Re: Another question about tests please

[Guest guest]

I can't tell you what to do but I did them tests your worried about that might

need to be done on HC not a problem. I feel you need to call your Dr. and tell

him now that is did the testing can you go back on the HC you don't feel good

and it's going to cost you your job.

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Another question about tests please

>

> Date: Wednesday, September 29, 2010, 2:07 PM

> I have an adrenal related question, I

> hope someone can help or share their thoughts.

>

> The situation is this, i've had several adrenal tests, and

> the last one is on Thursday. apparently all of my hormones

> will be tested on thurs, before having the short synatchen

> test.  i am having hypo-testosterone investigated

> amongts other things. so far i've had the urinary free

> cortisol test, dexamethasone suppression test, now the short

> synatchen test and think i'll also get all the other

> hormones tested tomorrow.    To do all the tests,

> i've had to be off HC for some months, and it did previously

> help keep me stable.  i have been depressed since

> coming off it.

>

> my appt to interpret the results was next week but has been

> put back 5 weeks to insure the results are back in time -

> that takes 3 weeks, and it's an extra 2 because dr has

> nothing else

> available

>

> My question is this really: i'm thinking of starting the HC

> back up on friday after the tests. but i'm concerned that if

> i do this and dr decides to do more tests in november, that

> he'll then turn round and say he can't treat me or test me

> etc becasue i've been on hc.

>

> i am wondering if i might need an insulin tolerance test or

> a glucagon test to check for growth hormone issues. i don't

> know enough about this to know if hc would skew this test

> too much. i can't go on as i am, that's a sure fact. my

> contract was not renewed at work and i'm confident it's

> because i've been so depressed and struggled to cope and

> this has come over to people iworked with, although i 've

> done my best and done at worst a reasonable job,they

> probably

> think i'm miserable. when i started there i was on hc and i

> was coping, then i had to come off it.

>

> please does anyone know if taking the hc would affect any

> further tests -if i have to have any - in a month?  if

> it is growth hormone i'm low in and dr picks up on this from

> igf-1 (??) then if i have to have an insulin test or a

> glucagon test, would this be possible if on HC?

>

> thanks

>

> Chris

>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Thanks Phil, I will contact him i think - it's too late for this job, as i

finish tomorrrow, but maybe i can start to rest a little and recover somewhat

while i take the hc. maybe i can bargain with him that i take the hc to keep me

going until i can see him again

Thanks for your help Phil

>

>

>

> I can't tell you what to do but I did them tests your worried about that might

need to be done on HC not a problem. I feel you need to call your Dr. and tell

him now that is did the testing can you go back on the HC you don't feel good

and it's going to cost you your job.

>

> Co-Moderator

> Phil

[Guest guest]

I hope he hears you and gives you some help most of the time when a Dr. would

take me off a med for labs he would tell me I can go back on them after the

labs.

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Re: Another question about tests please

>

> Date: Wednesday, September 29, 2010, 2:40 PM

> Thanks Phil, I will contact him i

> think - it's too late for this job, as i finish tomorrrow,

> but maybe i can start to rest a little and recover somewhat

> while i take the hc.  maybe i can bargain with him that

> i take the hc to keep me going until i can see him again

>

> Thanks for your help Phil

>

>

> >

> >

> >

> > I can't tell you what to do but I did them tests your

> worried about that might need to be done on HC not a

> problem.  I feel you need to call your Dr. and tell him

> now that is did the testing can you go back on the HC you

> don't feel good and it's going to cost you your job.

> >

> > Co-Moderator

> > Phil

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

I am not not up to date on your situation but I can tell you my experience. I

had two synatchen test and I passed both.

The second test they did at the same time that they did Growth Hormone

Stimulation Test with Arginine ( Arginine-GHRH test).

Since I did not stimulate my results were conclusive that my pituitary does not

function. I was then put on HC. the problem is that you do not lose all your

pituitary hormones all at once or even in a certain pattern....my doctor stated

that they were finding most vet's returning from the wars who had received head

injuries also experienced pituitary damage....AND that usually their growth

hormone was the first to go....as I said usually....it is so hard to say....but

since they now had evidence that my growth hormone was gone they could then

conclude that my adrenal symptoms and thyroid symtoms were related....my igf-1

was low normal at 92 (not good for anyone but you know the drill) my SH was 1.5

but my Free T3 and T4 were at the bottom of the scale soon to be out of range.

I too was at the end of my rope without HC..it would have been impossible to

keep going without it and there are only so many tests that they can perform to

determine if your adrenals work....so I say call your doctor and tell/ask him to

have you go back on HC. They do not need anymore tests for your adrenals to

concluded anything anyway.

They can look at your Free T3 and F4 with your TSH your testosterone levels with

your LH & FSH to determine and overall pattern for pituitary damage.

However if you get the GH stim test make sure it is done at the proper setting

mine was doen at Stanford Pituitary Center so that it is done correctly this

test takes several hours and you want to be confident in the results.

Hving said all that....my husband does not have pituitary damage but his

adrenals, testes and thyroid may have been damage by exposure to radiation...I

said " may " we will never know for sure...he also passes the synatchen test but

he can not survive without HC for his adrenals at this point are just too

damaged.....

and his adrenals do not function very well at all without testosterone. he spent

6 months trying to stabilized his adrenals with HC only even had to stop his

thyroid medication at one point....but as soon as he started on testosterone his

adrenals stabilized....I too found this to be true after I added testosterone to

my list of replacement hormoens.

hope this helps,

Judy

>

> I have an adrenal related question, I hope someone can help or share their

thoughts.

>

> The situation is this, i've had several adrenal tests, and the last one is on

Thursday. apparently all of my hormones will be tested on thurs, before having

the short synatchen test. i am having hypo-testosterone investigated amongts

other things. so far i've had the urinary free cortisol test, dexamethasone

suppression test, now the short synatchen test and think i'll also get all the

other hormones tested tomorrow. To do all the tests, i've had to be off HC

for some months, and it did previously help keep me stable. i have been

depressed since coming off it.

