Intro

November 9, 2004

Jill, get yourself a new ortho guy too!! it is true about what he

said, though. Women tend to have more knee problems do to our

pelvis shape. generally it is ligament or tendon issues, but bone

can, and is some cases may, be involved. endometriosis is also an

autoimmune disorder. that's what i started with, had a hyster, and

a few complications later---i get to live with RA!! Oh, for joy!!

But, on the bright side, I've made friends here. Everyone in here

is great. Lot's of information can be found from the wonderful

people in this family we have here. Welcome to the family!! :-)

Take care......Marina in Ohio

>

> Hi- My name is Jill and I am 41 years old living in Nashville, TN.

On

> Friday I saw my Dcotor for the first time for issues I have been

> having.

>

> She did bloodwork and we are waiting for the results back before

she

> sends me off to a Rheumy. She says so far she is pretty sure that I

> have some sort of Connective Tissue Disease and some form of

> Arthritis. Perhaps Fibro.

>

> We are in the beginnings of wait and see, I guess.

>

> I have a history of endometriosis, and Irritible Bowel Syndrome.

>

> Over the last few months I have been exhausted and just couldnt

shake

> it. I went to an ortho surgeon about knee pain that appeared out of

> nowhere. ( My previous pcp sent me to this guy.) He looked at me,

> asked me to describe the problems and within one sentence

interupted

> me and said, " I know what your problem is. You have the womens

> disease. " My back went up a bit. He wiound up saying its something

> that happens to women in their 40's. Our hips spread form having

> babies, and then our knee's go out of whack when we put on weight.

He

> told me to tell him the truth on how much weight I had put on

> recently, and when I said 10 pounds, he laughed and said " now tell

me

> the truth! " . MY husband stood up and said, she is telling the

truth.

> (DH is 290 pounds and 6'3). ANyway- knee doc sent me to PT. It

helped

> some but its still pretty bad. Then I started with pains in my neck

> then in my shoulders. Then in my ankles, and my feet. Then my wrist

> and my thumbs and my back. I was hobbling around like an 80 year

old

> woman and I was afraid to go to the doctor.(My doctor was a witch

> doctor who was an idiot. I have a lump in my armpit that has been

> there since June and he said it was fatty tissue without even

touching

> it.)

>

> Anyway- I switched PCP's and went to my new one on Friday. She

> started me on 60 mgs of Prednisone for 5 days and Celebrex twice a

day

> and I feel so much better already.

>

> I have been doing a lot of reading and based on my symptoms, it

looks

> like a toss up between RA and Fibro. Scary either way.

>

> Looking forward to learning more about what is going on inside my

> body- and talking to people who understand how bad I feel even

though

> I look ok.

>

> Thanks for having a place for me to go to.

>

> Jill

November 10, 2004

Hi jill... i am new here, too.. i think we all have had treatment like that at

some time or another... some doctors!

it is so good to have a doctor that you feel very confident with... make the

whole world for you better..

rae

[ ] Intro

>

> Hi- My name is Jill and I am 41 years old living in Nashville, TN. On

> Friday I saw my Dcotor for the first time for issues I have been

> having.

>

> She did bloodwork and we are waiting for the results back before she

> sends me off to a Rheumy. She says so far she is pretty sure that I

> have some sort of Connective Tissue Disease and some form of

> Arthritis. Perhaps Fibro.

>

> We are in the beginnings of wait and see, I guess.

>

> I have a history of endometriosis, and Irritible Bowel Syndrome.

>

> Over the last few months I have been exhausted and just couldnt shake

> it. I went to an ortho surgeon about knee pain that appeared out of

> nowhere. ( My previous pcp sent me to this guy.) He looked at me,

> asked me to describe the problems and within one sentence interupted

> me and said, " I know what your problem is. You have the womens

> disease. " My back went up a bit. He wiound up saying its something

> that happens to women in their 40's. Our hips spread form having

> babies, and then our knee's go out of whack when we put on weight. He

> told me to tell him the truth on how much weight I had put on

> recently, and when I said 10 pounds, he laughed and said " now tell me

> the truth! " . MY husband stood up and said, she is telling the truth.

