Frustrated

[Guest guest]

Well, I was on T4 for 15 weeks, and no the problem has not corrected.

However, I started Armour (with the T3) three days ago. I still have

high hopes that I will be all better in the future. You have given me

pause though...

My deduction that tendon/ligament problems may be a sign, comes from

my knowledge of dogs with hypoT. I have attended a seminar put on by

one of the foremost thyroid experts in the canine field of

endocrinology. Dr. Dodds mentioned that if you have a dog with

cruciate problems, check thyroid first, as that is often the cause. I

have not had it show up that way in any of my breeding so far as I

know, and not in any of my dogs. However, it is generally

acknowledged that cruciate problems in dogs are on the rise. So is

hypoT-- and greatly under-diagnosed, as it is in people as well. And

my own cruciates are over-stretched and painful-- especially the

right knee. I am very careful standing up, as I can feel the pain,

and am concerned that I may rupture that cruciate if I'm not careful.

I will try to remember to let you know if that symptom is cured in

the future.

Gail

In hypothyroidism , " Ade Bagley " <adrian@b...> wrote:

> Hi Gail,

>

> I wonder if there's a connection between the two conditions? Did

your

> problems stop when the hypoT was treated? If not, you might want to

look

> into EDS too! Unfortunately it isn't treatable, but it's always

important to

> know what you have, what precautions to take, etc.

>

> Ade

> Re: frustrated

>

>

> But it could still be a simple case of hypoT-- because I have had

all

> those symptoms as well. I have had the loose tendons and ligaments

> and knock-knees since I was a child, as well. I kept spraininng my

> ankles by any sudden movement sideways-- and that was always very

> painful. Regardless of the cause, I totally agree that contact

sports

> can cause harm.

> As regards the TSH, anything over 3. is now considered hypoT,

> according to the Assoc of Am. Endos. I will try to find the site

and

> send it. Chriss, if your doctor will not listen, I guess you ahve

to

> keep trying to find one who will. I feel so sorry for your son...

> Gail

>

>

>

[Guest guest]

Thank you sooooo much for your reply. I feel like I'm going crazy over here.

Prestons dad refuses to acknowlege that something isnt right.

And continues to " push " him at practice, despite the fact that Preston

often cries when no one is looking. He desperately wants to play, and

wants to fit in, but he " knows " that something is wrong. He just can't

get his body to do what he wants it to.

And he wants so much to make his dad proud, as Len also played football

in high school.

So far Lens response to his cries has been " I guess I should sew you a skirt! "

He thinks I am making this all up to get him out of making an effort.

And I am just babying him too much.

Preston was an active child up until about 8 years old. He started to slow

down

tremendously about then, and since the age of ten, he has a very hard time

engaging in physical activity thus he avoids it. Only compounding the

problems.

When I watched his first practice...I cried too. I had worried about his

ability to

keep up, but was unprepared for what I saw.

I just want him to have a " normal " life. Or as normal as he can, I'm not

making

excuses for him!

I just think I am far more observant than his father is, and more willing to

accept

that Preston is predisposed to certain conditions that we will have to face.

His dad just doesnt want to hear it.

He really believes its just a lack of effort on Prestons part.

I really appreciate your taking the time to read my post, and send me a

very informative response...

Chriss.

[Guest guest]

Thanks Gail, that's very interesting. If hypothyroidism only affects the

tendons/ligaments in the knees (and that's the only area you're having

trouble with) then that's different, and is unlikely to be EDS - which

affects the connective tissues throughout the body.

Still, I wonder if the possibility of a link between the two conditions has

been explored. I have hypoT and it's starting to look increasingly as if I

have mild EDS as well. I've always been extremely supple despite never doing

stretching exercises etc (I can put both legs behind my head without warming

up! LOL) and my neck subluxes very easily. My fiancee definitely has EDS,

and I'm absolutely convinced she has hypoT as well, though she's still

waiting to be tested. But she has all the symptoms bar none. It would be an

extraordinary coincidence if there's no connection between the two

conditions.

Ade

Re: frustrated

Well, I was on T4 for 15 weeks, and no the problem has not corrected.