>

> my appt to interpret the results was next week but has been put back 5 weeks

to insure the results are back in time - that takes 3 weeks, and it's an extra 2

because dr has nothing else

> available

>

> My question is this really: i'm thinking of starting the HC back up on friday

after the tests. but i'm concerned that if i do this and dr decides to do more

tests in november, that he'll then turn round and say he can't treat me or test

me etc becasue i've been on hc.

>

> i am wondering if i might need an insulin tolerance test or a glucagon test to

check for growth hormone issues. i don't know enough about this to know if hc

would skew this test too much. i can't go on as i am, that's a sure fact. my

contract was not renewed at work and i'm confident it's because i've been so

depressed and struggled to cope and this has come over to people iworked with,

although i 've done my best and done at worst a reasonable job,they probably

> think i'm miserable. when i started there i was on hc and i was coping, then i

had to come off it.

>

> please does anyone know if taking the hc would affect any further tests -if i

have to have any - in a month? if it is growth hormone i'm low in and dr picks

up on this from igf-1 (??) then if i have to have an insulin test or a glucagon

test, would this be possible if on HC?

>

> thanks

>

> Chris

>

[Guest guest]

Thank you Judy your a Gift to this group.

Co-Moderator

Phil

> From: zashes11 <zashes11@...>

> Subject: Re: Another question about tests please

>

> Date: Wednesday, September 29, 2010, 4:42 PM

>

>

> I am not not up to date on your situation but I can tell

> you my experience. I had two synatchen test and I passed

> both.

>

> The second test they did at the same time that they did

> Growth Hormone Stimulation Test with Arginine (

> Arginine-GHRH test).

> Since I did not stimulate my results were conclusive that

> my pituitary does not function. I was then put on HC. the

> problem is that you do not lose all your pituitary hormones

> all at once or even in a certain pattern....my doctor stated

> that they were finding most vet's returning from the wars

> who had received head injuries also experienced pituitary

> damage....AND that usually their growth hormone was the

> first to go....as I said usually....it is so hard to

> say....but since they now had evidence that my growth

> hormone was gone they could then conclude that my adrenal

> symptoms and thyroid symtoms were related....my igf-1 was

> low normal at 92 (not good for anyone but you know the

> drill) my SH was 1.5 but my Free T3 and T4 were at the

> bottom of the scale soon to be out of range.

>

> I too was at the end of my rope without HC..it would have

> been impossible to keep going without it and there are only

> so many tests that they can perform to determine if your

> adrenals work....so I say call your doctor and tell/ask him

> to have you go back on HC. They do not need anymore tests

> for your adrenals to concluded anything anyway.

>

> They can look at your Free T3 and F4 with your TSH your

> testosterone levels with your LH & FSH to determine and

> overall pattern for pituitary damage.

> However if you get the GH stim test make sure it is done at

> the proper setting mine was doen at Stanford Pituitary

> Center so that it is done correctly this test takes several

> hours and you want to be confident in the results.

>

> Hving said all that....my husband does not have pituitary

> damage but his adrenals, testes and thyroid may have been

> damage by exposure to radiation...I said " may " we will never

> know for sure...he also passes the synatchen test but he can

> not survive without HC for his adrenals at this point are

> just too damaged.....

> and his adrenals do not function very well at all without

> testosterone. he spent 6 months trying to stabilized his

> adrenals with HC only even had to stop his thyroid

> medication at one point....but as soon as he started on

> testosterone his adrenals stabilized....I too found this to

> be true after I added testosterone to my list of replacement

> hormoens.

>

> hope this helps,

>

> Judy

>

>

>

>

> >

> > I have an adrenal related question, I hope someone can

> help or share their thoughts.

> >

> > The situation is this, i've had several adrenal tests,

> and the last one is on Thursday. apparently all of my

> hormones will be tested on thurs, before having the short

> synatchen test.  i am having hypo-testosterone

> investigated amongts other things. so far i've had the

> urinary free cortisol test, dexamethasone suppression test,

> now the short synatchen test and think i'll also get all the

> other hormones tested tomorrow.    To do all the

> tests, i've had to be off HC for some months, and it did

> previously help keep me stable.  i have been depressed

> since coming off it.

> >

> > my appt to interpret the results was next week but has

> been put back 5 weeks to insure the results are back in time

> - that takes 3 weeks, and it's an extra 2 because dr has

> nothing else

> > available

> >

> > My question is this really: i'm thinking of starting

> the HC back up on friday after the tests. but i'm concerned

> that if i do this and dr decides to do more tests in

> november, that he'll then turn round and say he can't treat

> me or test me etc becasue i've been on hc.

> >

> > i am wondering if i might need an insulin tolerance

> test or a glucagon test to check for growth hormone issues.

> i don't know enough about this to know if hc would skew this

> test too much. i can't go on as i am, that's a sure fact. my

> contract was not renewed at work and i'm confident it's

> because i've been so depressed and struggled to cope and

> this has come over to people iworked with, although i 've

> done my best and done at worst a reasonable job,they

> probably

> > think i'm miserable. when i started there i was on hc

> and i was coping, then i had to come off it.

> >

> > please does anyone know if taking the hc would affect

> any further tests -if i have to have any - in a month? 

> if it is growth hormone i'm low in and dr picks up on this

> from igf-1 (??) then if i have to have an insulin test or a

> glucagon test, would this be possible if on HC?

> >

> > thanks

> >

> > Chris

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Actually Phil...thank you I was guided by you and chris on STTM and ollearned I

was hypopituitary...YOU have taught me (and and my husband) how to properly do

TRT...even though his doctor is Dr. M we have had to learn and guide his

treatment by much of the knowledge on this forum!

There is no perfect doctor's and even the good ones can get it wrong, sometimes.

We love Dr. M because he understands the concepts of this forum...keeping the E2

down and splitting up doses....but he almost got it wrong with the

HC....thinking that his adrenals would work on their own....however there in

again we only knew about Dr. M because of you Phil!!!

