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Sorry my english not very good...

but My son to was anemic. SOme child who have jra systemic have this

probleme. My son take some supplement but we have no results...he always

anemic. Medication like NSAIND can cause this probleme.

>From: ChaosPearl@...

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>Subject: Re: anemia

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>In a message dated 2/3/00 9:44:05 PM Eastern Standard Time, Jitz45@...

>writes:

>

><< Just thought I mentioned that has a good appetite and always craved

> healthy foods,brocolli,cauliflower, salads, homemade soups etc..,, so

>when

> the pedi rheumy told me he was extremely anemic I said how can that be?he

> eats so well, he said it has nothing to do with diet..it has to do with

> having a chronic disease..anyone else heard this from their DR??Jane >>

>

>I think it's fairly common among JRA patients. I've been anemic for as

>long

>as I can remember, and my diet includes considerably more red meat than is

>recommended by four out of five nutritionists. <g> I wasn't allowed to

>reserve a pint of my own blood when I had a hip replacement surgery early

>last month, because they were afraid to take that much. (No one seems

>worried about the swimming-pool full I've contributed in the name of weekly

>bloodwork over 8 years, though.) Your doctor can prescribe iron

>supplements

>if you're really worried about it -- but those can be hell on delicate

>stomachs especially on top of an NSAID and whatever else is taking.

>

>cheers

>Jenni

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Just thought I mentioned that has a good appetite and always craved

healthy foods,brocolli,cauliflower, salads, homemade soups etc..,, so when

the pedi rheumy told me he was extremely anemic I said how can that be?he

eats so well, he said it has nothing to do with diet..it has to do with

having a chronic disease..anyone else heard this from their DR??Jane

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In a message dated 2/3/00 9:44:05 PM Eastern Standard Time, Jitz45@...

writes:

<< Just thought I mentioned that has a good appetite and always craved

healthy foods,brocolli,cauliflower, salads, homemade soups etc..,, so when

the pedi rheumy told me he was extremely anemic I said how can that be?he

eats so well, he said it has nothing to do with diet..it has to do with

having a chronic disease..anyone else heard this from their DR??Jane >>

I think it's fairly common among JRA patients. I've been anemic for as long

as I can remember, and my diet includes considerably more red meat than is

recommended by four out of five nutritionists. <g> I wasn't allowed to

reserve a pint of my own blood when I had a hip replacement surgery early

last month, because they were afraid to take that much. (No one seems

worried about the swimming-pool full I've contributed in the name of weekly

bloodwork over 8 years, though.) Your doctor can prescribe iron supplements

if you're really worried about it -- but those can be hell on delicate

stomachs especially on top of an NSAID and whatever else is taking.

cheers

Jenni

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  • 4 months later...
Guest guest

Ursela,

In my experience, I've had wonderful success using Yellowdock, (an herb that has a lot of useable iron in it which is easily absorbed). You can get it at a health food store. As Macey is a child, I'd use 1/3 the adult dosage. It is a tincture, I'd suggest you take a few drops of boiled water, put the drops in it, let it sit for a minute or two, the alcohol will burn off and then you have her drink it down, give a good drink as a chaser. I brought Alana's hemoglobin,etc to normal level's without the use of iron supplements, the doctor couldn't believe it.

Feel free to give me a call at the number below if you need clarification.

Bonnie Regional Director, PHD Productshttp://phdproducts.com mailto:bonnie@...800-863-3403

anemia

I've been reading alot this weekend about anemia and RA (which I'm assuming that it would apply to JRA also). Macey has been anemic for 2 yrs now and on prescription iron supplement. Her hemoglobin responds and increases like it should but her MCV and MCHC has always remained abnormal low and it will not go up. I've tried to get the doctor to discontinue her iron on the basis that her hemoglobin is now normal but he won't. He says she has a problem with iron storage and that the MCV and MCHC are showing that.

My concern is that I think the iron doses are contributing to her constipation problems and also I haven't heard/read about other children being on iron supplements for so long without a reason found.

With the current JRA evaluation coming up it starts to enter my mind that the anemia problem started a few months before her joint symptoms did.

