Alcohol

[Guest guest]

Dear ,

It is so interesting to hear this perspective! My original plan was to

cut out things that I don't care about so much, which create added strain on

the liver (ie. meat, saturated fats, greasy foods, sugar etc). I am very

conscious of my diet, and have increased " liver friendly " foods and herbal

supplements. When I get a little more energy, I'll also be on my exercise

routine again. Anyways, I figure if I make all of these lifestyle changes,

then I can OCCASIONALLY go out for a night of drinking?!?!? Is this what

you do? I'm really hoping I have this option. I love to drink! When you

binge drank a few weeks ago, how did it interact with your meds? I'd prefer

to cut out the drinking in moderation, and just have an all-out drinking

night once in a while. Ah dear. Let me know what you think!

>From: " .Hutchinson " <brandy.hutchinson@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] to introduce myself

>Date: Mon, 10 May 1999 08:12:56 -0700

>

>From: " .Hutchinson " <brandy.hutchinson@...>

>

>Hello and

>

>

>I was diagnosed when I was 23 years old and now am 26!! The Drinking

>thing was a huge challenge especially in the beginning. I hit remission

>in the first year, but I did not change my life style very much! I

>started drinking wine *(because i told my self it was not a real drink)

>lol

>

>Any ways in the second year I became ill again and stayed that way till

>recently ( high liver emymies) I quit drinking for the last year, until

>this month when I got all that bad news!! I KNOW IT DOES NOT SOLVE

>PROBLEMS) But I wanted too escapee. I had three shots of tequila, and

>4 vodka coolers!! 3 weeks ago!! I did not tell my doctor, but i've been

>on that new med for two months and my liver test have never been better.

>

>This drinking thing certainly is not going to be a habit, and when I

>became ill my doctor said a beer once in a while won't hurt!! Just not

>every night!! and not in large amounts!!

>]

>It's hard when the past few years you spent parting with your friends

>and now your the premanted d & d!!

>

>But you no what I did everything right this past year, watched my diet,

>did not drink, etc... and I was the sickest!!! I stop being so paranoid

>and just live and I'm now doing well!!

>

>Just live!!

>

>

>

>

>

>

>------------------------------------------------------------------------

>

[Guest guest]

Dear ,

Thanks for your sharing your viewpoint on this. It's good you recognize the

dangers of drinking, because they are real. Maybe the fact that your levels

dropped after drinking is due, not to the drinking, but to the positive

outlook you've had around this time! It seems that your attitudes have

changed significantly (that's awesome!), which has probably lowered your

stress levels like crazy! Personally, I think I'll have to wait until

tomorrow to see exactly what stage I'm at (I get the results of my biopsy!).

Hopefully, a drink now and again will be ok. Like you said, I may get

drunk off of 2 now!!! (Wouldn't that be nice?!?!?) I'm getting kind of

nervous. My boyfriend, whom I rely on like you wouldn't believe, is in

Europe for 6 weeks!! I love him, but I miss him. Somehow, I just don't feel

as strong when he's not here...

I'm going to try to adopt your view of living " with " the disease, not " for "

it. It would be nice to feel normal again, and simply live.

Thanks again for responding!

>From: " .Hutchinson " <brandy.hutchinson@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] Alcohol

>Date: Mon, 10 May 1999 12:50:53 -0700

>

>From: " .Hutchinson " <brandy.hutchinson@...>

>

>Hi

>

>lol at this moment the biggest problem for me is my riding lawn mower

>is broke, I love that machine!! lol

>

>Any ways when I was first diagnosed i was in huge denial!! And kept

>drinking!! well wine lol. (not a real drink) lol. I kept eating crap

>and drinking and i went into remission in the first year on imuran and

>predsione. I responded really well.

>

>I was told not to drink because my liver was working hard enough without

>making it work harder with drinking.

>

>I went of predisone when I hit remission and I stopped drinking and I

>started eating a bit better!! and For the last two years I have not

>been responding to meds or anything!! up until the last three weeks.

>

>In the beginning when I drank I was on high doses of pred and the only

>thing that happened was my right foot would swell??? and I'd be tired

>for a couple of days.