So again thank you, thank you, thank you!

Judy

[Guest guest]

Judy I am so sorry I don't remember you when I had Heart surgery I had a stroke

and lost a lot of my memory. I am so glad I was able to help you and was

a big help to me too. Thanks for the kind words your still a big gift to this

group. A lot of people that come here and get help when they feel better you

never hear back from them.

Co-Moderator

Phil

> From: zashes11 <zashes11@...>

> Subject: Re: Another question about tests please

>

> Date: Wednesday, September 29, 2010, 6:57 PM

> Actually Phil...thank you I was

> guided by you and chris on STTM and ollearned I was

> hypopituitary...YOU have taught me (and and my husband) how

> to properly do TRT...even though his doctor is Dr. M we have

> had to learn and guide his treatment by much of the

> knowledge on this forum!

>

> There is no perfect doctor's and even the good ones can get

> it wrong, sometimes. We love Dr. M because he understands

> the concepts of this forum...keeping the E2 down and

> splitting up doses....but he almost got it wrong with the

> HC....thinking that his adrenals would work on their

> own....however there in again we only knew about Dr. M

> because of you Phil!!!

>

> So again thank you, thank you, thank you!

>

> Judy

>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

The problem is though that I was self medicating with HC it wasn't official. i

told the endo that, and told him i'd seen a Dr P in the UK who'd said my

adrenals were low, but he didn't know who that was

[Guest guest]

Hi Judy

THank you for your reply, it was very helpful.

did you ever have the insulin test where they make your blood sugar go really

low to see if your growth hormone is stimulated? If so, is this test as bad as

i'd imagine it would be?

i will be interested to see what the tests show - i've had the short synatchen

test today including igf-1, growth hormone, testosterone and lh and fsh. i was

never right after taking amitrytpiline years ago, i did read something once that

it can affect growth hormone - though someone pointed out to me that many many

people have taken it without any problems

> However if you get the GH stim test make sure it is done at the proper setting

mine was doen at Stanford Pituitary Center so that it is done correctly this

test takes several hours and you want to be confident in the results.

i'm a bit concerned about the tests in future, the nurse seemed to dither about

a bit today, she got through 2 cannulas before she got it in, and i was

concerned really about it all. i'd dread having the insulin tolerance test at

that centre, really i would.

strangely i feel a bit better after the acth stim test today. i'd have thought

i't make me worse

> and his adrenals do not function very well at all without testosterone. he

spent 6 months trying to stabilized his adrenals with HC only even had to stop

his thyroid medication at one point....but as soon as he started on testosterone

his adrenals stabilized....I too found this to be true after I added

testosterone to my list of replacement hormoens.

that is interesting that your husband needed testosterone too.

hmm, i guess i'll have to wait and see what happens and will see how i feel and

ask the endo to let me take hc again

thanks

chris

[Guest guest]

That's because I never spoke to you directly but you have a mountain of

information posted on several forums....and I read though a good deal of it,

sorting out my way, eventually I realized all my problems started after I had a

motorcycle accident which caused severe swelling in the back of my head. It was

like a light bulb going off in my head....but it still took six months of hell

to get the right tests and the right diagnoses...I mention this because it is so

hard to be patient when you feel sick....

Even when people leave and go live on and their lives your words are still there

waiting for the next person to discover....

Judy

>

> > From: zashes11 <zashes11@...>

> > Subject: Re: Another question about tests please

> >

> > Date: Wednesday, September 29, 2010, 6:57 PM

> > Actually Phil...thank you I was

> > guided by you and chris on STTM and ollearned I was

> > hypopituitary...YOU have taught me (and and my husband) how

> > to properly do TRT...even though his doctor is Dr. M we have

> > had to learn and guide his treatment by much of the

> > knowledge on this forum!

> >

> > There is no perfect doctor's and even the good ones can get

> > it wrong, sometimes. We love Dr. M because he understands

> > the concepts of this forum...keeping the E2 down and

> > splitting up doses....but he almost got it wrong with the

> > HC....thinking that his adrenals would work on their

> > own....however there in again we only knew about Dr. M

> > because of you Phil!!!

> >

> > So again thank you, thank you, thank you!

> >

> > Judy

> >

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Well thanks this has been my mission in life to try to help people so they don't

have to suffer like I did. When I came here I very sick and and a pain in every

ones A^^. They kept a cool head with me and replayed to some of the same

questions I would ask over and over again. This is all part of being that sick

we do this.

I got so much help here that when I felt better I started posting and helping

out. I did this all over the place. It's good to know I helped some.

Co-Moderator

Phil

> From: zashes11 <zashes11@...>

> Subject: Re: Another question about tests please

>

> Date: Thursday, September 30, 2010, 5:30 PM

> That's because I never spoke to you

> directly but you have a mountain of information posted on

> several forums....and I read though a good deal of it,

> sorting out my way, eventually I realized all my problems

> started after I had a motorcycle accident which caused

> severe swelling in the back of my head. It was like a light

> bulb going off in my head....but it still took six months of

> hell to get the right tests and the right diagnoses...I

> mention this because it is so hard to be patient when you

> feel sick....

>

> Even when people leave and go live on and their lives your

> words are still there waiting for the next person to

> discover....

>

> Judy

>

>

>

> >

> > > From: zashes11 <zashes11@...>

> > > Subject: Re: Another question

> about tests please

> > >

> > > Date: Wednesday, September 29, 2010, 6:57 PM

> > > Actually Phil...thank you I was

> > > guided by you and chris on STTM and ollearned I

> was

> > > hypopituitary...YOU have taught me (and and my

> husband) how

> > > to properly do TRT...even though his doctor is

> Dr. M we have

> > > had to learn and guide his treatment by much of

> the

> > > knowledge on this forum!