> (DH is 290 pounds and 6'3). ANyway- knee doc sent me to PT. It helped

> some but its still pretty bad. Then I started with pains in my neck

> then in my shoulders. Then in my ankles, and my feet. Then my wrist

> and my thumbs and my back. I was hobbling around like an 80 year old

> woman and I was afraid to go to the doctor.(My doctor was a witch

> doctor who was an idiot. I have a lump in my armpit that has been

> there since June and he said it was fatty tissue without even touching

> it.)

>

> Anyway- I switched PCP's and went to my new one on Friday. She

> started me on 60 mgs of Prednisone for 5 days and Celebrex twice a day

> and I feel so much better already.

>

> I have been doing a lot of reading and based on my symptoms, it looks

> like a toss up between RA and Fibro. Scary either way.

>

> Looking forward to learning more about what is going on inside my

> body- and talking to people who understand how bad I feel even though

> I look ok.

>

> Thanks for having a place for me to go to.

>

> Jill

November 14, 2004

it might be worth going to see an LLMD (Lyme Literate Medical

Doctor). They treat lyme more aggresively than most DRs.

if you want to get a referral to an LLMD in FL - if someone doesn't

post one on this site - then i would go to Lyme Net

http://www.lymenet.org/

go to the " flash discussion " section and post your question in

medical questions and seeking a DR.

thanks

bill

>

> Hello

> My name is Annette and I live in FL. I got bit by a deer tick last

weekend and got the typical bullseye rash so my doc put me on Doxy

for 3 weeks. She did not confirm I have LD, but is treating me as

such. Since I have questions, I figured what better place to go than

a support group?

>

> Since I was put on meds almost immediately I'm not sure what affect

that has on symptoms. The rash itself appears to have mostly gone

away, and the purplish spot where the tick was attached is much

smaller as well. Could this be because I got Doxy so quickly? I am

still symptomatic in that I feel exhausted and achey, particularly in

my neck and lower back.

>

> Any thoughts anyone can give this newbie would be appreciated.

> Annette

> ~~~~~~~~~~~~~~~~~~~~~~~~

> Annette M. Jaeger

> ARPH SE Regional Coordinator

> NE FL Rep/ Home

> ~~~~~~~~~~~~~~~~~~~~~~~~

> www.drdolittle.net/flaussierescue

> http://aussierescue.org/southeast/

> www.drdolittle.net/aussieresort

> ~~~~~~~~~~~~~~~~~~~~~~~~

> Rescuing dogs is not what

> I 'do'...... It's who I am.

>

November 14, 2004

Hello Annette, this last spring hubby was also bitten and got an immediate

rash. The Dr wanted him on 3 weeks Doxy ( 200mgs) their literature ( that

little gold book they carry) says that is the minimum of time and dose.

However, I bullied Dr into giving him 400mgs for 8 weeks. Hubbys rash was

gone in a few days as was his fatigue, but you need to stay the course of

time DONT stop meds because symptoms are gone. Sounds like you caught it

early, see if your Dr will up the med time and dose, there is TONS of info

out there that states the 400x8 weeks is good. If your Dr wont do this by

asking, you may have to get aggressive w/them. I had to print out a symptom

chart and a clinical diagnosis chart ( basically it assigns a number to each

'cause' , if you have rash its a 7, saw the tick its another, you need

score a 10 to be clinically diagnosed w/Lyme.

Also, testing is worthless right now for you, it takes at least 8 weeks

for your body to build up enough antibodies. Best of luck!

November 14, 2004

<<<My name is Annette and I live in FL. I got bit by a deer tick last weekend

and got the typical bullseye rash so my doc put me on Doxy for 3 weeks. She did

not confirm I have LD, but is treating me as such.>>>

This is a definite dx of lyme disease......any Dr. that doesn't confirm this to

you is not up on Lyme disease dx.

Conniek

November 14, 2004

Where can I find a chart like that??? That would be awesome! I definitely saw

the tick and I even kept it and photographed it to be sure. I'm just not sure of

any of this stuff...the rash is basically gone and it's only been a week. So I

am wondering....maybe it was just allergic reaction? Maybe it went away since I

got tx so soon? I felt awful yesterday, then ok most of today. Is this the norm?

