Re: Don't know what to do from here ...need help

[Guest guest]

Hey Mike,

The only idea which comes to my mind - change a doctor if possible. You need

fresh start. I know this feeling when i was arguing with psychiatric doctors,

before i discovered i have Hashimoto and etc. After theses argues i felt so

lonely and lost then i didn't want to do anything.

Your doctor is not a God, you know you body better then any doctor.

Antanas

>

> Hey Group,

>

> I am at a loss for what to do. I just had a 30 minute appt with Dr. M, and

> I spent the entire time arguing with him. I first discussed aldosterone and

> florinef and even though my labs say that I should consider a trail dose of

> it, he refuses to treat it. I had to basically beg him to even test for

> it. Then, I asked him why my face is very puffy, my skin is thin and

> horrible and why I am getting a buffalo hump (that was confirmed by my PT)

> on the back of my neck. I said that it all sounds like I am on too much

> medrol and he said that is impossible. I then asked what it culd be from and

> he replied, " I don't know " and changed the subject. I then asked him about

> getting on some NTH because of T4 and the brain and even referenced his post

> from a while back regarding this and the said that was old news and the he

> doesn't believe that anymore (Barb and Phil, you may want to take note of

> this). He said that getting on T3 is just fine and that we shouldn't

> reference things from him on the net because things change and he changes

> his opinion based on those changes. So, I basically said that we weren't

> doing things the right way, which we aren't because something is preventing

> me from getting better, and he became very offended at this remark.

>

> So, I just don't know what to do at this point. I can't take the aromasin

> anymore because it screws with me. I took some today along with a test cyp

> shot and about a two hours later, felt like I was going to die. I took a nap

> and I was awoken by a strange fatigue that made me feel like the very

> essence was being sucked out of me. And, it is still giving me heart palps,

> just not as bad. So, I may just throw in the towel. I would rather just

> feel like shit than continue down this roller coaster ride. My physiology

> is so screwed up that I don't think it is reparable. I mean, I feel like I

> am doing more harm than good to my body and my physical apperance manifests

> this...I look like complete hell...I look worse know than before I started

> this whole thing.

>

> I don'tk now,. If any of you have been through this, I would greatly

> appreciate some advice. I was thinking that my only other option is to wean

> off of everything and start over.

>

> I don't know..this blows and I'm getting tired of it.

>

> Any help or advice is greatly apprecaited.

>

> Thanks,

> MIke

>

> --

> *Mike*

>

>

>

[Guest guest]

Mike,

I understand what your saying been down that road many yrs. With and with out

Dr.'s I am on Generic Shythroid 150 mcgs. I did not feel very good on this until

I added a low dose of T3 to this 5 mcgs / day. I felt better on this and seeing

labs we went up to 2x's / day. I did much better and now I do this 3x's / day.

But the time I start taking them meds is at about 5am I do my Thyroid,

Testosterone and or HCG meds then go back to bed. This way when I wake up at

8am I feel much better and I then take my Iron pills this is about an hr. before

I eat.

I have been taken off TRT 7 times in my life it's not fun each time I ended up

on sick leave from work.

I do know if your Thyroid is not right it has an effect on how your doing and

when you have change in your Estradiol levels one can feel Panic feelings and I

think this is whats going on with you.

Do you have a copy of your labs can you post them maybe we will see something in

them.

Co-Moderator

Phil

> From: Rouse <michael.hugh.rouse@...>

> Subject: Don't know what to do from here ...need help

>

> Date: Sunday, April 10, 2011, 4:08 AM

> Hey Group,

>

> I am at a loss for what to do.  I just had a 30 minute

> appt with Dr. M, and

> I spent the entire time arguing with him.  I first

> discussed aldosterone and

> florinef and even though my labs say that I should consider

> a trail dose of

> it, he refuses to treat it.  I had to basically beg

> him to even test for

> it.  Then, I asked him why my face is very puffy, my

> skin is thin and

> horrible and why I am getting a buffalo hump (that was

> confirmed by my PT)

> on the back of my neck. I said that it all sounds like I am

> on too much

> medrol and he said that is impossible. I then asked what it

> culd be from and

> he replied, " I don't know " and changed the subject.  I

> then asked him about

> getting on some NTH because of T4 and the brain and even

> referenced his post

> from a while back regarding this and the said that was old

> news and the he

> doesn't believe that anymore (Barb and Phil, you may want

> to take note of

> this).  He said that getting on T3 is just fine and

> that we shouldn't

> reference things from him on the net because things change

> and he changes

> his opinion based on those changes.  So, I basically

> said that we weren't

> doing things the right way, which we aren't because

> something is preventing

> me from getting better, and he became very offended at this

> remark.