> > >

> > > There is no perfect doctor's and even the good

> ones can get

> > > it wrong, sometimes. We love Dr. M because he

> understands

> > > the concepts of this forum...keeping the E2 down

> and

> > > splitting up doses....but he almost got it wrong

> with the

> > > HC....thinking that his adrenals would work on

> their

> > > own....however there in again we only knew about

> Dr. M

> > > because of you Phil!!!

> > >

> > > So again thank you, thank you, thank you!

> > >

> > > Judy

> > >

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

Hi

No they did not do the insulin tolerance test on me because I have type 1

diabetes, which means I make no insulin at all. So this type if test is not

really an option for me. HOWEVER, the insulin tolerance test is the BEST (gold

standard) test for testing your adrenals and growth hormone, I completely forgot

about it. You are very lucky they are going to perform this test on you. All the

insulin will do it lower your blood glucose to a level that your body releases

counter-regulatory hormones to raise your blood glucose.

To be honest this is what you feel when you get a little lightheaded or shaking

if you have not eaten in a while and/or may have done some hard exercise….you

may sweat but then that is if you do respond. They are looking to see if your

pituitary will put out the signals to respond…and all the while they will be

watching your blood glucose level…although it seems like it will be dangerous

please keep in mind many, many, diabetics pass out when their blood glucose

reaches very, very, low levels for long periods of time and still survive you

will not even get close to those levels…so not much too worry about.

Interesting that you felt better after they administered acth stim test I had

the same reaction the first time…it was a great afternoon. My theory is because

my ACTH signal is broken, giving me that shot stimulated my adrenals that

afternoon and I felt GOOD! It was nice.

Thyroid, testosterone, cortisol and estrogen they all work together to work

well. Phil has said many times that men with thyroid problems do not feel better

until they get their testosterone. I told my husband that many times…but you

have to work with your doctor (if you get a good one the first time) on their

schedule to work out the problems…it can be so frustratingly slow. Dr. M thought

that he could fix my husband's issues with diet and nutrition but unfortunately

by the time my husband got to him….he had already been sick for about 5

years…..so he was in very very bad condition but still function…that quickly

changed and he was non-functioning for almost 6 months until Dr. M get him back

to health…..the turn around happened once he started on the Testosterone…for

some reason it was not tested in the first round of blood tests.

The first indication that there was a problem was low T (years ago) but the

doctor didn't think it was a an issue , so off you go…..after I got some help

and was learning how important our hormones are to our health he reminded me

about that test result….so we sent him to the doctor for more tests….and his TSH

came back at 6.5…ouch…more stupid mistakes as the doctor but him on

synthoid….which had not chance of working given his Free T4 was already at 75%

of the lab range….it was obvious he was not converting to T3…. So we got him on

Armour and as a precaution I thought let's do a saliva test to make sure his

adrenals are okay…his came back worse than mine and mine was almost

flatlined…both stage 7 I think mine had a total daily output of 10….again my

husband has been deep inside nuclear reactors to fix them he has been exposed to

types of radiation that humans are not supposed to get near…it was his job…he

exposure levels were all within the legal limits but as he says it was just too

much for him individually….so the answer is…People react different to diferent

levels of the same exposure…. Millions of people take a form of blood pressure

medication everyday called beta-blockers and they are fine….I take even a little

and my heart stops….

If you say you took amitrytpiline and never felt right after fine you are

probably right…but the answer you are looking for now is why do you feel so bad

and how can you get better…..I don't mean to go on and on but it is really,

really, hard to get good help and care and sometimes we just have to share our

stories to encourage others….you are getting some good tests done….

Judy

>

> Hi Judy

>

> THank you for your reply, it was very helpful.

>

> did you ever have the insulin test where they make your blood sugar go really

low to see if your growth hormone is stimulated? If so, is this test as bad as

i'd imagine it would be?

>

> i will be interested to see what the tests show - i've had the short synatchen

test today including igf-1, growth hormone, testosterone and lh and fsh. i was

never right after taking amitrytpiline years ago, i did read something once that

it can affect growth hormone - though someone pointed out to me that many many

people have taken it without any problems

>

> > However if you get the GH stim test make sure it is done at the proper

setting mine was doen at Stanford Pituitary Center so that it is done correctly

this test takes several hours and you want to be confident in the results.

>

> i'm a bit concerned about the tests in future, the nurse seemed to dither

about a bit today, she got through 2 cannulas before she got it in, and i was

concerned really about it all. i'd dread having the insulin tolerance test at

that centre, really i would.

>

> strangely i feel a bit better after the acth stim test today. i'd have thought

i't make me worse

>

> > and his adrenals do not function very well at all without testosterone. he

spent 6 months trying to stabilized his adrenals with HC only even had to stop

his thyroid medication at one point....but as soon as he started on testosterone

his adrenals stabilized....I too found this to be true after I added

testosterone to my list of replacement hormoens.

>

> that is interesting that your husband needed testosterone too.

>

> hmm, i guess i'll have to wait and see what happens and will see how i feel

and ask the endo to let me take hc again

>

> thanks

>

> chris

>

[Guest guest]

HELPED...oh hell I have my life back because of you actaully both of us....and

my husband and I are having a blast using his new " toy " ....lol

So " HELPED " is an understatement....You were the light of a very dark

tunnel.....I have read some of those earlier post you made when you first came

here, yes you were a handful and it is too funny to read because you are so

patient and kind with everyone now....another example of the effects E2 can have

on a man....

Who knew our marriage would include regular conversations about the wood-o-meter

and the quality of the wood or experimenting with stamina and cortisol effects

of wood....and you know what I feel really, really, lucky...I have so much

respect for all that you guys go through and am so glad my hsuband is wants to

stay healthy!

Judy

[Guest guest]

Hi Judy

Thanks for your reply

I don't know as they will perform the insulin tolerance test on me yet, but i

hope they won't in a way, though you've put my mind at rest a little bit.

i still feel a bit peculiar today after my test yesterday. do you know much

about prolactin in men? i have read it is linked to sexual function and lack of

it can cause excess sexuality etc and little satiation and decrease refractory

time etc. i have intermittent problems where my libido goes above normal -

it's not mania or anything- i wondered if it was hypercortisolism from stress

affecting other hormones. do you or anyone else know how cortisol might affect

this ? could it be prolactin disturbances again from pituitary issues?