Any experiences or thoughts on the anemia/JRA?

thanks

P.S. Macey once again has another sinus infection and is back on Ceftin. She woke at 1 am with a bad headache and we gave her a Tylenol #2 which didn't seem to do much for it. she needed another today at lunch. Off to the ped-in-a-box and they started her back on antibiotics. she's only been off 8 days since the last infection.

Ursula Holleman

Macey and 's mom

http://home.att.net/~maceyh

For links to websites with JRA info visit: http://www.geocities.com/Heartland/Village/8414/Links.html

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  • 7 months later...

sami, who is 3....is very anemic, and has been for quite a while now...her

ped gave us iron drops to give her. (FER-IN-SOL) she cant stand the taste of

these drops....ive tried several different ways of disguising it...for

instance mixing it with her juice, ive even tried to put it in the syrup on

her waffles....she wont take it....does anyone have any suggestions?? any

help would be appreciated.

bonny

>From: " Georgina " <gmckin@...>

>Reply-

> " a JRA List " < >

>Subject: Anemia

>Date: Thu, 15 Feb 2001 12:30:01 -0000

>

>What are the symptoms of anemia?

>BY NANCY SNYDERMAN, M.D.

>http://www.drkoop.com/nancy/dns-ask-content.asp?id=415 & nl=dkc & sct=top & dt=011101

>Q: What are the symptoms of anemia?

>

>A: It really depends on what type of anemia you're talking about.

>

>Red blood cells contain a protein called hemoglobin, which carries oxygen

>that the blood delivers to the body's tissues. Anemia is a depletion of the

>red blood cells or hemoglobin.

>

>Anemia comes in many different forms with numerous causes. The causes are

>sometimes described in categories, such as excessive bleeding, destruction

>of red cells or problems in the red cell manufacturing process. You've

>probably heard of iron deficiency anemia; it's one of the most common

>types. Other types include pernicious anemia, sickle cell anemia, aplastic

>anemia, anemias caused by chronic diseases and more.

>

>Symptoms vary depending on the form of anemia, but they may include

>fatigue, weakness, pale skin, bluish lips, shortness of breath, irritated

>or burning tongue, tingling hands and feet, weight loss, and mental

>symptoms, such as confusion, difficulty concentrating and depression. In

>children, iron deficiency anemia can impair mental and physical

>development.

>

>

>Related Information:

>

>

>a.. Iron deficiency anemia

>

>b.. Anemia of chronic disease

>

>c.. Anemia of B12 deficiency

>

>d.. Idiopathic aplastic anemia

>

>e.. Pernicious anemia

>

>f.. Megaloblastic anemia

>

>g.. Secondary aplastic anemia

>

>h.. What Is a Complete Blood Workup?

>

>

>

>

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Bonny,

you might want to try using an herbal iron product that doesn't taste bad.

You can get it at a health food store. Its called Floradix and I find it

really helps. Also, can you get her to eat some blackstrap molasses. You

can mix it in with milk, etc. It's really sweet and full of iron.

Bonnie

Regional Director, PHD Products

http://phdproducts.com mailto:bonnie@...

800-863-3403

Anemia

> >Date: Thu, 15 Feb 2001 12:30:01 -0000

> >

> >What are the symptoms of anemia?

> >BY NANCY SNYDERMAN, M.D.

>

>http://www.drkoop.com/nancy/dns-ask-content.asp?id=415 & nl=dkc & sct=top & dt=01

1101

> >Q: What are the symptoms of anemia?

> >

> >A: It really depends on what type of anemia you're talking about.

> >

> >Red blood cells contain a protein called hemoglobin, which carries oxygen

> >that the blood delivers to the body's tissues. Anemia is a depletion of

the

> >red blood cells or hemoglobin.

> >

> >Anemia comes in many different forms with numerous causes. The causes are

> >sometimes described in categories, such as excessive bleeding,

destruction

> >of red cells or problems in the red cell manufacturing process. You've

> >probably heard of iron deficiency anemia; it's one of the most common

> >types. Other types include pernicious anemia, sickle cell anemia,

aplastic

> >anemia, anemias caused by chronic diseases and more.

> >

> >Symptoms vary depending on the form of anemia, but they may include

> >fatigue, weakness, pale skin, bluish lips, shortness of breath, irritated

> >or burning tongue, tingling hands and feet, weight loss, and mental

> >symptoms, such as confusion, difficulty concentrating and depression. In

> >children, iron deficiency anemia can impair mental and physical

> >development.