However, I started Armour (with the T3) three days ago. I still have

high hopes that I will be all better in the future. You have given me

pause though...

My deduction that tendon/ligament problems may be a sign, comes from

my knowledge of dogs with hypoT. I have attended a seminar put on by

one of the foremost thyroid experts in the canine field of

endocrinology. Dr. Dodds mentioned that if you have a dog with

cruciate problems, check thyroid first, as that is often the cause. I

have not had it show up that way in any of my breeding so far as I

know, and not in any of my dogs. However, it is generally

acknowledged that cruciate problems in dogs are on the rise. So is

hypoT-- and greatly under-diagnosed, as it is in people as well. And

my own cruciates are over-stretched and painful-- especially the

right knee. I am very careful standing up, as I can feel the pain,

and am concerned that I may rupture that cruciate if I'm not careful.

I will try to remember to let you know if that symptom is cured in

the future.

Gail

[Guest guest]

Unfortunately, with me, it is other tendons and ligaments in my body

as well. It's just that the legs are the ones that I focus on, as

they cause the most grief-- I have difficulty walking. :-/ I had

tendonitis many years ago, but during the past few years, the tendons

in my elbows at least, have tightened up to the point where my left

arm in particular, is in a permanent crook. It's less pain that way.

It does seem to be loosening up again on medication though, as both

elbows are hurting again. I took a quick look at the website for EDS.

Even with a spinal fusion, even with the painful muscles, I can still

touch my toes. I could never put both legs behind my head though...

I'm not built for it.:-) I also have a pronounced lordosis-- which,

as my back muscles are getting stronger, is occasionally better.

I was sent for physio at the hospital some years ago, when I was

first told I had " fibromyalgia " and the physio guy had me leaning

forwards and backwards and so on, and said I was remarkably supple

(that may not have been the word he used, but it was the import of

what he said). I knew it was just because my tendons and ligaments

are very loose. However, I do think there might be a connection with

EDS. It would certainly be worthwhile checking thyroid anyway.

Different people have different symptoms with hypoT.

Gail

> Thanks Gail, that's very interesting. If hypothyroidism only

affects the

> tendons/ligaments in the knees (and that's the only area you're

having

> trouble with) then that's different, and is unlikely to be EDS -

which

> affects the connective tissues throughout the body.

>

> Still, I wonder if the possibility of a link between the two

conditions has

> been explored. I have hypoT and it's starting to look increasingly

as if I

> have mild EDS as well. I've always been extremely supple despite

never doing

> stretching exercises etc (I can put both legs behind my head

without warming

> up! LOL) and my neck subluxes very easily. My fiancee definitely

has EDS,

> and I'm absolutely convinced she has hypoT as well, though she's

still

> waiting to be tested. But she has all the symptoms bar none. It

would be an

> extraordinary coincidence if there's no connection between the two

> conditions.

>

> Ade

> Re: frustrated

>

>

> Well, I was on T4 for 15 weeks, and no the problem has not

corrected.

> However, I started Armour (with the T3) three days ago. I still

have

> high hopes that I will be all better in the future. You have

given me

> pause though...

> My deduction that tendon/ligament problems may be a sign, comes

from

> my knowledge of dogs with hypoT. I have attended a seminar put on

by

> one of the foremost thyroid experts in the canine field of

> endocrinology. Dr. Dodds mentioned that if you have a dog with

> cruciate problems, check thyroid first, as that is often the

cause. I

> have not had it show up that way in any of my breeding so far as I

> know, and not in any of my dogs. However, it is generally

> acknowledged that cruciate problems in dogs are on the rise. So is

> hypoT-- and greatly under-diagnosed, as it is in people as well.

And

> my own cruciates are over-stretched and painful-- especially the

> right knee. I am very careful standing up, as I can feel the pain,

> and am concerned that I may rupture that cruciate if I'm not

careful.

> I will try to remember to let you know if that symptom is cured in

> the future.

> Gail

>

>

>

[Guest guest]

<< Thank you sooooo much for your reply. I feel like I'm going crazy

over here.

