Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Please don.t get offended; I have found this is a very controversial subject, I personally am not comfortable with the 12 steos (I just got done reading several excellent books about this: Twelve Step Horror Stories, Alcoholics Anonymous: Cult or Cure, and SOS...Secular Organizations for Sobriety. I know people who really love the 12 steps, and others who have horror stories, but since my spouse had tried AA and could not relate to its religious aspects, we need alternatives. I am pleased that he is voraciously reading Under the Influence and wants his own copy of the book to read again. Next, he is going to read Seven Weeks to Sobriety, about nutitional help in quitting. I did join an Al Anon group online, but all hell broke lose when I just mentioned I was reading the 12 Step Horror Story book! Yikes....Not much room for different opinions there...If we lived in a big city, I am sure we could find an SOS group, but not here in the small town.. Skyler Re: [ ] test results > > > > > > > > > > Just take one day at a time. Don't even thank > > about tomorrow. Before > > you know it, it is a week month year. > > > We will be keeping you in our prayers > > > Terry > > - Your Music Experience > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 That's a shame. When I went to Al-Anon many years ago, they stressed the Higher Power could be a rock. I didn't grasp many of the concepts and never truly made it past step one, but I was in a great group and they helped me through a difficult time. I wish you a lot of luck. I too am not a religious person although sometimes I wish I had more faith. But that's another chapter in too long of a story. Sharon --- tangly cottage gardening <tangly@...> wrote: > Please don.t get offended; I have found this is a > very controversial > subject, I personally am not comfortable with the 12 > steos (I just got done > reading several excellent books about this: Twelve > Step Horror Stories, > Alcoholics Anonymous: Cult or Cure, and > SOS...Secular Organizations for > Sobriety. I know people who really love the 12 > steps, and others who have > horror stories, but since my spouse had tried AA and > could not relate to its > religious aspects, we need alternatives. I am > pleased that he is > voraciously reading Under the Influence and wants > his own copy of the book > to read again. Next, he is going to read Seven > Weeks to Sobriety, about > nutitional help in quitting. > > > I did join an Al Anon group online, but all hell > broke lose when I just > mentioned I was reading the 12 Step Horror Story > book! Yikes....Not much > room for different opinions there...If we lived in a > big city, I am sure we > could find an SOS group, but not here in the small > town.. > > Skyler > > Re: [ ] test results > > > > > > > > > > > > > > Just take one day at a time. Don't even > thank > > > about tomorrow. Before > > > you know it, it is a week month year. > > > > We will be keeping you in our prayers > > > > Terry > > > - Your Music Experience > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 To each his own. AA did wonders for me. AA is not really considered religious, more spiritual, a belief in God is not required. But I can see that local groups take on their own flavor sometimes. I am a christian, so I don't find this a problem, but I do recall people questioning why, if this was not a religious group we closed each meeting with the Lord's Prayer. You may find NA a little less "traditional". It IS still based on the 12 steps, but I found them a little more open to non-religious people. Good luck with whatever you find. -dz- tangly cottage gardening <tangly@...> wrote: Please don.t get offended; I have found this is a very controversialsubject, I personally am not comfortable with the 12 steos (I just got donereading several excellent books about this: Twelve Step Horror Stories,Alcoholics Anonymous: Cult or Cure, and SOS...Secular Organizations forSobriety. I know people who really love the 12 steps, and others who havehorror stories, but since my spouse had tried AA and could not relate to itsreligious aspects, we need alternatives. I am pleased that he isvoraciously reading Under the Influence and wants his own copy of the bookto read again. Next, he is going to read Seven Weeks to Sobriety, aboutnutitional help in quitting.I did join an Al Anon group online, but all hell broke lose when I justmentioned I was reading the 12 Step Horror Story book! Yikes....Not muchroom for different opinions there...If we lived in a big city, I am sure wecould find an SOS group, but not here in the small town..Skyler Re: [ ] test results> >> >> > >> > > Just take one day at a time. Don't even thank> > about tomorrow. Before> > you know it, it is a week month year.> > > We will be keeping you in our prayers> > > Terry> > - Your Music Experience> >> >>>> __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 I can fully understand what you are going through and if at times you would like to e-mail me privately on this my e-mail address is Jannewilms42@... have the same problem with mine except his drinking is a little worse and at times also feel lost... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Debbie, emzymes that high is high. Did they say anything about starting treatment. If it was me, I would be calling the Doctor's office Moday morning. Good luck Debbie, I will be keeping ypu in my prayers. Terry debbie henning <giglebutt2002@...> wrote: just to let everyone know that my blood test came back today and the viral enzymes are high 1,620.000 what does this mean really? I cant call the drs office yet because it is the weekend I also wanted to be tested for cancer but nothing was stated ,just the viral load .If I did have the cancer dont you think they would said something? very upsetting that they did not mention it not even a follow up visit. I think I'm going to look else where for a dr.giglebutt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 terry I am on a waiting list. I dont even have a access # yet so Im kind of worried that my numbers are that high.Does this mean the virus is attaching the liver as I speak or what? I do have alot of pain in that area which I told them about and they prescibed zanax for me and so I took a half of ,1/2m.g and hardly could get up the next day so I stopped taking them. now its just the waiting time that a killer. I will call them first thing in the morning. Debbie Debbie, emzymes that high is high. Did they say anything about starting treatment. If it was me, I would be calling the Doctor's office Moday morning. Good luck Debbie, I will be keeping ypu in my prayers. Terry debbie henning <giglebutt2002@...> wrote: just to let everyone know that my blood test came back today and the viral enzymes are high 1,620.000 what does this mean really? I cant call the drs office yet because it is the weekend I also wanted to be tested for cancer but nothing was stated ,just the viral load .If I did have the cancer dont you think they would said something? very upsetting that they did not mention it not even a follow up visit. I think I'm going to look else where for a dr.giglebutt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Have you had a biopsy? That's the best way to know how much liver damage there is. It supposedly is a slow progressing disease, but I'd still want treatment as soon as I could, but that's me. Sharon --- debbie henning <giglebutt2002@...> wrote: > > terry I am on a waiting list. I dont even have a > access # yet so Im kind of worried that my numbers > are that high.Does this mean the virus is attaching > the liver as I speak or what? I do have alot of pain > in that area which I told them about and they > prescibed zanax for me and so I took a half of > ,1/2m.g and hardly could get up the next day so I > stopped taking them. now its just the waiting time > that a killer. I will call them first thing in the > morning. Debbie > Debbie, emzymes that high is high. Did they say > anything about starting treatment. If it was me, I > would be calling the Doctor's office Moday morning. > Good luck Debbie, I will be keeping ypu in my > prayers. > Terry > debbie henning <giglebutt2002@...> wrote: > just to let everyone know that my blood test came > back today and the viral enzymes are high 1,620.000 > what does this mean really? I cant call the drs > office yet because it is the weekend I also wanted > to be tested for cancer but nothing was stated ,just > the viral load .If I did have the cancer dont you > think they would said something? very upsetting > that they did not mention it not even a follow up > visit. I think I'm going to look else where for a > dr.giglebutt > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Debbie, the virus slowly attach's the liver from day one. If you are on a waiting list, you should be OK. Hopefully the drug company will pick the pace & start making our meds a little faster. Terry debbie henning <giglebutt2002@...> wrote: terry I am on a waiting list. I dont even have a access # yet so Im kind of worried that my numbers are that high.Does this mean the virus is attaching the liver as I speak or what? I do have alot of pain in that area which I told them about and they prescibed zanax for me and so I took a half of ,1/2m.g and hardly could get up the next day so I stopped taking them. now its just the waiting time that a killer. I will call them first thing in the morning. Debbie Debbie, emzymes that high is high. Did they say anything about starting treatment. If it was me, I would be calling the Doctor's office Moday morning. Good luck Debbie, I will be keeping ypu in my prayers. Terry debbie henning <giglebutt2002@...> wrote: just to let everyone know that my blood test came back today and the viral enzymes are high 1,620.000 what does this mean really? I cant call the drs office yet because it is the weekend I also wanted to be tested for cancer but nothing was stated ,just the viral load .If I did have the cancer dont you think they would said something? very upsetting that they did not mention it not even a follow up visit. I think I'm going to look else where for a dr.giglebutt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2003 Report Share Posted January 12, 2003 I don't know if I missed any other of your test results, but the ones listed here prove nothing. Good to keep you appt. with the Lyme Doc. Good Luck, Robin >From: " sagwasmom <bubbazo@...