> >

> >

> >Related Information:

> >

> >

> >a.. Iron deficiency anemia

> >

> >b.. Anemia of chronic disease

> >

> >c.. Anemia of B12 deficiency

> >

> >d.. Idiopathic aplastic anemia

> >

> >e.. Pernicious anemia

> >

> >f.. Megaloblastic anemia

> >

> >g.. Secondary aplastic anemia

> >

> >h.. What Is a Complete Blood Workup?

> >

> >

> >

> >

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Just a small thought about anemia, I think many of our kids have been

down this road. I thought it had been noted that many RA (and then

might possibly filter down to JRA) patients have anemia. Something do

with the inflammation impairing the bone marrow in some way so it

cannot do its job. This is possible an explanation as to why some of

our don't necessarily respond to attempts at increasing any iron

intake.

I am pretty sure I read something like this at Mercola's Rheumatoid

site. Anyone...?

Depending on the particular measure, my daughter's HCT(hematocrit)

has been around 29-32, when 'normal' is considered 35. When the other

measure has been used her level has been 9 consistently,

when 'normal' is considered 11. Anemia can be dangerous, for sure.

But over time we came to the conclusion that this was going to be

normal for her, even though we tried to get those numbers raised.

I know your concerns are getting your child to take the supplement,

for that I have no great words of wisdom.

> Bonny,

> you might want to try using an herbal iron product that doesn't

taste bad.

> You can get it at a health food store. Its called Floradix and I

find it

> really helps. Also, can you get her to eat some blackstrap

molasses. You

> can mix it in with milk, etc. It's really sweet and full of iron.

>

> Bonnie

> Regional Director, PHD Products

> http://phdproducts.com mailto:bonnie@p...

> 800-863-3403

> Anemia

> > >Date: Thu, 15 Feb 2001 12:30:01 -0000

> > >

> > >What are the symptoms of anemia?

> > >BY NANCY SNYDERMAN, M.D.

The only thing about this Q & A site is that I wish Dr

Snyderman was not a part of it.

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bonnie,

thats alot of help...thank you soo much i will try it.

bonny

>From: bonnie@...

>Reply-

>< >

>Subject: Re: Anemia

>Date: Fri, 16 Feb 2001 11:12:17 -0500

>

>Bonny,

>you might want to try using an herbal iron product that doesn't taste bad.

>You can get it at a health food store. Its called Floradix and I find it

>really helps. Also, can you get her to eat some blackstrap molasses. You

>can mix it in with milk, etc. It's really sweet and full of iron.

>

>Bonnie

>Regional Director, PHD Products

>http://phdproducts.com mailto:bonnie@...

>800-863-3403

> Anemia

> > >Date: Thu, 15 Feb 2001 12:30:01 -0000

> > >

> > >What are the symptoms of anemia?

> > >BY NANCY SNYDERMAN, M.D.

> >

> >http://www.drkoop.com/nancy/dns-ask-content.asp?id=415 & nl=dkc & sct=top & dt=01

>1101

> > >Q: What are the symptoms of anemia?

> > >

> > >A: It really depends on what type of anemia you're talking about.

> > >

> > >Red blood cells contain a protein called hemoglobin, which carries

>oxygen

> > >that the blood delivers to the body's tissues. Anemia is a depletion of

>the

> > >red blood cells or hemoglobin.

> > >

> > >Anemia comes in many different forms with numerous causes. The causes

>are

> > >sometimes described in categories, such as excessive bleeding,

>destruction

> > >of red cells or problems in the red cell manufacturing process. You've

> > >probably heard of iron deficiency anemia; it's one of the most common

> > >types. Other types include pernicious anemia, sickle cell anemia,

>aplastic

> > >anemia, anemias caused by chronic diseases and more.

> > >

> > >Symptoms vary depending on the form of anemia, but they may include

> > >fatigue, weakness, pale skin, bluish lips, shortness of breath,

>irritated

> > >or burning tongue, tingling hands and feet, weight loss, and mental

> > >symptoms, such as confusion, difficulty concentrating and depression.