Prestons dad refuses to acknowlege that something isnt right. >>

Sounds like classic denial. I'm sure it's because he loves Preston, but it's

not exactly helpful

<< And continues to " push " him at practice, despite the fact that Preston

often cries when no one is looking. He desperately wants to play, and

wants to fit in, but he " knows " that something is wrong. He just can't

get his body to do what he wants it to.

And he wants so much to make his dad proud, as Len also played football

in high school.

So far Lens response to his cries has been " I guess I should sew you a

skirt! " >>

I'm sure this is massively out of line, but have you considered a good hard

kick between Len's legs? ;0)

Sorry, but that's just so cruel! It's obvious from your description that

your son is trying his heart out, no amount of effort will overcome a

physical problem. He needs love and support from his father, not mockery.

<< He thinks I am making this all up to get him out of making an effort.

And I am just babying him too much. >>

<< Preston was an active child up until about 8 years old. He started to

slow

down

tremendously about then, and since the age of ten, he has a very hard time

engaging in physical activity thus he avoids it. Only compounding the

problems. >>

That does sound like it could be a thyroid problem. Even if it was normal

weight gain, the answer would be gentle exercise - long walks, that sort of

thing - to boost his metabolism and gradually get him fitter, not charging

about like a mad thing when his body isn't ready for it.

If he has Ehlers-Danlos, then sports would be positively dangerous. Again,

he could do steady exercise, but nothing where he's likely to crash into

other players or trip and dislocate something.

<< When I watched his first practice...I cried too. I had worried about

his ability to

keep up, but was unprepared for what I saw.

I just want him to have a " normal " life. Or as normal as he can, I'm not

making excuses for him!

I just think I am far more observant than his father is, and more willing

to accept

that Preston is predisposed to certain conditions that we will have to

face.

His dad just doesnt want to hear it.

He really believes its just a lack of effort on Prestons part. >>

Sadly, it's a lot easier to believe that it's lack of effort, all his own

fault, etc, than that there could be a serious underlying problem. Mothers

seem to be a lot better at accepting their children's medical problems than

fathers. ly (and speaking as a man here) this is mental laziness, plain

& simple. It's not wanting to face up to a difficult truth when an easier

lie is less distressing.

For what it's worth, both hypothyroidism and Ehlers-Danlos run in families,

so if you have either then it's quite likely your son does too.

I do hope you manage to find help for your son soon. There are good doctors

out there, though they can be thin on the ground sometimes.

Very best wishes,

Ade

[Guest guest]

Hi Chriss --

I'd get another opinion on his health situation -- this is crazy for a kid his

age to be having problems like this. Does he take any kind of vitamins? How is

his diet? His skin should not be like that -- especially in the summer --

wonder what it's going to be like in the winter with dry heat?

Just my opinion -- He shouldn't be feeling like this - I'd be worried if I was

his mom & it sounds like you are. Did he test positive for Hep C? Sorry, I

can't remember.

frustrated

Hello group! it's been awhile since I checked in, I hope everyone is doing

as well as they can!

You may remember my son Preston...I wrote a while back about the symptoms

of hypothyroidism that I believe he has, and what the Dr. had to say about it.

He had a TSH of 3.48 but the scale that was used, indicated that he was

within the reference range. And despite several other symptoms his Dr.

decided

not to treat him for it.

He started 7th grade this year, and wanted to be with his buddies on the

football

team. He joined even though he knew his weight would be a problem.

His Dr. did give him an inhaler that has helped him trememdously though.

Anyway, Preston has been knock-kneed since he was little..and we were

always told that it would correct itself over time. (usually by age 7),

Well, it didnt. He is also very flat footed, and now his tendons are so lax,

that his knees hyperextend and cause him a great deal of discomfort.

I always thought that he walked funny, but the dr told me it would be ok once

he lost some weight.

After attending his first game last nite, I was so sad for him...the coach

would not

put him in much because he simply cannot run...His feet don't " roll " heel to

toe

like normal children. And when he tries to run, his knees lock backward.

His coach thinks he has something wrong with his ankles too, and encouraged

us

to have him checked out. He doesnt want Preston to get injured.

