Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Dear Ruth, My first time injecting methotrexate into my then 3 year old daughter was went about as well as your experience. I also managed to scratch myself with the needle. We had a gradual course to doing the injections ourselves. We started with a nurse we visited once a week. We live in Canada, so we are lucky this did not cost us anything. Having someone do the injection gave us all time to get over the shock of the injection. You probably feel more stress than you know about having to do this and was just outraged (well wouldn't you be -at 3). When she got to a point where she wasn't crying with the nurse (Emla should be put on at least an 90 minuites before), my husband and I started to learn how to do this. Of course, first time I tried screamed bloody murder and twisted away. Two years later we all are pros, sort of, at this. Last week I managed to inject while she was sitting by herself watching TV, she usually sits on her Dad's lap so he can hold her. So I guess we are past the stage where she needs to be held. Good Luck, I hope you find a solution. This isn't easy. Joanna > Kiszka wrote: > > From: " Kiszka " <fkiszka@...> > > Hi again!!!! > > Friday night, was supposed to get her first injection of MTX. I > used EMLA cream to numb the area (thigh). My neighbor, who is a RN, > came over to supervise. Well, carried on and cried so much. > When I finally got her calm enough to even get near her leg, she > jumped, thus being scratched by the needle. Needless to say, > did not get her injection that night. I gave her her meds orally. > > My primary doctor will not give the MTX injection because it is > chemotherapy. They also will not do the Enbrel injection until she > gets at least one and has no reaction to it. What am I supposed to > do? I will be calling my insurance tomorrow (Monday) to find out if I > can get a visiting nurse to come to my house for the first few > injections. Maybe this will let know that the shot won't hurt > and I'll be able to do it. > > Has anyone else had this problem? What did you do? > > I pray and Hope for all your children and you! > > Ruth > ---------------------------------------------------------------------- > > ---------------------------------------------------------------------- > For links to websites with JRA info visit: > http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Kourtney was taking mtx orally for about 3 yrs. It wasn't absorbing enough into her system and therefore was doing no good. Last year she started getting injections. She is covered by CCS and they supplied all the injection material and a nurse to give the injection. She came to our house and did it there. Well, we had problems with the nurse because she would weigh Kourtney when she came and when Kourtney's weight would drop a couple of ounces the nurse would threaten us. She would tell us that we weren't giving Kourtney's feedings through the G-tube and tell us that if we didn't comply with their rules that they would call CPS and have Kourtney taken from us. The truth of the matter is, Kourtney couldn't tolerate the feedings and would vomit everything back up in the middle of the night. We refused service from the nurse and they sent us to her pediatrician to get the injections once a week. This worked well but it got tiring. They then taught us how to give it ourselves at home and it works well. My husband and I take turns, sometimes it get hard on us. One of us has to hold her while the other gives the shot. Even my 8 yr old will hold Kourtney on her lap for me. We use the Emla cream, which helps an lot to numb the area. There is also a spray that does the same that the dr used. Some days she stills screams and wiggles around a lot but most of the time she does pretty good and doesn't even cry. She still has the anxiety and I think that's worse than the pain. ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hi Ruth, I have been through the same thing. My son has been going to counseling as an attempt to get over his problems with shots. The first thing I figured out is that I should not give him shots. (I had a failed 1st attempt as well.) The Dr. says since he can't choose to have the shots or not, to let him choose the shot giver. I have lined up 4 shot givers and am letting him choose who he likes the best. I have lined up: 1. a nurse who is a friend of mine 2. the nurse at the rheum. office 3. a nurse at his primary care giver and 4. a nurse at the local hospital. You may want to call your local hospital and explain your problem, I have found ours to be very helpful. Good luck, Jana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hello, Reading your message made me feel so grateful for our current arrangements. When Josh switched from oral to injectable methotrexate they explained that the shots would be done by a nurse at the outpatient oncology clinic at the local hospital. It's only 5 minutes from home, very convenient, and is covered by Josh's insurance. If he were to use Enbrel (twice a week injection) or Human Growth Hormone (daily injections) I guess I'd have to learn how to do it myself. Now that Josh is more accustomed to these weekly injections by the nurse, I'm sure he'd be more willing and cooperative to allowing me to do it. Plus, he's older (almost 11). I can sympathize with your predicament. I hope it gets easier, quickly. A few visits