>In

> > >children, iron deficiency anemia can impair mental and physical

> > >development.

> > >

> > >

> > >Related Information:

> > >

> > >

> > >a.. Iron deficiency anemia

> > >

> > >b.. Anemia of chronic disease

> > >

> > >c.. Anemia of B12 deficiency

> > >

> > >d.. Idiopathic aplastic anemia

> > >

> > >e.. Pernicious anemia

> > >

> > >f.. Megaloblastic anemia

> > >

> > >g.. Secondary aplastic anemia

> > >

> > >h.. What Is a Complete Blood Workup?

> > >

> > >

> > >

> > >

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Hi Bonny:

I don't know if this will work either, but we often mix stuff Mickey doesn't

like with a spoonful of applesauce. There are applesauce and cinnamon/brown

sugar flavours, also applesauce/pear/rasberry that have strong flavours. I

think she still tastes the meds but it still goes down, followed by a glass

of fruit juice or whatever to wash away the taste. I think she'll probably

hate applesauce as an adult, but oh well! : )

Lynn

> From: " Bonny " <bonhootie@...>

> Reply-

> Date: Thu, 15 Feb 2001 22:32:10 -0700

>

> Subject: Re: Anemia

>

> sami, who is 3....is very anemic, and has been for quite a while now...her

> ped gave us iron drops to give her. (FER-IN-SOL) she cant stand the taste of

> these drops....ive tried several different ways of disguising it...for

> instance mixing it with her juice, ive even tried to put it in the syrup on

> her waffles....she wont take it....does anyone have any suggestions?? any

> help would be appreciated.

> bonny

>

>

>> From: " Georgina " <gmckin@...>

>> Reply-

>> " a JRA List " < >

>> Subject: Anemia

>> Date: Thu, 15 Feb 2001 12:30:01 -0000

>>

>> What are the symptoms of anemia?

>> BY NANCY SNYDERMAN, M.D.

>> http://www.drkoop.com/nancy/dns-ask-content.asp?id=415 & nl=dkc & sct=top & dt=0111

>> 01

>> Q: What are the symptoms of anemia?

>>

>> A: It really depends on what type of anemia you're talking about.

>>

>> Red blood cells contain a protein called hemoglobin, which carries oxygen

>> that the blood delivers to the body's tissues. Anemia is a depletion of the

>> red blood cells or hemoglobin.

>>

>> Anemia comes in many different forms with numerous causes. The causes are

>> sometimes described in categories, such as excessive bleeding, destruction

>> of red cells or problems in the red cell manufacturing process. You've

>> probably heard of iron deficiency anemia; it's one of the most common

>> types. Other types include pernicious anemia, sickle cell anemia, aplastic

>> anemia, anemias caused by chronic diseases and more.

>>

>> Symptoms vary depending on the form of anemia, but they may include

>> fatigue, weakness, pale skin, bluish lips, shortness of breath, irritated

>> or burning tongue, tingling hands and feet, weight loss, and mental

>> symptoms, such as confusion, difficulty concentrating and depression. In

>> children, iron deficiency anemia can impair mental and physical

>> development.

>>

>>

>> Related Information:

>>

>>

>> a.. Iron deficiency anemia

>>

>> b.. Anemia of chronic disease

>>

>> c.. Anemia of B12 deficiency

>>

>> d.. Idiopathic aplastic anemia

>>

>> e.. Pernicious anemia

>>

>> f.. Megaloblastic anemia

>>

>> g.. Secondary aplastic anemia

>>

>> h.. What Is a Complete Blood Workup?

>>

>>

>>

>>

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hi lynn.

you know i tried the applesauce thing....but she could still taste it in

there....now i cant even get her to eat applesauce anymore...she thinks that

im gonna have it spiked with her iron. I actually tasted the applesauce

afterwards....it was awfull, you really could taste the difference(this was

a whole bowl too)

>From: Lynn Young <llyoung@...>

>Reply-

>< >

>Subject: Re: Anemia

>Date: Sat, 17 Feb 2001 09:18:49 -0500

>

>Hi Bonny:

>I don't know if this will work either, but we often mix stuff Mickey

>doesn't

>like with a spoonful of applesauce. There are applesauce and cinnamon/brown

>sugar flavours, also applesauce/pear/rasberry that have strong flavours. I

>think she still tastes the meds but it still goes down, followed by a glass

>of fruit juice or whatever to wash away the taste. I think she'll probably

>hate applesauce as an adult, but oh well! : )

>

>Lynn

>

> > From: " Bonny " <bonhootie@...>

> > Reply-

> > Date: Thu, 15 Feb 2001 22:32:10 -0700

> >

> > Subject: Re: Anemia

> >

> > sami, who is 3....is very anemic, and has been for quite a while

>now...her

> > ped gave us iron drops to give her. (FER-IN-SOL) she cant stand the

>taste of

> > these drops....ive tried several different ways of disguising it...for

> > instance mixing it with her juice, ive even tried to put it in the

>syrup on

> > her waffles....she wont take it....does anyone have any suggestions??

>any

> > help would be appreciated.

> > bonny

> >

> >

> >> From: " Georgina " <gmckin@...>

> >> Reply-

> >> " a JRA List " < >

> >> Subject: Anemia

> >> Date: Thu, 15 Feb 2001 12:30:01 -0000

> >>

> >> What are the symptoms of anemia?

> >> BY NANCY SNYDERMAN, M.D.

> >>

>http://www.drkoop.com/nancy/dns-ask-content.asp?id=415 & nl=dkc & sct=top & dt=0111

> >> 01

> >> Q: What are the symptoms of anemia?

> >>

> >> A: It really depends on what type of anemia you're talking about.

> >>

> >> Red blood cells contain a protein called hemoglobin, which carries

>oxygen

> >> that the blood delivers to the body's tissues. Anemia is a depletion of

>the

> >> red blood cells or hemoglobin.

> >>

> >> Anemia comes in many different forms with numerous causes. The causes

>are

> >> sometimes described in categories, such as excessive bleeding,

>destruction

> >> of red cells or problems in the red cell manufacturing process. You've

> >> probably heard of iron deficiency anemia; it's one of the most common

> >> types. Other types include pernicious anemia, sickle cell anemia,

>aplastic

> >> anemia, anemias caused by chronic diseases and more.

> >>

> >> Symptoms vary depending on the form of anemia, but they may include

> >> fatigue, weakness, pale skin, bluish lips, shortness of breath,

>irritated

> >> or burning tongue, tingling hands and feet, weight loss, and mental

> >> symptoms, such as confusion, difficulty concentrating and depression.

>In

> >> children, iron deficiency anemia can impair mental and physical

> >> development.

> >>

> >>

> >> Related Information:

> >>

> >>

> >> a.. Iron deficiency anemia

> >>

> >> b.. Anemia of chronic disease

> >>

> >> c.. Anemia of B12 deficiency

> >>

> >> d.. Idiopathic aplastic anemia

> >>

> >> e.. Pernicious anemia

> >>

> >> f.. Megaloblastic anemia

> >>

> >> g.. Secondary aplastic anemia

> >>

> >> h.. What Is a Complete Blood Workup?

> >>

> >>

> >>

> >>

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Hi ,

Yes. My son has had this same experience, as well. Relating to the anemia of chronic illness. His hematocrit and hemoglobin numbers finally did go up ... but not until his inflammation went down. Hmmm .... did somebody have a negative experince with Dr. Snyderman ...? Curious.

Aloha,

Georgina

Anemia> > >Date: Thu, 15 Feb 2001 12:30:01 -0000> > >> > >What are the symptoms of anemia?> > >BY NANCY SNYDERMAN, M.D.The only thing about this Q & A site is that I wish Dr Snyderman was not a part of it.

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Hi Bonny,

We have tried many different types of iron pills and liquid solutions. Mixed with every imaginable flavoring. I could never quite hide the metallic taste of iron. It got to where Josh would ask me to try it first, before taking a taste, because he was so turned off that it would make him gag. The only way we got around it was to try it in pill form and keep asking for a different type until we found the one that Josh can take with no problem. I know your daughter is younger but if she can swallow a plain M & M candy alright, she should be able to manage this one. Not sure if the dosing would be correct, though. Ours is made by Paddock Laboratories, Inc. They are ferrous sulfate 324mg E.C. tablets. Same size and shape as M & M candies. And they are red in color. They are coated and slide down smoothely and have no after taste, at all. Not sure if this will be of any help to you but until we found this brand and shape, it was a struggle for my son, as well.

