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Susie,

Have you ever been checked for high thyroid levels?

I take prozac and get that hyper feeling also and cant sleep. However, my

thyroid levels are fine.

>From: SUSIE22658@...

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>Subject: Re: [ ]Zoloft/Dr. appt/Geri/Drugs in system for too

>long.

>Date: Fri, 16 Jul 1999 20:42:34 EDT

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Guest guest

Susie,

Have you ever been checked for high thyroid levels?

I take prozac and get that hyper feeling also and cant sleep. However, my

thyroid levels are fine.

>From: SUSIE22658@...

>Reply- onelist

> onelist

>Subject: Re: [ ]Zoloft/Dr. appt/Geri/Drugs in system for too

>long.

>Date: Fri, 16 Jul 1999 20:42:34 EDT

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>From: SUSIE22658@...

>

>SueB

>No it was instantly he wanted me off the meds, especially with the liver

>disease and also because of the high doses of Zoloft I've been on. My

>depression has been pretty much medication resistant and he believe there

>must be something physical causing this severe depression I've been

>suffering

>with. Last weekend for example I was so wired I couldn't sleep-probably

>noticed more postiing from me than in the past. But I felt like I was

>going

>to crawl out of my skin and when I tried to sleep it was like my eyes still

>wanted to open! I have severe sleep problems-I can't remember the last

>night I slept through-unless it was totally drug induced! I felt like my

>mind was going to pop out of my head!! I " M SO FRUSTRATED. All I want to

>do

>is feel good and have my life back. I'm on SSDI, but I want desperately to

>return to work to feel worthwhile again. Sorry for the rambling, I'm just

>tired, blah, blah blah!!!

>Susie

>

>---------------------------

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  • 4 years later...
Guest guest

Pat,

do you want me to tell you the truth or should I lie? In my opinion, the

answer is no, the prednisone nights never get better! Of course, I only

started at 20 mg of prednisone in Jan 03. By around Aug or Sep 03, I was

down to 2.5 mg of prednisone and that's where I'm at now. The 'prednisone

nights' as I called them didn't get any better until I was down to about 5

mg of prednisone daily. I was just thankful that my disability retirement

from my job became effective in March 03, so after that I didn't have to

worry as much about not being able to get to sleep at night. I could pretty

much sleep whenever my body would allow me to sleep. There were some nights

that I accomplished more from about midnight to 4 a.m. than I had

accomplished in the whole month prior to that 'prednisone night', so it

wasn't all bad! I would say that until I got below at least 10 mg a day, I

had at least 2-3 nights a week that I just could not sleep. It was not

unusual for me to have only 3-4 hours of sleep in a 2 day or so period, then

I might sleep for 10-15 hours. When I was having a prednisone night, there

was no amount of sleeping medication that would allow me to sleep. In the

beginning, I tried taking ambien or klonopin to help me get to sleep, but

when I soon learned to recognize when I was not going to be able to sleep so

I didn't even bother wasting the medications because I knew they would do me

no good. I am fortunate that our daughters were both already away at

college prior to my AIH diagnosis, so I had no little ones to worry about

being up with. I honestly don't know how some of our members with young

children or who still work do it at times. Although, maybe if I'd had to

work, I'd have been so tired that I would have had less of the prednisone

nights just from the sheer exhaustion. I don't really know. Hopefully, you

will also be one of the lucky ones who doesn't have to be on high doses of

prednisone for a terribly long time. According to my doctors, you can count

on having side effects from the prednisone until you are on less than 5 mg a

day. Also, once you have been on more than 5 mg a day for over two weeks,

it can take your body up to a year to totally return to normal as far as

producing the right amount of natural steriods when you need it, getting rid

of the 'moon' face, and so on. I will tell you that I was just beginning to

show signs of the moon face at the time they dropped my prednisone down to 5

mg daily, so it was only a matter of weeks and any signs of the 'moon' face

were totally gone. I hope that I never have to increase my prednisone

again, but if need be in order to keep the AIH under control, I will do what

I have to do and I will deal with it the best that I can. I have chronic

pancreatitis in addition to AIH and every time I end up in the hospital with

an attack of acute pancreatitis, my doctor has them pump me full of

solumedrol and by about the second day, I am having 'prednisone nights' and

major mood swings. It takes me about a week of being home from the hospital

to quit having the mood swings. Of course, the mood swings may be as much

from simply being very sick as they are from the steriods.

