Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Dear Claudine, Thanks for your kind words and generous offer , we treat women with respect and admiration, however young or old they maybe. We are having a Hep B group meeting in PA this year and I wish I could organise something like a Hep C meet sometime! You are right in thinking that a lot of docs overdrug and over or under test. The problem is they never talk to the patient or relatives. That is their pitfall. I sometimes only talk to patients and do not prescribe any medication, at these times they only want some explanations or assurance, not meds or tests. Elderly are special and I always compliment them for reaching the age they have. Maybe because I never saw any grandparent ( they all died before I was born except my materanl grandmother with whom I spent some delightful summer vacations as a young kid). Hope your grandmother gets well soon and maybe you can call us for her centenary birthday celebrations. Dr Sharat Misra MD,DM,FACG --- Doc <gidoc@...> wrote: > I agree, individual needs have to be considered and treat each case > on its merit and not merely by the book. Hi Doc, I just HAVE to comment! I can't think of any one thing that is more important than what you have said! I know sometimes it's not always easy for a doctor to do this when they have a lot of patients to see and treat, not to mention insurance companies to deal with, but when you have a doctor who can do this it can make all the difference in the world. I feel real lucky to have found a PCP who really listens to me and doesn't treat me like I'm crazy if I say I feel bad when according to some book or lab I should feel good! And over this past 3 months, dealing with one doctor after another who wants to lump my 93 year old grandmother into the exact same mold as anyone else her age has made me REALLY appreciate it! It is very annoying to try and discuss her needs with a doctor who is seeing her for the first time, and he hasn't even bothered to read her chart or review her health problems and what's been going on with her during this period, and he just starts telling us it's this or that just because of her age and wants to just drug her up. I've never seen a group of doctors in my life so anxious to hand out pain medications, anti-psychotics, sleeping pills, tranquilizers, etc., and yet you have to argue to get a simple blood test done to check her sodium levels when we (who know her better than anyone) KNOW that in the past when these symptoms occurred her sodium level was very low. If I'm sounding frustrated today it's because I am! I just got home from 12 long, physically and emotionally exhausting hours in the nursing home where my grandmother is. No one seems to care. THANK YOU for being you! You remind me that there really are doctors who care. I know you aren't the only one, but sometimes I feel like it! Claudine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Dear Claudine, Thanks for your kind words and generous offer , we treat women with respect and admiration, however young or old they maybe. We are having a Hep B group meeting in PA this year and I wish I could organise something like a Hep C meet sometime! You are right in thinking that a lot of docs overdrug and over or under test. The problem is they never talk to the patient or relatives. That is their pitfall. I sometimes only talk to patients and do not prescribe any medication, at these times they only want some explanations or assurance, not meds or tests. Elderly are special and I always compliment them for reaching the age they have. Maybe because I never saw any grandparent ( they all died before I was born except my materanl grandmother with whom I spent some delightful summer vacations as a young kid). Hope your grandmother gets well soon and maybe you can call us for her centenary birthday celebrations. Dr Sharat Misra MD,DM,FACG --- Doc <gidoc@...> wrote: > I agree, individual needs have to be considered and treat each case > on its merit and not merely by the book. Hi Doc, I just HAVE to comment! I can't think of any one thing that is more important than what you have said! I know sometimes it's not always easy for a doctor to do this when they have a lot of patients to see and treat, not to mention insurance companies to deal with, but when you have a doctor who can do this it can make all the difference in the world. I feel real lucky to have found a PCP who really listens to me and doesn't treat me like I'm crazy if I say I feel bad when according to some book or lab I should feel good! And over this past 3 months, dealing with one doctor after another who wants to lump my 93 year old grandmother into the exact same mold as anyone else her age has made me REALLY appreciate it! It is very annoying to try and discuss her needs with a doctor who is seeing her for the first time, and he hasn't even bothered to read her chart or review her health problems and what's been going on with her during