Take care,

Georgina

Anemia>Date: Thu, 15 Feb 2001 12:30:01 -0000>>What are the symptoms of anemia?>BY NANCY SNYDERMAN, M.D.>http://www.drkoop.com/nancy/dns-ask-content.asp?id=415 & nl=dkc & sct=top & dt=011101>Q: What are the symptoms of anemia?>>A: It really depends on what type of anemia you're talking about.>>Red blood cells contain a protein called hemoglobin, which carries oxygen >that the blood delivers to the body's tissues. Anemia is a depletion of the >red blood cells or hemoglobin.>>Anemia comes in many different forms with numerous causes. The causes are >sometimes described in categories, such as excessive bleeding, destruction >of red cells or problems in the red cell manufacturing process. You've >probably heard of iron deficiency anemia; it's one of the most common >types. Other types include pernicious anemia, sickle cell anemia, aplastic >anemia, anemias caused by chronic diseases and more.>>Symptoms vary depending on the form of anemia, but they may include >fatigue, weakness, pale skin, bluish lips, shortness of breath, irritated >or burning tongue, tingling hands and feet, weight loss, and mental >symptoms, such as confusion, difficulty concentrating and depression. In >children, iron deficiency anemia can impair mental and physical >development.>>>Related Information:>>>a.. Iron deficiency anemia>>b.. Anemia of chronic disease>>c.. Anemia of B12 deficiency>>d.. Idiopathic aplastic anemia>>e.. Pernicious anemia>>f.. Megaloblastic anemia>>g.. Secondary aplastic anemia>>h.. What Is a Complete Blood Workup?>>>>

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  • 1 month later...
Guest guest

Iron deficiency is all they can find, though the doc is concerned that it is so chronic. For some reason, I have trouble building up stores of iron. My count is slowly going up, as I take daily iron supplements (which he increased at the 2 month anemia check).

When I first went in, the doc said, "If I stained your liver tissue, it would not show any iron." I'm glad he had no reason to have to STAIN my liver tissue. YUCKO!!

Lee

Aisha Elderwyn <aisha@...> wrote:

What type of Anemia Lee? Iron?

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  • 4 months later...

Interesting idea. I haven't been out as much as usual because I am

so short of energy. But I am out daily and have only missed 2 weekends

of canoeing since April. Wonder if stress could cause us to become

anemic? My stress levels are through the roof right now and I

can't seem to eliminate them. Unless I want to walk out on my 3 children

and their 2 other halfs, and my mother and my husband. I have dropped

out of living beyond home because i can't even cope with it. I am

not agraphobic yet, I just can't handle any more! It's fine to say

'No' but not to a daughter who is in grave risk of losing her baby.

And not to my other daughter who was the sole support in her family and

was laid off last week. She is in New Jersey but still a Canadian.

Not an enviable status at the moment. And not to my teenage son who

is trying to keep on an even keel and obviously not sleeping and talking

about dropping out of school. If I had to pick one to abandon it

would be my mother who is old, has lung cancer and emphasema and

is blind and lives in her own house 5 blocks from me. So I think

they will stay in my life for a while... Enough whining.

On a more positive note, yesterday I worked outside all day - I am covered

in bruises and have a pickup truck full of junk. Think I just had

too much adrenalin running through my body but at least I accomplished

something. Today I'm wiped. What a surprise. But have

discovered that I can see my ribs again. I am really pleased about

that. Am falling asleep here at the keyboard so will say thanks for

the idea,

Kate

sdjt@... wrote:

Hi Kate,

Do you get out much? Oxygen is so important! Go where there

are alot of trees and breathe deeply, using your whole lungs.

One's body requires oxygen in order to assimilate iron properly.

You can have all the iron you wish and can still be anemic.

Have you ever wished you owned your own time?

Visit: http://www.timefreedom.evisionbiz.com

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Oh Kate,

Yes, stress is definitely a contributing factor. Stress is the no. 1

killer in the world. Although we cannot avoid stress altogether in

our lives, we have to learn to deal with it to the best of our abilities.