> If you say you took amitrytpiline and never felt right after fine you are

probably right…but the answer you are looking for now is why do you feel so bad

and how can you get better…..I don't mean to go on and on but it is really,

really, hard to get good help and care and sometimes we just have to share our

stories to encourage others….you are getting some good tests done….

well i don't think i was in perfect health before the amitryptiline at age 19,

but i sure was a lot better before it and after it was a real mess- other things

coincided at the same time but i think the amitryptline messed thngs up;; what

if it disrupted an already weak hpa axis? i can only speculate. my sister took

it for nerve pain years ago too and she has bad crhonic fatigue and young

arthritis (age 35) i wonder if my family has a genetic susceptiblity to

something like amitryptiline or adrenal issues etc or gluten intolerance. just

wondered really

thanks for your help

chris

[Guest guest]

Yep I remember my ACTH test wow I was on top of the world can't remember feeling

that good in a long time. All this means is my Adrenals work great just don't

get told to work.

Great post Thanks.

Co-Moderator

Phil

> From: zashes11 <zashes11@...>

> Subject: Re: Another question about tests please

>

> Date: Thursday, September 30, 2010, 6:08 PM

> Hi

>

> No they did not do the insulin tolerance test on me because

> I have type 1 diabetes, which means I make no insulin at

> all. So this type if test is not really an option for me.

> HOWEVER, the insulin tolerance test is the BEST (gold

> standard) test for testing your adrenals and growth hormone,

> I completely forgot about it. You are very lucky they are

> going to perform this test on you. All the insulin will do

> it lower your blood glucose to a level that your body

> releases counter-regulatory hormones to raise your blood

> glucose.

> To be honest this is what you feel when you get a little

> lightheaded or shaking if you have not eaten in a while

> and/or may have done some hard exercise….you may sweat but

> then that is if you do respond. They are looking to see if

> your pituitary will put out the signals to respond…and all

> the while they will be watching your blood glucose

> level…although it seems like it will be dangerous please

> keep in mind many, many, diabetics pass out when their blood

> glucose reaches very, very, low levels for long periods of

> time and still survive you will not even get close to those

> levels…so not much too worry about.

> Interesting that you felt better after they administered

> acth stim test I had the same reaction the first time…it

> was a great afternoon. My theory is because my ACTH signal

> is broken, giving me that shot stimulated my adrenals that

> afternoon and I felt GOOD! It was nice.

> Thyroid, testosterone, cortisol and estrogen they all work

> together to work well. Phil has said many times that men

> with thyroid problems do not feel better until they get

> their testosterone. I told my husband that many times…but

> you have to work with your doctor (if you get a good one the

> first time) on their schedule to work out the problems…it

> can be so frustratingly slow. Dr. M thought that he could

> fix my husband's issues with diet and nutrition but

> unfortunately by the time my husband got to him….he had

> already been sick for about 5 years…..so he was in very

> very bad condition but still function…that quickly changed

> and he was non-functioning for almost 6 months until Dr. M

> get him back to health…..the turn around happened once he

> started on the Testosterone…for some reason it was not

> tested in the first round of blood tests.

> The first indication that there was a problem was low T

> (years ago) but the doctor didn't think it was a an issue ,

> so off you go…..after I got some help and was learning how

> important our hormones are to our health he reminded me

> about that test result….so we sent him to the doctor for

> more tests….and his TSH came back at 6.5…ouch…more

> stupid mistakes as the doctor but him on synthoid….which

> had not chance of working given his Free T4 was already at

> 75% of the lab range….it was obvious he was not converting

> to T3…. So we got him on Armour and as a precaution I

> thought let's do a saliva test to make sure his adrenals are

> okay…his came back worse than mine and mine was almost

> flatlined…both stage 7 I think mine had a total daily

> output of 10….again my husband has been deep inside

> nuclear reactors to fix them he has been exposed to types of

> radiation that humans are not supposed to get near…it was

> his job…he exposure levels were all within the legal

> limits but as he says it was just too much for him

> individually….so the answer is…People react different to

> diferent levels of the same exposure…. Millions of people

> take a form of blood pressure medication everyday called

> beta-blockers and they are fine….I take even a little and

> my heart stops….

> If you say you took amitrytpiline and never felt right

> after fine you are probably right…but the answer you are

> looking for now is why do you feel so bad and how can you

> get better…..I don't mean to go on and on but it is

> really, really, hard to get good help and care and sometimes

> we just have to share our stories to encourage others….you

> are getting some good tests done….

>

> Judy

>

>

>

> >

> > Hi Judy

> >

> > THank you for your reply, it was very helpful.

> >

> > did you ever have the insulin test where they make

> your blood sugar go really low to see if your growth hormone

> is stimulated? If so, is this test as bad as i'd imagine it

> would be?

> >

> > i will be interested to see what the tests show - i've

> had the short synatchen test today including igf-1, growth

> hormone, testosterone and lh and fsh.  i was never

> right after taking amitrytpiline years ago, i did read

> something once that it can affect growth hormone - though

> someone pointed out to me that many many people have taken

> it without any problems

> >

> > > However if you get the GH stim test make sure it

> is done at the proper setting mine was doen at Stanford

> Pituitary Center so that it is done correctly this test

> takes several hours and you want to be confident in the

> results.

> >

> > i'm a bit concerned about the tests in future, the

> nurse seemed to dither about a bit today, she got through 2

> cannulas before she got it in, and i was concerned really

> about it all. i'd dread having the insulin tolerance test at

> that centre, really i would.

