Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 I forgot to tell you again that I will be thinking of you Wednesday. What time is your surgery. I will try and post maybe Monday if I feel up to it and will bring me the laptop. Only 3 more days of waiting for me. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 I'd go with the spinal block. I had a general for my first hip, spinal for the second, and there was no comparison. Post-op recovery was easier, I was taken back to the room sooner, and was awake and alert almost a half-day earlier with the spinal. Greywolf - RTHR-2003; LTHR-2004 mdavison@... From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of sweetpea37814Sent: 13 June, 2006 1:12 AMJoint Replacement Subject: help Ok I went to hopsital today for preaddmission for Wed.The nurse said that if it were her she would definatly have the spinal block thing said she had had 2 of them and they were the best so all of your guys and gals that has been through this weigh in here with your feelings pros and cons please. getting really close now thanks sherrie .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Graywolf, Is a spinal block the same as and epidual?I was told by my doctor that I can not have have abd epidual and pain pump. They did mention in my TKR class about neervous block. I had a nerve block when I had my shoulder surgery and it was great. I woke up in no pain at all because my whole shoulder and arm was numb and it did not wear off until that night. Once it started tingling I started taking my pain meds.Kim RE: help I'd go with the spinal block. I had a general for my first hip, spinal for the second, and there was no comparison. Post-op recovery was easier, I was taken back to the room sooner, and was awake and alert almost a half-day earlier with the spinal. Greywolf - RTHR-2003; LTHR-2004 mdavison@... From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of sweetpea37814Sent: 13 June, 2006 1:12 AMJoint Replacement Subject: help Ok I went to hopsital today for preaddmission for Wed.The nurse said that if it were her she would definatly have the spinal block thing said she had had 2 of them and they were the best so all of your guys and gals that has been through this weigh in here with your feelings pros and cons please. getting really close now thanks sherrie .. Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Kim The nurse told me the epidural was a little different than the spinal block actually she may have called it a nerve block but she did mention spinal that and the pain pump is what I am going with The nurse said she had 2 times and it was great .Private room I should be so lucky but I was told my ins would not pay mmmmmI wounder if I could maybe a bad patient and get my own room snore or talk crazy mmmm lol no I really would not do that well I might snore Hubby says I do. I have a pink wrist band to but i did not give my own blood I have to be at the hospital at 8 am I call tonight after 4 to make sure the time is the same or if there have been any changes.My opp is second I really wish that it was first get it over with. Take care Sherrie kendrick1086@... wrote: Sherrie, Is the spinal the same as and epidual? I am looking into the pain pump and nervous block which would numb my leg for about 8 hours. I also went to the hospital today for the last of my final blood work. I have a pink wrist band I have to wear until surgery so they know I have donated my own blood. I am having such a hard time deciding what route to go for pain. My Aunt had the epidual and pain pump. MY doctor's medical asst promised me I would be in lalala land with the pain pump. I quess I will wait until I can talk to the that puts me to sleep before I make a decision. They also have me down for a private room. Now lets hope I get one. Kim God bless all our heros PMSM LCPL JOSH India 2nd plt. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Kim 8 is when I have to be there so I will go in around 10 /11 but there is one tkr before me so I gues it depends on how that one goes Good luck with yours I wll be back home Monday I think but I have no idea if I will be able to sit at computer I will be back on here as soon as I can. I will say a prayer for you on Fri. We are gonna have so much fun Sherriekendrick1086@... wrote: I forgot to tell you again that I will be thinking of you Wednesday. What time is your surgery. I will try and post maybe Monday if I feel up to it and will bring me the laptop. Only 3 more days of waiting for me. Kim God bless all our heros PMSM LCPL JOSH India 2nd plt. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Sounds like you will be doing the same thing as me. I want to do the Nerve block and pain pump. I know when I had my shoulder surgery the nreve block was great. I am also looking forward to Friday and getting the surgery over with andget on the road to recovery. I guess we will chat when I get home from the hospital. Kim Re: help Kim The nurse told me the epidural was a little different than the spinal block actually she may have called it a nerve block but she did mention spinal that and the pain pump is what I am going with The nurse said she had 2 times and it was great .Private room I should be so lucky but I was told my ins would not pay mmmmmI wounder if I could maybe a bad patient and get my own room snore or talk crazy mmmm lol no I really would not do that well I might snore Hubby says I do. I have a pink wrist band to but i did not give my own blood I have to be at the hospital at 8 am I call tonight after 4 to make sure the time is the same or if there have been any changes.My opp is second I really wish that it was first get it over with. Take care Sherrie kendrick1086@... wrote: Sherrie, Is the spinal the same as and epidual? I am looking into the pain pump and nervous block which would numb my leg for about 8 hours. I also went to the hospital today for the last of my final blood work. I have a pink wrist band I have to wear until surgery so they know I have donated my own blood. I am having such a hard time deciding what route to go for pain. My Aunt had the epidual and pain pump. MY doctor's medical asst promised me I would be in lalala land with the pain pump. I quess I will wait until I can talk to the that puts me to sleep before I make a decision. They also have me down for a private room. Now lets hope I get one. Kim God bless all our heros PMSM LCPL JOSH India 2nd plt. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Sherrie: I am looking at TKR but my mother had both her knees done over a two or three year period. She was knocked out on the first and blocked on the second. The block is the way to go from her experience. Took her weeks to get the drugs from the first out completely because of this she did not have the energy or desire to address the knee PT the best. Her second operation was like night and day in her recovery. I can't remember all of the details but we all commented that it seemed to be a direct answer to prayer on how quickly she was back on her feet. Realize all folks react to drugs differently, however I would lean toward the block if you have a choose. Don > > Ok I went to hopsital today for preaddmission for Wed.The nurse said > that if it were her she would definatly have the spinal block thing > said she had had 2 of them and they were the best so all of your guys > and gals that has been through this weigh in here with your feelings > pros and cons please. getting really close now thanks sherrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Sherrie: My mother had both of her knees done over a two or three year period. She was knocked out on the first and blocked on the second. The block is the way to go from her experience. Took her weeks to get the drugs from the first out completely because of this she did not have the energy or desire to address the knee PT the best. Her second operation was like night and day in her recovery. I can't remember all of the details but we all commented that it seemed to be a direct answer to prayer on how quickly she was back on her feet. Realize all folks react to drugs differently, however I would lean toward the block if you have a choose. Don > > Ok I went to hopsital today for preaddmission for Wed.The nurse said > that if it were her she would definatly have the spinal block thing > said she had had 2 of them and they were the best so all of your guys > and gals that has been through this weigh in here with your feelings > pros and cons please. getting really close now thanks sherrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Sherrie, I've posted this before, but... On all 3 previous knee surgeries I've been totally knocked out. I don't wanna hear nor see anything!! On my TLKR my OS likes to give the spinal so he can give you the pain med thru it later he explained and also anesthesia. I was not liking this idea at all. I'd never had a spinal and was scared to death. Afterwards when I was in my room I had so much pain I asked for the pump, so they took it out. I do have to say I wasn't sick after the surgery, came out of it fine I don't remember being in the recovery room AT ALL. I remember sitting on the edge of the gurney when he put the thing in my back, then being wheeled down the hall to my room. Then my husband's cell phone was ringing Ina-Gada-Da-Vida (his cell phone ring, some of you may be too young too know that song..LOL... I just didn't get any relief from whatever pain med they were putting in there. But the morphein worked in the pain pump. Everyone will have different results.... Deb > > Ok I went to hopsital today for preaddmission for Wed.The nurse said > that if it were her she would definatly have the spinal block thing > said she had had 2 of them and they were the best so all of your guys > and gals that has been through this weigh in here with your feelings > pros and cons please. getting really close now thanks sherrie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Thanks for all who repiled the block is the way I am going to go sherrieDon <donavp@...> wrote: Sherrie:My mother had both of her knees done over a two or three year period. She was knocked out on the first and blocked on the second. The block is the way to go from her experience. Took her weeks to get the drugs from the first out completely because of this she did not have the energy or desire to address the knee PT the best. Her second operation was like night and day in her recovery. I can't remember all of the details but we all commented that it seemed to be a direct answer to prayer on how quickly she was back on her feet.Realize all folks react to drugs differently, however I would lean toward the block if you have a choose.Don>> Ok I went to hopsital today for preaddmission for Wed.The nurse said > that if it were her she would definatly have the spinal block thing > said she had had 2 of them and they were the best so all of your guys > and gals that has been through this weigh in here with your feelings > pros and cons please. getting really close now thanks sherrieGod bless all our heros PMSM LCPL JOSH India 2nd plt. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 In a message dated 6/13/2006 1:38:38 P.M. Central Standard Time, ReynaWhitehawk@... writes: Sherrie,I've posted this before, but...On all 3 previous knee surgeries I've been totally knocked out. I don't wanna hear nor see anything!! On my TLKR my OS likes to givethe spinal so he can give you the pain med thru it later he explained and also anesthesia. I was not liking this idea at all. I'd never had a spinal and was scared to death. Afterwards when I was in myroom I had so much pain I asked for the pump, so they took it out. I do have to say I wasn't sick after the surgery, came out of it fine I don't remember being in the recovery room AT ALL. I remember sitting on the edge of the gurney when he put the thing in my back, then beingwheeled down the hall to my room. Then my husband's cell phone was ringing Ina-Gada-Da-Vida (his cell phone ring, some of you may be too young too know that song..LOL... I just didn't get any relief from whatever pain med they were putting in there. But the morphein workedin the pain pump.Everyone will have different results.... Deb>> Ok I went to hopsital today for preaddmission for Wed.The nurse said > that if it were her she would definatly have the spinal block thing > said she had had 2 of them and they were the best so all of your guys > and gals that has been through this weigh in here with your feelings > pros and cons please. getting really close now thanks sherrie> Hi, I had no choice. I couldn't have a spinal because I've had back surgery and they didn't want to do it. If you think you might get sick they will give you something to make it stop. The first knee surgery I had the vomiting was worse than the knee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Hi AntJoan and anyone else who can help with this As you know it has been a struggle for me to get any blood results from Dr. Well, this time I managed to get them from the receptionist! It was worth the try:-) She didnt have my readings from the last time but said that there was a note on these results by the Dr that there was a marked difference. so, my levels this time, after six weeks of Carbimazole are FT3 is 4.2, FT4 is 9.7 and TSH is less than 0.1. Can someone help by explaining if these are good results or not? The Dr wants to speak to me tommorrow on the phone (as she has no free appointments) regarding puting me on thyroxine as well now (block and replace). I would rather reduce the Carbimazole slightly (I just have started this week to reduce it by one tablet out of six per day) and she is against this. This was after getting the bloods taken for these results. I would like to understand my results so that I know what results I am aiming for and so I can compare results with how I feel. Please reply soon as I would like to understand these results before she phones me in morning? Thanks guys Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Many people have excellant results with block and replace. It may work quite well for you. Tammy Re: help Hi AntJoan and anyone else who can help with this As you know it has been a struggle for me to get any blood results from Dr. Well, this time I managed to get them from the receptionist! It was worth the try:-) She didnt have my readings from the last time but said that there was a note on these results by the Dr that there was a marked difference. so, my levels this time, after six weeks of Carbimazole are FT3 is 4.2, FT4 is 9.7 and TSH is less than 0.1. Can someone help by explaining if these are good results or not? The Dr wants to speak to me tommorrow on the phone (as she has no free appointments) regarding puting me on thyroxine as well now (block and replace). I would rather reduce the Carbimazole slightly (I just have started this week to reduce it by one tablet out of six per day) and she is against this. This was after getting the bloods taken for these results. I would like to understand my results so that I know what results I am aiming for and so I can compare results with how I feel. Please reply soon as I would like to understand these results before she phones me in morning? Thanks guys Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Grace, You will need to get the ranges to go with the lab results. Labs use a " kit " to run each test. Each kit has a different range. So there is no way to know for sure what those test numbers mean without the ranges. And you need to get a copy of your last labs. Or as far back as you can get. That way you can see where you are coming from. Levels rising, falling, how fast, etc. Hope that helps some Kim Re: help Hi AntJoan and anyone else who can help with this As you know it has been a struggle for me to get any blood results from Dr. Well, this time I managed