>

>three weeks ago when I drank, I had a wonderful time!! it was so nice

>to not worry about my illness, work etc.. and just let lose!! mind you

>I slept the next day, (all day) but I did not puke!! I was just tired.

>

>Really if you have liver problems drinking is not a good idea!! But

>when I was being diagnosed I thought I drank allot then, but doctors

>said the binge drinking i did on weekends, would not damage my liver.

>Doctors said I should not drink, but one or two once in a while will not

>hurt me!! So 5-6 I won't tell any body lol.

>

>i tried doing things by the book and I was really sick, I was obsessing

>over it, and there gonna send me to a phychritist?? I just started to

>live, sure I can live without drinking, but once in a while is not gonna

>hurt me!! Every weekend maybe!! once every few months no big deal!!

>Oh and I won't mix my drinks (much) and I try to drink the drinks with

>less achohol in them. Oh I find little reaction besisdes I can get

>drunk off of two drinks now!! so I'm a pretty cheap drunk, and two

>drinks is my limit, just be careful.

>

>I know people will disagree with me and that's fine!! Since I have been

>sick I have drank allot twice! After each time my liver test have

>dropped????? I kid and say champagne or tequila is a cure!! lol

>

>I know it's not and I know it's bad, but there are all kinds of things

>that are bad for us!! if used in excess!! that ice cream cone or that

>big mac!! And did u no that imuran can give you hepatitis?? but we are

>on it for aih??? go figure!! It also can cause liver cancer if take for

>a long time!!! So I'm sure I will die from these meds way before the

>damage from the alcohol catches up to me!! The once or twice I might

>indulge!! I'll take that chance.

>

>This is just how I feel, I'm responsible, and I'm aware of this illness,

>but I am stopping living for this illness and I'm going to start living

>with it!!

>

>

>

>

>------------------------------------------------------------------------

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[Guest guest]

Geri,

I love Pina Colodas too!!! They're such a fun, summer drink! Maybe I'll

split the occasional one with my boyfriend - just to get the taste!

>From: Geri Spang <spangs@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] Alcohol

>Date: Mon, 10 May 1999 14:00:08 -0700

>

>From: Geri Spang <spangs@...>

>

>,

>I still order a Pina Colada everytime we go out for Mexican food. I like

>the way they taste. I seldom finish it, but it's just part of the fun. I

>also love those fruity rum drinks that some Asian and Polynesian

>restaurants serve, but I wouldn't dare take more than a sip or two, mostly

>because I can " feel " the effects almost immediately. If it's socially more

>comfortable, I'll allow someone to pour me a glass of wine and then I just

>don't drink it. No one notices after the first glass whether you're on the

>first or the fifth, so it's a way to blend in if that's important.

>

>I won't get on my Nation grandstand about the dangers of that old

>demon rum, but even those without liver disease should always be aware

>that drinking can become a trap. Ironically, if we enjoy it too much,

>that's usually a good sign that we shouldn't drink. Hope I don't sound

>preachy, though I probably do. I'm just about the only person in our group

>of family and friends who rarely if ever drinks, but I do think that booze

>carries more than it's share of danagers.

>

>i

>

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[Guest guest]

Hi

lol at this moment the biggest problem for me is my riding lawn mower

is broke, I love that machine!! lol

Any ways when I was first diagnosed i was in huge denial!! And kept

drinking!! well wine lol. (not a real drink) lol. I kept eating crap

and drinking and i went into remission in the first year on imuran and

predsione. I responded really well.

I was told not to drink because my liver was working hard enough without

making it work harder with drinking.

I went of predisone when I hit remission and I stopped drinking and I

started eating a bit better!! and For the last two years I have not

been responding to meds or anything!! up until the last three weeks.

In the beginning when I drank I was on high doses of pred and the only

thing that happened was my right foot would swell??? and I'd be tired

for a couple of days.

three weeks ago when I drank, I had a wonderful time!! it was so nice

to not worry about my illness, work etc.. and just let lose!! mind you

I slept the next day, (all day) but I did not puke!! I was just tired.

Really if you have liver problems drinking is not a good idea!! But

when I was being diagnosed I thought I drank allot then, but doctors

said the binge drinking i did on weekends, would not damage my liver.

