Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 --- > > My dance teacher says that look will always be with me after I learn > dance, that it will give me confidence. I already feel it after > only one class. > > marta > who is feeling the burn! lol ~~~~~~~~~~~~~~ You ALL know that Marta is going to be our entertainment during the pool party don't ya????LOL Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Hi - I'll be interested to know how Doxepin works for you. As with all meds, some work great for some people but not others. I am feeling better these past 2 weeks with the med change my doc made (low dose Seroquel, plus some zolpidem). He said if I got my sleep disorder under control, a lot of other problems would resolve. I have heard pros and cons about Doxepin (Sinequan). A pro I read recently was that it even helped someone with allergies, as well as with their sleep and depression. Hope you get good results. When changing meds, I always use the very least possible - I have worn out pill splitters...ha. But I don't like to take too much at first without knowing how it will affect me. - All the best, Dom -- In dominie , Brecker <davidbrecker@...> wrote: > > saw the doc today the psych and he was toally upset with the way things were being handled with my pain management and the pills i am on and he changed a few things Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Wow, you're sounding just like me. I have an appt with a psych next week and the same thing is happening. No sleep, depressed, wrong meds with nothing working, in pain 24/7.I'm actually looking forward to going. On so many different meds for so many things related to the FMS & CFS but nothing works. Thanks for that information, it has lifted me a great deal. Couldn't get out of bed all weekend and again today. Thanks again and good luck From: Brecker <davidbrecker@...>Subject: DOCdominie , Fibromyalgia-Crochet Date: Monday, October 20, 2008, 8:28 PM saw the doc today the psych and he was toally upset with the way things were being handled with my pain management and the pills i am on and he changed a few things took me off effexor xr and change to doxepin ( sinequin) and no longer wants me to use zanaflex and i was diagnosed with manic depressive disorder. With the lack of sleep and being depressed he was so upset and this change has to be done quickly he is just shocked and is going to take care of a few of my docs. he says that the doxepin will help with pain sleep and depression. well we will see how it goes. is nyone one doxepin and what does it do for you shelly__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Hi Dom, any advice for me going to the psych next week as I just stated to ? This is still new to me having been diagnosed within this year, but having had it since the 80's. Still learning lots, but feel like I'm going backwards. One would think that being on so much medication for various things that something would work. As I said looking forward to seeing the psych. Thanks >> saw the doc today the psych and he was toally upset with the waythings were being handled with my pain management and the pills i amon and he changed a few things__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 > Dom and anyone else on Sinequan. It comes in a liquid form so you can start on a very low dose and adjust it according to need and response. Your doc can write a script specifying liquid form. It comes generic and cheap. S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 Good suggestion. With all the side effects from meds, adjusting the dosage to fit your needs is verrrry important. Has anyone else tried Sinequan (Doxepin) for sleep? I am doing much better these past few weeks with a low dose (12.5 mg) of Seroquel in addition to 10 mg Ambien (zolpidem) - 5 mg at bedtime and 5 mg in the middle of the night. I have been sleeping more restoratively and my nervous system doesn't feel as stressed out, even with preparing 25 students for a recital Saturday, which usually gets my adrenaline pumping, as well as my new role as church organist with a LOT of challenging music to learn. I am so thankful for this calm feeling! It seems to take awhile to find what helps us, and sometimes a change is needed, as well. A (long) list of things I've tried for sleep is at http://www.fms-help.com/sleep.htm Strange how some things work for others, but not for me and vice versa. It sure helps to have a sympathetic doc who is willing to change your meds when things aren't working. I love my doc! (internal medicine) - very smart and caring and willing to work with me. Dom > > > > Dom and anyone else on Sinequan. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 My Dr's start me out on low dose everything then work the way up. To find out what dosage works for me just right. I also bring all my over counter vitamins, supplements and even the antacids and sleep aids, aspirin etc too. That way they know everything you take. I have mine down in Microsoft word . All I do then is print it out and bring ti with me. I also have another page in Microsoft word of things they have tried that didn't work on me. example elavil gave me bad weight gain & Heart palpitations. Tramdol gave me dizziness heart a racing and kept me awake most of the night. are just to name a few. But that way I have it handy to print up ahead of time too. If I remember Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Heidi: What a GREAT idea! Especially the records of meds that you took that you had problems with! With our memories the way they can be, that is an excellent suggestion! S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Hi! That is a fabulous idea!! It would be soooo much easier for me,and I'm sure a lot of you,to keep track of all our meds on the computer,especially the ones we already took & had problems with! A doctor might ask me,"Well,what about this med.?" I'll say,"Well,I've taken that before but I can't remember now why I had to quit taking it?" And,of course,I get the hairy eye ball of disbelief! But then I think later on,"Wouldn't it be in my records or did he even bother to open my records?" haha! So,I think it is VERY important "WE" stay on top of what we take & have taken & what it did to us,God only knows if the doctors will take time to investigate all this?! I would say,"Doubtful!" Thanks for the Great idea!!! Take care all,Pam.S Check out my store for MANY Fibromyalgia Awareness Items at= http://www.zazzle.com/pammys* Lets Spread Awareness Together! Thanks! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 hi for all of those keeping track of meds on your computer i do that but i also makee sure that i can cramp it into small part of the page to print out and laminate it and carry it with me in case i ever end up in the hospital they would find that in my purse. one time i ended uop into the hospital for a serious migraine and they needed to know the meds that i was on and i said i had to mad a laminated card and it was in my purse and the doctor was so pleased when you are in emergency it really helps shelly Re: Re: DOC Hi! That is a fabulous idea!! It would be soooo much easier for me,and I'm sure a lot of you,to keep track of all our meds on the computer,especially the ones we already took & had problems with! A doctor might ask me,"Well,what about this med.?" I'll say,"Well,I' ve taken that before but I can't remember now why I had to quit taking it?" And,of course,I get the hairy eye ball of disbelief! But then I think later on,"Wouldn't it be in my records or did he even bother to open my records?" haha! So,I think it is VERY important "WE" stay on top of what we take & have taken & what it did to us,God only knows if the doctors will take time to investigate all this?! I would say,"Doubtful! " Thanks for the Great idea!!! Take care all,Pam.S Check out my store for MANY Fibromyalgia Awareness Items at= http://www.zazzle. com/pammys* Lets Spread Awareness Together! Thanks! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 Excellent idea! I think I will do that now. - Dom > > hi for all of those keeping track of meds on your computer i do that but i also makee sure that i can cramp it into small part of the page to print out and laminate it and carry it with me in case i ever end up in the hospital they would find that in my purse. one time i ended uop into the hospital for a serious migraine and they needed to know the meds that i was on and i said i had to mad a laminated card and it was in my purse and the doctor was so pleased when you are in emergency it really helps > > shelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 I also list my syndromes and conditions on the reverse side of the med list shelly Re: DOC Excellent idea! I think I will do that now. - Dom>> hi for all of those keeping track of meds on your computer i do thatbut i also makee sure that i can cramp it into small part of the pageto print out and laminate it and carry it with me in case i ever endup in the hospital they would find that in my purse. one time i endeduop into the hospital for a serious migraine and they needed to knowthe meds that i was on and i said i had to mad a laminated card and itwas in my purse and the doctor was so pleased when you are inemergency it really helps> > shelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 also be sure to include your name addy phone nunber doc names etc shelly Re: DOC Excellent idea! I think I will do that now. - Dom>> hi for all of those keeping track