to get them from the receptionist! It was worth the try:-) She didnt have my readings from the last time but said that there was a note on these results by the Dr that there was a marked difference. so, my levels this time, after six weeks of Carbimazole are FT3 is 4.2, FT4 is 9.7 and TSH is less than 0.1. Can someone help by explaining if these are good results or not? The Dr wants to speak to me tommorrow on the phone (as she has no free appointments) regarding puting me on thyroxine as well now (block and replace). I would rather reduce the Carbimazole slightly (I just have started this week to reduce it by one tablet out of six per day) and she is against this. This was after getting the bloods taken for these results. I would like to understand my results so that I know what results I am aiming for and so I can compare results with how I feel. Please reply soon as I would like to understand these results before she phones me in morning? Thanks guys Grace __________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 Hi Grace Your TSH is a measure of how much thyroid hormone your pituitary is asking for. As your TSH goes lower, that means that you have more hormone available. So if you're hyper, you want it to go up - normal range is (debatably) somewhere between 0.3 and 3.... you're lower than that. Your body wants less than normal. So you would probably be still hyper... The other tests are a measure of how much your body has - but without the reference range it is very difficult to understand them. Keep track and see how they change over time. See if it is a 'total T4' or a 'Free T4' test, etc. Kate Re: help Hi AntJoan and anyone else who can help with this As you know it has been a struggle for me to get any blood results from Dr. Well, this time I managed to get them from the receptionist! It was worth the try:-) She didnt have my readings from the last time but said that there was a note on these results by the Dr that there was a marked difference. so, my levels this time, after six weeks of Carbimazole are FT3 is 4.2, FT4 is 9.7 and TSH is less than 0.1. Can someone help by explaining if these are good results or not? The Dr wants to speak to me tommorrow on the phone (as she has no free appointments) regarding puting me on thyroxine as well now (block and replace). I would rather reduce the Carbimazole slightly (I just have started this week to reduce it by one tablet out of six per day) and she is against this. This was after getting the bloods taken for these results. I would like to understand my results so that I know what results I am aiming for and so I can compare results with how I feel. Please reply soon as I would like to understand these results before she phones me in morning? Thanks guys Grace __________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.9.0/366 - Release Date: 15/06/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi Kim Well, I had a chat with the dr on the phone and she says my readings have changed dramatically and is willing to let me cut down the Carbimazole by two tablets a day (four instead of six) and we will see how I feel. Don't know when I will see a specialist yet but guess that will be the next visit but she did say that they will give me the RAI as it is standard procedure. Well, I feel I am winning so far, feeling better on less tablets, taking my supplements, resting when possible (ok ok, that is not always possible but i am trying) and I feel more balanced tho still so tired all the time and eyes still swollen and very annoying. I feel better about this even although I do not understand the bloods. I do not have past bloods to compare with. One thing I have done is I have spoken to a homeopathic Dr and he has done a hair analysis for me and is giving me homeopathic treatment to rid my body of inherited and cumulated toxins. It is psionic medicine. the reason I trust this Dr is because when my daughter was very ill once and bleeding internally the hospital said there was nothing they could do and he helped and made a dramatic difference. He says I should stay on the Carbimazole and take the homeopathic medicine he has prescribed for the thyroid and it should help me. He does not say it will cure me but does say I should feel a lot better. Worth a try. My Dr does know I am receiving this and is ok with that as it does not interfere in any way with what I am taking. I am just determined to take positive steps and move forward. If other people can go into remission then so can I. It is worth aiming for anyway. How are you feeling? I hope you are well. Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 In a message dated 6/20/2006 12:53:38 PM Eastern Daylight Time, kkmwn@... writes: My understanding is thyroid issues are like lupus or diabetes. They are mainly controlled by diet and lifestyle changes. Please remember that I did get better, and other people have, too. I think that the key is to control and fix the imbalance as soon as possible. AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Grace, I am confused. After reading your post, the following really jumped out at me. " she says my readings have changed dramatically and is willing to let me cut down the Carbimazole " " Well, I feel I am.....feeling better on less tablets.......and I feel more balanced " " but she did say that they will give me the RAI as it is standard procedure. " Why, why, why on earth would they mess with you when you are starting to feel better? Plus, you said " If other people can go into remission then so can I. " Please understand that with RAI remission is NOT possible. It will render you permenantly hypOthyroid. Eventually. (For some, it can take years for the thyroid to completely die off.) Other than that it sounds like you are on the right track. I think its wonderful that you're checking out every avenue to learn all you can about dealing with hyperthyroidism and the possible underlying causes. Keep in mind it is " your " body. Be sure to find a dr that is willing to help you achieve your optimal health. If this dr won't help you achieve what you want, like remission, then I would hunt for another. I have read somewhere that hyperT patients " fire " approx five drs before they find one they can work with. Its best if you and your dr have the same goals. It is good to hear though that this dr is ok with your seeing a homeopath. As far as a cure? My understanding is thyroid issues are like lupus or diabetes. They are mainly controlled by diet and lifestyle changes. With meds as needed. This is a life long thing. We are in it for the long haul as there are no quick fixes. Even with surgery or RAI, you will still have to deal with labs and meds to control your thyroid levels. How am I feeling? Don't ask. LOL! Its a can of worms! A big one! Oh my! No seriously....I am starting to feel the lowness of my thyroid lab levels. I used supplements to help lower my hyperthyroid levels. Along with dietary changes. Now my levels have dropped and even though I have backed off nearly all the supplements my levels are still in the bottom of the " normal " lab ranges. It is becoming very obvious, to me anyway, that these levels are too low for me. So I am trying to figure out what dietary changes to make to help my levels come off the floor. Without rebounding hyper. Mainly I am tired and apathetic. Boring. But onward I go. At least I am not binging off the walls anymore. That's definitely a positive. Now to just find the happy medium. " Sigh. " LOL! How are you doing? Keep us posted on your progress. Kim Re: help Hi Kim Well, I had a chat with the dr on the phone and she says my readings have changed dramatically and is willing to let me cut down the Carbimazole by two tablets a day (four instead of six) and we will see how I feel. Don't know when I will see a specialist yet but guess that will be the next visit but she did say that they will give me the RAI as it is standard procedure. Well, I feel I am winning so far, feeling better on less tablets, taking my supplements, resting when possible (ok ok, that is not always possible but i am trying) and I feel more balanced tho still so tired all the time and eyes still swollen and very annoying. I feel better about this even although I do not understand the bloods. I do not have past bloods to compare with. One thing I have done is I have spoken to a homeopathic Dr and he has done a hair analysis for me and is giving me homeopathic treatment to rid my body of inherited and cumulated toxins. It is psionic medicine. the reason I trust this Dr is because when my daughter was very ill once and bleeding internally the hospital said there was nothing they could do and he helped and made a dramatic difference. He says I should stay on the Carbimazole and take the homeopathic medicine he has prescribed for the thyroid and it should help me. He does not say it will cure me but does say I should feel a lot better. Worth a try. My Dr does know I am receiving this and is ok with that as it does not interfere in any way with what I am taking. I am just determined to take positive steps and move forward. If other people can go into remission then so can I. It is worth aiming for anyway. How are you feeling? I hope you are well. Grace __________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Hi AntJoan I have been doing well on the carbimazole and combined it with eating healthier and taking supplements now too as well as started on a homeopathic course for my thyroid too. One thing though, you say you reduced your meds gradually - how gradual was that? I reduced the carbimazole from 6 tablets to four but still feel sluggish, am constipated and want to sleep constantly, along with sore distended stomach and no appetite - only eating because I know I have to eat healthy really and the weight is starting to go on .... and on! - a complete contrast from the person I was a few months ago. Does this mean I should reduce the meds by perhaps one more tablet? I am nervous about doing so because of the state I was in before the tablets but this is making me so sluggish. Or perhaps stay with this amount? The blood tests showed almost normal levels although my TSH was negligible which means the Dr says, that I am still hyper. Unfortunately I am not seeing anyone at the moment as I am waiting for my appointment with the specialist to come through. The Doctor has said she doesn't need to see me as that should be through quite soon. Thanks! Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 In a message dated 6/25/2006 2:30:46 PM Eastern Daylight Time, weegrace@... writes: One thing though, you say you reduced your meds gradually - how gradual was that? Dear Grace, I really think everyone is different, and needs to listen to his/her own body, as well as monitoring blood tests. I guess you can try taking less and see what happens--I hate to advise you on this, maybe someone else knows more and can help. Take care, Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 In a message dated 6/25/2006 7:31:09 PM Eastern Daylight Time, weegrace@... writes: do the tablets mask this result or when you weaned off the tablets did your TSH rise? Dear Grace, Sorry, I don't know the answer to that, either (I guess I'm not very helpful this evening). I really didn't pay that much attention to the test results, I just went by how I felt, and checked w/the endo to be sure the levels were good. I got well before I joined this group, (actually, this group didn't exist yet), and went more by instinct than anything else. I did not have the benefit of discussion w/others about what various tests meant, etc., so I probably didn't understand the individual components. Maybe someone else on this list can answer your questions. Best, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 In a message dated 6/25/2006 7:29:39 PM Eastern Daylight Time, weegrace@... writes: Thats a couple of months I have been on them now. How many months did it take you to wean off them? Dear Grace, I think I was on the meds for only a few months total, but I don't remember exactly. I got sick in March/April, was diagnosed I think in June, and I think I was off the meds by the end of the summer, but it might have been a bit longer. I remember I responded rather quickly to the meds, and felt myself becoming hypo--I could almost feel my metabolism slow down. As I was still eating a large volume of food from when I was hyper, I put on a few pounds, and this was unacceptable to me. I started watching what I ate, and this is when I insisted on lowering the dosage. I never got hypo enough to have the symptoms you describe--my vanity got in the way of the endo's plan to have me go hypo. Best, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Dear AntJoan That is ok, I understand you are reluctant to advise. I just feel I am still a bit hypo and without blood test results I am working in the dark purely by listening to my own body. I will try just reducing one at night and see how I feel. Thats a couple of months I have been on them now. How many months did it take you to wean off them? I understand this may not work for me, I am just trying to get to the point where I am taking just enough of them to feel " good " again and it seems that I go hypo feeling, reduce them, feel good for a while, and now this hypo feeling again so was just wondering. worry not - I wont hold you to ransom, I realise we are all going to respond differently! Lol. Thanks for replying, Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 One more question, my TSH is still barely there which is not good I guess - do the tablets mask this result or when you weaned off the tablets did your TSH rise? Thanks, Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Grace, I am going to tell you from other's stories I have read and minimally from my own - I have only been at this for a few months. The most knowledgeable people (with ATD experience) that I have found are at mediboard.com. It does sound like you are responding to the meds. That is why you seem to be continually going hypo-ish symptom wise. Some people that slide quicker towards hypo will actually not take any meds for 2-5 days then resume at a lesser dose. Does that make sense? I have done this once. As your body heals it will need less and less of the ATD. Everyone heals differently depending on symptoms and how severe and how long you were sick. That is why no one can tell you how long it will take. Not even a dr. But as long as you are responding or able to maintain " normal " thyroid levels there is no need to jump to another treatment option. Does that help any? Kim Re: help Hi AntJoan I have been doing well on the carbimazole and combined it with eating healthier and taking supplements now too as well as started on a homeopathic course for my thyroid too. One thing though, you say you reduced your meds gradually - how gradual was that? I reduced the carbimazole from 6 tablets to four but still feel sluggish, am constipated and want to sleep constantly, along with sore distended stomach and no appetite - only eating because I know I have to eat healthy really and the weight is starting to go on .... and on! - a complete contrast from the person I was a few months ago. Does this mean I should reduce the meds by perhaps one more tablet? I am nervous about doing so because of the state I was in before the tablets but this is making me so sluggish. Or perhaps stay with this amount? The blood tests showed almost normal levels although my TSH was negligible which means the Dr says, that I am still hyper. Unfortunately I am not seeing anyone at the moment as I am waiting for my appointment with the specialist to come through. The Doctor has said she doesn't need to see me as that should be through quite soon. Thanks! Grace __________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
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