Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Denisa, what do YOU think is wrong? Do you have a hard time talking to this dr? I know I usually have to tell them what is wrong, and ask for what I think I need. Then they look for " proof " , & either agree with me or not. If I dont feel like talking, or dont know what it is, I get nothing. Like they think it will just go away & I wont bother them anymore. A lot of things do resolve themselves, but they are still clues to the big picture. Just keep going back, when you have gone in more than once with the same complaint they cant blow it off.You've had a rough last couple of months, but you are definitely a survivor. Hang in there! Love, > I felt blown off. Nothing is physically wrong, according to her. EEEEK. I need to change docs, not a good time. I live in a small town and none of the docs in my area are accepting new patients on medicaid. I am without a car, *could* go to Columbus if I had a car.....That may change in a month or so, I hope. I guess I just lose weight for now LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Awww, I'm Sorry she didn't listen ( That is terrible when we know something is wrong and they just won't pay attention ( Keep paying attention yourself and try to figure it out on your own !!! That's what a lot of us have to do...Keep me posted as to how you are doing !!! {{{ Special Hugs }}} Helen I felt blown off. Nothing is physically wrong, according to her. EEEEK. I need to change docs, not a good time. I live in a small town and none of the docs in my area are accepting new patients on medicaid. I am without a car, *could* go to Columbus if I had a car.....That may change in a month or so, I hope. I guess I just lose weight for now LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Yes Doc, you stated it properly. I've had this computer 2 years and yes, I should have had them put more ram in when I bought it. A year ago I had the same problem I'm having now. The shop said win98 was corrupted and they re-formatted the hard drive. I expect they will do the same thing. I will have them add the 64 ram. Hopefully, this will solve the problem as I've ran a memory software program that said I was dangerously low. Thank you for wording it properly, now I know exactly what to ask them for. I really appreciate your input on this. Carol Doc wrote: > > You mean the hard disk when you say 600 mb and 3000 mb, so leaving enough memory space on hard disk > doesnt help the ram at all. > If you have a year old pc..you shoud have taken 68 mb ram minimum but the probem with companies is > that they sell you a new processor but dont give enough ram..and you dont know that much at that > point of time. > > If its worked for a year , then your 32 mb ram chip is working fine. Dont use mutiple applications > at the same time or video files unles you have a video graphic card. > > Dont change ram chip , add another 64 mb ram or 128 mb ram chip thats all. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Yes Doc, you stated it properly. I've had this computer 2 years and yes, I should have had them put more ram in when I bought it. A year ago I had the same problem I'm having now. The shop said win98 was corrupted and they re-formatted the hard drive. I expect they will do the same thing. I will have them add the 64 ram. Hopefully, this will solve the problem as I've ran a memory software program that said I was dangerously low. Thank you for wording it properly, now I know exactly what to ask them for. I really appreciate your input on this. Carol Doc wrote: > > You mean the hard disk when you say 600 mb and 3000 mb, so leaving enough memory space on hard disk > doesnt help the ram at all. > If you have a year old pc..you shoud have taken 68 mb ram minimum but the probem with companies is > that they sell you a new processor but dont give enough ram..and you dont know that much at that > point of time. > > If its worked for a year , then your 32 mb ram chip is working fine. Dont use mutiple applications > at the same time or video files unles you have a video graphic card. > > Dont change ram chip , add another 64 mb ram or 128 mb ram chip thats all. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Yes Doc, you stated it properly. I've had this computer 2 years and yes, I should have had them put more ram in when I bought it. A year ago I had the same problem I'm having now. The shop said win98 was corrupted and they re-formatted the hard drive. I expect they will do the same thing. I will have them add the 64 ram. Hopefully, this will solve the problem as I've ran a memory software program that said I was dangerously low. Thank you for wording it properly, now I know exactly what to ask them for. I really appreciate your input on this. Carol Doc wrote: > > You mean the hard disk when you say 600 mb and 3000 mb, so leaving enough memory space on hard disk > doesnt help the ram at all. > If you have a year old pc..you shoud have taken 68 mb ram minimum but the probem with companies is > that they sell you a new processor but dont give enough ram..and you dont know that much at that > point of time. > > If its worked for a year , then your 32 mb ram chip is working fine. Dont use mutiple applications > at the same time or video files unles you have a video graphic card. > > Dont change ram chip , add another 64 mb ram or 128 mb ram chip thats all. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Yes Doc, you stated it properly. I've had this computer 2 years and yes, I should have had them put more ram in when I bought it. A year ago I had the same problem I'm having now. The shop said win98 was corrupted and they re-formatted the hard drive. I expect they will do the same thing. I will have them add the 64 ram. Hopefully, this will solve the problem as I've ran a memory software program that said I was dangerously low. Thank you for wording it properly, now I know exactly what to ask them for. I really appreciate your input on this. Carol Doc wrote: > > You mean the hard disk when you say 600 mb and 3000 mb, so leaving enough memory space on hard disk > doesnt help the ram at all. > If you have a year old pc..you shoud have taken 68 mb ram minimum but the probem with companies is > that they sell you a new processor but dont give enough ram..and you dont know that much at that > point of time. > > If its worked for a year , then your 32 mb ram chip is working fine. Dont use mutiple applications > at the same time or video files unles you have a video graphic card. > > Dont change ram chip , add another 64 mb ram or 128 mb ram chip thats all. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2002 Report Share Posted February 2, 2002 Dear Connie, You do seem to have enlarged glands , I am wondering if they are on the arms and forearms as well..if so they maybe nerve sheath tumors( benign) called neurofibromas. If they are indeed enlarged lymph nodes then you must have one biopsied or aspirated straight away. Being on IFN for this long lowers your immunity and makes you prone for a lymphoreticular disorder like lymphoma. I am also wondering why the docs you have been seeing and paying so much cant tell you what they are! You lower BS indicates that you must cut down on your diabetic medication for otherwise you may experience changes in conscious level. Let me know what your current meds are and I will help. Lowering of sugar may also be causing you weight loss, anyway its best right now that you stay away from Combo. Take care, I am doing fine, say hi to Eddie as well. Dr Sharat Misra MD,DM,FACG Doc, What would make most of my Lymph nodes be enlarged especially in the head and neck area area? Have found enlarged ones that did not know that they existed. The ones that I thought were part of my skull now have ones closer in across from each other. The one in the regular place on area of left ear is big and hard and is kind of has a point on it. Have them on my neck to and in armpits. Keep finding new ones. A couple in the groin area also. I am also trembling and jerking tonight is making it hard to type. Saw a pain management Dr yesterday he was pretty thorough. They tested my blood sugar and it was 69. He told me about something new where you take it before you eat and once it gets BS lower it cuts out, forget the name. Do you think BS went down because being off Meds? He was quite expensive but he was worth it, $124 for initial appt. then will be $75 when go back. He gave me 10 mg Lortabs and more than the 30 Dr A was giving me of 7.5, Soma 35 mg and the amitriptylimine. Also gave me Celexa for depression but was $75 so I did not get it filled. The Amitriptylimine has some anti-depressant in it and I think that it will take care of it, well at least I hope it will. He does something that I think is good he has you sign a contract about what you do with pain meds. He said I should take the amitriptylimine for the Fibro and I figure it might help the pain I have been having in my hands from the CTS. I have been feeling so much better lately. I do have some pain in Liver and Spleen area more so in Liver area than spleen, it is kind of like a gnawing pain, don't know why having pain there. Dropped 12 lbs since off meds, thought it was 10 but looked at journal and was 12, my abdomen has went down some too which I figure is good. He is a very nice and understanding Dr. Take Care, Connie PS Eddie asked how you and family were doing and told me to tell you Hi and to Thank You for helping me. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2002 Report Share Posted February 3, 2002 I take 5 mgs of Glucatrol daily. Where would I look on arms and forearms? Have found some on the back of my neck too. I think they worry Eddie more than me. :-) Only ones that is real prominent is the one behind left ear and the ones on the back of my head. Take Care and Thank You. Connie --- Doc <gidoctor@...> wrote: > Dear Connie, > You do seem to have enlarged glands , I am wondering > if they are on the arms and forearms as well..if so > they maybe nerve sheath tumors( benign) called > neurofibromas. > If they are indeed enlarged lymph nodes then you > must have one biopsied or aspirated straight away. > Being on IFN for this long lowers your immunity and > makes you prone for a lymphoreticular disorder like > lymphoma. > I am also wondering why the docs you have been > seeing and paying so much cant tell you what they > are! > You lower BS indicates that you must cut down on > your diabetic medication for otherwise you may > experience changes in conscious level. Let me know > what your current meds are and I will help. > Lowering of sugar may also be causing you weight > loss, anyway its best right now that you stay away > from Combo. > Take care, I am doing fine, say hi to Eddie as well. > > Dr Sharat Misra MD,DM,FACG > > > > Doc, > What would make most of my Lymph nodes be > enlarged > especially in the head and neck area area? Have > found > enlarged ones that did not know that they existed. > > The ones that I thought were part of my skull now > have > ones closer in across from each other. The one in > the > regular place on area of left ear is big and hard > and > is kind of has a point on it. Have them on my > neck to > and in armpits. Keep finding new ones. A couple > in > the groin area also. I am also trembling and > jerking > tonight is making it hard to type. Saw a pain > management Dr yesterday he was pretty thorough. > They > tested my blood sugar and it was 69. He told me > about > something new where you take it before you eat and > once it gets BS lower it cuts out, forget the > name. > Do you think BS went down because being off Meds? > He > was quite expensive but he was worth it, $124 for > initial appt. then will be $75 when go back. He > gave > me 10 mg Lortabs and more than the 30 Dr A was > giving > me of 7.5, Soma 35 mg and the amitriptylimine. > Also > gave me Celexa for depression but was $75 so I did > not > get it filled. The Amitriptylimine has some > anti-depressant in it and I think that it will > take > care of it, well at least I hope it will. He does > something that I think is good he has you sign a > contract about what you do with pain meds. He > said I > should take the amitriptylimine for the Fibro and > I > figure it might help the pain I have been having > in my > hands from the CTS. I have been feeling so much > better lately. I do have some pain in Liver and > Spleen area more so in Liver area than spleen, it > is > kind of like a gnawing pain, don't know why having > pain there. Dropped 12 lbs since off meds, > thought it > was 10 but looked at journal and was 12, my > abdomen > has went down some too which I figure is good. He > is > a very nice and understanding Dr. > Take Care, Connie > PS Eddie asked how you and family were doing and > told > me to tell you Hi and to Thank You for helping me. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2002 Report Share Posted February 3, 2002 You can try and break it up by taking it 1/2 before breakfast and half before dinner, that may prevent the fall in sugar you are experiencing in the late day time. Regarding your glands I think you should have one tested by aspiration cytology. Dr Sharat Misra MD,DM,FACG I take 5 mgs of Glucatrol daily. Where would I look on arms and forearms? Have found some on the back of my neck too. I think they worry Eddie more than me. :-) Only ones that is real prominent is the one behind left ear and the ones on the back of my head. Take Care and Thank You. Connie --- Doc <gidoctor@...> wrote: > Dear Connie, > You do seem to have enlarged glands , I am wondering > if they are on the arms and forearms as well..if so > they maybe nerve sheath tumors( benign) called > neurofibromas. > If they are indeed enlarged lymph nodes then you > must have one biopsied or aspirated straight away. > Being on IFN for this long lowers your immunity and > makes you prone for a lymphoreticular disorder like > lymphoma. > I am also wondering why the docs you have been > seeing and paying so much cant tell you what they > are! > You lower BS indicates that you must cut down on > your diabetic medication for otherwise you may > experience changes in conscious level. Let me know > what your current meds are and I will help. > Lowering of sugar may also be causing you weight > loss, anyway its best right now that you stay away > from Combo. > Take care, I am doing fine, say hi to Eddie as well. > > Dr Sharat Misra MD,DM,FACG > > > > Doc, > What would make most of my Lymph nodes be > enlarged > especially in the head and neck area area? Have > found > enlarged ones that did not know that they existed. > > The ones that I thought were part of my skull now > have > ones closer in across from each other. The one in > the > regular place on area of left ear is big and hard > and > is kind of has a point on it. Have them on my > neck to > and in armpits. Keep finding new ones. A couple > in > the groin area also. I am also trembling and > jerking > tonight is making it hard to type. Saw a pain > management Dr yesterday he was pretty thorough. > They > tested my blood sugar and it was 69. He told me > about > something new where you take it before you eat and > once it gets BS lower it cuts out, forget the > name. > Do you think BS went down because being off Meds? > He > was quite expensive but he was worth it, $124 for > initial appt. then will be $75 when go back. He > gave > me 10 mg Lortabs and more than the 30 Dr A was > giving > me of 7.5, Soma 35 mg and the amitriptylimine. > Also > gave me Celexa for depression but was $75 so I did > not > get it filled. The Amitriptylimine has some > anti-depressant in it and I think that it will > take > care of it, well at least I hope it will. He does > something that I think is good he has you sign a > contract about what you do with pain meds. He > said I > should take the amitriptylimine for the Fibro and > I > figure it might help the pain I have been having > in my > hands from the CTS. I have been feeling so much > better lately. I do have some pain in Liver and > Spleen area more so in Liver area than spleen, it > is > kind of like a gnawing pain, don't know why having > pain there. Dropped 12 lbs since off meds, > thought it > was 10 but looked at journal and was 12, my > abdomen > has went down some too which I figure is good. He > is > a very nice and understanding Dr. > Take Care, Connie > PS Eddie asked how you and family were doing and > told > me to tell you Hi and to Thank You for helping me. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doc, I wish I could just up and come to the US. In a perfect world, I would get the meds I really need. Due to financial problems, and being on disability...which the pay leaves a lot to be desired lol....there's no way I can do it. I'll work on my Doc, but I know he can't prescribe what isn't approved yet. I didn't know that Canadian medical is good in the US. Won't ever buy travel insurance anymore :-( Thanks anyway, you're quite a guy!! Carol Doc wrote: > Your liver disease is not too advanced anyway and you need to have a > viral load test and Peg + Riba. You need to work on your docs or go to > US or come here! Did you know that Canada health insurance is valid > anywhere in the World. > I have treated some Canadians and that is how I know. > > Dr Sharat Misra MD,DM,FACG > > > > > > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. The cirrhosis was probably caused by my 20 > > years of party life, heavy, heavy drinking...no drugs, no tylenol. > I > wasn't surprised that I had it, I have the red palms and upper chest > > rash, have had it for years, just didn't know what it meant. To add > > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have > had a > lot of infection in my body to make such a difference in how I > feel. I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully > the > cirhossis will not continue. My alt level is one and 1/2 higher > than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > > > Dear Carol, > > It does seem that you have cirrhosis but if your ALT is high with > +ve > > HCV-RNA you should go for treatment with Combo albeit with lower > dose > > of IFN > > > > Dr Sharat Misra MD,DM,FACG > > > > > > > > Hi gang > > > > I am not amused. Biopsy isn't very good at all. Will post this > as > > it > > reads: > > > > The core needle biopsy of liver shows marked