Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 1/23/01 4:42:14 PM Pacific Standard Time, dducksgirl@... writes: I dont know the answer about the fatigue going I was diagnosed 5/00, my lab numbers are extremely good, and my prednisone dosage is down from 80 mg to 7.5 mg a day. However, I don't think fatigue has improved; it is severe on days after I've been active. I'm beginning to catch on that doing anything rapidly causes fatigue. So, I try to remember to be a tortoise, not a hare. Also, I'd tried to stay active and to avoid napping, but Palmer's liver book repeatedly says that frequent naps are important and help the liver regenerate. I think I won't fight my intense desire for naps anymore. Harper AIH 5/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 hi, Im new too. I was diagnosed in Dec. 00, so I dont know the answer about the fatigue going away but I do know that I have my good days and my bad. I try to keep trudging along and just deal with it, but I do take days when I feel really tired and just lay around and rest. You will learn alot from everyone here, if you have a question just ask and some one will usually have an answer. Trish --- cathreid@... wrote: > Have been recently diagnosed with autoimmune > hepatis, will my fatique > eventually go away, what can I expect from this > disease. Having biopsy > next week.Have many questions, but there seems to be > little info. out > there. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Welcome to the group! Having searched all over the place, this is the best source of information around. From everything I have seen, no matter what the question, someone has had some experience with the situation. I actually think I sound somewhat well informed now when I talk with my doctor...and I think he is relieved because he does not have to start @ ground zero with explanations. I have gotten so much information here as well as support. It is also the place where other people really understand what you are feeling..seems no matter how you try to explain it to your family, friends and how hard they try to understand, it doesnt fit their 'perspective' and that leads to some confusion and contrary expectations. Sometimes your doc may not really understand either...but here they will. Good luck. nne AIH 11/00 > Have been recently diagnosed with autoimmune hepatis, will my fatique > eventually go away, what can I expect from this disease. Having biopsy > next week.Have many questions, but there seems to be little info. out > there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Re: [ ] autoimmune disease > Welcome to the group, I think you will like it. I was dx'ed in aug '00 > and when I was on high doses of prednisone, I couldn't sleep at all. As > for the fatigue, since I am now on low doses (7mg), I have my fatigue > back as before. The fatigue is part of the disease, and as with any > disease, your fatigue may go away, mine didn't. > > -Clyde > -- > =========================================================+ > Help save a life, become an organ and tissue donor today.| > =========================================================+ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Re: [ ] autoimmune disease > Welcome to the group, I think you will like it. I was dx'ed in aug '00 > and when I was on high doses of prednisone, I couldn't sleep at all. As > for the fatigue, since I am now on low doses (7mg), I have my fatigue > back as before. The fatigue is part of the disease, and as with any > disease, your fatigue may go away, mine didn't. > > -Clyde > -- > =========================================================+ > Help save a life, become an organ and tissue donor today.| > =========================================================+ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Re: [ ] autoimmune disease > Welcome to the group, I think you will like it. I was dx'ed in aug '00 > and when I was on high doses of prednisone, I couldn't sleep at all. As > for the fatigue, since I am now on low doses (7mg), I have my fatigue > back as before. The fatigue is part of the disease, and as with any > disease, your fatigue may go away, mine didn't. > > -Clyde > -- > =========================================================+ > Help save a life, become an organ and tissue donor today.| > =========================================================+ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Hi CC, I found the best thing i could do for being tired and for pain is to make sure I get plenty of rest like 8-10 hours sleep. I found rest is the most important for aih. I have also been wearing a copper bracelet and It really has helped me with these pains. I've also discovered that stress and not getting my proper rest does cause me to hurt. at the moment, I am in remission and doing great. I take 75mg imuran and I take 50mg Elevil at night to get peaceful rest. I wake up feeling great. About every other day I take a celebrex 200mg just to keep it in my system. So between celebrex and copper bracelet I've been doing ok. Before I was hurting badly in my bones and joints. Hang in there, I will be praying for all of the group. Have a blessed day. Bobbie (AIH) since 1998 Re: [ ] autoimmune disease > Welcome to the group, I think you will like it. I was dx'ed in aug '00 > and when I was on high doses of prednisone, I couldn't sleep at all. As > for the fatigue, since I am now on low doses (7mg), I have my fatigue > back as before. The fatigue is part of the disease, and as with any > disease, your fatigue may go away, mine didn't. > > -Clyde > -- > =========================================================+ > Help save a life, become an organ and tissue donor today.| > =========================================================+ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2001 Report Share Posted January 24, 2001 Welcome to the group, I think you will like it. I was dx'ed in aug '00 and when I was on high doses of prednisone, I couldn't sleep at all. As for the fatigue, since I am now on low doses (7mg), I have my fatigue back as before. The fatigue is part of the disease, and as with any disease, your fatigue may go away, mine didn't. -Clyde -- =========================================================+ Help save a life, become an organ and tissue donor today.