from a home health nurse sounds like a great idea. Good Luck! Take care, Georgina > Kiszka wrote: > Hi again!!!! > > Friday night, was supposed to get her first injection of MTX. I > used EMLA cream to numb the area (thigh). My neighbor, who is a RN, > came over to supervise. Well, carried on and cried so much. > When I finally got her calm enough to even get near her leg, she > jumped, thus being scratched by the needle. Needless to say, > did not get her injection that night. I gave her her meds orally. > > My primary doctor will not give the MTX injection because it is > chemotherapy. They also will not do the Enbrel injection until she > gets at least one and has no reaction to it. What am I supposed to > do? I will be calling my insurance tomorrow (Monday) to find out if I > can get a visiting nurse to come to my house for the first few > injections. Maybe this will let know that the shot won't hurt > and I'll be able to do it. > > Has anyone else had this problem? What did you do? > > I pray and Hope for all your children and you! > > Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 hello my daughter just went to im Metho anout three months ago it is sooo much better she has done great with it and the side effects with her have been less then the oral ,she as well had the injections in her ankles and I did not think that it was so much better but still better well good luck I think it will do a lot for your child >From: beckscamp@... >Reply- egroups > egroups >Subject: Injections >Date: Tue, 04 Apr 2000 23:09:01 -0000 >MIME-Version: 1.0 >Received: from [208.50.144.74] by hotmail.com (3.2) with ESMTP id >MHotMailBAB3C1EA007DD82197D4D032904A4FDD41; Tue Apr 04 16:13:36 2000 >Received: from [10.1.10.36] by fl. with NNFMP; 04 Apr 2000 >23:12:15 -0000 >Received: (qmail 28879 invoked from network); 4 Apr 2000 23:09:09 -0000 >Received: from unknown (10.1.10.26) by m2.onelist.org with QMQP; 4 Apr 2000 >23:09:09 -0000 >Received: from unknown (HELO qg.) (10.1.2.27) by mta1 with SMTP; >4 Apr 2000 23:09:09 -0000 >Received: (qmail 1368 invoked from network); 4 Apr 2000 23:09:09 -0000 >Received: from n6.onelist.org (HELO hm.) (10.1.10.45) by >iqg. with SMTP; 4 Apr 2000 23:09:09 -0000 >Received: from [10.1.10.120] by hm. with NNFMP; 04 Apr 2000 >23:09:08 -0000 >From sentto-80038-4357-shancna Tue Apr 04 16:14:22 2000 >X-eGroups-Return: sentto-80038-4357-shancna=hotmail.comreturns (DOT) onelist.com >X-eGroups-Return: beckscamp@... >Message-ID: <8cdsmd+u83beGroups> >User-Agent: eGroups-EW/0.82 >X-Mailer: eGroups Message Poster >Mailing-List: list egroups; contact -owneregroups >Delivered-mailing list egroups >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeegroups> >X-eGroups-From: beckscamp@... > >We just got back from visit with Rheumy. She changed my sons mtx to >injections. Can you advise of the side effects? We didn't have any >with oral but they weren't effective enough. He also has to get >steriod injections in both knees in 2 weeks. Any advice is greatly >appreciated. I recently subscribed to this list and have found it >very >helpful. Thanks. > and > > >------------------------------------------------------------------------ >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! >1/936/1/_/524922/_/954889750/ >------------------------------------------------------------------------ > >For links to websites with JRA info visit: >http://www.geocities.com/Heartland/Village/8414/Links.html > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Hi We switched from oral to injectable mtx a few weeks ago, and thus far has had no side effects. And the rheumatologists have apparently been finding the injections to be 30% to 40% more effective than the oral. As for steroid injections, we have no experience there, but those whose kids have had them seem pleased with the results. Liz beckscamp@... wrote: > > We just got back from visit with Rheumy. She changed my sons mtx to > injections. Can you advise of the side effects? We didn't have any > with oral but they weren't effective enough. He also has to get > steriod injections in both knees in 2 weeks. Any advice is greatly > appreciated. I recently subscribed to this list and have found it > very > helpful. Thanks. > and > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > 1/936/1/_/524922/_/954889750/ > ------------------------------------------------------------------------ > > For links to websites with JRA info visit: > http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2000 Report Share Posted April 6, 2000 My son switched over to methotrexate injections in March 2000 because his rheumotologist wanted to increase him from 12.5 mg. to 20.mg She did tell me that at the higher dose it was absorbed much better. Nick seems to tolerate the higher dose injected better than the oral It use to really upset his stomach. We are also seeing some improvement in his symptoms. Hope that helps! Nan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2000 Report Share Posted April 6, 2000 Thanks for the information. gets his first shot tomorrow afternoon. I'm still concerned because she has him on Ibuprofen and Naprosyn and I've heard its not good to be on both. Is your son in the age range of 9-11yrs.? I would like to find someone for to pen-pal with. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Thank you ! I think I have enough courage to try the shots now. I apprieciate the support. meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 I thought Enbrel hurt when I first started getting the shots. I might suggested getting some EMLA. I started using it for awhile and pretty soon I stopped using it. Now I think i'm just desensitized to the needle.. but there are occassions where it still hurts.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hi, Our son also uses Emla cream.It was just last night he got his Enbrel and as I was pulling the needle out he yelled " Would you stick me already " .I can only assume he didn't feel a thing. We also leave it on for 2 hours. Becki and 6 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hi, My son is 6yrs. old and has the Embrel shot twice a week. Our pharmacist suggested this to me and it might sound crazy but it helps. He told me to go to a Tatoo place and but some of the stuff they use to numb the areas for Tatoos. It's a small tube and it costs $7.00 and it lasts us for 3 months. You rub it on the area where the injection is going to be given and it takes 30 min. to numb the area, then give the injection. My son doesn't even cry any more. Also, if you take the shot out of the fridge for about 10 min. prior it isn't as bad when it's not so cold. Just my input...seems to work for us. Hope it helps Darlene ( systemic 6) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 The 25mg vials aren't going anywhere.They are still made for children who take the lower doses. Becki and 6systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Have you tried applying EMLA cream to the injection site about 2 hours prior to the shot?? It really works and is available by prescription. There's also a generic for it. We do a weekly mtx. shot and this stuff works wonders. Stacia and Hunter 8 systemic, iritis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 ... also gets the 50mg injections once weekly. She says it burns as it goes in now too.. with the premixed vials she never had a complaint. I am wondering if there is something in the premixes that weren't in the other ones... Emilie and (5 POly) Injections Hi, Our 12 year old son has only had 4 Enbrel injects thus far (50mg 1x per week)and he hates them!!! I was not prepared for him to be so upset. His arthritis was under control and you would never have known he had arthritis until Vioxx was taken off the market. After that, his methotrexate(oral) was increased and Naproxen started. When no improvement, the Enbrel was started in Jan. It has worked wonders and he is off everything else BUT . . . it must hurt as it is being injected because he cries as it goes in. Does anyone else say that it hurts? He also can not get past, in his words, " it is forever, week after week. " I am praying that it gets easier as it is breaking all of our hearts. Thanks - ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 , I wonder if the twice weekly injections are still available. I just filled n's prescription and we got the 25mg vials. n has never said that it burns, but sometimes my pokes aren't the best. Try calling the enbrel number and they may have some suggestions. I have done that in the past, and they were very helpful to me. (n, 16, systemic) Injections > > > Hi, Our 12 year old son has only had 4 Enbrel injects thus far (50mg > 1x per week)and he hates them!!! I was not prepared for him to be > so upset. His arthritis was under control and you would never have > known he had arthritis until Vioxx was taken off the market. After > that, his methotrexate(oral) was increased and Naproxen started. > When no improvement, the Enbrel was started in Jan. It has worked > wonders and he is off everything else BUT . . . it must hurt as it > is being injected because he cries as it goes in. Does anyone else > say that it hurts? He also can not get past, in his words, " it is > forever, week after week. " I am praying that it gets easier as it > is breaking all of our hearts. > > Thanks - > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 In a message dated 2/7/05 1:43:13 PM Central Standard Time, h.skidmore@... writes: > ... also gets the 50mg injections once weekly. She says it > burns as it goes in now too.. with the premixed vials she never had a > complaint. I am wondering if there is something in the premixes that weren't in the > other ones... Emilie and (5 POly) Hi, My daughter gets Enbrel. She was taking the 2 25mg injections the same day per week. Her rheumatologist prescribed the 1 50mg injection and she complained that it hurt and that she could feel her heart and loss of breath. I called her rheumatologist and expressed my concern. He says it is more concentrated. Sure it makes it easier to inject one shot but it did hurt. I asked to be prescribed the 2 25mg injections better. My daughter is happier now that she does receive the 2 instead of the 1. o Salas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 - I have heard that the 50mg shots do hurt. The EMLA cream might help, but the medicine may still burn as it goes in. If your son is willing to have two shots a week instead of the one you might want to consider that. The 25 ml vials do not hurt. The needle prick is all that is bothersome and you can apply the EMLA cream to take care of that. Check with your rheumy or pharmacist to see about the switch. Alia and Caroline, age 3, poly and uveitis Injections Hi, Our 12 year old son has only had 4 Enbrel injects thus far (50mg 1x per week)and he