Try to find some quiet time for yourself, do things that you enjoy,

that make you feel good, at least once a day. Kate, when one is

under a lot of stress, such as in your situation, one requires some

additional help. Nutritional needs have to be met, and one requires

more than the RDA (recommended daily amounts). Our body uses

up all it's reserves and than becomes short-changed. We have to

think of our whole selves. The chemistry of man is so deep. We

have to nourish our brain in order to send messages to different

parts of our bodies, to do the jobs that they are required to do. We

are what we eat, definitely, but, most importantly, we are what we

assimilate. When one is under a lot of stress, one does not

assimilate properly. We have to learn to do things to decompress,

on a daily basis. Walking is fantastic! I hope that I have helped

you some. Take care!

Have you ever wished you owned your own time?

Visit: http://www.timefreedom.evisionbiz.com

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Thanks for the kind encouragement Sue. I can't even take walks nowadays as

my legs are so weak. But have asked my husband to go yell at my mother.

Sounds weak but I just can't deal with her and she won't leave me be.

As for eating, I am eating better than ever before. But I gained from 100

lbs to 140 lbs in 6 months and hate myself. Self image has suffered a major

blow. I'm not starving but not overeating either. Think today's treat is

going to be go lie down with a good book while everyone is out of the house

for a few minutes. We're on holidays for a week starting tomorrow and I have

not been able to keep the plans clear so will have to pack later when I know

where and what. I think it is a homecoming at Queen's University in Kingston

and a canoe trip if I am strong enough and can stay awake. I have a feeling

that I need to live for today!

Good to hear your comments about stress and anemia. Am taking my supplements

but just can't quite make it enough.

I just was moved to say thanks,

Hope you have a wonderful week ahead.

Kate

sdjt@... wrote:

> Oh Kate,

>

> Yes, stress is definitely a contributing factor. Stress is the no. 1

> killer in the world. Although we cannot avoid stress altogether in

> our lives, we have to learn to deal with it to the best of our abilities.

> Try to find some quiet time for yourself, do things that you enjoy,

> that make you feel good, at least once a day. Kate, when one is

> under a lot of stress, such as in your situation, one requires some

> additional help. Nutritional needs have to be met, and one requires

> more than the RDA (recommended daily amounts). Our body uses

> up all it's reserves and than becomes short-changed. We have to

> think of our whole selves. The chemistry of man is so deep. We

> have to nourish our brain in order to send messages to different

> parts of our bodies, to do the jobs that they are required to do. We

> are what we eat, definitely, but, most importantly, we are what we

> assimilate. When one is under a lot of stress, one does not

> assimilate properly. We have to learn to do things to decompress,

> on a daily basis. Walking is fantastic! I hope that I have helped

> you some. Take care!

> Have you ever wished you owned your own time?

> Visit: http://www.timefreedom.evisionbiz.com

>

>

>

>

>

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Hi Kate,

Your on the right track! Believe you can beat this thing, the mind

is sooo powerful! Give yourself the opportunity to allow yourself to

get well. Are you taking any nutritional supplements to help you

along? If so, what are you taking? My best!

Have you ever wished you owned your own time?

Visit: http://www.timefreedom.evisionbiz.com

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  • 4 weeks later...

Thanks !!!!!

Liz

------

Hi Liz,

You do sound like you have some symptoms of thyroid

trouble. But there can be other reasons for them too.

Prescription for Nutritional Healing gives the

following causes of anemia: drug use, hormonal

disorders, chronic inflammation in the body, surgery,

infections, peptic ulcers, hemorrhoids, diverticular

disease, heavy menstrual bleeding, repeated

pregnancies, liver damage, THYROID DISORDERS,

rheumatoid arthritis, bone marrow disease, and dietary

deficiencies (especially deficiencies of iron, folic

acid, and vitamins B6 and B12).

So you might want to try to rule out some of these

factors on your own before deciding on particular

tests.

C-MI

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Dear Liz and Diane

I, too was iron deficient. Liz, it seems that you are

following down my path. The whole reason I discovered

Celiac and Candida was because I had a blood test which

reported an iron ferritin level of 5. Here in Australia,

15 - 30 is the normal range. The doctor I saw at the time

wanted to do a colonoscopy and a gastroscopy. I turned his

offer down and went to see a female doctor, who deals with

women's problems. From blood tests, she concluded that I

had celiac disease and that my adrenal gland was overworked

(and underpaid! hee hee).