Annette

I had to print out a symptom

chart and a clinical diagnosis chart ( basically it assigns a number to each

'cause' , if you have rash its a 7, saw the tick its another, you need

score a 10 to be clinically diagnosed w/Lyme.

Best of luck!

December 24, 2004

Hi Carol,

Welcome to our group. We're very happy to have you with us. Thank

you for sharing your story with us too. We all identify with your

suffering and life-long health problems. When you get a chance you

might be enlightened by reading my story in the files on the left

side-bar. I had a lot of penicillin too.

> One of the things that still hangs on is chronic

> sinusitis with horrible facial pressure/swollen

> eyes/aching etc that really does a number on me.I've

> had it for 20 years (it replaced the 9 month out of

> the year hay fever symptoms). It's been bad the last

> few weeks.

You can treat your sinuses directly with nystatin snizzles (described

in my main article in the files) or salt snizzles. Buy an infant

nasal syringe. Mix 1/2 tsp. good ocean sea salt (Celtic Sea Salt is

good) into one cup of warm clean water (mix well); allow the solution

to cool to body temperature.

Next, suck up the salt water solution to fill the bulb syringe.

While leaning forward over the sink, with your face pointing down,

not up, and with a towel handy, insert the bulb syringe into the

right nostril (never the left first!). Gentle squeeze the solution

well back into the nose. Hold your breath; do not breates in while

squeezing. Gently blow out the congestion onto a tissue. The final

step is to sniffle strongly to clear up the salt water remaining in

the very back of the nose.

Next, repeat above with the left nostril. After that use the

remaining solution as an excellent throat gargle for relieving harsh

discomfort and irritation. Do snizzles at least 4 times a day for a

few days and then stop for a few days. Alternate with acidophilus

snizzles done the same way with 1/2 tsp. of acidophilus powder in

warm water (mix thoroughly).

You can also swab the inside of your nose with a Q-tip and coconut

oil.

For swelling apply warm wet heat directly 4 times a day to the

swollen areas; use a wash cloth and warm to hot water. Essential

fatty acids (especially Omega 3) contained in a good Cod Liver Oil

are important for reducing allergic reactions and inflammation. Take

1 - 2 tbls. Cod liver oil per day.

>I've been researching and no one seems to agree on exactly how

> to do this. I have two books comming. One of them is a

> cook book. The other one is probably the last book

> written by Crook as it's dated 2002.

Most candida books do not have a correct diet, even Dr. Crooks.

After you read my main article " How to Successfully Overcome Candida "

in the files you will understand why those diets fall short. For

more information on good diets and foods please see:

www.westonaprice.org

>I did some> searching on Nystatin and it is available through an

> online pharmacy in Mexico.

Ensure that you get the nystatin intended for internal use. There is

a nystatin powder meant only for external use.

>I have purchased adrenal support from Europe before so I know it can

>be done.

For the best adrenal help do " dry skin brushing " .

> I> have had scalp problems for years which the allergist

> says is a fungus. Interesting isn't it. HMM!

You can apply good coconut oil directly to your scalp to kill the

fungus.

>Have a> VERY MERRY CHRISTMAS everyone and thanks in advance

> for the support.

You have a very merry Christmas too Carol. I'm going to be at my

daughter's for a couple of days now but will be back in touch on

Sunday.

Hugs back to you too Carol.

God bless,

Bee

September 1, 2005

Hi

Glad you have found your way back to better health. I have never bought into

the cholesterol scare tactics either. Just one more way the doctors can get

you on meds. We eat eggs, butter and meat all organic of course but have

normal cholesterol what ever that might be since they keep lowering the

number they want to see. ------

From: chrismasterjohn

Date: 09/01/05 04:28:38

candidiasis

Subject: Intro

Hi,

My name's Chris. I'm a member of the Weston A. Price Foundation and

editor of http://www.cholesterol-and-health.com

I'm beginning some antifungal treatments, diet, probiotics, etc, for

what I think is probably a systemic candida infection. I have or

have had psoriasis on my scalp, eczema (at its worst, covering about

40% of my body) digestive problems, toe fungus chronic diarrhea if

I'm not taking Primal Defense, some fatigue issues, anxiety attacks,

and a variety of other problems.

To save space, a lot of these problems were aggravated by a

vegetarian diet and fixed by a diet rich in animal foods, which can

be read about here: http://www.cholesterol-and-

health.com/Vegetarianism.html, but despite gaining a lot in my health

I've had residual problems.

I went on three rounds of antibiotics when I was 9 and 10 to treat a

recurring impetigo infection in my legs, which may have been the

start of this. My diet, especially in my early teens, was total junk

food.

Precursors of an anxiety disorder were developing around 10-11, and

when I started smoking pot at 13 got much worse. At 15 I developed

floaters in my eyes and at 17 I found out I needed glasses. 18-20

went vegetarian/vegan, which brought me lots of tooth decay.

I got two root canals, which immediately produced eczema and chronic

conjunctivitis. Both are in the teeth connected by acupuncture

meridians to the large intestine, one is removed so far. I'm

guessing that I have a focal (fungal, possibly) infection from my

root canal that is acting in conjunction with a fungal overgrowth in

my intestines.

Well, that's enough for now, I'll tell more later.

Thanks for having me as part of the group! I've just started looking

through the messages, so I hope I'll learn quite a bit.

Chris

September 8, 2005

Hello group,

Thanks for the emails of concern. Just wanted to let everyone know

that we are in the northern part of Louisiana and have been spared

this tragedy. I have had no problems shipping cultures and

appreciate everyone who has helped me to thin down my supply.

Please keep all of the people in our thoughts who are suffering in

southern Louisiana.

Y

> Hello everyone!

> Just riniging in to let everyone know that I am pleased to be a

part

> of this group. For some time I have been seeking other like minded

> folks to talk and share with.

> A bit about me:

> I am a married female with 2 cocker spaniel babies Abby (5) and

> Cormel (1) who are not sure about being dogs.

> I have several hobbies that include goat's milk soap making and

> culturing just about anything I can get my hands on. I am an avid

> follower of the NT, Fallon, WAPF way of life.

> Also, I wanted to share that I have a wealth of extra

> scoby(Symbiotic Culture Of Bacteria and Yeasts) which is the starter

> for making kombucha tea. If there is anyone looking for goat's

milk

> soaps, I do have extra for others. You can email me directly to

> discuss shipping it.

> For those who don't know, kombucha tea is a fermented drink that you

> make with a starter like sour dough bread or yogurt, and each time

> you make a new brew it produces a new scoby.

> I have about 15 new scoby and I just hate to throw them out when I

> could share them.

> I DO NOT charge for the scoby, I do ask you to cover the S & H on it.

> I ship it Priority Mail with instructions. You will have it in a

> couple of days and can get started on tea making right away. You

> will have new " baby " scoby in as little as 1 week. You will be able

> to share scoby with family and friends after a few weeks. If you

> want to get one sent to you, just email me at welovekefir@

> and give me the address that you want it shipped to.

> I have water kefir grains also, if you may be interested in those. I

> have a few milk kefir grains, too. I am literally being over-run

> with scoby so if you want them please email soon.

> Thanks for listening to me ramble on.

> Here is a link to some info on kombucha.

>

> http://w3.trib.com/~kombu/FAQ/index.shtml

> http://users.chariot.net.au/~dna/Makekefir.html#Kefir-d-acqua

> These are not my sites but they have a good FAQ area so you can look

> into it more if you need to.

> Y

September 8, 2005

Hello group,

Thanks for the emails of concern. Just wanted to let everyone know

that we are in the northern part of Louisiana and have been spared

this tragedy. I have had no problems shipping cultures and

appreciate everyone who has helped me to thin down my supply.

Please keep all of the people in our thoughts who are suffering in

southern Louisiana.

Y

> Hello everyone!

> Just riniging in to let everyone know that I am pleased to be a

part

> of this group. For some time I have been seeking other like minded

> folks to talk and share with.

> A bit about me:

> I am a married female with 2 cocker spaniel babies Abby (5) and

> Cormel (1) who are not sure about being dogs.

