Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 In a message dated 6/26/2006 4:27:21 AM Eastern Daylight Time, mailtopang@... writes: But i guess at least one year. Of course, if you are feeling hypo, by all means, reduce it to a comfortable level. Having said that, I do not think you should stop altogether after a few months on the med. Dear Grace, As we all know, I did go off the meds after a few months of weaning, and am fine. I think it is individual, as I said before. I do know that going hypo is not good for you, although that is what the doctors want. I personally think the more time one spends out of balance (whether hyper or hypo), the harder it is to get well. I have come to that conclusion by listening to everyone on this board for the past 8 years, but, of course, that is not a scientific study, and I'm not sure (I wish there were a study about this, so we all wouldn't be shooting in the dark). I know endos like to make and keep us hypo, for whatever their reasons, and, by not listening to my endo, I got well. Keep listening to your body, that is my best advice. Best, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Hi Grace, You can surf on some of the previous post to learn more. Perhaps you can search for my name to know more about my journey. Too lazy to retype all again. Anyway, I took PTU (similar to Carbimazole) for more than 2 years before gradually weaning off. Personally, I do not encourage others to wean off the med too early. Now, how early is early, that is debatable. But i guess at least one year. Of course, if you are feeling hypo, by all means, reduce it to a comfortable level. Having said that, I do not think you should stop altogether after a few months on the med. After taking PTU for 2 years, i begin gradually weaning off the med. From 3 tablets per day, to 2 tablets per day for 2-4 months and finally 1 tablet per day for the next 3-5 months. During that period of time, i constantly go for blood screen and I slowly notice my TSH beginning to rise. I have stopped altogether more than half a year ago. Bear in mind that I have been consistently taking PTU for a duration of 2 years. Obviously i am not asking you to do the same. But be careful, do not do it in a hurry and never put yourself in unnecessary pressure. My sister too, have constipation. Counter ur constipation naturally. Papaya is very very good for constipation, but make sure it's ripen fully. Half ripen papaya can lead to indigestion. Let us know more of your condition and your progress. Take care and God bless. Pang Re: help Hi AntJoan I have been doing well on the carbimazole and combined it with eating healthier and taking supplements now too as well as started on a homeopathic course for my thyroid too. One thing though, you say you reduced your meds gradually - how gradual was that? I reduced the carbimazole from 6 tablets to four but still feel sluggish, am constipated and want to sleep constantly, along with sore distended stomach and no appetite - only eating because I know I have to eat healthy really and the weight is starting to go on .... and on! - a complete contrast from the person I was a few months ago. Does this mean I should reduce the meds by perhaps one more tablet? I am nervous about doing so because of the state I was in before the tablets but this is making me so sluggish. Or perhaps stay with this amount? The blood tests showed almost normal levels although my TSH was negligible which means the Dr says, that I am still hyper. Unfortunately I am not seeing anyone at the moment as I am waiting for my appointment with the specialist to come through. The Doctor has said she doesn't need to see me as that should be through quite soon. Thanks! Grace Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Thanks to everyone for their input - I am listening:-) Well I feel really sluggish again and as far as aware am doing all the right things so may reduce by just one more tablet, will see how it goes girls! I think the reason is that I feel like a slug - all sluggish and bloated - whereas before I was always fit and active. It is affecting home and work. Another reason is I need to have more energy than this as we have a smallholding and we are cutting hay ready to harvest and believe me it is hard work and we don't have help so I need to feel less tired than this. I can always up the meds again if I feel myself going hypo. It is as if my body is getting used to whatever amount of meds I take then I have to reduce again. Will go by listening to my body and will take it really slow - no point in throwing myself out of whack again (yaaaawn) Gosh, so sleepy lol. Thanks again girls, it really is nice to know you are all there, especially when the Dr has kind of left me to sail along just now. Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Hi Kim Ah I should have read this one first. Right, I really feel I must reduce before I fall asleep right here and now. Never knew it worked better to miss the tablets for a few days then resume at a lower dose - will try that then, thanks! I do seem to be responding fast to them. Guess the TSH will take longer to respond but that is ok, I have patience:-) Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Hi Pang, Don't worry, I won't come off them too fast - i will just reduce tablet by tablet until I feel I can live " normally " without being hyper or hypo. From what you say does this mean that your TSH does not rise at all while on the meds? I assumed it would rise gradually as I reduced them but it doesn't sound like that is what happens. Hmmmm ... More learning:-) Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Oh, and i have never tried papaya! Must try to get hold of some:-) ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 OOPS! Forgot to mention that in some people the TSH can stay suppressed for longer periods. (Some people months or years.) So that is another reason not to give too much credit to the TSH during treatment. TSH is more valuable for diagnoses when a patient has not been having any treatments for thyroid imbalances. Maybe that will help understand why your TSH isn't moving yet. Give it time. Kim Re: help Hi Kim Ah I should have read this one first. Right, I really feel I must reduce before I fall asleep right here and now. Never knew it worked better to miss the tablets for a few days then resume at a lower dose - will try that then, thanks! I do seem to be responding fast to them. Guess the TSH will take longer to respond but that is ok, I have patience:-) Grace __________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Grace, As you reduce you may need to split a pill. That will allow you more flexibility in reduction doses. And as you get lower you may need to reduce in smaller increments that a full pill at a time. Just a thought. I know one person that reduced down to a maintenance dose of 1/4 pill. But that is what kept her stable. I think she actually bought a pill splitter to help get it that small. Kim RE: Re: help Hi Pang, Don't worry, I won't come off them too fast - i will just reduce tablet by tablet until I feel I can live " normally " without being hyper or hypo. From what you say does this mean that your TSH does not rise at all while on the meds? I assumed it would rise gradually as I reduced them but it doesn't sound like that is what happens. Hmmmm ... More learning:-) Grace __________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Hi Kim, Thanks for that advice - never even thought of splitting a pill (duh!) and you are right, it would give me more flexibility as I am wary of reducing by too much too fast. Thanks! Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 Rhonda, It sounds like you stopped the antibiotics too soon. Lyme-Literate MDs will keep you on antibiotics until 8 weeks after all symptoms have abated, with an average length of antibiotic treatment being about 18 months. I've been on antibiotics since October, and I figure I'm about half way there. And my case is mild compared to many who post here. You may also be infected with co-infections - other diseases carried by the same ticks that carry Lyme. Please, if you haven't already, get yourself to an LLMD - a Lyme-Literate MD. If you send another message to the group with your location in the subject line, hopefully someone here can recommend someone to you. Something like " LLMD Needed near Nashua New Hampshire " You can also ask for a referral from the LDA at http://www.lymediseaseassociation.org/, but they charge $5.00 and don't always get back to you. Hang in there. If you improved on the rocephin, you can get better again. jayrho74 <jayrho74@...> wrote: I have had Lyme symptoms for nearly a dozen years , but no doctor said LYME but just about everything else!!I feel that I have reached the end....With ups and downs, I am spiralling downward... I can hardly walk and my arms are useless. Previously did IV Rosephin for 3 months.initially improved, but then reversed fast. Did Samento for nearly a year. Have been using 2 Rife machines: EMEM and DC Zapper for year and half with minimum results.Get Herx reactions but no follow up improvement While there has been a few improvements to some symptoms or conditions my overall quality of life has degenerated to living as an invalid. I pray that somebody out there can offer encouraging words or suggestions Hopefully , RHONDA --------------------------------- Music Unlimited - Access over 1 million songs.Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 > > I am so sorry that you have had to put up with all the mess. I have been in a chair for over 20 + years because of this disease. Let me tell you this and I know just how hard it can be but you need to not llet it get the best of you. > When I started to quit the worse I got and it was so easy for me not to care about any thing. You are worth the fight other wise you would not be looking for help. is right find a good Lyme Dr. and it may be cause of antibodic stop to soonn.. please write if you have more question. Just what state due you live?? Bud > >>I live in Arizona,40 miles south of Tucson,small artists town called TUBAC. After so many years of bad luck with Doctors , including LLMD's , That I switched to RIFE Therapy at home. This week is especially