Take care and hang in there. chances are you will not have to be on the

high dose of prednisone forever, although it may seem like forever to you!

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Guest guest

I started 20 mg of pred about 2 weeks ago - no sleeplessness yet. I

have been getting VERY DIZZY. Like I fell down 3 times on Saturday

and would have fallen on Sunday if I wasn't already sitting. I'm

wondering if this a blood sugar thing - any ideas?

Cora

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Guest guest

Cora, that is what was weird about me when I was dx. For about one

year before the dx, I would fall down frequently. Funny, but I never

talked to my doctor about it. By the time I was dx, I had forgotten all

about it. I just figured it was me being careless…but at the time

it did concern me. From what I know about AIH, it could have been that

the toxins had built up in my brain, thus causing me problems. I hope you

talk with your doctor about it. This could be serious.

Debby

[ ] Re:

SLEEPLESSNESS

I started 20 mg of pred about 2 weeks ago - no

sleeplessness yet. I

have been getting VERY DIZZY. Like I fell

down 3 times on Saturday

and would have fallen on Sunday if I wasn't

already sitting. I'm

wondering if this a blood sugar thing - any ideas?

Cora

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  • 4 years later...
Guest guest

I started a heavier regimen of B vitamins, especially B12, and now I sleep like

a baby ! B12, 2500 mcg, sublingual, as well as a B complex. I used to get hot

and cold all the time, that seemed to go away also !

Lynn Koiner <koiner@...> wrote: WIth Moon-Uranus-Mars in Gemini, I am

a very light sleeper anyway.

Sometimes I need help. I tried GABA and it does not work. I tried Source

Naturals NutraSleep and it does not work.

Melatonin Timed Release is better than Melatonin as it lasts a little

longer. I get this from Vitamin Shoppe. 5-HTP (I pop 3 pills) is relaxing

but it is not a sleeping pill...neither is Melatonin...just relaxing. The

problem with Melatonin is that, as soon as it is out of your system, you

wake up immediately.

The Herb Finder has a Nighttime formula with these in it:

INGREDIENTS:

Valerian Root, Hops, Wood Betony Herb, Skullcap, Black Cohosh Root, Passion

Flower, Cayenne.

This is very similar to NutraSleep and I KNOW this does not work.

I have never tried it but their Turkey Rhubarb product for constipation is

WONDERFUL! It is non-addicting and I use it every so often. I take 2 pills

with a big glass of water. This is the best!

We need someone out there who has actually tried something that works. I

know Benedryl really works but it dries out my system and one can get

bacteria settling in this way.

Lynn

Re: castor oil

>

> I have tried a lot and only 2 things work -- Melatonin TIMED RELEASE and

> 5HTP (3 pills). The 5-HTP is used by people with fibromyalgia who have

> sleeping disorders. With both, you have to lay down and relax or they

> will

> not work.

> GABA does nothing for me either and some people get headaches.

> There must be something else! Watching a dull dvd REALLY helps...Lynn

>

>

>

> No virus found in this outgoing message.

> Checked by AVG.

> Version: 7.5.519 / Virus Database: 269.22.1/1348 - Release Date:

> 28/03/2008 10:58 AM

>

>

>

> ------------------------------------

>

>

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Guest guest

hi,

i have had problems with sleeplessness all of my adult life and i've tried most

everything, natural and otherwise. While attending a yoga retreat, I met

another yogi with similar problems and she highly recommended taking

calcium/magnesium supplements and gave me a few to try. I was skeptical of

course but tried it out of desperation and...... it worked!

I usually take half of a tab. I think that different body chemistries respond

differently to all kinds of treatments. Try this and if it doesn't work, keep

trying other sorts of solutions. Eventually you will find one that works for you

..

good luck , Jackie

Lynn Koiner <koiner@...> wrote: WIth Moon-Uranus-Mars in Gemini, I am

a very light sleeper anyway.

Sometimes I need help. I tried GABA and it does not work. I tried Source

Naturals NutraSleep and it does not work.