Doctors said I should not drink, but one or two once in a while will not

hurt me!! So 5-6 I won't tell any body lol.

i tried doing things by the book and I was really sick, I was obsessing

over it, and there gonna send me to a phychritist?? I just started to

live, sure I can live without drinking, but once in a while is not gonna

hurt me!! Every weekend maybe!! once every few months no big deal!!

Oh and I won't mix my drinks (much) and I try to drink the drinks with

less achohol in them. Oh I find little reaction besisdes I can get

drunk off of two drinks now!! so I'm a pretty cheap drunk, and two

drinks is my limit, just be careful.

I know people will disagree with me and that's fine!! Since I have been

sick I have drank allot twice! After each time my liver test have

dropped????? I kid and say champagne or tequila is a cure!! lol

I know it's not and I know it's bad, but there are all kinds of things

that are bad for us!! if used in excess!! that ice cream cone or that

big mac!! And did u no that imuran can give you hepatitis?? but we are

on it for aih??? go figure!! It also can cause liver cancer if take for

a long time!!! So I'm sure I will die from these meds way before the

damage from the alcohol catches up to me!! The once or twice I might

indulge!! I'll take that chance.

This is just how I feel, I'm responsible, and I'm aware of this illness,

but I am stopping living for this illness and I'm going to start living

with it!!

[Guest guest]

,

I still order a Pina Colada everytime we go out for Mexican food. I like

the way they taste. I seldom finish it, but it's just part of the fun. I

also love those fruity rum drinks that some Asian and Polynesian

restaurants serve, but I wouldn't dare take more than a sip or two, mostly

because I can " feel " the effects almost immediately. If it's socially more

comfortable, I'll allow someone to pour me a glass of wine and then I just

don't drink it. No one notices after the first glass whether you're on the

first or the fifth, so it's a way to blend in if that's important.

I won't get on my Nation grandstand about the dangers of that old

demon rum, but even those without liver disease should always be aware

that drinking can become a trap. Ironically, if we enjoy it too much,

that's usually a good sign that we shouldn't drink. Hope I don't sound

preachy, though I probably do. I'm just about the only person in our group

of family and friends who rarely if ever drinks, but I do think that booze

carries more than it's share of danagers.

i

[Guest guest]

That pina colada must be very good to take chances like that, I stay with

the Virgin type.

[Guest guest]

Hi,

I don't think that a few sips of a Pina Colada once every month or two has

a ratio effect of 1 to 1, i.e., I doubt that I'm going to advance my liver

disease by this. The risk would be from drinking on a regular basis from

all of the literature I've read. However, I do know what you're saying.

We shouldn't take chances and it's foolish to aggravate our conditions

knowingly. I'm a fairly moderate person in my personal habits. We we all

have to know ourselves, and I know that I'm not going to do anything to

extremes nor am I going to deliberately harm myself. Surprisingly, I've

never been told by any of my doctors that I shouldn't drink. Maybe they

assume that I don't or won't or maybe they've come to know me well enough

to realize that I don't go off in extreme directions. Generally, your point

is good and I appreciate and understand why you've made it.

Take care,

Geri

[Guest guest]

Hello

I'm on a man hating thing today!!

Jeff has decided not to talk to me?? he been quite for 24hrs?? kinda

nice!!

I really don't understand why he is mad at me!! I believe his diabetes

is out of control again and he is in denial!! He been having tantrums

and not sleeping for two weeks now!! getting a little tiring!!

any ways what this have to do with you??? you said you don't feel that

strong with out your boyfriend?? YES YOU ARE!!!!!! it's nice to have

good healthy moral support, but you are strong to stand on ur own!!

Sounds like I'm trying to make myself believe that?? I AM lol

brandy

[Guest guest]

,

Awhile back I ordered a " virgin " MaiTai at an Asian restaurant and they

brought me one with alcohol in it anyhow. I've had that happen more than

once, not just to me, but I've seen alcoholic drinks served to minors when

" virgin " drinks were ordered. Of course most of us can tell if there's

alcohol in the drink but not always. I do like the taste of a Pina Colada

and let's face it, the rum adds to the flavor. However, I don't need more

than a couple of sips to enjoy the drink. And, my husband appreciates my

generosity.