bad as everything seems to be falling apart. I can hardly hold my head up. And I can't tolerate the smell of my husbands cooking . Eating is difficult.I am also recently gone to a wheelchair. Three years ago I was dancing up a storm, and we love latin style particularly TANGO. Pray that I can do it again. Antibiotix turned my teeth GREEN, and my veins started to shrink. They wanted to put in port. Thanks for your message and concern, Please keep in touch...I NEED someebody out there that cares. Rhonda > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Dear Grace, Good to hear from you again. I'm not sure what you should do at this point--maybe someone else can help you. Some people on this list have more medical knowledge than I do. I was good at listening to my own body, and that's what I advise everyone else to do. Maybe you could consult with a naturopath, or some kind of holistic professional who can help guide you (God, how I wish the endos knew what they were doing . . .) Best, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hi Kim, How are you doing? I just had the results of my blood tests through and my TSH has gone, in four weeks, from less than 0.01 up to 29! Pretty dramatic huh? Also, my weight is piling on at a pound a day..... hmmmm I know I had lost some and needed it back on, but hey! My clothes ani't going to fit soon! So all of a sudden from the tablets making no difference to my TSH they have kicked in and that was with the dose lowered to two tablets per day (without Doctors knowledge - she still wanted me on full dose of six). Of course now my doctor says she really wants me on block and replace and has prescribed thyroxine. I really don't want to start the thyroxine as I have been doing so well but obviously have to get my TSH under control. So will reduce my tablet to one a day and then half, then quarter if thats what it takes etc. I have been taking the Acetyl Carnatine, do you think I should stop that now? Take care, One sleepy getting fat Grace! ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hi Aunt Joan Well my plan was not to go hypo like you did but as i was just saying to Kim it has kinda backfired:-( I was doing fab and feeling " normal " for first time in ages. Went slightly hypo feeling and reduced my carbimazole down a tablet at a time from six and was down to two (against Doctors wishes) but between last blood tests and this result (4 wks) my TSH has gone from less than 0.01 to 29 and I feel sooo sluggish. Putting on a pound a day yet I have no appetite. Reduced tablet to one tho Dr still thinks I am on six (would you believe) and has prescribed me thyroxine. Not really wanting to take the thyroxine and confuse the issue so will wean tablets down to one then half etc and see how it goes (I can't afford a new wardrobe and I am vain enough not to want to get any heavier now as I have regained all the weight I lost). With positive thinking and a bit of care I hope to bring my TSH back down to normal range tho I have seen in some posts that it is not so easy to come back again (blast!). Sure I can do it if I try hard enough, just struggling to keep energy levels up at the moment. I find it strange that the change was so sudden. Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Hey, sleepy getting fat Grace! I would definitely start cutting back all the way around. Just go slow and steady. That way you don't rebound too fast. Watch your symptoms. I can't really tell you which to cut down and at what rate to decrease. I think you have to listen to your own body for that. IMO - With the thyroxine it depends on how you are feeling. Sometimes when we are hyperT for so long, then go hypo, it actually feels really good. Probably because we aren't binging off the walls and are enjoying the slow down. LOL! But its not a good idea to stay there. The longer you are hypoT the harder it will be to get back up out of it. And the worse the hypo symptoms will get. I have found that when I completely weaned off the Carnitine in June that my muscle aches and weakness started to return. I think I made it to around the two or three week mark. Then I caved. I am now back at 250mg two times a day. This is what seems to keep my muscles feeling well enough to function without pain. (I am beginning to believe I have fibromyaglia. Unconfirmed of course.) So instead I had to reverse some of the dietary changes I made. I was also taking additional magnesium to balance out my calcium intake. I have now eliminated the magnesium and continuing to what my calcium intake. For now this seems to be working. It seems I was doing " everything " (without meds) that I could find to reduce my thyroid levels. Now I have to do the reverse from being too far on the low side for me. Its kind of a guessing game for me to find which to eliminate and which to keep. But I am starting to feel a bit human again. I am trying to find that happy medium. I think its one of those things that will constantly shift for a while till I get settled in at a good spot in the lab levels. (That's the plan anyway!) How fast you change things IMO depends on how strong your " hypo " symptoms