> " <bubbazo@...> >Reply- > >Subject: [ ] Test results >Date: Mon, 13 Jan 2003 04:05:39 -0000 > >My test results came back with the following: > >Sed Rate 2 > >Antinuclear AB Screen EIA >with reflex titer IFA >ANA screen NEGATIVE > >ETA-ABS NON-REACTIVE > >T3 TOTAL 113 > > >My results suggest I do not have Lyme. I wondered, however, if >a reflex titer is always done, or only when the first test is >positive? > >Another note: the Sed rate, which I thought measured inflammation, >was done at the same time I was diagnosed by MRI with tenosynovitis >(inflammation) in my shoulder. > >Despite the results, I still have an appt with a Lyme Disease doctor >and will also go over my symptoms. > >Any comments on these above results would be welcome. > > > > > > _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2003 Report Share Posted July 16, 2003 Find a doc who knows more about thyroid than TSH. http://www.geocities.com/thyroide Gracia > I had a TSH test done in February and it was .92. He said no > further test were necessary. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Dear Bea, I Tested positive for CFS micoplasma and negitive for Lyme. My testing was done by Igenex. I would not bother wasting more money on testing because Lyme is a clinical dx (approx. 75% of chronic lymies are negitive) and testing is not reliable. If your son has had Lyme for awhile testing is even less reliable. You need to request a copy of the western blot showing all bands. I don't know if spececialty testing is competent, but Igenex is and still my results were negitive and I defentaly have lyme. I hope this helps at least a little bit. Jill > Hello, > > I have written previously regarding my adult son diagnosed with Chronic Fatigue Syndrome and his decision to be tested for Lyme disease. We had the testing done through a well regarded doctor here in Michigan. I had requested (in writing) that the testing be done by Igenex and gave him all the necessary information to test accordingly. He did all types of tests (almost $4,000.00) worth and Lyme testing in the bunch. All tests including the lyme were negative. > > I have now received copies of all the tests, except the lyme tests, and will be requesting these tomorrow. The problem is that the billing for the Lyme testing is from " Speciality Labs " in California and they have no connection with Igenex. I doubt our insurance will pay to have these tests done again. Does anyone know if Speciality Labs is considered to be a competent lab for testing lyme? > > Any help will be appreciated. > > Bea > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.521 / Virus Database: 319 - Release Date: 9/23/03 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 The military took my Western Ink Blot positive test out of my records and now the new doc wants to run another titer. I told him it was of not use and that I wanted Igenex tests done....I have had Lyme since 1997, tested positive, had three bulls eye rashes on one arm, have all the symptoms, and still, they all want to keep testing. Where does this end? I am now considering asking Dr. B. to call this new doctor and explain it all to him. Anyone have that number for Dr. B.? I cannot remember crap when I am at the doctor's office, even with notes. Maybe, coming from another physician, this new guy will hear something other than " CDC says " ! Thanks.......Sue sweetiejh21 <Sweetiejh21@...> wrote: Dear Bea, I Tested positive for CFS micoplasma and negitive for Lyme. My testing was done by Igenex. I would not bother wasting more money on testing because Lyme is a clinical dx (approx. 75% of chronic lymies are negitive) and testing is not reliable. If your son has had Lyme for awhile testing is even less reliable. You need to request a copy of the western blot showing all bands. I don't know if spececialty testing is competent, but Igenex is and still my results were negitive and I defentaly have lyme. I hope this helps at least a little bit. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Barbara, please make sure what antibody test was done. They told me I was negative as well, but then did the anti-TPO and it was positive. Its a more accurate test. Always good to completely rule it out. Also, I don't think what your doc told you about Armour is true, but my doc also told me the same thing a while back. who knows! Glad that you got it figured out _________________________________________________________________ Set yourself up for fun at home! Get tips on home entertainment equipment, video game reviews, and more here. http://special.msn.com/home/homeent.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Thanks, . Actually, he was pleasantly surprised that I knew as much about the disease as I did in such a short time. We had a good discussion and he answered all the questions I had prepared ahead of time. I go back in 6 weeks for another test at which time I will ask him about the antibody test. Thanks to everyone who posts on this site and the others around the net. I have learned much in 2 1/2 days! Lets keep up the good work and support. Barb K a r e n P <karlynn17@...