Take care,

Geri

[Guest guest]

Geri, I'm sure you already now that the liver is the organ responsible for

changing everything you drink, stuff that would cause your body harm, it

takes it and changes it to a form the body can use. This will only make the

liver work harder than you normally want it to do. I know before that my

doc. told me not to drink. All three of my Doc. BUT one said if you want

to take a zip. It better be a good one, and he suggest once a year a zip.

just a tiny weeny zip. WHY tease myself with something like that.

LOL

[Guest guest]

,

I don't enjoy feeling intoxicated. Never have. I don't even enjoy the

taste of most alcoholic drinks, so not drinking is no big deal for me. I

so rarely haved a few sips of the only alcoholic drinks that do taste good

to me that it's hard to worry about them. Also, casino restaurants tend to

water down their drinks so much that I often wonder if they do more than

wave the bottle over the top of the glass. Ordering a rare drink is my way

to have just a hint of a normal life again and sometimes I just feel like

rebelling against the way my life has changed. I want to feel free to do

anything I want to do, whether it's good for me or not. But, I wouldn't

recommend that for everyone. Remember, I'm older and I've already had a

pretty full life. I'm darned lucky I've gotten this far, considering some

of the other risks I've taken and the law of averages.

Truth is, because of rampant alcoholism in my immediate family, I'm pretty

grim about drinking most of the time. Recently when my husband's

step-mother followed my husband around pushing another glass of wine at him

(he has a potential drinking problem but I'm so vigilant about it he gives

up because I'm tougher and passionately anti-alcohol) I got angry and told

her that she was not to insist he have another drink or I could guarantee

I'd become very, very angry and would leave her house.

The thing is, my Dad was an alcoholic but he died from heart failure years

after he'd stopped drinking. One of my brothers was an alcoholic and he

died from pancreatic cancer. Another brother neither drank nor smoked and

was very careful about his health and he was murdered by a stranger. One

of those random, horrible acts of violence you read about. Our oldest son

also had an alcohol problems and he died 2 years after being diagnosed with

Lou Gehrig's disease. It's made me realize that in the end, anything can

happen no matter how careful we are. Life is so fragile and good health is

something we should treasure. We have to take care of ourselves within

reason, but there are times when I just don't want to have to worry about

these things. I've seen too much of how other things can reach out and get

you and fear can rule your life. I won't do anything that will make me

sick, though. I don't like feeling sick!

How are you doing?

Take care,

Geri

[Guest guest]

,

Forgot to add a P.S.: All of these people I mentioned except my one

brother had smoked since they were teens and everyone warned them about the

dangers of smoking. They refused to quit because they enjoyed it, and when

you think about it, what difference would it have made?

Geri

[Guest guest]

Hey Geri,

The thing which i do the most is eat. I eat just about everything, you name

it I eat it!! Talking about HOGondaz ice cream gave me the craving I take

one of those liter of ice cream in one scoop, Their have been times i ate

two of them. They must have implanted MSG or something in it, for me to

crave it so much. Then Chocolate Milk, wow, I buy the big quik is 3 pds

and 8 ounces I can handle that in 3 to 4 days. I'm a bad boy. I love to eat

the chocolate off the bottom. YUMMY< YUMMY Is it the predisone and Imuran

or me? HEY it's all good! :-)

LOL

MIguel

[Guest guest]

You are wonderful!!!!!!!!!

Now I don't feel so bad I'm heading to the DQ!!! You consume as much as

I do (chocolate ) lol

[Guest guest]

Hi Everyone,

I have to say this about drinking coffee. 3 days after I was married to my

second husband he got up before me, woke me with coffee in hand, (well in a

cup, he he he), at my bedside. Enough said. LOL..

Have a good day, and remember...Laughter is the music of a happy heart, love

is it's sustenance. Sooooo...laugh a lot, it is healing.

Joan, AIH, PBC, HBP

Florida

[Guest guest]

I've found that grape juice can be really good. I bought a bottle at a

winery once and a number of my friends who could have drunk wine helped

me finish the bottle! Either white or red grape juice looks good in a

wine glass and no one can tell it's not wine so I don't feel so awkward.