Melatonin Timed Release is better than Melatonin as it lasts a little

longer. I get this from Vitamin Shoppe. 5-HTP (I pop 3 pills) is relaxing

but it is not a sleeping pill...neither is Melatonin...just relaxing. The

problem with Melatonin is that, as soon as it is out of your system, you

wake up immediately.

The Herb Finder has a Nighttime formula with these in it:

INGREDIENTS:

Valerian Root, Hops, Wood Betony Herb, Skullcap, Black Cohosh Root, Passion

Flower, Cayenne.

This is very similar to NutraSleep and I KNOW this does not work.

I have never tried it but their Turkey Rhubarb product for constipation is

WONDERFUL! It is non-addicting and I use it every so often. I take 2 pills

with a big glass of water. This is the best!

We need someone out there who has actually tried something that works. I

know Benedryl really works but it dries out my system and one can get

bacteria settling in this way.

Lynn

Re: castor oil

>

> I have tried a lot and only 2 things work -- Melatonin TIMED RELEASE and

> 5HTP (3 pills). The 5-HTP is used by people with fibromyalgia who have

> sleeping disorders. With both, you have to lay down and relax or they

> will

> not work.

> GABA does nothing for me either and some people get headaches.

> There must be something else! Watching a dull dvd REALLY helps...Lynn

>

>

>

> No virus found in this outgoing message.

> Checked by AVG.

> Version: 7.5.519 / Virus Database: 269.22.1/1348 - Release Date:

> 28/03/2008 10:58 AM

>

>

>

> ------------------------------------

>

>

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Guest guest

The insomniac herbal formula I tried had valerian and passion flower as well as

chamomile

and some kind of grass. I was so sick from it that I won't risk anything with

those in

it.

I bought a calcium magnesium powder a couple of weeks ago and unfortunately it

sits on my

counter unused, so Jackie I am going to take some right now. Thanks for that

suggestion.

a

Re: sleeplessness

hi,

i have had problems with sleeplessness all of my adult life and i've tried most

everything, natural and otherwise. While attending a yoga retreat, I met

another yogi

with similar problems and she highly recommended taking calcium/magnesium

supplements and

gave me a few to try. I was skeptical of course but tried it out of desperation

and......

it worked!

No virus found in this outgoing message.

Checked by AVG.

Version: 7.5.519 / Virus Database: 269.22.1/1350 - Release Date: 30/03/2008

12:32 PM

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Guest guest

Hi Lynn,

As I said to Jackie, I won't risk those ingredients in the Nighttime formula in

my system

again. They did work though, but the vomiting for three days after was too much

for me.

I used to be able to sleep any time, any place.

I already downed some calcium-magnesium after reading Jackie's post, and will

see how that

works, along with some B's.

a

sleeplessness

The Herb Finder has a Nighttime formula with these in it:

INGREDIENTS:

Valerian Root, Hops, Wood Betony Herb, Skullcap, Black Cohosh Root, Passion

Flower, Cayenne.

This is very similar to NutraSleep and I KNOW this does not work.

No virus found in this outgoing message.

Checked by AVG.

Version: 7.5.519 / Virus Database: 269.22.1/1350 - Release Date: 30/03/2008

12:32 PM

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Guest guest

Jackie, you just reminded me of something a nurse recommended to me a long time

ago....drink warm milk. This has the calcium but the warm milk put me right to

sleep. Thanks for the mental nudge...Lynn

Re: castor oil

>

> I have tried a lot and only 2 things work -- Melatonin TIMED RELEASE and

> 5HTP (3 pills). The 5-HTP is used by people with fibromyalgia who have

> sleeping disorders. With both, you have to lay down and relax or they

> will

> not work.

> GABA does nothing for me either and some people get headaches.

> There must be something else! Watching a dull dvd REALLY helps...Lynn

>

>

>

> No virus found in this outgoing message.

> Checked by AVG.

> Version: 7.5.519 / Virus Database: 269.22.1/1348 - Release Date:

> 28/03/2008 10:58 AM

>

>

>

> ------------------------------------

>

>

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  • 1 year later...
Guest guest

clcjames wrote:

> .....I can deal with it if I know the cause, and hopefully that it will go

away!! Thanks. Chris

I'm 2 months post-op and although I had the same thing going on for what

seemed like a long time, the last week or so now I'm back to sleeping

like a rock. Last night sometime in the middle of the night I dreamed

the dog was growling, then gradually came to realize the dog WAS

growling. When I rolled off him (and he's no small dog!) he quit

growling! So I guess I'm there :)!