hates them!!! I was not prepared for him to be so upset. His arthritis was under control and you would never have known he had arthritis until Vioxx was taken off the market. After that, his methotrexate(oral) was increased and Naproxen started. When no improvement, the Enbrel was started in Jan. It has worked wonders and he is off everything else BUT . . . it must hurt as it is being injected because he cries as it goes in. Does anyone else say that it hurts? He also can not get past, in his words, " it is forever, week after week. " I am praying that it gets easier as it is breaking all of our hearts. Thanks - _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 The injection in lumbar area is not that bad. They will use numbing agent before performing the injection. You will feel pressure and some discomfort. If you don't get numb easily, ask for additional numbing agent, usually Novocain. Afterwards you should feel better because part of the injection contains a numbing agent as well so when it's injected near the nerves, it should provide relief shortly after the injection is over. The steroids usually start to work after 3-5 days. You will need to keep iced on the area over the next 24 hours and will not be able to take a bath or sit in a hot tub for 48 hours. They will emphasize the importance of not putting heat on the injection site, only ice. If you have additional questions, feel free to ask. God Bless, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 I have had shots in my neck and lumbar area. The neck was numbed quite a bit,but I dont think the lumbar was because that was VERY painful .I had them at L5-S1 --- Randall <rpkkj@...> wrote: > I'm going to be having shots in my lumbar area, but > I was wondering how much it hurts? or do they > deaden the area? I had cortisone injections in my > thumb joints and it hurt a lot. > meg > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 i have had cortizone injections in my spine as recent as last week. the whole procedure lasts maybe two minutes. 1st an injection of novacaine. that is a sharp pinch for a seccond. and then the cortizone which did not hurt at all. hope this helps. marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Thanks for the advice about injections. When I had it done in my thumb joints it was quite painful, as the needle was moved around during the injections and no numbing beforehand. My back is sore enough right now, I don't feel up to having someone poking around with a needle and the cortisone in my thumbs didn't seem to do any good. meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Hi Meg, I had several courses of ESI treatments in both neck and low back. The clinic went from a 'target template' to a flouroscope- which was much better at placing the needles! They also changed from numbing the area to a shot or morphine about half-hour before the procedure. The treatments weren't doing me much good so I stopped getting them. At first I would get a few weeks of relief, but after about 2 years I only get a few days relief. You will feel 'pressure' as they inject the meds, and a slight 'pin prick' when the needle enters- but that should be all. With any luck you can be home and in bed before the morphine wears off- AH! Blessed sleep!! Try to remember (if the shots work) to continue your PT exercises and to take your meds. The temptation to 'get things done' when you feel better is so very strong. I suggest it would do you much better to catch up on your sleep. 'Things' can get done by soimebody, sometime- but only YOU can catch up on lost sleep. I hope it all goes well for you and you get the relief you look forward to. GBY > I'm going to be having shots in my lumbar area, but I was wondering how much it hurts? or do they deaden the area? I had cortisone injections in my thumb joints and it hurt a lot. > meg > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 brian, i had an injection in the lumbar a week ago Thursday and then i had the forcet shots on this thursday. my doctor never said anything about not taking a bath or applying ice. now i am worried. also, i never go under anymore when i have the injections. for the forcet, she gave me an arm shot to relax me and then novacaine where the shots were going. my doctor also always uses that exray machine whatever they call it which tells her exactly what is going on in my spine and the injection placements. i have had 4 going on 5 great days of no pain.so far. i am going to italy on Saturday and want to be able to do the tour. has any one had the forcet shots in the lumbar region and what has been their experience? thanks marsha spondylothesis stenosis arthritis out the kazoo and still functioning somewhat. pretty amazing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 i had facet joint injections from L3 to S1 and i didn't think they were a big deal at all. my doctor gave me iv sedation and numbed the area completely. it wasn't what i would call painful. it was very uncomfortable. but i walked out of there just fine. didn't use ice or anything. and wasn't too sore afterward. -melanie > I'm going to be having shots in my lumbar area, but I was wondering how much it hurts? or do they deaden the area? I had cortisone injections in my thumb joints and it hurt a lot. > meg > > Quote Link to comment Share on other sites More sharing options...
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