>

> So, I just don't know what to do at this point.  I

> can't take the aromasin

> anymore because it screws with me. I took some today along

> with a test cyp

> shot and about a two hours later, felt like I was going to

> die. I took a nap

> and I was awoken by a strange fatigue that made me feel

> like the very

> essence was being sucked out of me. And, it is still giving

> me heart palps,

> just not as bad.  So, I may just throw in the towel. I

> would rather just

> feel like shit than continue down this roller coaster

> ride.  My physiology

> is so screwed up that I don't think it is reparable. 

> I mean, I feel like I

> am doing more harm than good to my body and my physical

> apperance manifests

> this...I look like complete hell...I look worse know than

> before I started

> this whole thing.

>

> I don'tk now,. If any of you have been through this, I

> would greatly

> appreciate some advice.  I was thinking that my only

> other option is to wean

> off of everything and start over.

>

> I don't know..this blows and I'm getting tired of it.

>

> Any help or advice is greatly apprecaited.

>

> Thanks,

> MIke

>

> --

> *Mike*

>

>

>

[Guest guest]

Mike, just some random thoughts --I recently (OCT 2010) weaned from Cortef-HC

(20mg/day)..for me it was an easy wean because I was WAY over the time when I

should have stopped the drug (1.5 yr --should probably never have started)in

hindsight...I experienced muscle loss, thin skin, anxiety..you having a buffalo

hump and moon face suggests very high cortisol (just as bad as low and same

types of symptoms)....not sure why Dr. M is not hearing you on those obvious

text book Cushing's symptoms..

What I am doing now (I have been sick w/ bronchitis off and on since dropping

HC)..seeing a D.O. who dx me with long term yeast/candida/toxic metals

overload/inability to absorb magnesium--working on that, peeling back the onion

as it were..getting IV magnesium/ IM vitamins and amino acids..(and I *thought*

I had good digestion compared to most

Maybe it's time to step back and evaluate digestion (all thyroid patients seem

to have issues with this to some degree) nutritional status (maybe consult HARD

on this)and re-evaluate needs with regard to cortisol (lowering dose)? EL

>

> Hey Group,

>

> I am at a loss for what to do. I just had a 30 minute appt with Dr. M, and

> I spent the entire time arguing with him. I first discussed aldosterone and

> florinef and even though my labs say that I should consider a trail dose of

> it, he refuses to treat it. I had to basically beg him to even test for

> it. Then, I asked him why my face is very puffy, my skin is thin and

> horrible and why I am getting a buffalo hump (that was confirmed by my PT)

> on the back of my neck. I said that it all sounds like I am on too much

> medrol and he said that is impossible. I then asked what it culd be from and

> he replied, " I don't know " and changed the subject. I then asked him about

> getting on some NTH because of T4 and the brain and even referenced his post

> from a while back regarding this and the said that was old news and the he

> doesn't believe that anymore (Barb and Phil, you may want to take note of

> this). He said that getting on T3 is just fine and that we shouldn't

> reference things from him on the net because things change and he changes

> his opinion based on those changes. So, I basically said that we weren't

> doing things the right way, which we aren't because something is preventing

> me from getting better, and he became very offended at this remark.

>

> So, I just don't know what to do at this point. I can't take the aromasin

> anymore because it screws with me. I took some today along with a test cyp

> shot and about a two hours later, felt like I was going to die. I took a nap

> and I was awoken by a strange fatigue that made me feel like the very

> essence was being sucked out of me. And, it is still giving me heart palps,

> just not as bad. So, I may just throw in the towel. I would rather just

> feel like shit than continue down this roller coaster ride. My physiology

> is so screwed up that I don't think it is reparable. I mean, I feel like I

> am doing more harm than good to my body and my physical apperance manifests

> this...I look like complete hell...I look worse know than before I started

> this whole thing.

>

> I don'tk now,. If any of you have been through this, I would greatly

> appreciate some advice. I was thinking that my only other option is to wean

> off of everything and start over.

>

> I don't know..this blows and I'm getting tired of it.

>

> Any help or advice is greatly apprecaited.

>

> Thanks,

> MIke

>

> --

> *Mike*

>

>

>

[Guest guest]

I certainly don't have Dr. M's training, but have done a lot of reading and

observation on my own. A buffalo hump is pretty diagnostic of high cortisol

(google Cushing's). Weight gain and a fat face are associated with that too.