The more I learned about celiac, the more I learned about

iron deficiency, and that many symptoms and diseases come

from the gut. There's no getting away from this fact! I

had hair loss, cold extremities, tingling hands and toes,

tiredness etc etc.

Taking supplements to heal the gut, coming off gluten

totally, and taking heme-iron fixed the problem. My new

doctor laughingly calls me the 'iron woman'.

If you have candida or any other gut problem, you can and

probably will become anaemic. Work on putting the good

bacteria back in your gut, as Diane suggested. Your

digestive system will work better, and you will absorb

better. I've tried many probiotics and am currently taking

Primal Defense.

Before having this procedure done, I'd suggest going to a

naturopath, or some type of holistic doctor. But firstly,

insist on a blood test to check for Candida and/ or celiac

(IgA and IgG levels in your blood)

Hope this helps,

Helen

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Thanks Helen!!!!

Liz K.

> Dear Liz and Diane

>

> I, too was iron deficient. Liz, it seems that you are

> following down my path. The whole reason I discovered

> Celiac and Candida was because I had a blood test which

> reported an iron ferritin level of 5. Here in Australia,

> 15 - 30 is the normal range. The doctor I saw at the time

> wanted to do a colonoscopy and a gastroscopy. I turned his

> offer down and went to see a female doctor, who deals with

> women's problems. From blood tests, she concluded that I

> had celiac disease and that my adrenal gland was overworked

> (and underpaid! hee hee).

>

> The more I learned about celiac, the more I learned about

> iron deficiency, and that many symptoms and diseases come

> from the gut. There's no getting away from this fact! I

> had hair loss, cold extremities, tingling hands and toes,

> tiredness etc etc.

>

> Taking supplements to heal the gut, coming off gluten

> totally, and taking heme-iron fixed the problem. My new

> doctor laughingly calls me the 'iron woman'.

>

> If you have candida or any other gut problem, you can and

> probably will become anaemic. Work on putting the good

> bacteria back in your gut, as Diane suggested. Your

> digestive system will work better, and you will absorb

> better. I've tried many probiotics and am currently taking

> Primal Defense.

>

> Before having this procedure done, I'd suggest going to a

> naturopath, or some type of holistic doctor. But firstly,

> insist on a blood test to check for Candida and/ or celiac

> (IgA and IgG levels in your blood)

>

> Hope this helps,

>

> Helen

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Dear Liz and Diane

When I wrote:

> Taking supplements to heal the gut, coming off gluten

> totally, and taking heme-iron fixed the problem. My new

> doctor laughingly calls me the 'iron woman'.

>

> If you have candida or any other gut problem, you can and

> probably will become anaemic. Work on putting the good

> bacteria back in your gut, as Diane suggested. Your

> digestive system will work better, and you will absorb

> better. I've tried many probiotics and am currently

taking

> Primal Defense.

I didn't mean to suggest that you follow my path in

counteracting the low iron. I wanted to STRESS the

importance of looking at your gut as the problem for many

symptoms, including iron deficiency. Taking heme iron was a

quick-fix for me. What I would suggest now (having read and

learned more) is to use a probiotic, adding healthy gut

flora, healing the gut BEFORE any quick-fixes or remedies

designed to fix symptoms only and not the cause. Sorry if I

misled you here.

Helen

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  • 1 year later...

Eat healthy ,walk, and see if the dosage of ribavirin can be reduced to 800

mg. aday that is still a very heavy dose ,that should be effective at least

your Dr. should consider.

Remember the Dr.s are still on a learning curve with these drugs,and we are

the study cases.

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  • 9 months later...

i have little wisdom here.... just hindsight. take the vits like

clockwork! dont take iron and calcium together.... they need to be

seperated by about 3 hours. (they compete for the same receptors)

iron is more readily absorbed in an acid environment. i hope that

helps-- if i could have avoided the shots i would have.... ya live

ya learn!

xoxoox

cathy s in va

> ,

> How low was your hemoglobin and how many shots did you have to

have? Any

> suggestions as to what to do to avoid the shots? Rhee

>

>

>

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