Aside from these things...preston has continued to gain weight, lose hair and

his skin is still so dry and tight it looks as if it will split at the ankle.

I'm just wondering if the structural problems could be related to all of this?

I was giving preston some synthroid a while back, and it did boost his energy,

but after he told his dad he was taking it, and that it wasnt coming from

the

Dr., dad insisted that I didn't have the right to give him medication

unsupervised

and told him not to take it.

So, I'm not sure where to turn now...Preston is obviously NOT normal.

but, it seems like I am the only one that wants to face it.

any ideas?

Chriss.

[Guest guest]

You know Chriss --

Mother's intuition counts for A LOT! Go with your gut instincts -- lots of guys

don't have intuition like Mom's have.

I feel so bad for Preston - that's lots of pressure on him to perform a certain

way and his body is unable to do it, sounds like this could really hurt him and

affect his long term health -- Ugh!!!

take care,

Re: frustrated

Thank you sooooo much for your reply. I feel like I'm going crazy over here.

Prestons dad refuses to acknowlege that something isnt right.

And continues to " push " him at practice, despite the fact that Preston

often cries when no one is looking. He desperately wants to play, and

wants to fit in, but he " knows " that something is wrong. He just can't

get his body to do what he wants it to.

And he wants so much to make his dad proud, as Len also played football

in high school.

So far Lens response to his cries has been " I guess I should sew you a skirt! "

He thinks I am making this all up to get him out of making an effort.

And I am just babying him too much.

Preston was an active child up until about 8 years old. He started to slow

down

tremendously about then, and since the age of ten, he has a very hard time

engaging in physical activity thus he avoids it. Only compounding the

problems.

When I watched his first practice...I cried too. I had worried about his

ability to

keep up, but was unprepared for what I saw.

I just want him to have a " normal " life. Or as normal as he can, I'm not

making

excuses for him!

I just think I am far more observant than his father is, and more willing to

accept

that Preston is predisposed to certain conditions that we will have to face.

His dad just doesnt want to hear it.

He really believes its just a lack of effort on Prestons part.

I really appreciate your taking the time to read my post, and send me a

very informative response...

Chriss.

[Guest guest]

Hi, thanks for responding...no Pres did not test positive, my six yr old

did...

I was certain if any one of the boys were going to have hep it would

have been Preston. I was very surprised it was Quincy.

Preston does have many hypo symtoms though.

His edema has gotten worse this year, and he the bruising is still

awful...he always looks as if he has been in an accident or something.

his arms and legs are always terribly bruised.

Even if he sits too long, say on a long drive...he will have an inprinted

bruise of the pattern on the seat. Its weird....

But, the doc says his bleeding time was ok. (13.5 min to clot)

She said someone with a real problem would be in the 20's.

I wonder if I shouldnt try to get him into an endo. That would be difficult

considering I need a referral from his primary, and she thinks he's fine.

I just look at the other children he hangs out with...and he is quite

different physically from them.

There is a history of diabetes in dads family..and thyroid disorders in mine.

I just know that if my thyroid problems were addressed earlier...I would not

be as far gone as I am. I don't want that for Preston.

It's hard enough for him to just be overweight etc...at his age.

It hasn't affected his social life thank goodness. He is very well liked at

school,

and a super group of friends.

I really feel like no one is really " looking " at him.

Perhaps because he has been the same for a long time,

and most just accept him this way... " its just the way Preston is "

you know.

My oldest son Zach, had some weight issues a couple of years

ago...but, he has made significant improvement there. He has a

pretty physical job now, and I think maybe puberty was a bit delayed

for him. He has cought up nicely though.

thanks for listening!

C.

[Guest guest]

Hi Gail,

Well, fingers crossed it is the thyroid and it all starts to improve with

treatment. I think muscle problems, aches etc are more likely to be thyroid

related, whereas the generally loose joints might be EDS. It's worth

checking through the info for it just to know what to watch out for really.

Hope it all starts to improve for you. Do you get headaches or migraines at

all?