There was a time when I carried a water bottle around with me constantly, so

probably had low aldosterone and could use florinef, but I had high BP, so was

not going that route. I am not nearly as thirsty as before, and I attribute

that to getting my T4 higher. So I would conclude that thyroid and aldosterone

levels are related. In fact, when on 1/2 grain, I had diabetes insipidus

(unrelenting thirst and peeing) for a day, if that's possible. I raised

immediately after that incident and it stopped. I also consider florinef a

risky drug, so would advise caution if you wanted to try it.

I disagree completely about T4 being unnecessary and updated my rT3 page

yesterday. I continue to add info as I find it. For any reading my site

http://tiredthyroid.com/rt3.html, you may have to hit refresh to have the latest

version overwrite the cached version. (I have updated several pages.) T4 is

not only deiodinated to T3, T2, etc. it is also deaminated to something called

tetrac which serves an anti-tumor function. I know there is also

decarboxylation and other ways the metabolites are broken down, but haven't

researched those yet.

The way I figure thyroid works in the brain is that your brain needs an amount,

let's call it Brn(T3). Your body would use an amount I'll call Bod(T3).

Brn(T3) > Bod(T3). Brn(T3) = T3 + T3(from T4). So to get your brain working

correctly, you've REALLLY got to crank up the direct T3 if you have no T3(from

T4). But since the body's needs are less, you can get hyper body symptoms like

fast heartrate if you raise T3 too high. The body prefers T3(from T4) because a

healthy thyroid produces, on average, 100 mcg T4 and only 6 mcg T3 daily. About

24 mcg of T3 are produced from the T4 to give a daily output of 30 mcg T3. This

explains why anyone with ANY conversion will probably end up too high in T3 on

NDT. 3 grains is 114 mcg T4 and 27 mcg T3. With normal conversion you'd be

adding another 24 mcg T3 when you only need the 27 the NDT provided!

BTW, high cortisol causes rT3.

Because of your symptoms, I would recommend slowly weaning off the medrol/HC.

Do you have any baseline of thyroid labs when on straight T4 or only NDT? I

would slowly convert you back to NDT. If something makes you feel sick, stop

it. So stop the aromasin.

And Mike, if it's any consolation, you are not the first to go down this path of

bad advice making you worse. Why do you think I wrote my site? They can shut

me up with full moderation, but they couldn't keep me from talking on my own

site! BTW, I get statistics on my site and the rT3 section is THE most read

next to the home page. I wonder who/why people are reading that particular

section more than any other? Are many getting worse on T3-only treatment?

JMHO,

Barb

>

> Hey Group,

>

> I am at a loss for what to do. I just had a 30 minute appt with Dr. M, and

> I spent the entire time arguing with him. I first discussed aldosterone and

> florinef and even though my labs say that I should consider a trail dose of

> it, he refuses to treat it. I had to basically beg him to even test for

> it. Then, I asked him why my face is very puffy, my skin is thin and

> horrible and why I am getting a buffalo hump (that was confirmed by my PT)

> on the back of my neck. I said that it all sounds like I am on too much

> medrol and he said that is impossible. I then asked what it culd be from and

> he replied, " I don't know " and changed the subject. I then asked him about

> getting on some NTH because of T4 and the brain and even referenced his post

> from a while back regarding this and the said that was old news and the he

> doesn't believe that anymore (Barb and Phil, you may want to take note of

> this). He said that getting on T3 is just fine and that we shouldn't

> reference things from him on the net because things change and he changes

> his opinion based on those changes. So, I basically said that we weren't

> doing things the right way, which we aren't because something is preventing

> me from getting better, and he became very offended at this remark.

>

> So, I just don't know what to do at this point. I can't take the aromasin

> anymore because it screws with me. I took some today along with a test cyp

> shot and about a two hours later, felt like I was going to die. I took a nap

> and I was awoken by a strange fatigue that made me feel like the very

> essence was being sucked out of me. And, it is still giving me heart palps,

> just not as bad. So, I may just throw in the towel. I would rather just

> feel like shit than continue down this roller coaster ride. My physiology

> is so screwed up that I don't think it is reparable. I mean, I feel like I

> am doing more harm than good to my body and my physical apperance manifests

> this...I look like complete hell...I look worse know than before I started

> this whole thing.

>

> I don'tk now,. If any of you have been through this, I would greatly

> appreciate some advice. I was thinking that my only other option is to wean

> off of everything and start over.

>

> I don't know..this blows and I'm getting tired of it.

>

> Any help or advice is greatly apprecaited.

>

> Thanks,

> MIke

>

> --

> *Mike*

>

>

>