> I have several hobbies that include goat's milk soap making and

> culturing just about anything I can get my hands on. I am an avid

> follower of the NT, Fallon, WAPF way of life.

> Also, I wanted to share that I have a wealth of extra

> scoby(Symbiotic Culture Of Bacteria and Yeasts) which is the starter

> for making kombucha tea. If there is anyone looking for goat's

milk

> soaps, I do have extra for others. You can email me directly to

> discuss shipping it.

> For those who don't know, kombucha tea is a fermented drink that you

> make with a starter like sour dough bread or yogurt, and each time

> you make a new brew it produces a new scoby.

> I have about 15 new scoby and I just hate to throw them out when I

> could share them.

> I DO NOT charge for the scoby, I do ask you to cover the S & H on it.

> I ship it Priority Mail with instructions. You will have it in a

> couple of days and can get started on tea making right away. You

> will have new " baby " scoby in as little as 1 week. You will be able

> to share scoby with family and friends after a few weeks. If you

> want to get one sent to you, just email me at welovekefir@

> and give me the address that you want it shipped to.

> I have water kefir grains also, if you may be interested in those. I

> have a few milk kefir grains, too. I am literally being over-run

> with scoby so if you want them please email soon.

> Thanks for listening to me ramble on.

> Here is a link to some info on kombucha.

>

> http://w3.trib.com/~kombu/FAQ/index.shtml

> http://users.chariot.net.au/~dna/Makekefir.html#Kefir-d-acqua

> These are not my sites but they have a good FAQ area so you can look

> into it more if you need to.

> Y

September 8, 2005

Hello group,

Thanks for the emails of concern. Just wanted to let everyone know

that we are in the northern part of Louisiana and have been spared

this tragedy. I have had no problems shipping cultures and

appreciate everyone who has helped me to thin down my supply.

Please keep all of the people in our thoughts who are suffering in

southern Louisiana.

Y

> Hello everyone!

> Just riniging in to let everyone know that I am pleased to be a

part

> of this group. For some time I have been seeking other like minded

> folks to talk and share with.

> A bit about me:

> I am a married female with 2 cocker spaniel babies Abby (5) and

> Cormel (1) who are not sure about being dogs.

> I have several hobbies that include goat's milk soap making and

> culturing just about anything I can get my hands on. I am an avid

> follower of the NT, Fallon, WAPF way of life.

> Also, I wanted to share that I have a wealth of extra

> scoby(Symbiotic Culture Of Bacteria and Yeasts) which is the starter

> for making kombucha tea. If there is anyone looking for goat's

milk

> soaps, I do have extra for others. You can email me directly to

> discuss shipping it.

> For those who don't know, kombucha tea is a fermented drink that you

> make with a starter like sour dough bread or yogurt, and each time

> you make a new brew it produces a new scoby.

> I have about 15 new scoby and I just hate to throw them out when I

> could share them.

> I DO NOT charge for the scoby, I do ask you to cover the S & H on it.

> I ship it Priority Mail with instructions. You will have it in a

> couple of days and can get started on tea making right away. You

> will have new " baby " scoby in as little as 1 week. You will be able

> to share scoby with family and friends after a few weeks. If you

> want to get one sent to you, just email me at welovekefir@

> and give me the address that you want it shipped to.

> I have water kefir grains also, if you may be interested in those. I

> have a few milk kefir grains, too. I am literally being over-run

> with scoby so if you want them please email soon.

> Thanks for listening to me ramble on.

> Here is a link to some info on kombucha.

>

> http://w3.trib.com/~kombu/FAQ/index.shtml

> http://users.chariot.net.au/~dna/Makekefir.html#Kefir-d-acqua

> These are not my sites but they have a good FAQ area so you can look

> into it more if you need to.

> Y

March 11, 2006

Hi Lara, you can read about my story at www.BetterHealthGuy.com.

Best,

>

> Hi all

>

> I am new to the group. Have a boyfriend who was diagnosed with

ME/CFS

> for 4 yrs, but now has a positive and WB for borrelia

> infection. We think that he might have had this for many years -

was

> ill in 1994, but then in remission until 2002.