SJ, in Maine

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Guest guest

Could be rebound from stopping the Tramadol, if so, will pass. Lots of

people get to this point after THR and TKR, where you're not in pain, it

just doesn't " feel right " so you know you don't need pain meds.

As for sleep meds, Ambien works for me and is worth it. There is the risk

of dependency (not addiction) but that is combatted, when you are ready to

stop the Ambien, you take Rozerem, a melatonin-like medication for about 2

weeks. This helps regulate your sleep-wake cycles and then you can wean off

the Ambien, every other night, then every two nights. It really works, I

have done this twice now after each shoulder joint replacement. I was very

concerned about Ambien dependency, I just want to take as few meds as

possible like everyone else. This regimen was recommended by my pain

management speclialist when I asked about the Ambien.

Because I have had 3 joint replacements within a year's time, I have had so

much pain and couldn't sleep without the Ambien. It was so helpful during

these periods when the pain has gone down but things just don't " feel

normal " and I wake up like you are doing.

This is just my opinion and some people do NOT react well to Ambien. Just,

if you ARE on it, please don't stop it abruptly. To me the rebound is awful

(jittery, restless, headaches). Please ask your Doctor (your GP will do)

before you start or STOP any med.

In peace,

Ann C. Pal, PT in SC

R TKR 2000

L TKR 2008

R TSR 2008

L TSR 2009

On Mon, May 25, 2009 at 10:33 AM, clcjames <clcjames@...> wrote:

> Anyone have any answers for me? I am 3 1/2 weeks post TKR, no longer in

> agony, so have stopped taking Tramadol (last one was 24 hours ago). Since

> surgery, I have had trouble sleeping. When I do get to sleep, I sleep well,

> but generally only for a couple of hours, then the pain would wake me and I

> would have to change position, wait for the knee to calm down, then sleep

> another two hours or so before it started again. I thought once the worst of

> the pain was over, that would no longer be a problem, but last night, I

> slept really well for 4 hours, then had to get up to the bathroom. I never

> did get back to sleep. I was NOT in pain, I just couldn't get back to sleep.

> This is very unusual for me, as I have always been able to fall back to

> sleep easily. I am seeing my GP today for a checkup of the incision and will

> mention it to him, but I don't want to take sleeping pills and become

> dependent on them. I really just would like to know if there is a connection

> between the knee surgery, the meds, and not sleeping. I can deal with it if

> I know the cause, and hopefully that it will go away!! Thanks.

> Chris

>

>

>

> ------------------------------------

>

>

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Guest guest

I wouldn't worry about sleeplessness after 3 1/3 weeks. I had THR and

it was quite a while before I could sleep through the night as I also

would wind up getting up once or twice during the night and have to

walk around before I got back to bed. I would use this time to go on

the computer or watch some television. I did find that having

something on the television that wasn't particularly interesting would

often lull me back to sleep -- most televisions have a timer which I

would set for about 30 minutes or so.

I didn't worry about it but I don't really worry much about insomnia

because I find I generally make up for it either by napping the next

day (which is one of the great perks about recovering from surgery) or

sleeping more the next night.

I took sleeping pills - Ambien and something else for awhile and

wasn't particularly worried about getting addicted to them but I also

wasn't worried about insomnia. Just my opinion, but I think if

people didn't worry so much about insomnia, they would get back to

sleep more easily LOL.

On May 25, 2009, at 8:11 AM, Ann Pal wrote:

>

>

> Could be rebound from stopping the Tramadol, if so, will pass. Lots of

> people get to this point after THR and TKR, where you're not in

> pain, it

> just doesn't " feel right " so you know you don't need pain meds.

>

> As for sleep meds, Ambien works for me and is worth it. There is the

> risk

> of dependency (not addiction) but that is combatted, when you are

> ready to

> stop the Ambien, you take Rozerem, a melatonin-like medication for

> about 2

> weeks. This helps regulate your sleep-wake cycles and then you can

> wean off

> the Ambien, every other night, then every two nights. It really

> works, I

> have done this twice now after each shoulder joint replacement. I

> was very

> concerned about Ambien dependency, I just want to take as few meds as

> possible like everyone else. This regimen was recommended by my pain

> management speclialist when I asked about the Ambien.

>

> Because I have had 3 joint replacements within a year's time, I have

> had so

> much pain and couldn't sleep without the Ambien. It was so helpful

> during

> these periods when the pain has gone down but things just don't " feel

> normal " and I wake up like you are doing.

>

> This is just my opinion and some people do NOT react well to Ambien.

> Just,

> if you ARE on it, please don't stop it abruptly. To me the rebound

> is awful

> (jittery, restless, headaches). Please ask your Doctor (your GP will

> do)

> before you start or STOP any med.

>

> In peace,

>

> Ann C. Pal, PT in SC

> R TKR 2000

> L TKR 2008

> R TSR 2008

> L TSR 2009

>

> On Mon, May 25, 2009 at 10:33 AM, clcjames <clcjames@...> wrote:

>

> > Anyone have any answers for me? I am 3 1/2 weeks post TKR, no

> longer in

> > agony, so have stopped taking Tramadol (last one was 24 hours

> ago). Since

> > surgery, I have had trouble sleeping. When I do get to sleep, I

> sleep well,

> > but generally only for a couple of hours, then the pain would wake

> me and I

> > would have to change position, wait for the knee to calm down,

> then sleep

> > another two hours or so before it started again. I thought once

> the worst of

> > the pain was over, that would no longer be a problem, but last

> night, I

> > slept really well for 4 hours, then had to get up to the bathroom.

> I never

> > did get back to sleep. I was NOT in pain, I just couldn't get back

> to sleep.

> > This is very unusual for me, as I have always been able to fall

> back to

> > sleep easily. I am seeing my GP today for a checkup of the

> incision and will

> > mention it to him, but I don't want to take sleeping pills and

> become

> > dependent on them. I really just would like to know if there is a

> connection

> > between the knee surgery, the meds, and not sleeping. I can deal

> with it if

> > I know the cause, and hopefully that it will go away!! Thanks.

> > Chris

> >

> >

> >

> > ------------------------------------

> >

> >

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Guest guest

I'm 6 weeks from second TKR. This time I took Tramadol and Percocet which

worked OK and no insomnia until week 5. Then I had bad insomnia and no amount

of Ambien or any other sleep med made a dent in the insomnia.

I got on the drug side effect sites on the internet and Tramadol is known to

cause insomnia. Since I'm so sensitive to all other meds I stopped the Tramadol

and Percocet and went through about 4 days of withdrawal (nausea, diarreha,

fatigue). I've been taking nothing for pain since 5 weeks, but doubt I could

have done it at 3.5 weeks.

If I were you, only at 3.5 weeks, I'd ask for different pain meds. Darvocet was

good on my first surgery and Vicodin. I didn't think Tramadol was very

effective for pain anyway.

If you're anything like me, the tramadol is causing your insomnia.

Personally I feel sleep is very important, that's when the body heals itself. I

pull out all the stops to get meds that let me sleep. But sleep meds were not

strong enough to counter the Tramadol insomnia in my case.

Hollie

Hopefully you can

> Anyone have any answers for me? I am 3 1/2 weeks post TKR, no longer in agony,

so have stopped taking Tramadol (last one was 24 hours ago). Since surgery, I

have had trouble sleeping. When I do get to sleep, I sleep well, but generally

only for a couple of hours, then the pain would wake me and I would have to

change position, wait for the knee to calm down, then sleep another two hours or

so before it started again. I thought once the worst of the pain was over, that

would no longer be a problem, but last night, I slept really well for 4 hours,

then had to get up to the bathroom. I never did get back to sleep. I was NOT in

pain, I just couldn't get back to sleep. This is very unusual for me, as I have

always been able to fall back to sleep easily. I am seeing my GP today for a

checkup of the incision and will mention it to him, but I don't want to take

sleeping pills and become dependent on them. I really just would like to know if

there is a connection between the knee surgery, the meds, and not sleeping. I

can deal with it if I know the cause, and hopefully that it will go away!!

Thanks.

> Chris

>

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  • 1 year later...

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