of meds on your computer i do thatbut i also makee sure that i can cramp it into small part of the pageto print out and laminate it and carry it with me in case i ever endup in the hospital they would find that in my purse. one time i endeduop into the hospital for a serious migraine and they needed to knowthe meds that i was on and i said i had to mad a laminated card and itwas in my purse and the doctor was so pleased when you are inemergency it really helps> > shelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 I've been doing this also for a very long time and have found the doctor's really do appreciate this, this way they're not giving you meds that you've already tried and they know exactly what you're taking so as not to give you anything that will contradict what you're taking. There is no way I could have remembered over 30 meds that I've tried and can't tolerate or over the 10 meds that I'm on now. Thanks for sharing your stories. From: Brecker <davidbrecker@...>Subject: Re: Re: DOCdominie Date: Thursday, October 23, 2008, 10:36 AM hi for all of those keeping track of meds on your computer i do that but i also makee sure that i can cramp it into small part of the page to print out and laminate it and carry it with me in case i ever end up in the hospital they would find that in my purse. one time i ended uop into the hospital for a serious migraine and they needed to know the meds that i was on and i said i had to mad a laminated card and it was in my purse and the doctor was so pleased when you are in emergency it really helps shelly Re: Re: DOC Hi! That is a fabulous idea!! It would be soooo much easier for me,and I'm sure a lot of you,to keep track of all our meds on the computer,especially the ones we already took & had problems with! A doctor might ask me,"Well,what about this med.?" I'll say,"Well,I' ve taken that before but I can't remember now why I had to quit taking it?" And,of course,I get the hairy eye ball of disbelief! But then I think later on,"Wouldn't it be in my records or did he even bother to open my records?" haha! So,I think it is VERY important "WE" stay on top of what we take & have taken & what it did to us,God only knows if the doctors will take time to investigate all this?! I would say,"Doubtful! " Thanks for the Great idea!!! Take care all,Pam.S Check out my store for MANY Fibromyalgia Awareness Items at= http://www.zazzle. com/pammys* Lets Spread Awareness Together! Thanks! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 , I do the same thing. I also print out small cards for all my surgery information and all my current doctor information. I laminate all of them and keep them with me in my purse. Pam Re: Re: DOC Hi! That is a fabulous idea!! It would be soooo much easier for me,and I'm sure a lot of you,to keep track of all our meds on the computer,especially the ones we already took & had problems with! A doctor might ask me,"Well,what about this med.?" I'll say,"Well,I' ve taken that before but I can't remember now why I had to quit taking it?" And,of course,I get the hairy eye ball of disbelief! But then I think later on,"Wouldn't it be in my records or did he even bother to open my records?" haha! So,I think it is VERY important "WE" stay on top of what we take & have taken & what it did to us,God only knows if the doctors will take time to investigate all this?! I would say,"Doubtful! " Thanks for the Great idea!!! Take care all,Pam.S Check out my store for MANY Fibromyalgia Awareness Items at= http://www.zazzle. com/pammys* Lets Spread Awareness Together! Thanks! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 HI I think that it makes it so much easier for all of us then our brain does not have work so much shelly Re: Re: DOC Hi! That is a fabulous idea!! It would be soooo much easier for me,and I'm sure a lot of you,to keep track of all our meds on the computer,especially the ones we already took & had problems with! A doctor might ask me,"Well,what about this med.?" I'll say,"Well,I' ve taken that before but I can't remember now why I had to quit taking it?" And,of course,I get the hairy eye ball of disbelief! But then I think later on,"Wouldn't it be in my records or did he even bother to open my records?" haha! So,I think it is VERY important "WE" stay on top of what we take & have taken & what it did to us,God only knows if the doctors will take time to investigate all this?! I would say,"Doubtful! " Thanks for the Great idea!!! Take care all,Pam.S Check out my store for MANY Fibromyalgia Awareness Items at= http://www.zazzle. com/pammys* Lets Spread Awareness Together! Thanks! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 I have my complete medical history, illnesses, surgeries, family history. Meds and the reason I take them. My allergies on my computer. My husbands and both kids contact information. I update it as I have changes made. I carry a copy along with my living will and health care surrogate in an envelope in my purse. I did this when it became hard to come up with the money to renew my medic alert membership. Sandie -- Re: Re: DOC hi for all of those keeping track of meds on your computer i do that but i also makee sure that i can cramp it into small part of the page to print out and laminate it and carry it with me in case i ever end up in the hospital they would find that in my purse. one time i ended uop into the hospital for a serious migraine and they needed to know the meds that i was on and i said i had to mad a laminated card and it was in my purse and the doctor was so pleased when you are in emergency it really helps shelly Re: Re: DOC Hi! That is a fabulous idea!! It would be soooo much easier for me,and I'm sure a lot of you,to keep track of all our meds on the computer,especially the ones we already took & had problems with! A doctor might ask me,"Well,what about this med.?" I'll say,"Well,I' ve taken that before but I can't remember now why I had to quit taking it?" And,of course,I get the hairy eye ball of disbelief! But then I think later on,"Wouldn't it be in my records or did he even bother to open my records?" haha! So,I think it is VERY important "WE" stay on top of what we take & have taken & what it did to us,God only knows if the doctors will take time to investigate all this?! I would say,"Doubtful! " Thanks for the Great idea!!! Take care all,Pam.S Check out my store for MANY Fibromyalgia Awareness Items at= http://www.zazzle. com/pammys* Lets Spread Awareness Together! Thanks! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Besides my having fibro,osteoporosis,and osteoarthritis, herinated discs in neck,and bungling disc in my back. The doc took 4 tubes of blood to check and see if I have lupus and Rhemy arthritis. the fibro has been with me with a vengence. the weather here is getting cooler. I havent heard anything from allsup about my ssdi yet but we are only about 11 weeks out. so will let everyone know what is going on when I find out. hugs Wanda From: Dave Cruikshank <d.cruikshank@...> Subject: Follow up on NYC Trip neck pain Date: Saturday, October 25, 2008, 10:57 PM I was supposed to go with my family to a family function in NJ on Friday and Saturday. I was excused from going by my wife who new I was exhausted and in pain. I slept off and on all day Friday. Despite every effort I never really woke up. I would try to watch something on TV and fall asleep during the commercials and wake up hours later. Because I slept so much during the day I didn't sleep well during the night, but again on Saturday I slept off and on most of the day. The all day torrential rain didn't help with either pain or energy. So my body did catch up on it's sleep. One other thing I don't know if it's depression or just a phase but I not hungry. I eat breakfast and then one other meal later in the day. I just have no appetite. I do drink plenty of fluids, eat an apple during the day for my bowels, and snack on a few pretzels, thats it. Oh well time to go. Thanks, Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Besides my having fibro,osteoporosis,and osteoarthritis, herinated discs in neck,and bungling disc in my back. The doc took 4 tubes of blood to check and see if I have lupus and Rhemy arthritis. the fibro has been with me with a vengence. the weather here is getting cooler. I havent heard anything from allsup about my ssdi yet but we are only about 11 weeks out. so will let everyone know what is going on when I find out. hugs Wanda From: Dave Cruikshank <d.cruikshank@...> Subject: Follow up on NYC Trip neck pain Date: Saturday, October 25, 2008, 10:57 PM I was supposed to go with my family to a family function in NJ on Friday and Saturday. I was excused from going by my wife who new I was exhausted and in pain. I slept off and on all day Friday. Despite every effort I never really woke up. I would try to watch something on TV and fall asleep during the commercials and wake up hours later. Because I slept so much during the day I didn't sleep well during the night, but again on Saturday I slept off and on most of the day. The all day torrential rain didn't help with either pain or energy. So my body did catch up on it's sleep. One other thing I don't know if it's depression or just a phase but I not hungry. I eat breakfast and then one other meal later in the day. I just have no appetite. I do drink plenty of fluids, eat an apple during the day for my bowels, and snack on a few pretzels, thats it. Oh well time to go. Thanks, Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Besides my having fibro,osteoporosis,and osteoarthritis, herinated discs in neck,and bungling disc in my back. The doc took 4 tubes of blood to check and see if I have lupus and Rhemy arthritis. the fibro has been with me with a vengence. the weather here is getting cooler. I havent heard anything from allsup about my ssdi yet but we are only about 11 weeks out. so will let everyone know what is going on when I find out. hugs Wanda From: Dave Cruikshank <d.cruikshank@...