>

> We live in the UK and have lots of trouble getting our National

> Health Service to recognise that there is such a thing as a chronic

> borreliosis infection. They use a laboratory in Southampton....and

> for some strange reason the people who get positive results

elsewhere

> always seem to test negative from there.

>

> We are hoping to get some treatment for him soon. Have been offered

> two weeks IV plus oral antibiotics for 3 months. This costs a lot

of

> money though, as we do not use an insurance system in the UK, and

it

> is not available from our health service. We only have a few LLMD's

> and they are all private docs. The other option is much cheaper and

> that is to use oral anti-biotics. We have to make a decision which

> way to go.

>

> So I spent the last few years learning all about ME (Myalgic

> Encephalomyelitis) or Chronic Fatigue Syndrome (CFS) and became

very

> familiar with the research and politics on that side. Now I have to

> learn all about borreliosis/Lyme. Back to the drawing board!

>

> But we have some info in the UK that lots and lots of people

> diagnosed with ME/CFS actually have borreliosis/Lyme. The LLMD's

have

> waiting lists of several months now - all the publicity about this

> lately has sent CFS sufferers to their doorsteps to check their

> diagnoses.

>

> I was reading up on a doctor in Sunderland, UK - and a woman had

been

> suffering from Lyme disease for 11 years and couldn't get treatment

> went on hunger strike - he was the only one to help her - and sent

> her home to her family after treatment. Was a good ending to the

> story!

>

> Well, sorry I have gone on so long.

>

> Hope to get to know every one and share some experiences and advice.

>

> BW

> Lara

>

March 15, 2006

Hi, Lara,

We have a similar situation here in the US - LLMDs are booked solid, regular

docs don't recognize chronic borrelia infection, insurance doesn't cover (so

it's expensive). I'd go with the oral antibiotics myself - 400 mg of

doxycycline/day. It's reasonably inexpensive and often very effective.

Meanwhile make an appointment with an LLMD. Track daily symptoms. Go from

there.

Don't worry about the length of time your friend has gone untreated. I was

diagnosed with CFS in 1988, was in remission for many years, started having

symptoms again in 2001 following an accident and surgery. I'm doing really

well on just oral doxycycline, although the sun sensitivity is getting to be

too much, and we are changing to ceftin or amoxycillin because of it.

It just depends on the individual. Start with the affordable drug. Good

luck.

lara33_uk1 <lara33uk1@...> wrote: Hi all

I am new to the group. Have a boyfriend who was diagnosed with ME/CFS

for 4 yrs, but now has a positive and WB for borrelia

infection. We think that he might have had this for many years - was

ill in 1994, but then in remission until 2002.

---------------------------------

Bring photos to life! New PhotoMail makes sharing a breeze.

March 16, 2006

Thank you , for your helpful info and support. We will be

checking out these options and I think it is very good advice to try

the doxycycline first.

BW

Lara

>

> Hi, Lara,

>

> We have a similar situation here in the US - LLMDs are booked

solid, regular docs don't recognize chronic borrelia infection,

insurance doesn't cover (so it's expensive). I'd go with the oral

antibiotics myself - 400 mg of doxycycline/day. It's reasonably

inexpensive and often very effective. Meanwhile make an appointment

with an LLMD. Track daily symptoms. Go from there.

>

March 25, 2006

Welcome, - sorry to hear that your daughter has JRA. Is Dr. Vogler

your doctor? We also live in Georgia and his who we see. You will find a

wealth of info here - one thing that I will add for now is always make sure

that

your daughter has eaten something before the naproxen. Good luck with her

treatment. Sandi Ken Hunter (7 Systemic)

March 26, 2006

Hi and welcome to the group. I am sorry Addie has this disease and

feel free to ask any questions.

(Poly 35)

Intro

Hi everyone, just wanted to send a note and intro myself. My name is

, and I live in Georgia. My daughter, Addie (16 months) has pauci

JRA. She first started showing signs of inflamation in Sept. '05 with

a swollen toe. Then around Christmas her right knee became swollen and

then in Jan. '06 her middle finger. Right now she is on Naproxen and

has been for about 5 weeks. Already we have seen great improvement!

She crawls now (she was a butt-scooter before), and can climb the

stairs by herself, etc. Anyways, she went for a f/u w/ her Ped.

Rheumatologist yesterday and she will be starting physical therapy next

week. Hopefully this will help her so that she can learn to walk!!

Anyways, this is all so very new to me, so forgive me if in the future

I don't quite know what I'm saying. I'm so glad I found this

group. I'm sure that I'll gain lots of useful info! Thanks in advance!

Addie, 16 months

August 19, 2006

--Hi Tara, What wonderful news. So happy for you and it will give us

all hope. Which of the herbs are you on? Do you still have symptions?

I hear you about the herx. Pretty intense,but I know these critters

are headed towards the light. Keep us posted. Blessings to your

healing Joyce

- In , " Makoce " <lakotarockie@...> wrote:

>

> Hi!

>

> My name is Tara. I am a mother from the Standing Rock Rez & I live

> in OH.

>

> I was diagnosed w/ Neuro Lyme last summer after being sick for nine

> years. My bull's eye was misdiagnosed as Ringworm and I remember

> instantly got sick after I was was bitten. I have had a fever for

> ten years now along w/ many other things. Two years ago I had

> lesions all over my brain on a CAT Scan and was diagnosed w/ Optic

> Nerve damage in both eyes & of course MS.

>

> I have been a social worker/advocate for fifteen years. But have not

> been paid for my work in two years. I never thought I would have to

> advocate so hard for my own health care. It is exhausting and I

> could not find anyone to treat my neuro syptoms w/ IV OH.

>

> So I started Buhner's Neuro Protocol last fall for six months. I had

> a wicked herx that lasted the entire time it seemed. LOL When I got

> my CAT scan results & eye exam last month, they were both normal!!!

> The lesions were GONE! The damage was reversed in the optic nerves!

> A true miracle!

>

> Glad this group is here. I look forward to hearing more success

> stories which is something I am sure most of us need to hear by the

> time we have gotten to this group;)

>

> Tara

>

August 19, 2006

Hi Tara,

Wow it is so great to hear of your improvements on the herbs.Thankyou for the

inspiration. I know what you mean about advocating for health care. My daughter

went to 19 Dr.s in 12 months...misdiagnosed by all....I finally pushed for Lyme

testing but was told by Stanford and UCSF that she didn't have Lyme .....she

tested positve 2 months later. Nothing that has helped her has been covered by

Insurance but I sure wish I could have the thousands of dollars that my

insurance paid those Dr.s to misdiagnose her as she deterioated for a whole

year...that wasted money could help us stay in our home while we pay everything

out of pocket.Sorry I started a rant and we only justmet...oops. Thanks for the

post and look forward to more improvement. (Makayla'smom)

Makoce <lakotarockie@...> wrote:

Hi!

My name is Tara. I am a mother from the Standing Rock Rez & I live

in OH.

I was diagnosed w/ Neuro Lyme last summer after being sick for nine

years. My bull's eye was misdiagnosed as Ringworm and I remember

instantly got sick after I was was bitten. I have had a fever for

ten years now along w/ many other things. Two years ago I had

lesions all over my brain on a CAT Scan and was diagnosed w/ Optic

Nerve damage in both eyes & of course MS.

I have been a social worker/advocate for fifteen years. But have not

been paid for my work in two years. I never thought I would have to

advocate so hard for my own health care. It is exhausting and I

could not find anyone to treat my neuro syptoms w/ IV OH.

So I started Buhner's Neuro Protocol last fall for six months. I had

a wicked herx that lasted the entire time it seemed. LOL When I got

my CAT scan results & eye exam last month, they were both normal!!!

The lesions were GONE! The damage was reversed in the optic nerves!

A true miracle!

Glad this group is here. I look forward to hearing more success

stories which is something I am sure most of us need to hear by the

time we have gotten to this group;)

Tara

August 19, 2006

Hi ,Tara and all, Took me 23 yr to get dxed with lyme. Lost my home in the

process. Its so sad what we have all been through with this illness. Wouldn't it

be great to have all that $$$ now,that we spent. I am so excited about these

herbs.Finally have hope again. Healing blessings to you all Joyce

Berndt <nlberndt@...> wrote: Hi

Tara,