Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Aunt Joan, My understanding is that the immune system functions by producing antibodies to protect the health of the body. In autoimmune diseases the immune system ends up attacking healthy tissues instead of foreign (for lack of a better word) germs/tissues/whatever. The system that regulates/keeps the antibodies from attacking healthy tissue/organs does not work properly. Thus allowing healthy tissues/organs to be attacked for no reason ~ causing damage or malfunction of that tissue or organ. That is what I was referring to as a defect. With graves I have TSI (thyroid stimulating immunoglobulin). Healthy people do not have any TSI. If my body produced it once. It can do it again. It has that ability. On the other hand, if hyperthyroidism was not caused by the presence of TSI ab, then there would be no autoimmune involvement in recovery or relapse possibilities. At least, that is how its been explained to me. Kim Re: Hypothyroidism In a message dated 11/29/2006 2:57:15 P.M. Eastern Standard Time, kkmwn@... writes: One differing thought though. I do believe graves the autoimmune disease is for life. Our autoimmune system has already proven to be defective. Dear Kim, I don't believe (or maybe refuse to believe), that my autoimmune system is " defective. " Rather, I choose to believe that it was going through a " stage, " (like being a teenager or something), and was just acting out, maybe due to hormones, or some other underlying imbalance. Maybe Graves can have different causes in different people, some being more hard to treat than others. I do agree that, the longer you have it, the harder it is to treat. I got sick in March 1998, and was diagnosed around June 1998, so I wasn't ill for that long. AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Hi Everyone, I think people are doing themselves a misservice by believing that it's impossible to cure autoimmune thyroid disease through nutritional supplementation. The immune system is like any other physiological system in the body: when there are nutritional deficiencies, it malfunctions. When those deficiencies are corrected, and the toxic metals which contributed to those deficiencies are removed, the immune system goes back to normal functioning. Many people have fully recovered from autoimmune thyroid disease, both Graves' and Hashimoto's. Copper is a critical nutrient to stop the immune sytem from overfunctioning and creating an autoimmune disease condition. Other nutrients are important for copper assimilation and utilization. If you want to recover fully, the first step is believing that you can do it. It is possible, you just have to believe that it's possible and then take the necessary steps to get and apply the right information. Be well, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Hi The light bulb is slowly coming on. Although I took RAI I still suffer from many symptoms of autoimmune disease. Are you suggesting that increasing copper might actually help this as well? Kate Re: Hypothyroidism Hi Everyone, I think people are doing themselves a misservice by believing that it's impossible to cure autoimmune thyroid disease through nutritional supplementation. The immune system is like any other physiological system in the body: when there are nutritional deficiencies, it malfunctions. When those deficiencies are corrected, and the toxic metals which contributed to those deficiencies are removed, the immune system goes back to normal functioning. Many people have fully recovered from autoimmune thyroid disease, both Graves' and Hashimoto's. Copper is a critical nutrient to stop the immune sytem from overfunctioning and creating an autoimmune disease condition. Other nutrients are important for copper assimilation and utilization. If you want to recover fully, the first step is believing that you can do it. It is possible, you just have to believe that it's possible and then take the necessary steps to get and apply the right information. Be well, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2007 Report Share Posted January 28, 2007 Hi Kate, Sorry for the delay. Yes, copper is probably very beneficial in all types of autoimmune diseases because it controls the immune system, preventing it from attacking the body. In a message dated 1/9/2007 8:16:44 A.M. Pacific Standard Time, Fraserk@... writes: Hi The light bulb is slowly coming on. Although I took RAI I still suffer from many symptoms of autoimmune disease. Are you suggesting that increasing copper might actually help this as well? Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Thanks . I find I still have confusion a lot of times. The docs where I live don't really care as long as my numbers are 'in range' . But sometimes I have a moment of real clarity and there it is! K Re: Hypothyroidism Hi Kate, Sorry for the delay. Yes, copper is probably very beneficial in all types of autoimmune diseases because it controls the immune system, preventing it from attacking the body. In a message dated 1/9/2007 8:16:44 A.M. Pacific Standard Time, Fraserk@... writes: Hi The light bulb is slowly coming on. Although I took RAI I still suffer from many symptoms of autoimmune disease. Are you suggesting that increasing copper might actually help this as well? Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 Hi! Try looking into a cleanse. Also, it is due to autoimmune disease? You can try balancing the body with cleansing....also, look into www.thedoctorwithin.com Blessings!! hcp4uicare <hcp4uicare@...> wrote: I would like to know is there anyone out there that can tell me more about hypothyroidism. My mom was just diagnosed a couple of weeks ago and they gave her an option of surgery to remove the over-active gland or take a pill that has radioactive iodine in it. And I am trying to help her to make the decision that will best benefit her. I am also wondering is there any other treatment that her doctor hasn't mention that we are not aware of, that is better than the other 2 treatments that are mentioned. My mom and I will appreciate any info on this matter. Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 I am not sure if you got a response yet, but you need to go to www.stopthethyroidmadness.com and read read read. There is tons of info there. Crystal > > Hello everyone....i am new to the group and would very much like to > have any and all info pertaining to this frustrating disease. I was > diagnosed a year and a half ago and I am currently on Synthryoid > 100mcg. daily, but, i do not see any changes. I know the first thing I > have to do is go have blood work done again, but, i would really love > your feedback on this issue and if other people didn't find Synthyroid > to work for them as well. My stomach keeps getting bigger while the > rest of me stays the same. I don't even want to leave the house, i am > sooo embarasssed! Well, hope to talk to you all soon! Thank you~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 thank you soooo much.....i went to the site and have found it very knowledgeable. sweetenloe1 <sweetnwright@...> wrote: I am not sure if you got a response yet, but you need to go to www.stopthethyroidmadness.com and read read read. There is tons of info there. Crystal > > Hello everyone....i am new to the group and would very much like to > have any and all info pertaining to this frustrating disease. I was > diagnosed a year and a half ago and I am currently on Synthryoid > 100mcg. daily, but, i do not see any changes. I know the first thing I > have to do is go have blood work done again, but, i would really love > your feedback on this issue and if other people didn't find Synthyroid > to work for them as well. My stomach keeps getting bigger while the > rest of me stays the same. I don't even want to leave the house, i am > sooo embarasssed! Well, hope to talk to you all soon! Thank you~ > --------------------------------- Get the toolbar and be alerted to new email wherever you're surfing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 I gained a pound a week on synthroid and did not gain on cytomel alone. IT DOESN " T WORK! Joan Hey why are posting from weeks ago showing up just now??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 you can GAIN WEIGHT on Synthroid??????? OMG- that is what i take and couldn't figure out why i couldn't get rid of even ONE lb..... <danjoanryan@...> wrote: I gained a pound a week on synthroid and did not gain on cytomel alone. IT DOESN " T WORK! Joan Hey why are posting from weeks ago showing up just now??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 As I'm sure many other people will say, I suggest you switch to Armour.? It has Free?T4, T3, and while I think the purposes are still uncertain, T2, and T1 in it (but?a normal functioning thyroid produces the T2 and T1 so it must do something). Also, make it a?priority of yours to find a seriously good doctor in terms of thyroid care. hypothyroidism Hello everyone....i am new to the group and would very much like to have any and all info pertaining to this frustrating disease. I was diagnosed a year and a half ago and I am currently on Synthryoid 100mcg. daily, but, i do not see any changes. I know the first thing I have to do is go have blood work done again, but, i would really love your feedback on this issue and if other people didn't find Synthyroid to work for them as well. My stomach keeps getting bigger while the rest of me stays the same. I don't even want to leave the house, i am sooo embarasssed! Well, hope to talk to you all soon! Thank you~ ________________________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi Your temps certainly give the indication that you may be hypothyroid and your T4 is on the low side too BUT with a TSH like yours I doubt wether a doc would say you are hypothyroid, you TSH is pretty good. I really dont know what you could do to raise your T4 apart from taking thyroid meds, but I really dont think you will be given a diagnosis with those results, do you feel hypothyroid? Hi everyone.I posted a question some time ago entitled 'Am I suffering from Hypothyroidism? '. Unfortunately I'm no computer wizard and got a bit lost with it al Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi The av daily temps are look unstable as per www.drrind.com as they are more than 1c centrigrade apart from day to day. Have you had an adrenal 24 hour saliva test done? You will also need a fuller testing for your thyroid as you need the Free T3 done and antibody testing as this will give you important information that is not available with just the TSH and the Free T4. It is not always easy to get a Free T3 on the NHS and if your GP is reluctant) often it is the lab that refuses to do the test and not the GP by the way, then you could ask your practice to draw the blood for you and send it to a private lab to have this done. Mo > > I posted a question some time ago entitled 'Am I suffering from > Hypothyroidism?'. Unfortunately I'm no computer wizard and got a bit > lost with it all. > > Anyway, many thanks for all your advice and here's the information > from my blood test which some of you advised me to post: > > serum free t4 level = 13.9 > pmol/l 10.0 - 25.0 > serum tsh level = 0.9 mu/l > range = 0.3 - 6.0 > > I've also monitored my morning basal temperature over three days with > the following results: > > 35.2, 34.9, 35.5. > > Once again many thanks for your support and I hope these figures make > sense to you. I look forward to any further advice somebody can offer. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 ~ Should have said the Free T4 that you do have is showing low in the range which is an indication that you are not producing enough thyroid hormone. Mo > > I posted a question some time ago entitled 'Am I suffering from > Hypothyroidism?'. Unfortunately I'm no computer wizard and got a bit > lost with it all. > > Anyway, many thanks for all your advice and here's the information > from my blood test which some of you advised me to post: > > serum free t4 level = 13.9 > pmol/l 10.0 - 25.0 > serum tsh level = 0.9 mu/l > range = 0.3 - 6.0 > > I've also monitored my morning basal temperature over three days with > the following results: > > 35.2, 34.9, 35.5. > > Once again many thanks for your support and I hope these figures make > sense to you. I look forward to any further advice somebody can offer. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi , How do you feel? My guess is not too well, hence the question you posed? My blood results are also in range, but I've felt unwell and hypo symptomatic for over a year. Sadly, no diagnosis, despite a long history involving partial thyroid removal. Dr's hang on to those blood tests as the only indicator of hypothyroidism. Your basal temps appear to tell the story of your metabolism. Take care, you've come to a good place. Lots of info and helpful people. x > > Hi everyone. > > I posted a question some time ago entitled 'Am I suffering from > Hypothyroidism?'. > > serum free t4 level = 13.9 > pmol/l 10.0 - 25.0 > serum tsh level = 0.9 mu/l > range = 0.3 - 6.0 > > I've also monitored my morning basal temperature over three days with > the following results: > > 35.2, 34.9, 35.5. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Hi Never mind that your thyroid function tests appear within the normal reference range, your basal temperature certainly is NOT normal and is showing that your metabolism certainly is not working and this could be due to low thyroid hormone production. Have you been tested to see whether you have antibodies to your thyroid - if not, ask your GP to check this out and also to test your ferritin (stored iron) level, your Vitamin B12, Vitamin D and Zinc and copper levels. I would be tempted to send a letter with this request to your GP and a copy to the practice manager setting out all of your symptoms and signs (go to our website www.tpa-uk.org.uk and click on Hypothyroidism' and then on 'Symptoms and Signs' to check yours against these). Then write your basal temperature for say, 5 days. If you have members in your family who have a thyroid disorder or autoimmune disease, write this down also. Having a normal thyroid function test does NOT mean you do not have a thyroid disorder. You should ask to be referred to a specialist in thyroid disease (not an endocrinologist who specialises in diabetes as they know little about thyroid disease). You need a thorough physical examination and your symptoms/signs/basal temperature should be taken into account and your GP should NOT decide you do not have hypothyroidism on blood test results alone. If your GP will not refer you, as you still have all of the symptoms and signs, ask your doctor to test to investigate the cause of your symptoms. You must not allow her/him to put you on antidepressants and tell you 'it's all in your head' as many doctors do. When sending the letter (if this is what you choose to do) ask that the letter be placed in your medical notes so that it can be referred to at a later date if you are eventually found to be hypothyroid and you have been left suffering without further investigation by your doctor. Luv - Sheila Hi everyone. I posted a question some time ago entitled 'Am I suffering from Hypothyroidism?'. Unfortunately I'm no computer wizard and got a bit lost with it all. Anyway, many thanks for all your advice and here's the information from my blood test which some of you advised me to post: serum free t4 level = 13.9 pmol/l 10.0 - 25.0 serum tsh level = 0.9 mu/l range = 0.3 - 6.0 I've also monitored my morning basal temperature over three days with the following results: 35.2, 34.9, 35.5. Once again many thanks for your support and I hope these figures make sense to you. I look forward to any further advice somebody can offer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Hi , Have you had your adrenalin level measured? They might use the ACTH stim test to see what your adrenals put out. The hearing problem (tinnitus) seems to be excess adrenalin or excess response to adrenalin. Have they ruled out an adenoma causing autonomous adrenalin output? Surely someone must have a clue if they've all had a go at it? I suggest you request a referral to a teaching hospital for an opinion; you can't really let this drag on, and the medical profession should be raising alarm bells that it has taken so long to get nowhere..... I think they paint themselves a rosy picture of NHS medicine, but they don't like to rock the boat if nothing is achieved over such a long time. Good luck, Bob > > Thanks to , Mo, and Sheila for your advice. > A few of you asked some more questions of me and I hope the > following will give you a fuller picture of what I've been putting > up with for nearly two years now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Poor you (also my son's name) You are clearly unwell! And there are thyroid problems within your family, particularly down the male side, which I believe is a little more unusual. I too, am unwell, with 'normal' bloods, went to a private emdo, who more or less did the same. Summarised our discussion, and wrote it back to the GP who had referred me! How about that for £220! Also, he did reassure me, lots of people feel like me, it's common! Such a help! Didn't even examine me fully. So, you're getting the picture a bit more now, if the bloods are normal, no diagnosis, which rules out support for a huge group of us. I am a keen exerciser also, and long to get back into it. , I experimented with self treating earlier this year, with some success. Adrenals first and then Armour, building up slowly. Why don't you have a good read up of the files on hypo and associated conditions. You may feel able to take some proactive steps when you have researched and made sense of it all in relation to you. None of us are the same. I've given up with the system that has given up with me and am off to see Dr P next week, who comes highly recommended. His book is a great read too, very accessible and informative. I recognised myself in there. He advocates treating the person, not the blood results. Take lots of care, I'm sure those little ones are getting mega exctied as Christmas approaches. Lots of luck and good health wishes to you. Keep talking, tpa is a great place, full of supportive folk. They have saved my sanity this year. x > > Thanks to , Mo, and Sheila for your advice. > > A few of you asked some more questions of me and I hope the > following will give you a fuller picture of what I've been putting > up with for nearly two years now. > The main problems that affect me particularly bad on a daily basis > are: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Hi , you could still be hypothyroid/adrenal, as the tests for hypo often come back in the normal range. ask your doctor for auto-antibody tests and if it were me get your adrenal`stested privately details in our files. this last one is more accurate than that done by your GP.have you got the results of your last test? your doctor will let you have these, also the range.post these on line so we can help you . angel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Hi Although you have not mentioned this, have you considered being referred to an thyroid specialist. Not an endocrinologist with a specialty in diabetes, but one with a specialty in thyroid. I do have a list of 'good' doctors in this field if you would like me to send it to you. I think you first need to write to your GP setting out all of your symptoms and signs 9you can check yours against our list in our web site www.tpa-uk.org.uk . Click on 'Hypothyroidism, and then on 'Symptoms and Signs'. Write all of these down. Take your temperature for 5 days before you get out of bed in a morning. Normal temperature is 98.6, but if your temperature is 97.8 or lower, this could be an indication you are hypothyroid. Write down the members of your family who have a thyroid disease and also any others who have an autoimmune problem. Ask in writing for a FULL thyroid function test that includes TSH, Free T4, Free T3, a test to see whether you have antibodies to your thyroid, a test to see whether you have low ferritin (stored iron), low B12, low Vitamin D. Ask your GP to put your written request to be referred to a thyroid specialist into your medical notes and send a copy to your practice Manager. Be assertive so your GP knows you are no longer prepared to put up with your ill health and that if it is not a thyroid related problem you are suffering, then you need to find out what it is that is causing you all of these symptoms. Thyroid Function Tests are insufficient in giving you a diagnosis. You should have a full clinical examination, and all your symptoms and signs should be taken into account, together with your family history of thyroid or autoimmune problems and the blood tests. This is your health and you must not be fobbed off with your GP giving you antidepressants and sleeping tablets. That is an easy way out and your GP must take the responsibility tol help you regain your normal health. I believe your goosebumps could be caused through your body temperature not regulating properly which is indicative of hypothyroidism. On our website, do look at the associated conditions that go along with being hypothyroid and check out whether these could be adding to your problems. You can read about these associated conditions (Adrenal, systemic candidiasis, low ferritin, low vitamin D etc in our FILES on this forum too. Do the Adrenal and Candida Questionnaire to see how you score. Can you get your previous thyroid function blood test results and post them here on the forum, together with the reference ranges as many doctors do not know how to interpret them. Luv - Sheila My GP has discounted thyroid problems based on the many blood test results carried out. I have been at the end of my tether for a long time now and have resorted to self-diagnosis. I have a history of chest infections, pleuracy, pneumonia, bronchitis from a young age. There is a history of Thyroid disorders in my family – my paternal grandfather and my father's brother both suffered/suffer with such problems. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 it is easy to think if we were thinner we would feel better but not so as we have thin and large hypo people. Therefore.. I would hope that the main concern is how you feel and not the weight particularly although I know the excess weight can require more fitness to carry around. It is a symptom of the disease as you will well know, but so is the problem with your mood and your energy levels, which when put right may also be the answer to your losing the weight too. I know that prolactin levels and hypothyroidism are closesly linked, I am not familiar with the particular condition that you mention. But I hope when you post your results that someone will be able to relate to your situation and give some advise with regards what might be best to talk to your Dr about. Good luck hon lotsa luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2009 Report Share Posted April 20, 2009 I could live with the extra weight if I didn't have to put up with the ignorant comments of doctors, dieticians, endoprats and nurses at my GP's surgery!! Glynis > > it is easy to think if we were thinner we would feel better............ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2009 Report Share Posted April 20, 2009 Oh isnt that the truth - I can make allowances for people who are ignorant and uneducated - but that Professionals behave in such a way is shameful on their part. F > > I could live with the extra weight if I didn't have to put up with the ignorant comments of doctors, dieticians, endoprats and nurses at my GP's surgery!! > Glynis > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2009 Report Share Posted April 20, 2009 Hello Bridget and welcome to our forum where I hope you get the support you need. Can you get your thyroid function test results from your doctor and post them on the forum together with the reference range for each of the tests done. Many people are hypothyroid even though their blood results are within the normal reference range, for some of us, we can wait years for them to go outside the range and still be under active. If you have a low metabolism, you cannot burn off the calories, so it will be difficult to slim until you get onto the right dose of thyroid hormone replacement. Luv - Sheila ..I have been monitoring what i eat, and exercise too i have been told by the specialist i see that my blood results are normal but what is normal i still feel sluggish and weepy all the time. Many thanks bridget. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.12.0/2065 - Release Date: 04/18/09 09:55:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 Hello, We are currently using LDN for our daughter's crohns. I posted in December that she was beginning LDN and I am happy to report she is doing well. My question today is who is on LDN for hypothyroidism and where do you get the LDD prescribed from? The Drs. I called prescribe LDN for crohns and MS. My husband would like to try it for his hypothyroidism and I would like to use it because of all the cancer and heart disease in my family. Can someone please reach out and let me know. I have looked at the LDN database and there are a number of people using LDN for thyroid but I do not have a way to get in touch with them personally it seems. Any help would be greatly appreciated. Kathy D Quote Link to comment Share on other sites More sharing options...
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