distortion of > normal > > liver architecture. There is severe fatty change present. > There is > > > > periportal fibrosis with well-established cirrhosis present. > The > > portal triad shows mild chronic inflammatory cell infiltrate > > including > > lymphocytes and macrophages present. The bile ductules and > vessels > > are unremarkable. There is no PAS diastase positive granules > > present. > > There is mild parenchymal injury, less than four injured cells > > (acidophilic bodies, ballooning degeneration) seen /10hpf. The > > central venules are unremarkable. The iron stain is negative. > > There > > is no bile stasis present. > > > > Dammmmmmmmm. If you recall, I live in Canada where treatment is > the > > > > old one, not peg. Doc, am I too far gone to even bother with > > treatment? Especially with the old combo, not peg. I'm geno 1b > of > > course. I guess I should at least try treatment. Any > thoughts? I > > think I'm still rather stunned at this report. > > > > Thanks all > > Carol > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doc, I wish I could just up and come to the US. In a perfect world, I would get the meds I really need. Due to financial problems, and being on disability...which the pay leaves a lot to be desired lol....there's no way I can do it. I'll work on my Doc, but I know he can't prescribe what isn't approved yet. I didn't know that Canadian medical is good in the US. Won't ever buy travel insurance anymore :-( Thanks anyway, you're quite a guy!! Carol Doc wrote: > Your liver disease is not too advanced anyway and you need to have a > viral load test and Peg + Riba. You need to work on your docs or go to > US or come here! Did you know that Canada health insurance is valid > anywhere in the World. > I have treated some Canadians and that is how I know. > > Dr Sharat Misra MD,DM,FACG > > > > > > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. The cirrhosis was probably caused by my 20 > > years of party life, heavy, heavy drinking...no drugs, no tylenol. > I > wasn't surprised that I had it, I have the red palms and upper chest > > rash, have had it for years, just didn't know what it meant. To add > > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have > had a > lot of infection in my body to make such a difference in how I > feel. I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully > the > cirhossis will not continue. My alt level is one and 1/2 higher > than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > > > Dear Carol, > > It does seem that you have cirrhosis but if your ALT is high with > +ve > > HCV-RNA you should go for treatment with Combo albeit with lower > dose > > of IFN > > > > Dr Sharat Misra MD,DM,FACG > > > > > > > > Hi gang > > > > I am not amused. Biopsy isn't very good at all. Will post this > as > > it > > reads: > > > > The core needle biopsy of liver shows marked distortion of > normal > > liver architecture. There is severe fatty change present. > There is > > > > periportal fibrosis with well-established cirrhosis present. > The > > portal triad shows mild chronic inflammatory cell infiltrate > > including > > lymphocytes and macrophages present. The bile ductules and > vessels > > are unremarkable. There is no PAS diastase positive granules > > present. > > There is mild parenchymal injury, less than four injured cells > > (acidophilic bodies, ballooning degeneration) seen /10hpf. The > > central venules are unremarkable. The iron stain is negative. > > There > > is no bile stasis present. > > > > Dammmmmmmmm. If you recall, I live in Canada where treatment is > the > > > > old one, not peg. Doc, am I too far gone to even bother with > > treatment? Especially with the old combo, not peg. I'm geno 1b > of > > course. I guess I should at least try treatment. Any > thoughts? I > > think I'm still rather stunned at this report. > > > > Thanks all > > Carol > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doc, I wish I could just up and come to the US. In a perfect world, I would get the meds I really need. Due to financial problems, and being on disability...which the pay leaves a lot to be desired lol....there's no way I can do it. I'll work on my Doc, but I know he can't prescribe what isn't approved yet. I didn't know that Canadian medical is good in the US. Won't ever buy travel insurance anymore :-( Thanks anyway, you're quite a guy!! Carol Doc wrote: > Your liver disease is not too advanced anyway and you need to have a > viral load test and Peg + Riba. You need to work on your docs or go to > US or come here! Did you know that Canada health insurance is valid > anywhere in the World. > I have treated some Canadians and that is how I know. > > Dr Sharat Misra MD,DM,FACG > > > > > > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. The cirrhosis was probably caused by my 20 > > years of party life, heavy, heavy drinking...no drugs, no tylenol. > I > wasn't surprised that I had it, I have the red palms and upper chest > > rash, have had it for years, just didn't know what it meant. To add > > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have > had a > lot of infection in my body to make such a difference in how I > feel. I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully > the > cirhossis will not continue. My alt level is one and 1/2 higher > than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > > > Dear Carol, > > It does seem that you have cirrhosis but if your ALT is high with > +ve > > HCV-RNA you should go for treatment with Combo albeit with lower > dose > > of IFN > > > > Dr Sharat Misra MD,DM,FACG > > > > > > > > Hi gang > > > > I am not amused. Biopsy isn't very good at all. Will post this > as > > it > > reads: > > > > The core needle biopsy of liver shows marked distortion of > normal > > liver architecture. There is severe fatty change present. > There is > > > > periportal fibrosis with well-established cirrhosis present. > The > > portal triad shows mild chronic inflammatory cell infiltrate > > including > > lymphocytes and macrophages present. The bile ductules and > vessels > > are unremarkable. There is no PAS diastase