> >

> > strangely i feel a bit better after the acth stim test

> today. i'd have thought i't make me worse

> >

> > > and his adrenals do not function very well at all

> without testosterone. he spent 6 months trying to stabilized

> his adrenals with HC only even had to stop his thyroid

> medication at one point....but as soon as he started on

> testosterone his adrenals stabilized....I too found this to

> be true after I added testosterone to my list of replacement

> hormoens.

> >

> > that is interesting that your husband needed

> testosterone too.

> >

> > hmm, i guess i'll have to wait and see what happens

> and will see how i feel and ask the endo to let me take hc

> again

> >

> > thanks

> >

> > chris

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Thanks it makes my day to hear success stories like yours life is a work in

progress.

Co-Moderator

Phil

> From: zashes11 <zashes11@...>

> Subject: Re: Another question about tests please

>

> Date: Thursday, September 30, 2010, 6:16 PM

>

>

> HELPED...oh hell I have my life back because of you

> actaully both of us....and my husband and I are having a

> blast using his new " toy " ....lol

>

> So " HELPED " is an understatement....You were the light of a

> very dark tunnel.....I have read some of those earlier post

> you made when you first came here, yes you were a handful

> and it is too funny to read because you are so patient and

> kind with everyone now....another example of the effects E2

> can have on a man....

>

> Who knew our marriage would include regular conversations

> about the wood-o-meter and the quality of the wood or

> experimenting with stamina and cortisol effects of

> wood....and you know what I feel really, really, lucky...I

> have so much respect for all that you guys go through and am

> so glad my hsuband is wants to stay healthy!

>

> Judy

>

>

>

> ------------------------------------

>

>

[Guest guest]

Next time you feel over sexed test your prolactin levels it's just a blood test

if your low this can be the problem. But I know men that take supplements to

lower there prolactin levels so they and have sex everyday or 2x's a day.

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Re: Another question about tests please

>

> Date: Friday, October 1, 2010, 9:11 AM

> Hi Judy

>

> Thanks for your reply

>

> I don't know as they will perform the insulin tolerance

> test on me yet, but i hope they won't in a way, though

> you've put my mind at rest a little bit.

>

> i still feel a bit peculiar today after my test yesterday.

> do you know much about prolactin in men? i have read it is

> linked to sexual function and lack of it can cause excess

> sexuality etc and little satiation and decrease refractory

> time etc.   i have intermittent problems

> where my libido goes above normal - it's not mania or

> anything- i wondered if it was hypercortisolism from stress

> affecting other hormones.  do you or anyone else know

> how cortisol might affect this ? could it be prolactin

> disturbances again from pituitary issues?

>

> > If you say you took amitrytpiline and never felt right

> after fine you are probably right…but the answer you are

> looking for now is why do you feel so bad and how can you

> get better…..I don't mean to go on and on but it is

> really, really, hard to get good help and care and sometimes

> we just have to share our stories to encourage others….you

> are getting some good tests done….

>

> well i don't think i was in perfect health before the

> amitryptiline at age 19, but i sure was a lot better before

> it and after it was a real mess- other things coincided at

> the same time but i think the amitryptline messed thngs up;;

> what if it disrupted an already weak hpa axis? i can only

> speculate. my sister took it for nerve pain years ago too

> and she has bad crhonic fatigue and young arthritis (age 35)

> i wonder if my family has a genetic susceptiblity to

> something like amitryptiline or adrenal issues etc or gluten

> intolerance.  just wondered really

>

> thanks for your help

>

> chris

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Phil, what supplements will lower prolactin?

From: pmgamer18@...

Date: Fri, 1 Oct 2010 09:57:18 -0700

Subject: Re: Re: Another question about tests please

Next time you feel over sexed test your prolactin levels it's just a blood test

if your low this can be the problem. But I know men that take supplements to

lower there prolactin levels so they and have sex everyday or 2x's a day.

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Re: Another question about tests please

>

> Date: Friday, October 1, 2010, 9:11 AM

> Hi Judy

>

> Thanks for your reply

>

> I don't know as they will perform the insulin tolerance

> test on me yet, but i hope they won't in a way, though

> you've put my mind at rest a little bit.

>

> i still feel a bit peculiar today after my test yesterday.

> do you know much about prolactin in men? i have read it is

> linked to sexual function and lack of it can cause excess

> sexuality etc and little satiation and decrease refractory

> time etc. i have intermittent problems

> where my libido goes above normal - it's not mania or

> anything- i wondered if it was hypercortisolism from stress

> affecting other hormones. do you or anyone else know

> how cortisol might affect this ? could it be prolactin

> disturbances again from pituitary issues?

>

> > If you say you took amitrytpiline and never felt right

> after fine you are probably right…but the answer you are

> looking for now is why do you feel so bad and how can you

> get better…..I don't mean to go on and on but it is

> really, really, hard to get good help and care and sometimes

> we just have to share our stories to encourage others….you

> are getting some good tests done….

>

> well i don't think i was in perfect health before the

> amitryptiline at age 19, but i sure was a lot better before

> it and after it was a real mess- other things coincided at

> the same time but i think the amitryptline messed thngs up;;

> what if it disrupted an already weak hpa axis? i can only

> speculate. my sister took it for nerve pain years ago too

> and she has bad crhonic fatigue and young arthritis (age 35)

> i wonder if my family has a genetic susceptiblity to

> something like amitryptiline or adrenal issues etc or gluten

> intolerance. just wondered really

>

> thanks for your help

>

> chris

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

I have a lowish prolactin. Is this good?

Sendt fra min iPhone

Den 1. okt. 2010 kl. 18.57 skrev philip georgian <pmgamer18@...>:

Next time you feel over sexed test your prolactin levels it's just a blood test

if your low this can be the problem. But I know men that take supplements to

lower there prolactin levels so they and have sex everyday or 2x's a day.

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Re: Another question about tests please

>

> Date: Friday, October 1, 2010, 9:11 AM

> Hi Judy

>

> Thanks for your reply

>

> I don't know as they will perform the insulin tolerance

> test on me yet, but i hope they won't in a way, though

> you've put my mind at rest a little bit.