| =========================================================+ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 Patty, Is the doctor thinking of Raynauds, My brother suffers from this and is and has smaller than normal viens and callpillaries on his hands and feet causing these problems... i believe Raynauds ( might not be spelt right) is classed as an autoimmune disorder. Hugs Helen, mom to (6, systemic) Hugs..Helen DH Dan DS's (20)(14)(11)Zachary(9)(6) And DD Yuping Burger, adopted May 9th 2000 DuChang, JiangXi, China DOB 3/29/99 ACR 0-9 mths (11 mths at referral) DTC 7/22/99 DOR 2/25/00 (219 days of waiting) DOT 5/5-5/20/00>From: Emeraldsx3@... >Reply- > >Subject: Autoimmune Disease >Date: Wed, 28 Jan 2004 18:30:36 EST > >Hi All: > >Caitlin's sister, , had her first follow up appointment since >starting growth hormone. Great news, she's grown an inch in 3 months. Worrisome >news, the doctor is worried that she either has a thyroid problem or an >autoimmune disorder. She has been complaining this past week about cold hands and cold >feet. They are cold to the touch and quite red in color. The doctor saw her >hands and checked her feet and said the same thing, cold and red. I >explained her older sister has Hashimoto Disease and her twin sister is in the process >of being diagnosed and one possibility is JRA. I was thinking it's thyroid >related, but the doctor told me that there is an autoimmune disorder with cold >hands and cold feet urrggghhhhhh! I think of all has been through >and now they are looking at this - good God. Caitlin has been so sick with her >'mystery illness' which may be JRA (and I think it is) and now to think >another child might have an autoimmune disorder, I am sorry, but quite frankly it >SUCKS (can I say that on here, hhmmm, well, I just did)! Although, I guess, >technically, Alyssa's Hashimoto Disease being thyroid related could also be >autoimmune related. Couldn't it? > >Ah well. I figured you all could understand. Thank you for letting me vent. > >Take care. >Patty There are now three new levels of MSN Hotmail Extra Storage! Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 Hi, Patty. When you get more info on the cold hand and cold feet thing could you let us know? My oldest has similar symptoms and with Chris having the jra, it would not surprise me if she also has some autoimmune disorder. I suppose with one kid having an immune system problem, my others could too. I just figured she had poor circulation or was one of those always cold type of people. Thanks, Michele (16,pauci & spondy) Autoimmune Disease Hi All: Caitlin's sister, , had her first follow up appointment since starting growth hormone. Great news, she's grown an inch in 3 months. Worrisome news, the doctor is worried that she either has a thyroid problem or an autoimmune disorder. She has been complaining this past week about cold hands and cold feet. They are cold to the touch and quite red in color. The doctor saw her hands and checked her feet and said the same thing, cold and red. I explained her older sister has Hashimoto Disease and her twin sister is in the process of being diagnosed and one possibility is JRA. I was thinking it's thyroid related, but the doctor told me that there is an autoimmune disorder with cold hands and cold feet urrggghhhhhh! I think of all has been through and now they are looking at this - good God. Caitlin has been so sick with her 'mystery illness' which may be JRA (and I think it is) and now to think another child might have an autoimmune disorder, I am sorry, but quite frankly it SUCKS (can I say that on here, hhmmm, well, I just did)! Although, I guess, technically, Alyssa's Hashimoto Disease being thyroid related could also be autoimmune related. Couldn't it? Ah well. I figured you all could understand. Thank you for letting me vent. Take care. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 In a message dated 1/29/04 7:44:01 AM Eastern Standard Time, hburger64@... writes: << Patty, Is the doctor thinking of Raynauds, My brother suffers from this and is and has smaller than normal viens and callpillaries on his hands and feet causing these problems... i believe Raynauds ( might not be spelt right) is classed as an autoimmune disorder. Hugs Helen, mom to (6, systemic)<DIV><DIV><DIV> <HR>Hugs..Helen [unable to display image]> Hi Helen: You hit the nail on the head. I am impressed. It's really a small world. I am so thankful that when my children present with something I have never heard of, I can find people who have it or know someone who does. How has your brother been with Raynaud's Phenomenom? Is it checked with a blood test? Take care. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 In a message dated 1/29/04 12:29:32 PM Eastern Standard Time, MTepper@... writes: << Hi, Patty. When you get more info on the cold hand and cold feet thing could you let us know? My oldest has similar symptoms and with Chris having the jra, it would not surprise me if she also has some autoimmune disorder. I suppose with one kid having an immune system problem, my others could too. I just figured she had poor circulation or was one of those always cold type of people. Thanks, Michele (16,pauci & spondy) >> HI Michele: I, like you, figured she had poor circulation or that she was cold because it's below freezing out there. The disorder the doctor is looking at/thinking of is: Raynaud's Phenomenon. You can look it up at wrongdiagnosis.com. We are awaiting labs results for thyroid or diabetes before we take the next step of going to the rheumy with her. I will let you know what I learn. Take care. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 Patty, I talked to my brother today about his raynauds and he says it hasnt affected his life at all.... he has cold hands and feet sometimes but other than that, nothing. He never even thinks about it. Hope this helps you a little Hugs helen, mom to (6,systemic) Get a FREE online virus check for your PC here, from McAfee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Thanks Helen. It's good to know someone has it and it hasn't affected them. How are you doing today? Take care. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 In a message dated 2/1/04 4:37:56 PM Eastern Standard Time, arhianrhod@... writes: << Patty, you asked if Type 1 diabetes is hereditary. The answer is, yes. I've asked both my mother and my father if there's any family history, and neither could definitely say yes. But then, undiagnosed Type 1 is fatal, so, who knows? I'd have to do some serious genealogy work to really check it out, looking for early deaths from an " unknown wasting disease " ... or whatever. Not my idea of fun. Lynda, poly JRA vet >> Hi Lynda: Type 1 Diabetes sure is one scary disorder! I never knew anything about it. No, that kind of research would not be fun in any way shape or form. It would be extremely hard especially if there were quite a few ancestors that have passed away from it. Take care. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 Hi one thing I have read which causes Low t is autoimmune disorders. My father has celiac disease which is basically a wheat gluten allergy. The disorder causes the intestines villi to be destroyed. It is apparently very hereditary. Hopefully this is the cause of my low t. Im trying to get a hold of my endo to be sent to a gastro to be tested. Any insight? Quote Link to comment Share on other sites More sharing options...
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