positive granules > > present. > > There is mild parenchymal injury, less than four injured cells > > (acidophilic bodies, ballooning degeneration) seen /10hpf. The > > central venules are unremarkable. The iron stain is negative. > > There > > is no bile stasis present. > > > > Dammmmmmmmm. If you recall, I live in Canada where treatment is > the > > > > old one, not peg. Doc, am I too far gone to even bother with > > treatment? Especially with the old combo, not peg. I'm geno 1b > of > > course. I guess I should at least try treatment. Any > thoughts? I > > think I'm still rather stunned at this report. > > > > Thanks all > > Carol > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doc, I wish I could just up and come to the US. In a perfect world, I would get the meds I really need. Due to financial problems, and being on disability...which the pay leaves a lot to be desired lol....there's no way I can do it. I'll work on my Doc, but I know he can't prescribe what isn't approved yet. I didn't know that Canadian medical is good in the US. Won't ever buy travel insurance anymore :-( Thanks anyway, you're quite a guy!! Carol Doc wrote: > Your liver disease is not too advanced anyway and you need to have a > viral load test and Peg + Riba. You need to work on your docs or go to > US or come here! Did you know that Canada health insurance is valid > anywhere in the World. > I have treated some Canadians and that is how I know. > > Dr Sharat Misra MD,DM,FACG > > > > > > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. The cirrhosis was probably caused by my 20 > > years of party life, heavy, heavy drinking...no drugs, no tylenol. > I > wasn't surprised that I had it, I have the red palms and upper chest > > rash, have had it for years, just didn't know what it meant. To add > > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have > had a > lot of infection in my body to make such a difference in how I > feel. I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully > the > cirhossis will not continue. My alt level is one and 1/2 higher > than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > > > Dear Carol, > > It does seem that you have cirrhosis but if your ALT is high with > +ve > > HCV-RNA you should go for treatment with Combo albeit with lower > dose > > of IFN > > > > Dr Sharat Misra MD,DM,FACG > > > > > > > > Hi gang > > > > I am not amused. Biopsy isn't very good at all. Will post this > as > > it > > reads: > > > > The core needle biopsy of liver shows marked distortion of > normal > > liver architecture. There is severe fatty change present. > There is > > > > periportal fibrosis with well-established cirrhosis present. > The > > portal triad shows mild chronic inflammatory cell infiltrate > > including > > lymphocytes and macrophages present. The bile ductules and > vessels > > are unremarkable. There is no PAS diastase positive granules > > present. > > There is mild parenchymal injury, less than four injured cells > > (acidophilic bodies, ballooning degeneration) seen /10hpf. The > > central venules are unremarkable. The iron stain is negative. > > There > > is no bile stasis present. > > > > Dammmmmmmmm. If you recall, I live in Canada where treatment is > the > > > > old one, not peg. Doc, am I too far gone to even bother with > > treatment? Especially with the old combo, not peg. I'm geno 1b > of > > course. I guess I should at least try treatment. Any > thoughts? I > > think I'm still rather stunned at this report. > > > > Thanks all > > Carol > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi Doc, I might have had the question you missed so here it is again... thanx, Lora Post Tmt Update > > > Hello Everyone, > > It has now been a full week since I came off most of my medications, and boy, do I feel better. I am far from 100%, but I did not expect to feel this good this fast. I am about 70% bounced back. > > A week ago last Saturday, my first day off treatment, I helped my husband move some new furniture into our house. Now, normally, if I had even tried such a thing, I would have been in bed all day Sunday. Instead, I bounced back after a few hours and did not have any bad effects on Sunday. Sunday night, I even cooked dinner for the family, and I have continued to cook every night since then. It is no longer painful and agonizing to go to work. > > On Sunday, I noticed I could shop for groceries and remember what I was supposed to buy. Also on Sunday, my mouth went from dry (dry the whole time on treatment) to normal. It is so nice to have spit back! > > On Tuesday, I noticed an increase in my ability to concentrate and solve problems at work. I am a computer programmer and have really been struggling at work trying to do my job. All of a sudden, I think I got my mind back! (Well, SOME people would debate that I ever had my mind to begin with!!) > > My extreme tiredness is just about gone. I still do tire easily and still can't stay up very late, but at least I am not in bed at 7 pm or sooner. Also, my desire for lots and lots of fluids has slacked off significantly. It sure is nice to only get up once or twice a night to pee. > > My dr. was telling me Friday that if my PCR comes back with a viral load in 6 months, his new recommendation would be to put me back on a 48 week combo regimen. He would, however, DOUBLE the interferon dose (1.5 units to 3.0 units per kg of bodyweight) for the first 12 weeks and then put me back on the normal dose of interferon for the rest of the time. Lets hope that doesn't happen, as those first 12 weeks would be hell. > > I still can't sleep very well (still taking Ambien and Benadryl) and am still taking one of my anti-depressants. In two weeks, I am going to start cutting back on those. > > Last night, I had pain and tenderness in the liver area around the frontside. I think my liver is just trying to get rid of all those nasty chemicals. > > Edie > Combo Survivor > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2002 Report Share Posted March 25, 2002 Lora, Sorry I had missed that earlier. Read on for response: >>>>>>> Doc, Just wondering if you might have missed my