are. How sleepy are you? Can you function daily, or are you now a walking zombi? And how much weight have you gained? How about brain fog? Mine got really bad. What I did was cut back faster if my symptoms where drastically sliding down hill towards hypo. But go slower when I was feeling better. Watching my symptoms. Especially looking out for the symptoms I had when I was hyperT. Then watching labs to monitor my progress. One suggestion though. Try to change only one thing at a time. Watch it for a few days or weeks to see how that change effects you. Then change something else. If you change too many things at once you won't know what is causing what. Ok, suddenly I have lost myself. LOL! Its like brain fog on coffee. And I don't even drink coffee. And its bedtime - Can ya tell? Anyway, I hope my ramblings made sense. Take care, Kim Re: Re: help Hi Kim, How are you doing? I just had the results of my blood tests through and my TSH has gone, in four weeks, from less than 0.01 up to 29! Pretty dramatic huh? Also, my weight is piling on at a pound a day..... hmmmm I know I had lost some and needed it back on, but hey! My clothes ani't going to fit soon! So all of a sudden from the tablets making no difference to my TSH they have kicked in and that was with the dose lowered to two tablets per day (without Doctors knowledge - she still wanted me on full dose of six). Of course now my doctor says she really wants me on block and replace and has prescribed thyroxine. I really don't want to start the thyroxine as I have been doing so well but obviously have to get my TSH under control. So will reduce my tablet to one a day and then half, then quarter if thats what it takes etc. I have been taking the Acetyl Carnatine, do you think I should stop that now? Take care, One sleepy getting fat Grace! __________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Hi Grace, Has your doctor checked for Hashimoto's thyroiditis? this is an autoimmune disease like Grave's except that the usual trajectory is that you're hyperthyroid for a while (I think around 6 months) and then you revert to hypothyroid. If Hashimoto's is the cause of your thyroid issues, you should get off the ATD and start on thyroid replacement. Definitely something to ask your doctor. Despite having normal levels of thyroid hormone, my TSH is still almost undetectable; my endo said it's normal with Grave's to take a long time to get the TSH back up so a TSH of 20 pretty soon after starting ATD's seems a reason to suspect it's something other than Grave's, like Hashimoto's or postpartum thyroiditis. Nissa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Hi, That's interesting. No, Dr has never mentioned Hashimoto's. Trouble is my local Dr admits she knows little and it is me who is ensuring i get the four weekly blood tests, not her. We are waiting on appointment coming through with Endo. She has never ran any tests other than the T3 and T4 and TSH. She just said it was Graves because of the swelling of my eyes which she said you only got with Graves. Will look into it as i know nothing about Hashimotos. Thanks for that! Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 Hi Grace Something you might also want to look into - apparently it is not uncommon for you to get Hashi's and Graves at the same time... There's one for your doctor... Kate Re: Re: help Hi, That's interesting. No, Dr has never mentioned Hashimoto's. Trouble is my local Dr admits she knows little and it is me who is ensuring i get the four weekly blood tests, not her. We are waiting on appointment coming through with Endo. She has never ran any tests other than the T3 and T4 and TSH. She just said it was Graves because of the swelling of my eyes which she said you only got with Graves. Will look into it as i know nothing about Hashimotos. Thanks for that! Grace __________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.10.3/395 - Release Date: 21/07/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 Nissa and Grace, I think how quick the TSH responds depends on how long your TSH was suppressed. The longer the TSH was suppressed the longer it takes to rebound. But then this also depends on the individual person. I know some people with graves that do not have any other anitbodies indicating hashi's. But their TSH responded soon after treatment began. So I think its just another factor that is unpredictable from person to person as far as each person getting the exact same results from the same treatments. Confusing I know. But having said all that I think it is wise to be checked for the hashi's antibodies (TPO & Tg). That will help to know more of what you are dealing with. Kim Re: Re: help Hi Grace, Has your doctor checked for Hashimoto's thyroiditis? this is an autoimmune disease like Grave's except that the usual trajectory is that you're hyperthyroid for a while (I think around 6 months) and then you revert to hypothyroid. If Hashimoto's is the cause of your thyroid issues, you should get off the ATD and start on thyroid replacement. Definitely something to ask your doctor. Despite having normal levels of thyroid hormone, my TSH is still almost undetectable; my endo said it's normal with Grave's to take a long time to get the TSH back up so a TSH of 20 pretty soon after starting ATD's seems a reason to suspect it's something other than Grave's, like Hashimoto's or postpartum thyroiditis. Nissa ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 Hi Kim Phoned today to make an appointment with Dr re getting tested for antibodies for Hashis just to check it out and Dr says to wait til I see specialist. Gosh it seems like a fight to get help doesn't it? I don't even have an appointment through for specialist yet and have already been warned that they strongly promote RAI as first course of action. So, I guess it is a case of help myself really. It is so hard to know what to do. I have lowered my Carbimazole down to one tablet and I have not taken any thyroxine as yet tho I have it here in case to keep my options open. Getting so desperate that i am tempted right enough but have decided to supposrt my adrenal system before doing anything and studied what has been said on i-thyroid and taking vitamins and minerals including copper (which apparently can be very important in a case like this) and will take it from there. Still sleepy and putting on weight though and feeling really depressed and now have thrush and periods erratic and heavy so all typical signs of hypo. One step at a time - maybe if I sleep long enough it will all be different when I awake....... It is so strange as I am back to feeling tearful and emotional again like I was when hyper. Not easy person to be around and I want the old me back! Thanks for being here:-) Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 thinking .... so if the TSH has rebounded really fast and too far, how do I get it to bounce back again? If I am only on one tablet now will I stay on one tablet for four weeks to see if that has made a difference to my TSH and take it from there? Really not keen to take the thyroxine as feel my body responded to altering the amounts of carbimazole and don't want to confuse the signals my body is getting and get into a situation I have no control over at all? Yes it is confusing, I sound like I am rambling, just trying to figure it out really, Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 yes I see what you mean, as I said to Kim my Dr does not want to deal with this, she would rather I wait until I see specialist (he is a diabetes specialist by the way!) before any more tests are run. Dr never even authorised the last lot of blood tests I had. Trouble is that could be months away. If it was Hashis and I would be better off the Carb and on the thyroxine I am unsure what to do without that test to be sure. I am tempted to wean right off the carbimazole and see what happens but so scared I end up in the state I was but then again, being like this is hell too! And I thought I could knock this on the head!! Lol Grace ___________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 Grace, keep in mind that the TSH lags behind treatments 6-8 weeks. So don't put too much stock in what your TSH readings are. Once you begin treatment for thyroid issues TSH will only show you how your pituitary reacted to your thyroid levels 6-8 weeks ago. (It takes that long for TSH to adjust.) Its more important to watch your FREE thyroid hormone levels as they will tell you what is going on now. Once you are stable, and the TSH is more steady, you might be able to rely more on it. But not during treatments. And, yes, drs! That is why we need to educate ourselves. Become your own best advocate. ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 Sorry, Grace, that post aobut the TSH and " drs! " was from me. I forgot to sign my name at the bottom of the post. I saw it just as it went away. OOPS! I would check my free T levels before weaning completely off the carb. Its better to be safe than sorry. Kim (Woohoo! I remembered to add my name!) Re: Re: help yes I see what you mean, as I said to Kim my Dr does not want to deal with this, she would rather I wait until I see specialist (he is a diabetes specialist by the way!) before any more tests are run. Dr never even authorised the last lot of blood tests I had. Trouble is that could be months away. If it was Hashis and I would be better off the Carb and on the thyroxine I am unsure what to do without that test to be sure. I am tempted to wean right off the carbimazole and see what happens but so scared I end up in the state I was but then again, being like this is hell too! And I thought I could knock this on the head!! Lol Grace __________________________________________________________ Tiscali Broadband from 14.99 with free setup! http://www.tiscali.co.uk/products/broadband/ ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Dear Grace, OhmyGod, I'm so sorry you're suffering! I don't know what happened, it sounds like you are VERY hypo, what does the thyroxine do? I hope you keep fighting, you are a worthwhile person, and your health is worth fighting for. What is the doctor's interpretation of what is happening to you? AntJoan Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.