I think I prefer it to the non-alcoholic wines which I find to be too

sweet.

Wheeler wrote:

>

> From: Wheeler <nancy@...>

>

> Athie,

>

> I have had the same feelings as you about drinking alcohol.. I never

> used to care one way or another about it, but did take an occasional

> drink socially. Now that my dr. has told me I must never use alcohol I

> am feeling nostalgic and thinking about the holiday season and me with

> my festive 7up. I gave up caffeine also, though dr. now says for that

> once or twice a week would be all right. I guess that means Pepsi for

> the holidays. : ) Usually I drink just artesian well water. A

> margarita really would taste good!

>

> AIH Oregon Coast

>

> ---------------------------

[Guest guest]

Hi Geri...

The reason he brought the coffee was a defense mechanism...I am a bear

without my first cup of coffee in the morning....LOL....tread lightly, don't

talk, and stay out of my way...I recently went on a trip to Little Rock with

some friends I meet on line.

The first morning there, we were all sitting at the table, my best friend is

chatty kathy in the morning. I picked up my coffee and left. I wanted to

gag her. The next morning she only mouthed the words...I thanked her...but

everyone laughed...it was funny...

My Doctor did tell me to drink water only, or fruit juices. I explained my

addiction in the morning and was told I could have 1 cup of decaf. So I

cheat, but this is the only time I do.

I have a question for everyone. Does you liver ever feel hot to you? I don't

have the pain you all talk about but I sure do have the heat. You can put

your hand over my lever and it is really hot. I have no fever, nor am I hot

any where else. I am asking the doctor when I go my next visit. Any one else

have this..

Have a good day, and remember...Laughter is the music of a happy heart, love

is it's sustenance. Sooooo...laugh a lot, it is healing.

Joan, AIH, PBC, HBP

Florida

[Guest guest]

Geri,

The best non-alcoholic champagne I know about is called Fre' made by Sutter

Homes and cost $4-5 per bottle. They serve it in some of the nicer

restaurants or you can buy it in alot of the grocery stores now. It tastes

like the real thing!

(AIH)

[Guest guest]

Hi ,

I drink coffee everyday. My Doctor never said I couldn't. I would hate to

give up my one and only vice left!

Athie AIH

[ ] Alcohol

> From: Wheeler <nancy@...>

>

> Athie,

>

> I have had the same feelings as you about drinking alcohol.. I never

> used to care one way or another about it, but did take an occasional

> drink socially. Now that my dr. has told me I must never use alcohol I

> am feeling nostalgic and thinking about the holiday season and me with

> my festive 7up. I gave up caffeine also, though dr. now says for that

> once or twice a week would be all right. I guess that means Pepsi for

> the holidays. : ) Usually I drink just artesian well water. A

> margarita really would taste good!

>

> AIH Oregon Coast

>

>

>

>

> ---------------------------

[Guest guest]

Joan,

I don't drink coffee for no reason except that I got so disgusted looking

at dirty coffee pots at work I stopped drinking it years ago. However, I

still enjoy a rare cup of good, rich coffee. My doctors haven't told me

not to drink coffee or warned me about caffeine in any way, though I guess

too much of it isn't so good for anyone. But, anything done to excess is

probably not a good deal. What a nice husband, to bring you coffee in bed.

My hubby brings me orange juice now that he's not working. I think it's

his gentle way of hinting it's time for me to get up and get rolling!

Take care,

Geri

[Guest guest]

Hey all,

My doctor said that non-alcoholic beers and wines, even though there is a

trace, are okay. Just another example of how different doctors are seeing

different patients and giving each on of us different advice.

Also my Dr. said that caffenie is okay. When I was in the hospital, after my

recent incident in the hospital I was able to drink Pepsi several days

afterwards (although I had to send my father ooutside of Metro Hospital to

buy pepsi since the whole hospital wass Coke products.) It was the one thing

that I couldn't wait to have again after beginning to function after the

coma.

But along the lines as others, I still miss an occasional drink after work

with my friends and this is especially true working in the restaurant biz.

Also working for a national steakhouse it is hard to get around the staff

wine tastings without tasting any of the products, but luckily all of the

staff knows what I have been through and why I don't drink with them.