Ade

Re: frustrated

Unfortunately, with me, it is other tendons and ligaments in my body

as well. It's just that the legs are the ones that I focus on, as

they cause the most grief-- I have difficulty walking. :-/ I had

tendonitis many years ago, but during the past few years, the tendons

in my elbows at least, have tightened up to the point where my left

arm in particular, is in a permanent crook. It's less pain that way.

It does seem to be loosening up again on medication though, as both

elbows are hurting again. I took a quick look at the website for EDS.

Even with a spinal fusion, even with the painful muscles, I can still

touch my toes. I could never put both legs behind my head though...

I'm not built for it.:-) I also have a pronounced lordosis-- which,

as my back muscles are getting stronger, is occasionally better.

I was sent for physio at the hospital some years ago, when I was

first told I had " fibromyalgia " and the physio guy had me leaning

forwards and backwards and so on, and said I was remarkably supple

(that may not have been the word he used, but it was the import of

what he said). I knew it was just because my tendons and ligaments

are very loose. However, I do think there might be a connection with

EDS. It would certainly be worthwhile checking thyroid anyway.

Different people have different symptoms with hypoT.

Gail

[Guest guest]

Right now,I am assuming that everything that is wrong with my health,

is on account of hypothyroidism.:-) We'll see in the future, what

happens.

I used to get migraines and tension head-aches all too frequently.

Migraines stopped at menopause, and the tension head-aches continued.

I used to do neck-stretching exercises every day, and also used my

wooden thingie with the wheels to massage my head and neck. Since I

went on thyroid meds, my head and neck muscles have loosened up

considerably. I have had minor head-aches only (Tylenol fixes them),

since I started T4 last May. I started Armour six days ago, and hope

all muscle pain will disappear on that.

Gail

> Hi Gail,

>

> Well, fingers crossed it is the thyroid and it all starts to

improve with

> treatment. I think muscle problems, aches etc are more likely to be

thyroid

> related, whereas the generally loose joints might be EDS. It's worth

> checking through the info for it just to know what to watch out for

really.

>

> Hope it all starts to improve for you. Do you get headaches or

migraines at

> all?

>

> Ade

>

[Guest guest]

Do you notice any difference on Armour?

Gracia

Since I

> went on thyroid meds, my head and neck muscles have loosened up

> considerably. I have had minor head-aches only (Tylenol fixes them),

> since I started T4 last May. I started Armour six days ago, and hope

> all muscle pain will disappear on that.

> Gail

>

>

[Guest guest]

Yes, my legs are starting to feel less painful again. After the first

few weeks on T4, they were feeling better, but then, even though I

went up in dosage (got up to 150 mcg the week before I started

Armour), the pain and stiffness were all coming back, just as before

I started. Now it's getting better again. I'm only taking one grain

so far.

Gail

>

> Do you notice any difference on Armour?

> Gracia

>

> Since I

> > went on thyroid meds, my head and neck muscles have loosened up

> > considerably. I have had minor head-aches only (Tylenol fixes

them),

> > since I started T4 last May. I started Armour six days ago, and

hope

> > all muscle pain will disappear on that.

> > Gail

> >

> >

[Guest guest]

I could not stay at one grain for long. I ended up at 2 grains but then

could reduce to 1 1/2 grains when I added progesterone. I think you will

need adrenal support too.

Gracia

> Yes, my legs are starting to feel less painful again. After the first

> few weeks on T4, they were feeling better, but then, even though I

> went up in dosage (got up to 150 mcg the week before I started

> Armour), the pain and stiffness were all coming back, just as before

> I started. Now it's getting better again. I'm only taking one grain

> so far.

> Gail

>

[Guest guest]

>

> I could not stay at one grain for long. I ended up at 2 grains but

then

> could reduce to 1 1/2 grains when I added progesterone.

I took an extra half grain tonight.:-)

I think you will

> need adrenal support too.

I'm taking the vitamins, and raw adrenal glandulars, which I am

expecting will do it for me. We'll see.

Gail

> Gracia

>

> >

[Guest guest]

Right now,I am assuming that everything that is wrong with my health,

is on account of hypothyroidism.:-) We'll see in the future, what

happens.