question again, haven't seen a reply? Thanx, Lora Hi Doc, I might have had the question you missed so here it is again... thanx, Lora ----- Original Message ----- >>>>>> Hi Doc, I really appreciate you taking the time to post the info you do. I'm wondering since I'm a genotype 2b, on PEG/combo, tested non-detectable @ 4 weeks, should I have the 12 week follow up? Prior to starting meds my viral load was 4055000 H copies/ML. My last liver biopsy (#2) showed little change from the original, mild portal fibrosis without septa or bridging, score 1 out of 4, mild portal inflammation with rare acidophil body, score 1-2 out of 4. I was diagnosed in 1996. Age 39 now. I'm the one having a hard time convincing myself to do 48 weeks and leaning towards 24 instead. Thanx for you time, Lora>>>>>> It is good that youre nondetectable now and thus a 6 months course of combo will suffice for you. This holds true for genotype 2, 3 and 1 with low viral loads. Make sure at the end of 6 months that you remain HCV negative. Dr Sharat Misra MD,DM,FACG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2002 Report Share Posted March 25, 2002 Lora, Sorry I had missed that earlier. Read on for response: >>>>>>> Doc, Just wondering if you might have missed my question again, haven't seen a reply? Thanx, Lora Hi Doc, I might have had the question you missed so here it is again... thanx, Lora ----- Original Message ----- >>>>>> Hi Doc, I really appreciate you taking the time to post the info you do. I'm wondering since I'm a genotype 2b, on PEG/combo, tested non-detectable @ 4 weeks, should I have the 12 week follow up? Prior to starting meds my viral load was 4055000 H copies/ML. My last liver biopsy (#2) showed little change from the original, mild portal fibrosis without septa or bridging, score 1 out of 4, mild portal inflammation with rare acidophil body, score 1-2 out of 4. I was diagnosed in 1996. Age 39 now. I'm the one having a hard time convincing myself to do 48 weeks and leaning towards 24 instead. Thanx for you time, Lora>>>>>> It is good that youre nondetectable now and thus a 6 months course of combo will suffice for you. This holds true for genotype 2, 3 and 1 with low viral loads. Make sure at the end of 6 months that you remain HCV negative. Dr Sharat Misra MD,DM,FACG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 Thanx so much Doc! Take care of you! Grace & peace, Lora > Lora, > Sorry I had missed that earlier. > Read on for response: > > >>>>>>> > > Doc, > Just wondering if you might have missed my question again, haven't seen a reply? > Thanx, Lora > > Hi Doc, > I might have had the question you missed so here it is again... thanx, Lora > ----- Original Message ----- > >>>>>> > Hi Doc, > I really appreciate you taking the time to post the info you do. > I'm wondering since I'm a genotype 2b, on PEG/combo, tested non- detectable @ 4 weeks, should I have the 12 week follow up? Prior to starting meds my viral load was 4055000 H copies/ML. My last liver biopsy (#2) showed little change from the original, mild portal fibrosis without septa or bridging, score 1 out of 4, mild portal inflammation with rare acidophil body, score 1-2 out of 4. I was diagnosed in 1996. Age 39 now. > I'm the one having a hard time convincing myself to do 48 weeks and leaning towards 24 instead. > Thanx for you time, Lora>>>>>> > > It is good that youre nondetectable now and thus a 6 months course of combo will suffice for you. This holds true for genotype 2, 3 and 1 with low viral loads. Make sure at the end of 6 months that you remain HCV negative. > > Dr Sharat Misra MD,DM,FACG > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 Hi Judy, You seem to be having an acute systemic infection , it might make your LFT abnormal as well. It is important that this infection be adequately treated and once its taken care of you should be able to undergo Hep C threatment. Have your LFTs checked, none of the drugs used will harm the liver but if LFTs are abnormal I would cahage the cipro to a cephalosporin. All the best. Dr Sharat Misra MD,DM,FACG 3 weeks ago I had a compression fracture of my left femur. I was in traction for 4 days while the doctors looked for reasons to cause the fracture. There was no trauma or fall. One of the doctors suspected a tumor but the bone and body scans were negative. The ortho doc put a titanium rod and 3 large screws to fix the bone. A catheter was put in before surgery and was removed 2 days before I went home. 3 days after coming home I spiked a temp of 102.5 and went to my doctor. I had no idea what was wrong. B/P was 78/52, pulse 132 and I was jaundiced. I felt like I was dying. I was sent back to the hospital and put in the telemetry unit. After cultures were done I was diagnosed as being septic with Ecoli that originated in a UTI. I am very lucky that it was caught in time. I am concerned that the infection might have caused more damage to my liver. Since the infection I have pitting edema in both feet. I am on 20 mg of lasix and my home nurse called my doctor for an increase in dosage. I am taking potassium, cipro, calcium, hydrocodone and iron tid. My hemoglobin went down to 8 while in the hospital. I am praying that this infection hasn't ruined my chance for treatment for hep c. I am a 1b with cirrhosis,vl 365,000 IU. I wish I had more info to give you. Thank you for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 Hi Judy, You seem to be having an acute systemic infection , it might make your LFT abnormal as well. It is important that this infection be adequately treated and once its taken care of you should be able to undergo Hep C threatment. Have your LFTs checked, none of the drugs used will harm the liver but if LFTs are abnormal I would cahage the cipro to a cephalosporin. All the best. Dr Sharat Misra MD,DM,FACG 3 weeks ago I had a compression fracture of my left femur. I was in traction for 4 days while the doctors looked for reasons to cause the fracture. There was no trauma or fall. One of the doctors suspected a tumor but the bone and body scans were negative. The ortho doc put a titanium rod and 3 large screws to fix the bone. A