> Subject: Follow up on NYC Trip neck pain Date: Saturday, October 25, 2008, 10:57 PM I was supposed to go with my family to a family function in NJ on Friday and Saturday. I was excused from going by my wife who new I was exhausted and in pain. I slept off and on all day Friday. Despite every effort I never really woke up. I would try to watch something on TV and fall asleep during the commercials and wake up hours later. Because I slept so much during the day I didn't sleep well during the night, but again on Saturday I slept off and on most of the day. The all day torrential rain didn't help with either pain or energy. So my body did catch up on it's sleep. One other thing I don't know if it's depression or just a phase but I not hungry. I eat breakfast and then one other meal later in the day. I just have no appetite. I do drink plenty of fluids, eat an apple during the day for my bowels, and snack on a few pretzels, thats it. Oh well time to go. Thanks, Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Besides my having fibro,osteoporosis,and osteoarthritis, herinated discs in neck,and bungling disc in my back. The doc took 4 tubes of blood to check and see if I have lupus and Rhemy arthritis. the fibro has been with me with a vengence. the weather here is getting cooler. I havent heard anything from allsup about my ssdi yet but we are only about 11 weeks out. so will let everyone know what is going on when I find out. hugs Wanda From: Dave Cruikshank <d.cruikshank@...> Subject: Follow up on NYC Trip neck pain Date: Saturday, October 25, 2008, 10:57 PM I was supposed to go with my family to a family function in NJ on Friday and Saturday. I was excused from going by my wife who new I was exhausted and in pain. I slept off and on all day Friday. Despite every effort I never really woke up. I would try to watch something on TV and fall asleep during the commercials and wake up hours later. Because I slept so much during the day I didn't sleep well during the night, but again on Saturday I slept off and on most of the day. The all day torrential rain didn't help with either pain or energy. So my body did catch up on it's sleep. One other thing I don't know if it's depression or just a phase but I not hungry. I eat breakfast and then one other meal later in the day. I just have no appetite. I do drink plenty of fluids, eat an apple during the day for my bowels, and snack on a few pretzels, thats it. Oh well time to go. Thanks, Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 Endo Dr suggests a Pituitary MRI..even though my LH and prolactin IGF1 are normal.Is this going overboard?I hear a Pituitary tumor or problems come with a host of symptoms which I don't have. In other words how can one confirm if its the testes or the Pituitary that's the problem? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 Thank you for your help.. Wow what a story you have..I have some more qs if you can share your experience its greatly appreciated. Your right about endos,what do you think about these rejuvenation centers like the ones athletes use? My cortisol is high 24.2 my FSH is 1.8 borderline low. LH 1.7 borderline low. Prolactin 9.2 mid range. Estradiol 7 which is good and low.Probably because i took Nolvedex. IGF 138 midrange TSH 3rd generation 3.13 good high range. Testosterone free and total ,Lc/ms/ms 70 low out of range %free testosterone 1.52 in a range of - 1.5-2.2(quest) testosterone free 10.6 low range 35.0-155.0 quest what is your opinion on this? I would like to feel good yet not have to rely on drugs to keep me alive and well.Can I ever get my testes to work again? Does androgel convert more DHT than shots? What kind of shots for long term cipinate?proprionate?ethanate? Thanks again.. > > > From: globalresearch2001 <jbx10@...> > > Subject: Doc > > > > Date: Friday, December 3, 2010, 11:12 AM > > Endo Dr suggests a Pituitary > > MRI..even though my LH and prolactin IGF1 are normal.Is this > > going overboard?I hear a Pituitary tumor or problems come > > with a host of symptoms which I don't have. > > In other words how can one confirm if its the testes or the > > Pituitary that's the problem? > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
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