this period, and he just starts telling us it's this or that just because of her age and wants to just drug her up. I've never seen a group of doctors in my life so anxious to hand out pain medications, anti-psychotics, sleeping pills, tranquilizers, etc., and yet you have to argue to get a simple blood test done to check her sodium levels when we (who know her better than anyone) KNOW that in the past when these symptoms occurred her sodium level was very low. If I'm sounding frustrated today it's because I am! I just got home from 12 long, physically and emotionally exhausting hours in the nursing home where my grandmother is. No one seems to care. THANK YOU for being you! You remind me that there really are doctors who care. I know you aren't the only one, but sometimes I feel like it! Claudine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 --- Doc <gidoc@...> wrote: > Dear Claudine, > Thanks for your kind words and generous offer , You're welcome, but does that mean you don't want her? Oh well, you would have to be an animal lover (she has dogs, cats, a pet scorpion named Veda, and a 5' pet albino python named Bones); and of course you would have to move to Texas. If you change your mind, let me know. > We are having a Hep B group meeting in PA this year and I wish I > could organise something like a Hep C meet sometime! That would be so great if we could do that sometime! This group has become like another family to me. Maybe someday we will manage to do this! I'm glad you think elderly are special. I think so too. There is not enough respect for the elderly in this country. Many are just sent off to nursing homes by their family, and most of these nursing homes are pretty depressing places. It is very sad to watch what so many are going through, not just health-wise, but many are so very lonely! And bored too! My grandmother is 93 and has lived a good long and happy life. She is the most kind hearted person I have ever known and is loved by many. I would love it if she was still around to celebrate her 100th birthday, but only if she is happy and comfortable during those years. Hopefully she will get well, but if not I just hope she does not suffer. She is my last surviving grandparent. I knew them all, and the relationships I had with each of them was unique and wonderful. I love my parents, but my grandparents were special is a different way. I hope that someday I will be as wonderful a grandmother to my grandchildren as she/they were to me. (If I ever get any! Don't forget my offer!) My daughter would KILL me if she knew about this, lol! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 --- Doc <gidoc@...> wrote: > Dear Claudine, > Thanks for your kind words and generous offer , You're welcome, but does that mean you don't want her? Oh well, you would have to be an animal lover (she has dogs, cats, a pet scorpion named Veda, and a 5' pet albino python named Bones); and of course you would have to move to Texas. If you change your mind, let me know. > We are having a Hep B group meeting in PA this year and I wish I > could organise something like a Hep C meet sometime! That would be so great if we could do that sometime! This group has become like another family to me. Maybe someday we will manage to do this! I'm glad you think elderly are special. I think so too. There is not enough respect for the elderly in this country. Many are just sent off to nursing homes by their family, and most of these nursing homes are pretty depressing places. It is very sad to watch what so many are going through, not just health-wise, but many are so very lonely! And bored too! My grandmother is 93 and has lived a good long and happy life. She is the most kind hearted person I have ever known and is loved by many. I would love it if she was still around to celebrate her 100th birthday, but only if she is happy and comfortable during those years. Hopefully she will get well, but if not I just hope she does not suffer. She is my last surviving grandparent. I knew them all, and the relationships I had with each of them was unique and wonderful. I love my parents, but my grandparents were special is a different way. I hope that someday I will be as wonderful a grandmother to my grandchildren as she/they were to me. (If I ever get any! Don't forget my offer!) My daughter would KILL me if she knew about this, lol! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2002 Report Share Posted April 27, 2002 It would be nice to have a Hep C Meet , look for a place and sponsors...Hep C has been in big news . Dr Sharat Misra MD,DM,FACG You're welcome, but does that mean you don't want her? Oh well, you would have to be an animal lover (she has dogs, cats, a pet scorpion named Veda, and a 5' pet albino python named Bones); and of course you would have to move to Texas. If you change your mind, let me know. > We are having a Hep B group meeting in PA this year and I wish I > could organise something like a Hep C meet sometime! That would be so great if we could do that sometime! This group has become like another family to me. Maybe someday we will manage to do this! I'm glad you think elderly are special. I think so too. There is not enough respect for the elderly in this country. Many are just sent off to nursing homes by their family, and most of these nursing homes are pretty depressing places. It is very sad to watch what so many are going through, not just health-wise, but many are so very lonely! And bored too! My grandmother is 93 and has lived a good long and happy life. She is the most kind hearted person I have ever known and is loved by many. I would love it if she was still around to celebrate her 100th birthday, but only if she is happy and comfortable during those years. Hopefully she will get well, but if not I just hope she does not suffer. She is my last surviving grandparent. I knew them all, and the relationships I had with each of them was unique and wonderful. I love my parents, but my grandparents were special is a different way. I hope that someday I will be as wonderful a grandmother to my grandchildren as she/they were to me. (If I ever get any! Don't forget my offer!) My daughter would KILL me if she knew about this, lol! Claudine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2002 Report Share Posted April 27, 2002 It would be nice to have a Hep C Meet , look for a place and sponsors...Hep C has been in big news . Dr Sharat Misra MD,DM,FACG You're welcome, but does that mean you don't want her? Oh well, you would have to be an animal lover (she has dogs, cats, a pet scorpion named Veda, and a 5' pet albino python named Bones); and of course you would have to move to Texas. If you change your mind, let me know. > We are having a Hep B group meeting in PA this year and I wish I > could organise something like a Hep C meet sometime! That would be so great if we could do that sometime! This group has become like another family to me. Maybe someday we will manage to do this! I'm glad you think elderly are special. I think so too. There is not enough respect for the elderly in this country. Many are just sent off to nursing homes by their family, and most of these nursing homes are pretty depressing places. It is very sad to watch what so many are going through, not just health-wise, but many are so very lonely! And bored too! My grandmother is 93 and has lived a good long and happy life. She is the most kind hearted person I have ever known and is loved by many. I would love it if she was still around to celebrate her 100th birthday, but only if she is happy and comfortable during those years. Hopefully she will get well, but if not I just hope she does not suffer. She is my last surviving grandparent. I knew them all, and the relationships I had with each of them was unique and wonderful. I love my parents, but my grandparents were special is a different way. I hope that someday I will be as wonderful a grandmother to my grandchildren as she/they were to me. (If I ever get any! Don't forget my offer!) My daughter would KILL me if she knew about this, lol! Claudine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Hey Gene...just htought I'd share this with you.. Tho I am 2b, I didn't go undectable until 9 months into treatment (standard combo). My doc often referred to me as a 2b who acted like a 1 !!! My poiny: wo knows what will happen in a few weeks more..or even another 3 months or even 6...as far as I know I am still undectable, or at least was at the 9 month post treatment mark. I am 16 months post treatment and over due for a PCR..but still feel confident it will be undect.. If your doc will let you, why not hang in there fro a while longer?? Like I said, just wanted to share my story with you. luv, gee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Hey Gene...just htought I'd share this with you.. Tho I am 2b, I didn't go undectable until 9 months into treatment (standard combo). My doc often referred to me as a 2b who acted like a 1 !!! My poiny: wo knows what will happen in a few weeks more..or even another 3 months or even 6...as far as I know I am still undectable, or at least was at the 9 month post treatment mark. I am 16 months post treatment and over due for a PCR..but still feel confident it will be undect.. If your doc will let you, why not hang in there fro a while longer?? Like I said, just wanted to share my story with you. luv, gee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Hey Gene...just htought I'd share this with you.. Tho I am 2b, I didn't go undectable until 9 months into treatment (standard combo). My doc often referred to me as a 2b who acted like a 1 !!! My poiny: wo knows what will happen in a few weeks more..or even another 3 months or even 6...as far as I know I am still undectable, or at least was at the 9 month post treatment mark. I am 16 months post treatment and over due for a PCR..but still feel confident it will be undect.. If your doc will let you, why not hang in there fro a while longer?? Like I said, just wanted to share my story with you. luv, gee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Hey Gene...just htought I'd share this with you.. Tho I am 2b, I didn't go undectable until 9 months into treatment (standard combo). My doc often referred to me as a 2b who acted like a 1 !!! My poiny: wo knows what will happen in a few weeks more..or even another 3 months or even 6...as far as I know I am still undectable, or at least was at the 9 month post treatment mark. I am 16 months post treatment and over due for a PCR..but still feel confident it will be undect.. If your doc will let you, why not hang in there fro a while longer?? Like I said, just wanted to share my story with you. luv, gee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Gene sorry to hear that. Usually with genotype 1's, if you don't go undetected by the 6th mo, the doc takes you off treatment. Now there are people out there who chose to continue treatment anyway, and eventually did to undetected. But you have to weigh your current health concerns with what the treatment might do to you as well. Good luck Alley " You are only given a little spark of madness.You mustn't lose it. " Robin SFF_Texas Texas_Writers WritingAndPublishing critique_group SFF_Writers/ happyheppers ICQ 12631861 Alleypat AIM DallasAlleyPat MSN Alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Alley and Gee.....thanks for your responses. I hope to hear from Doc soon and see what he says. The blood was drawn two weeks ago for the PCR, so that was only 19 weeks into treatment. Going from 850,000 copies to 133,000 sounded positive to me. I asked my doctor if I should increase from .4 peg to .5, and he said, no, because it's working. Then he left the room to go talk to the main HCV doctor and came back and said I wasn't responding, that they were going to stop treatment and wait to see what becomes available in the next few years. I just about begged him to leave me on treatment, especially since the weekly Procrit injections have brought my hemoglobin up from 9.1 to 12.5 and the Neupogen has increased my absolute neutrophil count, but he said it was certain I wouldn't respond and so there was no sense in continuing treatment. Bummer.... I mentioned I had been hoping the interferon would at least stave off HCC and maybe even reverse some fibrosis, even if I didn't clear the virus, but he didn't think that would be the case. It was a long ride home from the Omaha VA back to Des Moines. I have enough meds for another four weeks, and I feel like continuing until it's gone. Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Alley and Gee.....thanks for your responses. I hope to hear from Doc soon and see what he says. The blood was drawn two weeks ago for the PCR, so that was only 19 weeks into treatment. Going from 850,000 copies to 133,000 sounded positive to me. I asked my doctor if I should increase from .4 peg to .5, and he said, no, because it's working. Then he left the room to go talk to the main HCV doctor and came back and said I wasn't responding, that they were going to stop treatment and wait to see what becomes available in the next few years. I just about begged him to leave me on treatment, especially since the weekly Procrit injections have brought my hemoglobin up from 9.1 to 12.5 and the Neupogen has increased my absolute neutrophil count, but he said it was certain I wouldn't respond and so there was no sense in continuing treatment. Bummer.... I mentioned I had been hoping the interferon would at least stave off HCC and maybe even reverse some fibrosis, even if I didn't clear the virus, but he didn't think that would be the case. It was a long ride home from the Omaha VA back to Des Moines. I have enough meds for another four weeks, and I feel like continuing until it's gone. Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Alley and Gee.....thanks for your responses. I hope to hear from Doc soon and see what he says. The blood was drawn two weeks ago for the PCR, so that was only 19 weeks into treatment. Going from 850,000 copies to 133,000 sounded positive to me. I asked my doctor if I should increase from .4 peg to .5, and he said, no, because it's working. Then he left the room to go talk to the main HCV doctor and came back and said I wasn't responding, that they were going to stop treatment and wait to see what becomes available in the next few years. I just about begged him to leave me on treatment, especially since the weekly Procrit injections have brought my hemoglobin up from 9.1 to 12.5 and the Neupogen has increased my absolute neutrophil count, but he said it was certain I wouldn't respond and so there was no sense in continuing treatment. Bummer.... I mentioned I had been hoping the interferon would at least stave off HCC and maybe even reverse some fibrosis, even if I didn't clear the virus, but he didn't think that would be the case. It was a long ride home from the Omaha VA back to Des Moines. I have enough meds for another four weeks, and I feel like continuing until it's gone. Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Alley and Gee.....thanks for your responses. I hope to hear from Doc soon and see what he says. The blood was drawn two weeks ago for the PCR, so that was only 19 weeks into treatment. Going from 850,000 copies to 133,000 sounded positive to me. I asked my doctor if I should increase from .4 peg to .5, and he said, no, because it's working. Then he left the room to go talk to the main HCV doctor and came back and said I wasn't responding, that they were going to stop treatment and wait to see what becomes available in the next few years. I just about begged him to leave me on treatment, especially since the weekly Procrit injections have brought my hemoglobin up from 9.1 to 12.5 and the Neupogen has increased my absolute neutrophil count, but he said it was certain I wouldn't respond and so there was no sense in continuing treatment. Bummer.... I mentioned I had been hoping the interferon would at least stave off HCC and maybe even reverse some fibrosis, even if I didn't clear the virus, but he didn't think that would be the case. It was a long ride home from the Omaha VA back to Des Moines. I have enough meds for another four weeks, and I feel like continuing until it's gone. Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Gene, Recent work has shown that a 4 wk HCV-RNA load reduction following therapy is highly predictive of response to treatment. A minimin of 2 log reduction at 1 month follows a good chance of ETR( HCV-RNA undetectable). Do you have any previous readings of HCV-RNA after beginning treatment? Also what is your current ALT? Your viral load is definitely down and that alone has been associated with histological improvement in the long run. I would continue to monitor HCV-RNA load and continue treatment for 48 wks, barring any side effects. There is no better treatment and none forthcoming either so there is a slim chance of a ETR at the end of one year. However, if there is no change in viral load after another 3 months or it begins to rise , then I would discontinue treatment. All the best and hope this helps. Dr Sharat Misra MD,DM,FACG ----- Original Message ----- From: GWhel@... Hi Doc, I've completed 21 weeks of combo, 16 of neupogen, and 13 of procrit. Had 850,000 copies before treatment. PCR now shows 133,000 copies. Doctor said today I'm not responding and that I should withdraw from treatment and wait a few years for new treatment. Does this seem correct? I'm 1a and, though I had my fingers crossed, I was prepared to be a nonresponder since I didn't respond twice to mono therapy before, but I was hoping to stave off HCC and possible get some reversal of fibrosis by staying on treatment for full term. I'm really bummed having to quit treatment. Thanks for your response. Your friend, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Gene, Recent work has shown that a 4 wk HCV-RNA load reduction following therapy is highly predictive of response to treatment. A minimin of 2 log reduction at 1 month follows a good chance of ETR( HCV-RNA undetectable). Do you have any previous readings of HCV-RNA after beginning treatment? Also what is your current ALT? Your viral load is definitely down and that alone has been associated with histological improvement in the long run. I would continue to monitor HCV-RNA load and continue treatment for 48 wks, barring any side effects. There is no better treatment and none forthcoming either so there is a slim chance of a ETR at the end of one year. However, if there is no change in viral load after another 3 months or it begins to rise , then I would discontinue treatment. All the best and hope this helps. Dr Sharat Misra MD,DM,FACG ----- Original Message ----- From: GWhel@... Hi Doc, I've completed 21 weeks of combo, 16 of neupogen, and 13 of procrit. Had 850,000 copies before treatment. PCR now shows 133,000 copies. Doctor said today I'm not responding and that I should withdraw from treatment and wait a few years for new treatment. Does this seem correct? I'm 1a and, though I had my fingers crossed, I was prepared to be a nonresponder since I didn't respond twice to mono therapy before, but I was hoping to stave off HCC and possible get some reversal of fibrosis by staying on treatment for full term. I'm really bummed having to quit treatment. Thanks for your response. Your friend, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Gene, Recent work has shown that a 4 wk HCV-RNA load reduction following therapy is highly predictive of response to treatment. A minimin of 2 log reduction at 1 month follows a good chance of ETR( HCV-RNA undetectable). Do you have any previous readings of HCV-RNA after beginning treatment? Also what is your current ALT? Your viral load is definitely down and that alone has been associated with histological improvement in the long run. I would continue to monitor HCV-RNA load and continue treatment for 48 wks, barring any side effects. There is no better treatment and none forthcoming either so there is a slim chance of a ETR at the end of one year. However, if there is no change in viral load after another 3 months or it begins to rise , then I would discontinue treatment. All the best and hope this helps. Dr Sharat Misra MD,DM,FACG ----- Original Message ----- From: GWhel@... Hi Doc, I've completed 21 weeks of combo, 16 of neupogen, and 13 of procrit. Had 850,000 copies before treatment. PCR now shows 133,000 copies. Doctor said today I'm not responding and that I should withdraw from treatment and wait a few years for new treatment. Does this seem correct? I'm 1a and, though I had my fingers crossed, I was prepared to be a nonresponder since I didn't respond twice to mono therapy before, but I was hoping to stave off HCC and possible get some reversal of fibrosis by staying on treatment for full term. I'm really bummed having to quit treatment. Thanks for your response. Your friend, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Gene, Recent work has shown that a 4 wk HCV-RNA load reduction following therapy is highly predictive of response to treatment. A minimin of 2 log reduction at 1 month follows a good chance of ETR( HCV-RNA undetectable). Do you have any previous readings of HCV-RNA after beginning treatment? Also what is your current ALT? Your viral load is definitely down and that alone has been associated with histological improvement in the long run. I would continue to monitor HCV-RNA load and continue treatment for 48 wks, barring any side effects. There is no better treatment and none forthcoming either so there is a slim chance of a ETR at the end of one year. However, if there is no change in viral load after another 3 months or it begins to rise , then I would discontinue treatment. All the best and hope this helps. Dr Sharat Misra MD,DM,FACG ----- Original Message ----- From: GWhel@... Hi Doc, I've completed 21 weeks of combo, 16 of neupogen, and 13 of procrit. Had 850,000 copies before treatment. PCR now shows 133,000 copies. Doctor said today I'm not responding and that I should withdraw from treatment and wait a few years for new treatment. Does this seem correct? I'm 1a and, though I had my fingers crossed, I was prepared to be a nonresponder since I didn't respond twice to mono therapy before, but I was hoping to stave off HCC and possible get some reversal of fibrosis by staying on treatment for full term. I'm really bummed having to quit treatment. Thanks for your response. Your friend, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Doc, I had told you I'd completed 21 weeks of combo when my doctor took me off 12/09. Is HCV-RNA the result of PCR? I had 850,000 copies a year ago. Wasn't done again till two weeks ago...133,000 at that time. I thought that indicated I was responding. You asked about my ALT: 01/26/98 160 02/27/98 118 03/02/98 114 04/02/98 113 05/29/98 126 06/22/98 152 09/15/98 120 04/05/99 129 05/17/99 152 10/14/99 150 11/29/99 116 04/10/00 127 05/30/00 117 11/13/00 134 12/05/00 139 03/26/01 135 04/01/02 153 04/09/02 114 12/09/02 57 AST is 43, which is half of the lowest value in four years. It's been around 100 for the past four years. I'm thinking of writing the doctor (I'd call but probably wouldn't reach him. He comes to the Omaha VA from the University of Nebraska Medical Center and I'm in Des Moines, IA) to ask if I can be put back on treatment. I never did actually get to talk to him. The doctor assigned to me left the exam room with the lab results and had a conference with the head doctor, then came back to me with instructions to cease treatment because I should have been lower than 133,000 at 19 weeks. I don't want to put you on the spot, but I have 21 weeks invested. Do you have any suggestions concerning how I can plead my case? I don't want to make you feel uncomfortable, but I trust your opinion and don't want to wait another few years. Right now my next appointment is on 06/08/03 for CBC. The doctor then plans to talk to me about a biopsy. The last one was done 01/96 and showed mild fibrosis. I've been taking Procrit and Neupogen. Hemoglobin is 12.5. ANC is around 1500. Thanks, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Doc, I had told you I'd completed 21 weeks of combo when my doctor took me off 12/09. Is HCV-RNA the result of PCR? I had 850,000 copies a year ago. Wasn't done again till two weeks ago...133,000 at that time. I thought that indicated I was responding. You asked about my ALT: 01/26/98 160 02/27/98 118 03/02/98 114 04/02/98 113 05/29/98 126 06/22/98 152 09/15/98 120 04/05/99 129 05/17/99 152 10/14/99 150 11/29/99 116 04/10/00 127 05/30/00 117 11/13/00 134 12/05/00 139 03/26/01 135 04/01/02 153 04/09/02 114 12/09/02 57 AST is 43, which is half of the lowest value in four years. It's been around 100 for the past four years. I'm thinking of writing the doctor (I'd call but probably wouldn't reach him. He comes to the Omaha VA from the University of Nebraska Medical Center and I'm in Des Moines, IA) to ask if I can be put back on treatment. I never did actually get to talk to him. The doctor assigned to me left the exam room with the lab results and had a conference with the head doctor, then came back to me with instructions to cease treatment because I should have been lower than 133,000 at 19 weeks. I don't want to put you on the spot, but I have 21 weeks invested. Do you have any suggestions concerning how I can plead my case? I don't want to make you feel uncomfortable, but I trust your opinion and don't want to wait another few years. Right now my next appointment is on 06/08/03 for CBC. The doctor then plans to talk to me about a biopsy. The last one was done 01/96 and showed mild fibrosis. I've been taking Procrit and Neupogen. Hemoglobin is 12.5. ANC is around 1500. Thanks, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Doc, I had told you I'd completed 21 weeks of combo when my doctor took me off 12/09. Is HCV-RNA the result of PCR? I had 850,000 copies a year ago. Wasn't done again till two weeks ago...133,000 at that time. I thought that indicated I was responding. You asked about my ALT: 01/26/98 160 02/27/98 118 03/02/98 114 04/02/98 113 05/29/98 126 06/22/98 152 09/15/98 120 04/05/99 129 05/17/99 152 10/14/99 150 11/29/99 116 04/10/00 127 05/30/00 117 11/13/00 134 12/05/00 139 03/26/01 135 04/01/02 153 04/09/02 114 12/09/02 57 AST is 43, which is half of the lowest value in four years. It's been around 100 for the past four years. I'm thinking of writing the doctor (I'd call but probably wouldn't reach him. He comes to the Omaha VA from the University of Nebraska Medical Center and I'm in Des Moines, IA) to ask if I can be put back on treatment. I never did actually get to talk to him. The doctor assigned to me left the exam room with the lab results and had a conference with the head doctor, then came back to me with instructions to cease treatment because I should have been lower than 133,000 at 19 weeks. I don't want to put you on the spot, but I have 21 weeks invested. Do you have any suggestions concerning how I can plead my case? I don't want to make you feel uncomfortable, but I trust your opinion and don't want to wait another few years. Right now my next appointment is on 06/08/03 for CBC. The doctor then plans to talk to me about a biopsy. The last one was done 01/96 and showed mild fibrosis. I've been taking Procrit and Neupogen. Hemoglobin is 12.5. ANC is around 1500. Thanks, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Doc, I had told you I'd completed 21 weeks of combo when my doctor took me off 12/09. Is HCV-RNA the result of PCR? I had 850,000 copies a year ago. Wasn't done again till two weeks ago...133,000 at that time. I thought that indicated I was responding. You asked about my ALT: 01/26/98 160 02/27/98 118 03/02/98 114 04/02/98 113 05/29/98 126 06/22/98 152 09/15/98 120 04/05/99 129 05/17/99 152 10/14/99 150 11/29/99 116 04/10/00 127 05/30/00 117 11/13/00 134 12/05/00 139 03/26/01 135 04/01/02 153 04/09/02 114 12/09/02 57 AST is 43, which is half of the lowest value in four years. It's been around 100 for the past four years. I'm thinking of writing the doctor (I'd call but probably wouldn't reach him. He comes to the Omaha VA from the University of Nebraska Medical Center and I'm in Des Moines, IA) to ask if I can be put back on treatment. I never did actually get to talk to him. The doctor assigned to me left the exam room with the lab results and had a conference with the head doctor, then came back to me with instructions to cease treatment because I should have been lower than 133,000 at 19 weeks. I don't want to put you on the spot, but I have 21 weeks invested. Do you have any suggestions concerning how I can plead my case? I don't want to make you feel uncomfortable, but I trust your opinion and don't want to wait another few years. Right now my next appointment is on 06/08/03 for CBC. The doctor then plans to talk to me about a biopsy. The last one was done 01/96 and showed mild fibrosis. I've been taking Procrit and Neupogen. Hemoglobin is 12.5. ANC is around 1500. Thanks, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 HI Gene, I couldn't believe they are going to take you off the medicine. You have been such a great trooper. I hope you can find another Dr. to take a look at your medical records. All my thoughts and prayers have been with you. You have always been so kind to me. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 HI Gene, I couldn't believe they are going to take you off the medicine. You have been such a great trooper. I hope you can find another Dr. to take a look at your medical records. All my thoughts and prayers have been with you. You have always been so kind to me. Donna Quote Link to comment Share on other sites More sharing options...
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