> wrote: Barbara, please make sure what antibody test was done. They told me I was negative as well, but then did the anti-TPO and it was positive. Its a more accurate test. Always good to completely rule it out. Also, I don't think what your doc told you about Armour is true, but my doc also told me the same thing a while back. who knows! Glad that you got it figured out _________________________________________________________________ Set yourself up for fun at home! Get tips on home entertainment equipment, video game reviews, and more here. http://special.msn.com/home/homeent.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 I was reading about Armour somewhere today, and saw something on the reliability of it from batch to batch (and pill to pill, I'd expect). I went back and found where I'd read it, and I think this will take you there. It's just the Armour website, but it talks about the ratios and the testing that they do to keep it consistant. http://www.armourthyroid.com/faq.html#q3 _____ From: K a r e n P [mailto:karlynn17@...] Sent: Tuesday, December 02, 2003 4:55 PM hypothyroidism Subject: RE: test results Barbara, please make sure what antibody test was done. They told me I was negative as well, but then did the anti-TPO and it was positive. Its a more accurate test. Always good to completely rule it out. Also, I don't think what your doc told you about Armour is true, but my doc also told me the same thing a while back. who knows! Glad that you got it figured out _________________________________________________________________ Set yourself up for fun at home! Get tips on home entertainment equipment, video game reviews, and more here. http://special.msn.com/home/homeent.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 we have posted info on antibody tests in the past--not to long ago, maybe two months at best--the info there gives you the different kinds of tests ect. I'll try and look myself. But is right there are I think 5 tests 7 different kinds of antibodies, but only tests for 5 of them. I would keep on reading, don't give up until you know what you are dealing with--it took us 6 months to figure the majority of our problems out. I think we are way ahead of the doctors, probably by years---they had two years now going on three and still can't figure it out---haha!!!! -- In hypothyroidism , BARBARA SCHULZ <beschulz@s...> wrote: > Thanks, . Actually, he was pleasantly surprised that I knew as much about the disease as I did in such a short time. We had a good discussion and he answered all the questions I had prepared ahead of time. I go back in 6 weeks for another test at which time I will ask him about the antibody test. > > Thanks to everyone who posts on this site and the others around the net. I have learned much in 2 1/2 days! Lets keep up the good work and support. > > Barb > > K a r e n P <karlynn17@h...> wrote: > Barbara, > please make sure what antibody test was done. They told me I was negative > as well, but then did the anti-TPO and it was positive. Its a more accurate > test. Always good to completely rule it out. Also, I don't think what your > doc told you about Armour is true, but my doc also told me the same thing a > while back. who knows! Glad that you got it figured out > > > > _________________________________________________________________ > Set yourself up for fun at home! Get tips on home entertainment equipment, > video game reviews, and more here. > http://special.msn.com/home/homeent.armx > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 I'd change doctors. He uses the most inaccurate test, believes that Armour is not standardized - it is. And .05mcg is nothing - are you sure you don't mean .05mg? Jan > Saw my dr. today. My TSH levels were 7.000 and there were no > antibodies in the blood, therefore he ruled out Hashimoto Syndrome. > I asked him about T3 & T4 tests and he said he has always used TSH > alone as it is an indicator of low thyroid hormones. He put me > on .05 MCG of synthroid. I asked him about Armour and Naturethroid > and he said the amount of hormone in the pills varies, while in > Synthroid there is an equal amount in each pill. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 If my memory serves me right (that's a joke), it is .05 mg and 50 mcg. I plan to demand other tests. It's my body and my life. I go back in 6 weeks for more blood work. My doc has gone on vacation, so I can't talk to him right now. Barb janjv1311 <janaina@...> wrote: I'd change doctors. He uses the most inaccurate test, believes that Armour is not standardized - it is. And .05mcg is nothing - are you sure you don't mean .05mg? Jan > Saw my dr. today. My TSH levels were 7.000 and there were no > antibodies in the blood, therefore he ruled out Hashimoto Syndrome. > I asked him about T3 & T4 tests and he said he has always used TSH > alone as it is an indicator of low thyroid hormones. He put me > on .05 MCG of synthroid. I asked him about Armour and Naturethroid > and he said the amount of hormone in the pills varies, while in > Synthroid there is an equal amount in each pill. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Ok, that is a standard starting dosage. You have the right attitude - either " train " this doc, or get another one. I wish I had been more proactive from the beginning, I used to be too passive around endos. Jan > If my memory serves me right (that's a joke), it is .05 mg and 50 mcg. I plan to demand other tests. It's my body and my life. I go back in 6 weeks for more blood work. > > My doc has gone on vacation, so I can't talk to him right now. > > Barb > ] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 ALT 0-40 is ok AST 0-37 is ok ALK or Phosphatase 40-129 "A sense of Humor reduces people and problems to their propoer proportions"Eddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 The ALT & AST look allright, I'm not sure about that ALK. I wouldn't think these numbers make it clear that hepc is active. Of course I'm not sure what other factors he may be considering. -dz- -----Original Message-----From: Pegasus.realm [mailto:Pegasus.Realm@...]Sent: Tuesday, February 03, 2004 10:49 PM Subject: [ ] Test Results Fine, I looked up information on these and everything was written so technical I couldn't make heads or tails out of it. All I need is for someone here to give me their thoughts on what these levels look like compared to "normal". My doctors office said these levels made it clear that the HepC was active. I had gone off the SAM-e treatments for 6 months due to money (lack of) and had only gotten back on it the day before this tests was done. I am going back at 4 week mark to see if the SAM-e is lowering the levels like it did before. ALT - 57 AST - 44 ALK (?) - 190 I could have sworn she said something like ALK5 or something close to that on the last one but I am not familar with it... could this be one of the Alkaline tests I saw mentioned? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 I have been told that chronic hepatitis increases the risk of type II diabetes three-fold. A fasting serum glucose test will catch this. Wicked / Since 1949, the one true original real Robin A. Vosburg " Fascinating. It's like a Druid solstice ritual without the viscera. " - Grace Polk to Joan Girardi, in 'Recreation' [113], on *Joan of Arcadia* -----Original Message----- From: Janet Hi everyone..I just got my appt in and it's for April..I have to go on the 7th for a fasting blood work..Never had that done before..Wonder why now??? I also have to have the usual blood work done too..I was expecting that but not the fasting one..If anyone knows why let me know ok?? --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.577 / Virus Database: 366 - Release Date: 03/02/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 I just got the results of the PCR blood-test, and I am definitely 'Positive' forHepatitis C, Genotype 1-A. (more 'common' but, 'typically' more difficult to treat than 'some' strains) Next, is a Liver-Biopsy to gauge the level of possible damage-/-inflammation in the liver, and then we'll go from there, to decide about whether treatment/s wiould be needed and-or of any benefit at this time, and also to see if I 'qualify' for treatment/s medically or not, among other things. They want to do a 'blood-clotting time check' before any liver-biopsy, so,....whenever I get any more 'useful' information, I'll be sure to let Y'all know about it ! Thanks for 'listening'. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Sounds like you've got the process moving right along. Keep us posted and good luck with your continuing treatment. -dz-DUG853@... wrote: I just got the results of the PCR blood-test, and I am definitely'Positive' forHepatitis C, Genotype 1-A. (more 'common' but, 'typically' more difficult to treat than 'some'strains)Next, is a Liver-Biopsy to gauge the level of possibledamage-/-inflammation in the liver, and then we'll go from there, todecide about whether treatment/s wiould be needed and-or of any benefitat this time, and also to see if I 'qualify' for treatment/s medicallyor not, among other things.They want to do a 'blood-clotting time check' before any liver-biopsy,so,....whenever I get any more 'useful' information, I'll be sure to letY'all know about it !Thanks for 'listening'. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 I sure will Dave ! Thanks ! I am definitely learning a lot of things in this group and You ALL have helped me to 'be-prepared' for a lot of the things that my doctor/s have had to say, and it helps a whole LOT to know 'what questions to ask' the doctors, in order to get the 'best' treatment- option/s ! I just got the results of the PCR blood-test, and I am definitely > 'Positive' forHepatitis C, Genotype 1-A. > (more 'common' but, 'typically' more difficult to treat than 'some' > strains) > > Next, is a Liver-Biopsy to gauge the level of possible > damage-/-inflammation in the liver, and then we'll go from there, to > decide about whether treatment/s wiould be needed and-or of any benefit > at this time, and also to see if I 'qualify' for treatment/s medically > or not, among other things. > > They want to do a 'blood-clotting time check' before any liver- biopsy, > so,....whenever I get any more 'useful' information, I'll be sure to let > Y'all know about it ! > > Thanks for 'listening'. :-) > > > Quote Link to comment Share on other sites More sharing options...
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