Yes, best to keep things simple. If the thyroid meds fix it, there's no

point looking elsewhere!

I used to get migraines and tension head-aches all too frequently.

Migraines stopped at menopause, and the tension head-aches continued.

This is something I get as well, and my fiancee gets them very badly -

vicious headaches and migraines about half the time, which are definitely

caused by EDS in her case and probably in mine. So that's a warning bell.

I used to do neck-stretching exercises every day, and also used my

wooden thingie with the wheels to massage my head and neck.

The big problem here is that the thing that brings about an improvement in

the short term - stretching the neck - also makes it more likely to happen

again. *If* you do have EDS, then you're getting the headaches because your

neck ligaments are too loose, causing it to sublux. Stretching the neck will

pop it back into place, but also stretch & loosen the ligaments...

But you have to stretch the neck anyway when it's bad, anything to make the

headache go away! We both just try not to unless we have to, knowing that

the neck will then be looser for a day or two.

Massaging the muscles is a safer bet though. The muscles tend to tense up

(presumably to compensate for the ligaments doing a lousy job) and this will

also give nasty headaches, and tend to pull the neck out of wack. So

massaging the neck is a good idea.

Since I

went on thyroid meds, my head and neck muscles have loosened up

considerably. I have had minor head-aches only (Tylenol fixes them),

since I started T4 last May. I started Armour six days ago, and hope

all muscle pain will disappear on that.

That's good to hear. It could well be that what you have is a muscular

problem caused by the thyroid that creates a similar effect to EDS -

weak/crampy muscles instead of loose ligaments that cause the muscles to

cramp up. Heck, that could be what I have too! Or a mixture of the two, one

making the other worse.

Ade

[Guest guest]

...Thanks for ranting - I know a good rant helps me, also. Know that you

aren't alone. Many of us often feel the same way, and don't see the government

as our 'healthcare friend'. We do need to remember when we vote that the

government officials are elected by the people, for the people - if we don't

like the folks in office, we have the power to vote them out. In my Lyme book

readings, I did discover that most of the antibiotics prescribed are going

towards livestock and not for sick people (by a huge margin), so the overuse of

antibiotics is not due to Lyme patients.

Not to be pessimistic, but from my readings, I have a feeling that 'mad cow

disease' support groups will be popping up in the future due to our government's

lack of foresight.