>

> i still feel a bit peculiar today after my test yesterday.

> do you know much about prolactin in men? i have read it is

> linked to sexual function and lack of it can cause excess

> sexuality etc and little satiation and decrease refractory

> time etc. i have intermittent problems

> where my libido goes above normal - it's not mania or

> anything- i wondered if it was hypercortisolism from stress

> affecting other hormones. do you or anyone else know

> how cortisol might affect this ? could it be prolactin

> disturbances again from pituitary issues?

>

> > If you say you took amitrytpiline and never felt right

> after fine you are probably right…but the answer you are

> looking for now is why do you feel so bad and how can you

> get better…..I don't mean to go on and on but it is

> really, really, hard to get good help and care and sometimes

> we just have to share our stories to encourage others….you

> are getting some good tests done….

>

> well i don't think i was in perfect health before the

> amitryptiline at age 19, but i sure was a lot better before

> it and after it was a real mess- other things coincided at

> the same time but i think the amitryptline messed thngs up;;

> what if it disrupted an already weak hpa axis? i can only

> speculate. my sister took it for nerve pain years ago too

> and she has bad crhonic fatigue and young arthritis (age 35)

> i wonder if my family has a genetic susceptiblity to

> something like amitryptiline or adrenal issues etc or gluten

> intolerance. just wondered really

>

> thanks for your help

>

> chris

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

I spent some time reading back here is what Gene Bowhay says. " Mucuna Pruriens

works for me. Gets rid of the Prolactin in your system and you

can cum again right away. " But later in his posts he was taking other things to

keep up with his younger wife they he says have sex 3 to 5 x's a day.

Do a search on his name.

Here is a link to Gene's story.

/message/25193

Co-Moderator

Phil

>

>

>

> > From: <chrisjtaylor46@...>

>

> > Subject: Re: Another question about

> tests please

>

> >

>

> > Date: Friday, October 1, 2010, 9:11 AM

>

> > Hi Judy

>

> >

>

> > Thanks for your reply

>

> >

>

> > I don't know as they will perform the insulin

> tolerance

>

> > test on me yet, but i hope they won't in a way,

> though

>

> > you've put my mind at rest a little bit.

>

> >

>

> > i still feel a bit peculiar today after my test

> yesterday.

>

> > do you know much about prolactin in men? i have read

> it is

>

> > linked to sexual function and lack of it can cause

> excess

>

> > sexuality etc and little satiation and decrease

> refractory

>

> > time etc.   i have intermittent

> problems

>

> > where my libido goes above normal - it's not mania or

>

> > anything- i wondered if it was hypercortisolism from

> stress

>

> > affecting other hormones.  do you or anyone else

> know

>

> > how cortisol might affect this ? could it be

> prolactin

>

> > disturbances again from pituitary issues?

>

> >

>

> > > If you say you took amitrytpiline and never felt

> right

>

> > after fine you are probably right…but the answer you

> are

>

> > looking for now is why do you feel so bad and how can

> you

>

> > get better…..I don't mean to go on and on but it is

>

> > really, really, hard to get good help and care and

> sometimes

>

> > we just have to share our stories to encourage

> others….you

>

> > are getting some good tests done….

>

> >

>

> > well i don't think i was in perfect health before the

>

> > amitryptiline at age 19, but i sure was a lot better

> before

>

> > it and after it was a real mess- other things

> coincided at

>

> > the same time but i think the amitryptline messed

> thngs up;;

>

> > what if it disrupted an already weak hpa axis? i can

> only

>

> > speculate. my sister took it for nerve pain years ago

> too

>

> > and she has bad crhonic fatigue and young arthritis

> (age 35)

>

> > i wonder if my family has a genetic susceptiblity to

>

> > something like amitryptiline or adrenal issues etc or

> gluten

>

> > intolerance.  just wondered really

>

> >

>

> > thanks for your help

>

> >

>

> > chris

>

> >

>

> >

>

> >

>

> >

>

> > ------------------------------------

>

> >

>

> >

[Guest guest]

Yes if you like needing sex all day long.

Co-Moderator

Phil

>

> > From: <chrisjtaylor46@...>

> > Subject: Re: Another question about

> tests please

> >

> > Date: Friday, October 1, 2010, 9:11 AM

> > Hi Judy

> >

> > Thanks for your reply

> >

> > I don't know as they will perform the insulin

> tolerance

> > test on me yet, but i hope they won't in a way,

> though

> > you've put my mind at rest a little bit.

> >

> > i still feel a bit peculiar today after my test

> yesterday.

> > do you know much about prolactin in men? i have read

> it is

> > linked to sexual function and lack of it can cause

> excess

> > sexuality etc and little satiation and decrease

> refractory

> > time etc.   i have intermittent

> problems

> > where my libido goes above normal - it's not mania or

> > anything- i wondered if it was hypercortisolism from

> stress

> > affecting other hormones.  do you or anyone else

> know

> > how cortisol might affect this ? could it be

> prolactin

> > disturbances again from pituitary issues?

> >

> > > If you say you took amitrytpiline and never felt

> right

> > after fine you are probably right…but the answer you

> are

> > looking for now is why do you feel so bad and how can

> you

> > get better…..I don't mean to go on and on but it is

> > really, really, hard to get good help and care and

> sometimes

> > we just have to share our stories to encourage

> others….you

> > are getting some good tests done….

> >

> > well i don't think i was in perfect health before the

> > amitryptiline at age 19, but i sure was a lot better

> before

> > it and after it was a real mess- other things

> coincided at

> > the same time but i think the amitryptline messed

> thngs up;;

> > what if it disrupted an already weak hpa axis? i can

> only

> > speculate. my sister took it for nerve pain years ago

> too

> > and she has bad crhonic fatigue and young arthritis

> (age 35)

> > i wonder if my family has a genetic susceptiblity to

> > something like amitryptiline or adrenal issues etc or

> gluten

> > intolerance.  just wondered really

> >

> > thanks for your help

> >

> > chris

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Trust me, it's really not a good feeling, if we're on about the same feeling -

5x is being conservative.

