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Welcome Legend!

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Dear Legendre@nwlink

Well, you are in good company. Alot of don't know exactly our CMT

diagnosis, I was first diagnosed when I was ten, followed by 2 more

times with CMT, and alot of other neuro diseases. We have several

members in your area, maybe they will drop in to say hello. There are

also a couple of young girls riding horses, too. Liz? Nora? Are you out

there? Talk to us about your horse riding! And Moms of CMTErs, give your

advice. As for talking to healthcare professionals, none here can give

'advice' I would suggest you find a really good neurologist and make a

list of questions and go from there. On our home page, on the

left, there is a word for 'bookmarks'.Under 'files' there are some

pictures, both of Liz and Nora on horseback! This has dozens of links

where you can find out more about how those of us with CMT live with it

and stay happy!

~ Gretchen

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