catheter was put in before surgery and was removed 2 days before I went home. 3 days after coming home I spiked a temp of 102.5 and went to my doctor. I had no idea what was wrong. B/P was 78/52, pulse 132 and I was jaundiced. I felt like I was dying. I was sent back to the hospital and put in the telemetry unit. After cultures were done I was diagnosed as being septic with Ecoli that originated in a UTI. I am very lucky that it was caught in time. I am concerned that the infection might have caused more damage to my liver. Since the infection I have pitting edema in both feet. I am on 20 mg of lasix and my home nurse called my doctor for an increase in dosage. I am taking potassium, cipro, calcium, hydrocodone and iron tid. My hemoglobin went down to 8 while in the hospital. I am praying that this infection hasn't ruined my chance for treatment for hep c. I am a 1b with cirrhosis,vl 365,000 IU. I wish I had more info to give you. Thank you for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 Hi Judy, You seem to be having an acute systemic infection , it might make your LFT abnormal as well. It is important that this infection be adequately treated and once its taken care of you should be able to undergo Hep C threatment. Have your LFTs checked, none of the drugs used will harm the liver but if LFTs are abnormal I would cahage the cipro to a cephalosporin. All the best. Dr Sharat Misra MD,DM,FACG 3 weeks ago I had a compression fracture of my left femur. I was in traction for 4 days while the doctors looked for reasons to cause the fracture. There was no trauma or fall. One of the doctors suspected a tumor but the bone and body scans were negative. The ortho doc put a titanium rod and 3 large screws to fix the bone. A catheter was put in before surgery and was removed 2 days before I went home. 3 days after coming home I spiked a temp of 102.5 and went to my doctor. I had no idea what was wrong. B/P was 78/52, pulse 132 and I was jaundiced. I felt like I was dying. I was sent back to the hospital and put in the telemetry unit. After cultures were done I was diagnosed as being septic with Ecoli that originated in a UTI. I am very lucky that it was caught in time. I am concerned that the infection might have caused more damage to my liver. Since the infection I have pitting edema in both feet. I am on 20 mg of lasix and my home nurse called my doctor for an increase in dosage. I am taking potassium, cipro, calcium, hydrocodone and iron tid. My hemoglobin went down to 8 while in the hospital. I am praying that this infection hasn't ruined my chance for treatment for hep c. I am a 1b with cirrhosis,vl 365,000 IU. I wish I had more info to give you. Thank you for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 Hi Judy, You seem to be having an acute systemic infection , it might make your LFT abnormal as well. It is important that this infection be adequately treated and once its taken care of you should be able to undergo Hep C threatment. Have your LFTs checked, none of the drugs used will harm the liver but if LFTs are abnormal I would cahage the cipro to a cephalosporin. All the best. Dr Sharat Misra MD,DM,FACG 3 weeks ago I had a compression fracture of my left femur. I was in traction for 4 days while the doctors looked for reasons to cause the fracture. There was no trauma or fall. One of the doctors suspected a tumor but the bone and body scans were negative. The ortho doc put a titanium rod and 3 large screws to fix the bone. A catheter was put in before surgery and was removed 2 days before I went home. 3 days after coming home I spiked a temp of 102.5 and went to my doctor. I had no idea what was wrong. B/P was 78/52, pulse 132 and I was jaundiced. I felt like I was dying. I was sent back to the hospital and put in the telemetry unit. After cultures were done I was diagnosed as being septic with Ecoli that originated in a UTI. I am very lucky that it was caught in time. I am concerned that the infection might have caused more damage to my liver. Since the infection I have pitting edema in both feet. I am on 20 mg of lasix and my home nurse called my doctor for an increase in dosage. I am taking potassium, cipro, calcium, hydrocodone and iron tid. My hemoglobin went down to 8 while in the hospital. I am praying that this infection hasn't ruined my chance for treatment for hep c. I am a 1b with cirrhosis,vl 365,000 IU. I wish I had more info to give you. Thank you for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 --- Doc <gidoc@...> wrote: > I agree, individual needs have to be considered and treat each case > on its merit and not merely by the book. Hi Doc, I just HAVE to comment! I can't think of any one thing that is more important than what you have said! I know sometimes it's not always easy for a doctor to do this when they have a lot of patients to see and treat, not to mention insurance companies to deal with, but when you have a doctor who can do this it can make all the difference in the world. I feel real lucky to have found a PCP who really listens to me and doesn't treat me like I'm crazy if I say I feel bad when according to some book or lab I should feel good! And over this past 3 months, dealing with one doctor after another who wants to lump my 93 year old grandmother into the exact same mold as anyone else her age has made me REALLY appreciate it! It is very annoying to try and discuss her needs with a doctor who is seeing her for the first time, and he hasn't even bothered to read her chart or review her health problems and what's been going on with her during this period, and he just starts telling us it's this or that just because of her age and wants to just drug her up. I've never seen a group of doctors in my life so anxious to hand out pain medications, anti-psychotics, sleeping pills, tranquilizers, etc., and yet you have to argue to get a simple blood test done to check her sodium levels when we (who know her better than anyone) KNOW that in the past when these symptoms occurred her sodium level was very low. If I'm sounding frustrated today it's because I am! I just got home from 12 long, physically and emotionally exhausting hours in the nursing home where my grandmother is. No one seems to care. THANK YOU for being you! You remind me that there really are doctors who care. I know you aren't the only one, but sometimes I feel like it! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 --- Doc <gidoc@...> wrote: > I agree, individual needs have to be considered and treat each case > on its merit and not merely by the book. Hi Doc, I just HAVE to comment! I can't think of any one thing that is more important than what you have said! I know sometimes it's not always easy for a doctor to do this when they have a lot of patients to see and treat, not to mention insurance companies to deal with, but when you have a doctor who can do this it can make all the difference in the world. I feel real lucky to have found a PCP who really listens to me and doesn't treat me like I'm crazy if I say I feel bad when according to some book or lab I should feel good! And over this past 3 months, dealing with one doctor after another who wants to lump my 93 year old grandmother into the exact same mold as anyone else her age has made me REALLY appreciate it! It is very annoying to try and discuss her needs with a doctor who is seeing her for the first time, and he hasn't even bothered to read her chart or review her health problems and what's been going on with her during this period, and he just starts telling us it's this or that just because of her age and wants to just drug her up. I've never seen a group of doctors in my life so anxious to hand out pain medications, anti-psychotics, sleeping pills, tranquilizers, etc., and yet you have to argue to get a simple blood test done to check her sodium levels when we (who know her better than anyone) KNOW that in the past when these symptoms occurred her sodium level was very low. If I'm sounding frustrated today it's because I am! I just got home from 12 long, physically and emotionally exhausting hours in the nursing home where my grandmother is. No one seems to care. THANK YOU for being you! You remind me that there really are doctors who care. I know you aren't the only one, but sometimes I feel like it! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 --- Doc <gidoc@...> wrote: > I agree, individual needs have to be considered and treat each case > on its merit and not merely by the book. Hi Doc, I just HAVE to comment! I can't think of any one thing that is more important than what you have said! I know sometimes it's not always easy for a doctor to do this when they have a lot of patients to see and treat, not to mention insurance companies to deal with, but when you have a doctor who can do this it can make all the difference in the world. I feel real lucky to have found a PCP who really listens to me and doesn't treat me like I'm crazy if I say I feel bad when according to some book or lab I should feel good! And over this past 3 months, dealing with one doctor after another who wants to lump my 93 year old grandmother into the exact same mold as anyone else her age has made me REALLY appreciate it! It is very annoying to try and discuss her needs with a doctor who is seeing her for the first time, and he hasn't even bothered to read her chart or review her health problems and what's been going on with her during this period, and he just starts telling us it's this or that just because of her age and wants to just drug her up. I've never seen a group of doctors in my life so anxious to hand out pain medications, anti-psychotics, sleeping pills, tranquilizers, etc., and yet you have to argue to get a simple blood test done to check her sodium levels when we (who know her better than anyone) KNOW that in the past when these symptoms occurred her sodium level was very low. If I'm sounding frustrated today it's because I am! I just got home from 12 long, physically and emotionally exhausting hours in the nursing home where my grandmother is. No one seems to care. THANK YOU for being you! You remind me that there really are doctors who care. I know you aren't the only one, but sometimes I feel like it! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 --- Doc <gidoc@...> wrote: > I agree, individual needs have to be considered and treat each case > on its merit and not merely by the book. Hi Doc, I just HAVE to comment! I can't think of any one thing that is more important than what you have said! I know sometimes it's not always easy for a doctor to do this when they have a lot of patients to see and treat, not to mention insurance companies to deal with, but when you have a doctor who can do this it can make all the difference in the world. I feel real lucky to have found a PCP who really listens to me and doesn't treat me like I'm crazy if I say I feel bad when according to some book or lab I should feel good! And over this past 3 months, dealing with one doctor after another who wants to lump my 93 year old grandmother into the exact same mold as anyone else her age has made me REALLY appreciate it! It is very annoying to try and discuss her needs with a doctor who is seeing her for the first time, and he hasn't even bothered to read her chart or review her health problems and what's been going on with her during this period, and he just starts telling us it's this or that just because of her age and wants to just drug her up. I've never seen a group of doctors in my life so anxious to hand out pain medications, anti-psychotics, sleeping pills, tranquilizers, etc., and yet you have to argue to get a simple blood test done to check her sodium levels when we (who know her better than anyone) KNOW that in the past when these symptoms occurred her sodium level was very low. If I'm sounding frustrated today it's because I am! I just got home from 12 long, physically and emotionally exhausting hours in the nursing home where my grandmother is. No one seems to care. THANK YOU for being you! You remind me that there really are doctors who care. I know you aren't the only one, but sometimes I feel like it! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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