Something weird happened today. i had the synatchen test yesterday 250mcg short

test.

today i get phoned up by an endo nurse querying if the test was done right.

the reason? my baselijne levels were 207 and 30 mins later, 211 (or something

similar, 209 say). it seems i didn't respond at all.

the nurse took the first sample, then gave me they synacthen in my shoulder and

i felt it going in it stung then went off. 30 mins alter she took the 2nd

smample.

so either the nurse messed up the test or second sample or my adrenals are done

in. but i saw her take the 2nd smaple. i also felt the drug go in. i briefly

felt a bit sick when i had the drug which i gather is normal.

what is going on here? is this an addisonian level of cortisol? i have had a

lot of stress in my life. sttart of last week i had the 1mg dexa test but this

wouldn't have suppreseed my adrenals right?

the endo nurse phoned me up to say i needed to go to gp tonight, and she phoned

up gp and got him to prescribe hc straight away, 20mg in morning 10 at 5pm.

would appreciate any feed back on this --do you think it's likely the nurse

messed up the test, is it usual for cortisol not to go up barely at all?

if my adrenals are done in it explains a lot.

thanks

chris

>

> Yes if you like needing sex all day long.

> Co-Moderator

> Phil

[Guest guest]

I can't if say if she messed it up, you felt the shot it to me means your

Primary meaning your Adrenals are very over worked and can't put out enough

Cortisol. Now what the Nurse told you to do I would not start this way it can

make you feel sicker. Here is what happens when you have low cortisol levels.

You need cortisol to carry the Thyroid Hormones out of your blood into your

cells. So if you add a lot of HC at one time it will dump all this Thyroid

Hormone into your Cells and make you feel hyper or sick like your having a heart

attack. If your on Thyroid meds cut back on it about half the dose start on the

HC taking 2.5 mgs to start in the morning and follow this from this link.

http://www.stopthethyroidmadness.com/adrenal-info/how-to-treat/

====================================================

Day 1-3: 2.5 mg first thing in the AM (2.5 mg total)

Day 4-6: 2.5 mg first thing, 2.5 mg in four hours (5 mg total)

Day 7-9: 2.5 mg first thing; 2.5 mg in four hours; 2.5 mg in four hours (7 1/2

mg total)

Day 10-12: 5 mg first thing; 2.5 mg in four hours; 2.5 mg in four hours (10 mg

total)

Day 13-16: 5 mg first thing; 5 mg in four hours; 2.5 mg in four hours; 2.5 mg

bedtime (15 mg total)

Day 17-20: 10 mg first thing; 5 mg in four hours; 2.5 mg in four hours; Bedtime

2.5 mg (20 mg total)

===================================================

Also read this FAQ's I helped with.

http://www.stopthethyroidmadness.com/adrenal-info/faq/

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Re: Another question about tests please

>

> Date: Friday, October 1, 2010, 3:08 PM

> Trust me, it's really not a good

> feeling, if we're on about the same feeling - 5x is being

> conservative.

>

> Something weird happened today. i had the synatchen test

> yesterday 250mcg short test.

>

> today i get phoned up by an endo nurse querying if the test

> was done right.   the reason?  my

> baselijne levels were 207 and 30 mins later, 211 (or

> something similar, 209 say).   it seems i

> didn't respond at all.

>

> the nurse took the first sample, then gave me they

> synacthen in my shoulder and i felt it going in it stung

> then went off.  30 mins alter she took the 2nd

> smample.

>

> so either the nurse messed up the test or second sample or

> my adrenals are done in. but i saw her take the 2nd smaple.

> i also felt the drug go in.  i briefly felt a bit sick

> when i had the drug which i gather is normal. 

>

> what is going on here?  is this an addisonian level of

> cortisol?  i have had a lot of stress in my life. 

> sttart of last week i had the 1mg dexa test but this

> wouldn't have suppreseed my adrenals right? 

>

> the endo nurse phoned me up to say i needed to go to gp

> tonight, and she phoned up gp and got him to prescribe hc

> straight away, 20mg in morning 10 at 5pm.

>

> would appreciate any feed back on this --do you think it's

> likely the nurse messed up the test, is it usual for

> cortisol not to go up barely at all?

>

> if my adrenals are done in it explains a lot. 

>

> thanks

>

> chris

>

>

> >

> > Yes if you like needing sex all day long.

> > Co-Moderator

> > Phil

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Thanks Phil

i will (re) start the hc as you suggest. do you think tho that if i take hc now

that it will start building up my adrneal reserve so next week when i'm retested

the result might be more normal? is that unlikely to happen in 6 days?

i'm not on thyroid, my tsh is q low (.7 i think). when i started hc it went

from 0.72 to .86, so much for hc suppressing the adrenals!

> > >

> > > Yes if you like needing sex all day long.

> > > Co-Moderator

> > > Phil

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

once you start on HC you can't test to see how your Adrenal and Cortisol

levels are doing. You need to be off HC 2 weeks to do this and I would give it

a good 6 months on it before trying to come off it to test again. If your

talking about a diff. test you need to talk about this with your GP to night

when you talk to him. If you come off HC to retest you need to come off it like

it says in the FAQ's I gave you.

Co-Moderator

Phil

> From: <chrisjtaylor46@...>

> Subject: Re: Another question about tests please

>

> Date: Friday, October 1, 2010, 3:51 PM

> Thanks Phil

>

> i will (re) start the hc as you suggest.  do you think

> tho that if i take hc now that it will start building up my

> adrneal reserve so next week when i'm retested the result

> might be more normal? is that unlikely to happen in 6 days?

>

> i'm not on thyroid, my tsh is q low (.7 i think). 

> when i started hc it went from 0.72 to .86, so much for hc

> suppressing the adrenals!

>

>

> > > >

> > > > Yes if you like needing sex all day long.

> > > > Co-Moderator

> > > > Phil

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >