sounded like a plastic bag! I don't know what I was doing.More recently, even last night I jumped up very quickly, heart pounding its all very strange.Another thing is the way I shut myself off from meeting people, or I don't like being around too many people. I get panic attacks. If something exciting happens I over react to the point of I can feel my jaw clenching! Or if I get scared it feels like an exaggerated response to stress..its horrible..I can watch a film a start really sweating and the feeling lasts for ages...Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 14:36:52 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol Some Cushing's will have sleep apnea i suspect with lots of snoring. This leads to poor sleep and daytime sleepyness.On Feb 19, 2010, at 1:01 PM, moseleymandhotmail (DOT) co.uk wrote:Her creatinine is 51. Range 60-110Sleep - I meant that she sleeps okay. Cushings stops you sleeping doesn't it? From what I've read anyway.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 11:51:34 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol My guess is you mean her creatinine is too high. No good reason to measure creatine.Not sure what you mean by sleep...On Feb 19, 2010, at 8:54 AM, moseleymandhotmail (DOT) co.uk wrote:My sister, who is also having problems has just got her blood results. Her creatine is deficent well under same as mine.Her tsh is also 0.68 her T4 is 13.4 but not done her T3. Also, her B12 is right at the bottom of the range.The thing that makes me think sister can't have cushings is that she can sleep....Practically the same as mine. Its definatley in my family.My neice is also having bloods as she is being very dizzy, vomiting and allergies, hair falling out,fussy about eating - always not hungry strange spots / rash like I get..She is only 8 years old...bless herSorry ill shut up now...tc mandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Fri, 19 Feb 2010 08:20:53 -0600<hyperaldosteronism >Subject: Re: Re: question about cortisol You should recall that blood K is not a very good indicator of K stores as most K is inside the cells. Urine K is best way to keep track of balance if intake high and urine low then you are holding on to K Symptoms may be a better guide to K in cells that blood K. Esp as many do not follow our goallines to get an accurate K.CE Grim MDOn Feb 19, 2010, at 7:50 AM, moseleymandhotmail (DOT) co.uk wrote:Okay, thanks.Sorry, if I am asking too much of this forum, I just have such different fluctuating symptoms.Its so frustrating. I won't post again until I have some recent results. Whilst I am waiting to go in barts I am going to ask my gp to test my potassium.TcMandySent using BlackBerry® from OrangeFrom: "kappi98" <kappi98amsn>Date: Fri, 19 Feb 2010 13:21:34 -0000<hyperaldosteronism >Subject: Re: question about cortisol Please take alook at this case study: http://www.eje-online.org/cgi/content/full/153/5/629The 2005 study suggests that your consultant may be in the right ballpark! DASHing can be tricky. You need to know what your Na and K levels are so that you do not throw your K level off by DASHing. I do not DASH to the max because my K levels have stabilized in the normal range following my DASH-like diet. This is a support group, not a group of medical doctors! Let common sense prevail when it comes to managing YOUR health!!! -------------------------------------------------------------------------------------------------------------- > >> > >>> > >>> Do any of you also have a high cortisol and ACTH level? I have had > >>> three cortisol tests and only one has been high when I was feeling > >>> really bad and before low salt diet. I'm wondering if the possible > >>> PA caused higher levels of cortisol and ACTH? Or possibly they are > >>> independent of each other? > >>> > >>> > >>> I have some symptoms and tests that point to Cushings and some > >>> symptoms and tests that point to PA. Is it possible to have both? > >>> I know salt has something to do with both... > >>> > >> > >> > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 I have never had blood drawn without a tourniquet. Even though I have very easily accessed antecubital veins, since so many " technicians " now now are not phlebotomists but people with about 5 minutes of " training " on how to draw blood, usually they cannot hit the vein unless it is out like Popeye's. They always ask me to pump my fist; I " m sitting there looking at my vein thinking I could just draw the blood myself... (I am a nurse). Has anyone had blood drawn for K according to Dr Grim's guidelines, or have you gone in with the instructions and been successful? > > > >> > > > >>> > > > >>> Do any of you also have a high cortisol and ACTH level? I have > > had > > > >>> three cortisol tests and only one has been high when I was > > feeling > > > >>> really bad and before low salt diet. I'm wondering if the > > possible > > > >>> PA caused higher levels of cortisol and ACTH? Or possibly they > > are > > > >>> independent of each other? > > > >>> > > > >>> > > > >>> I have some symptoms and tests that point to Cushings and some > > > >>> symptoms and tests that point to PA. Is it possible to have > > both? > > > >>> I know salt has something to do with both... > > > >>> > > > >> > > > >> > > > >> > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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