WHAT I WOULDN'T GIVE TO HAVE ONE NICE GLASS OF WINE AFTER WORK ONE DAY!

Peace

[Guest guest]

Barbara,

I haven't tried grape juice, but it sounds like a good idea. I wonder if

restaurants serve it? Once we were driving through France and stopped at a

charming little roadside place. Sat in the garden and ordered lunch and my

husband ordered a small bottle of wine. He commented on how good it was.

I took a look at the label and saw that it said, " Sans Alcool. "

Non-alcoholic! He didn't even know the difference and he likes to think he

knows decent wine when he tastes it. We noticed that Europeans don't

hesitate to dilute wine with water, incidentally, though " purists " in the

US see that as sacrilege. I think it's a cultural thing with us and we

view drinking as " fun " where over there it's often something only done

appropriately, not for the sake necessarily of feeling " good " .

But, there are many people who shouldn't drink at all, and not just people

who have liver disease. It's also poison for anyone with an alcohol

dependency and it distresses me when I see well-meaning (or mindless)

people push drinks on someone they know should NOT drink.

There are many alternatives to alcohol available now and they aren't

glaringly obvious like Cola, etc. However, I do have a difficult time

finding something available in a restaurant besides iced tea or sticky

sweet lemonade. I wish more of them carried non-alcoholic wines but

they're in the business to make money and I guess it's not profitable

enough for them to consider.

Take care,

Geri

[Guest guest]

I was told to stop coffee a year or so ago. It is bad for autoimmune

disease in particular fibromyalgia..So I did quit..It wasnt easy

however..but now I really dont miss it..

just my 2cents

Jody

--- Geri Spang <spangs@...> wrote:

> From: Geri Spang <spangs@...>

>

> Joan,

> I don't drink coffee for no reason except that I got

> so disgusted looking

> at dirty coffee pots at work I stopped drinking it

> years ago. However, I

> still enjoy a rare cup of good, rich coffee. My

> doctors haven't told me

> not to drink coffee or warned me about caffeine in

> any way, though I guess

> too much of it isn't so good for anyone. But,

> anything done to excess is

> probably not a good deal. What a nice husband, to

> bring you coffee in bed.

> My hubby brings me orange juice now that he's not

> working. I think it's

> his gentle way of hinting it's time for me to get up

> and get rolling!

> Take care,

> Geri

>

>

>

>

> ---------------------------

[Guest guest]

I think restaurants should serve sparkling cider and sparkling grape juice.

Actually I prefer them to wine.

J

>From: Geri Spang <spangs@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] Alcohol

>Date: Mon, 13 Sep 1999 14:39:40 -0700

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>From: Geri Spang <spangs@...>

>

>Barbara,

>I haven't tried grape juice, but it sounds like a good idea. I wonder if

>restaurants serve it? Once we were driving through France and stopped at a

>charming little roadside place. Sat in the garden and ordered lunch and my

>husband ordered a small bottle of wine. He commented on how good it was.

>I took a look at the label and saw that it said, " Sans Alcool. "

>Non-alcoholic! He didn't even know the difference and he likes to think he

>knows decent wine when he tastes it. We noticed that Europeans don't

>hesitate to dilute wine with water, incidentally, though " purists " in the

>US see that as sacrilege. I think it's a cultural thing with us and we

>view drinking as " fun " where over there it's often something only done

>appropriately, not for the sake necessarily of feeling " good " .

>

>But, there are many people who shouldn't drink at all, and not just people

>who have liver disease. It's also poison for anyone with an alcohol

>dependency and it distresses me when I see well-meaning (or mindless)

>people push drinks on someone they know should NOT drink.

>

>There are many alternatives to alcohol available now and they aren't

>glaringly obvious like Cola, etc. However, I do have a difficult time

>finding something available in a restaurant besides iced tea or sticky

>sweet lemonade. I wish more of them carried non-alcoholic wines but

>they're in the business to make money and I guess it's not profitable

>enough for them to consider.

>Take care,

>Geri

>

>

>

>---------------------------

[Guest guest]

My Dr told me there is still a trace of alcohol in the non alcohol

drinks. He didn't advise it. My problem is the appetite prednisone gives

me.

Leona M.