Thank God for groups like this where we can share information and frustrations

with one another. One day at a time...Tom

[ ] frustrated

i went to the emergency room after i had acupuncture for the first

time, i did not feel well or right, at the emergency room they asked

to speak to my neurologist the one who made my life a mess and i used

to say to myself why are there people commiting suicide in this world,

well I now know why. at north shore university hospital the place that

said this is not lyme disease and that it is all psycological decided

to call one of the neuro,s that i delt with.he called back and said

that I never had lyme disease in the first place and that I should go

home, im at the hospital and cant walk, it is very hard to work in

this condition. i was so angry after hearing the snooty emergency room

doctor. how could this be that a neurologist who cant diagnose lyme

disease is saying that i dont have it? well i have brain damage

because of this neuro doctor who sent me home, he has no idea how much

loss i now have because he did not care to diagnose the problem when

it became severe for the second time.i was

jerking,hallucinating,convulsions,musical hallucinations, hearing

siren's in the distance and a change in how i enter sleep and also

seeing the colors behind closed eyes that were only

purple,fasciculations like als,extreme disorientation and problems

with brain calculations when walking as if my brain would cause

vertigo when i looked at a wall, not to mention not bieng able to feel

emotions,or remember my sons name,also had to keep my head in the

upright position or severe vertigo, now everything above started with

a fever however the disease did not start there. i had a doctor in the

city that new that i had a tick bite to the back of the neck.treated

it and when i went back he said let me test you, well he did that so

many times and the only band was 23 at the time, he would tell me I

dont know what is going on but your body is fighting somethning, it is

not lyme as lyme does not present with tingling of the

nose,hands,feet,anxiety,blood pooling in hands,ibs,heat in the back of

the neck, electrical pulses grounding to skin in the base of the neck,

what it presents with is bells palsy,knees hurt,knumbness in the

extremeties,pain, you are looking into your body to much and if you

keep looking for something it just may come true as I was told.this

was all in my mind! if it was then why did it start the day after a

104 fever? why are they holding back antibiotics, if you dont have a

rash you cant be treated! and if it has been along time running with

lyme I will bet no one will listen. this disease is an autoimmune

disease at a certain point and I know that to be true! I am worryed

that it is still attacking my nerves and brain as I lose function as

the weeks go by. we have good lyme doctors but some of us are much

worse then our lyme doctors can realy help. and all because of greed,

if I had known now what I didnt know then i would have held up my

local genovese and took all there doxy and believe me it would have

been worth it as the regular doctor would never treat it adequatly.

when its a matter of life or death dont expect to be treated as this

will never happen.

i find that this disease has wiped out my life and it did it all to

slow,the government is not saying anything about lyme and i guess that

we are the guinie pigs for them to try to destroy people and there

health, and also trying to control antibiotics so tightly in the name

of trying to keep the antibiotics drug resistant, now when did you

ever think that these people care about the patient as they dont give

a rats as s s . they want to control the antibiotics so they can

control the priceing structure in my view. the antibiotic are needed

now for the infection that is affecting all the lyme people and they

with hold it saying that you dont have lyme and you should save it for

a real illness. when i hear that i get angry, anyway that is my rant

for thursday, i wish health and happiness for everyone.

eric

Questions and/or comments can be directed to the list owner at

-Owner

[Guest guest]

rachel, i've had the same experience! let me know if you find anything...

>

> I've posted several questions here a couple of days ago and have received 0

responses

to any of them. I was wondering if there was a place I could go that is a

little more

interactive as a group. Does anyone here know of another group? Thanks! (oh

feel free

to email me privately if you'd like rather than posting here).

>

>

>

[Guest guest]

This is the first posting I have seen from you. What were your questions?

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

-- Frustrated

I've posted several questions here a couple of days ago and have received 0

responses to any of them. I was wondering if there was a place I could go

that is a little more interactive as a group. Does anyone here know of

another group? Thanks! (oh feel free to email me privately if you'd like

rather than posting here).

[Guest guest]

Really? I have posted a lot!

One on probiotics that I started, and then quite a few that were

replies/questions from othe threads.

Do you want me to fwd them back? Maybe they aren't going through?

This is the first posting I have seen from you. What were your questions?

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

[Guest guest]

I got this one Ok...I must have just missed the others somehow, my apologies

for your thinking you were being ignored. I am sure there are others here

who are better at answering probiotics questions though...

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

-- Re: Frustrated

Really? I have posted a lot!

One on probiotics that I started, and then quite a few that were

replies/questions from othe threads.

Do you want me to fwd them back? Maybe they aren't going through?

This is the first posting I have seen from you. What were your questions?

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

[Guest guest]

>

> I am on day 13 of this diet and I do feel so much better; however,

I have noticed that on days that I only eat eggs and fish/seafood, my

> blood sugar comes down and stays around 140 all day. On days that I

> eat bison, pork or chicken, it goes up to 180 and even 200 and

doesn't come down, even overnight. I am keeping a close tab on my

diet because I want to do this right. I am changing nothing else in

my diet except the type of meat that I eat. Anyone have an

explanations for this? I am very concerned because I am not taking

any of my diabetic medicines and my blood sugar staying so high is

causing me to be very lethargic.

>Lori, over time your blood sugar levels will become more and more

normalized. Because you are eating so few carbs on this diet you

don't have to be afraid of fluctuations. You could concentrate on

eating eggs and fish/seafoods for awhile if it makes you feel better.

Luv, Bee

>

[Guest guest]

> >Lori, over time your blood sugar levels will become more and more

> normalized. Because you are eating so few carbs on this diet you

> don't have to be afraid of fluctuations. You could concentrate on

> eating eggs and fish/seafoods for awhile if it makes you feel better.

>

> Luv, Bee

> >

>

Thanks for the advice Bee I was just so excited because I could

finally eat meat again, that I think I just went a little wild on it

*laughs* And apparently my body was happy to have it again too because

it has been a HUGE craving factor. On one day, I ate 4 - 3 oz bison

patties. FOUR! *laughs* that is probably the most bison I have eaten

in almost 4 years. I think I will stick with the eggs and fish/seafood

for a while though and see if it helps bring my sugar levels back

down.

with Metta,

~Lori~

[Guest guest]

Carol, I’m

feeling somewhat the same. My doctor didn’t want my lying down more than 1-2

hours a day. For the most part, I guess I don’t, but I can’t sit either.

Not for more than 10 minutes at a time. So that leaves walking around, standing,

or reclining which I can only do from the rented hospital bed we have at home.

I’m also hurting more it seems. I wake in the mornings and don’t

want to get out of bed; I ache everywhere (shoulders, legs, hips, back, etc).

And I get tired easily. Seem to be going “downhill” in just the

past few days. Like you, I don’t know what’s typical either and

also wonder about that plateau or if something else is wrong or what.

Kay

From: [mailto: ] On Behalf Of Carol

Sent: Wednesday, April 04, 2007

1:46 PM

Subject: [ ]

Frustrated

I have been feeling frustrated the past day or so that

I can't do more

than I can. I have no idea if what I'm doing is typical for someone at

my stage or not. It will be 1 month from first surgery this Fri (6th)

and right now I can take off my brace by myself, put it on by myself,

walk some around the house (not much) and when I walk around the house

I can do it without my walker. If I go outside, I take the walker--for

sure. What is typical? I feel like I'm at a plateau or something.

Carol v.

[Guest guest]

Hi Carol, My name is Diane B & I will be 2 yrs post revision June

8th. At 1 month post op I wasn't doing anything more than you are.

I think you are doing fine. I spent 2 wks in the hospital & 2 wks in

rehab & when I came home I did exactely what you are doing now. I

also put on & took off my brace & walked around the house. At about

5 wks I started taking short walks outside with my husband Jim. He

would come with me on my walks. I did take my walker with me & used

it. Everyday after I started walking outside I would try & walk a

little further. Walking is absolutely the best thing you can do

while recovering from this surgery. If you have any other questions

don't hesitate to ask. Wishing you the best of luck while you

recover & remember it takes time.

Take Care,

Diane

>

> I have been feeling frustrated the past day or so that I can't do

more

> than I can. I have no idea if what I'm doing is typical for someone

at

> my stage or not. It will be 1 month from first surgery this Fri

(6th)

> and right now I can take off my brace by myself, put it on by

myself,

> walk some around the house (not much) and when I walk around the

house

> I can do it without my walker. If I go outside, I take the walker--

for

> sure. What is typical? I feel like I'm at a plateau or something.

>

> Carol v.

>

[Guest guest]

Dear Carol,

I was using my walker till the three week time frame, and then a cane when outdoors for another week or two. You may have hit the six week plateau a little early, I know I felt that way, but you just have to give it time, and it's still early, I"m sure you are doing better than you think you are. This all takes time and patience, healing is your job now, and unfortunately it just takes time. Six weeks sure was hard, I wanted to be better right now and doing more , and unfortunately this whole healing thing sure takes longer than six weeks. You will find that each week it will get better, and you can do more, but it doesn't come as fast as other recoveries, so don't you or others set a time frame for you, just allow your body to heal. If you are not seeing any progress in a couple of weeks then touch base with your doc, but I bet you are making progress even if it's slight. This isn't a recovery you can judge in a few weeks, it truly takes months, hard to hear, but true. I'm pulling for you, wish it was easier!

Colorado Springs

[ ] Frustrated

I have been feeling frustrated the past day or so that I can't do more than I can. I have no idea if what I'm doing is typical for someone at my stage or not. It will be 1 month from first surgery this Fri (6th) and right now I can take off my brace by myself, put it on by myself, walk some around the house (not much) and when I walk around the house I can do it without my walker. If I go outside, I take the walker--for sure. What is typical? I feel like I'm at a plateau or something.Carol v.