Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Dear joni You to me it sounds as if your adrenals couldn't handle that amount of iodine, in whatever form you take it. Larger doses are not always the way to go.. to me nutrition is so complex and ultimately still an in exact science.. adrenals I know are one of the organs that gets knocked hard when we stress our bodies in any way...stress could be taking too much of a nutrient...I have got weak adrenals I was made very ill indeed through having a enforced fast in a hospital.. I had got hypoglyceamia the doctors don't even know that adrenal exhaustion can cause hypoglycaemia..the endo..should have known this she was an ignorant and hard person..! Tests (saliva can pick up on adrenal weakness.) these tests were laughed at by the endo.. so coming back to the adrenals and the iodine my opinion is you probably shocked your already weak adrenals..not very nice for you at all!! Build your whole body up permanently with Bio Superfood.. if I am allowed to post the site where you can get this please let me know..its helped me a lot. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi Joni, Thanks for sharing, I agree with the other posters, sounds adrenal... Are you getting treatment for hypo-T or adrenal Now? Meanwhile you can support your adrenals by using herbs such as Ashwangadha, Siberian ginseng...or dessicated adrenal or isocort. The adrenals should be treated before taking Amour. Most Dr/Endo do not know about treating adrenals. A Broda Dr./Naturopathic Dr. would do this. Don't give up on the iodine also, but you probably need adrenal support first. It does not sound like you had a allergic reaction. Steph can possibly suggest what/how to approach the iodine issue at this point. Sorry you had to have this happen...Good Luck, I hope you feel better soon! > > Hi all, > > > > I was so concerned in writing about my experience because I was afraid that > I would leave something out that needed to be said, or that I would offend > someone someway. I did forget something that I really wanted to say. I do > not blame anyone on this list for what happened to me. I hope I didn't come > across that way. I intentionally left out names. I take full > responsibility for my upping my dosage. No one forced me to do that. I > believe that I should have done more research before even starting on > Iodoral. > > > > , I agree with you on the bromide testing. I have heard about that > and I am very interested to know what my bromide level is. > > > > When I had ZRT labs check my adrenals, (which I have had done three times) > my cortisol level is way low in the morning which is normal for adrenal > fatigue. I know about Armour and have considered starting on that. But I > am hesitant in taking it right now. > > > > I am currently doing more research on iodine and have remained on this list > to glean from you all. It's wonderful that most of you have found help in > taking iodine. I do hope though that those that are considering taking it, > reading what others have experienced, doing research is so important and > maybe going slow with the dosage. Maybe you are one who just can't take it. > > > > Joni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Does this mean that we should get our adrenal problems and thyroid optimized BEFORE we try Iodoral? Lynn > > Hi Joni, > Thanks for sharing, I agree with the other posters, sounds adrenal... > Are you getting treatment for hypo-T or adrenal Now? > Meanwhile you can support your adrenals by using herbs such as > Ashwangadha, Siberian ginseng...or dessicated adrenal or isocort. > The adrenals should be treated before taking Amour. Most Dr/Endo do > not know about treating adrenals. A Broda Dr./Naturopathic > Dr. would do this. Don't give up on the iodine also, but you > probably need adrenal support first. > It does not sound like you had a allergic reaction. Steph can > possibly suggest what/how to approach the iodine issue at this point. > Sorry you had to have this happen...Good Luck, I hope you feel better > soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 I think it is hard to get your thyroid optimized without taking iodine in some form along with selenium, magnesium, and other thyroid supporting nutrients. If your thyroid struggles your adrenals pick up the slack. So maybe a lower dose of iodine to jumpstart the thyroid and supportting the adrenals. Re: My story > > Does this mean that we should get our adrenal problems and thyroid > optimized BEFORE we try Iodoral? > > Lynn > >> >> Hi Joni, >> Thanks for sharing, I agree with the other posters, sounds adrenal... >> Are you getting treatment for hypo-T or adrenal Now? >> Meanwhile you can support your adrenals by using herbs such as >> Ashwangadha, Siberian ginseng...or dessicated adrenal or isocort. >> The adrenals should be treated before taking Amour. Most Dr/Endo do >> not know about treating adrenals. A Broda Dr./Naturopathic >> Dr. would do this. Don't give up on the iodine also, but you >> probably need adrenal support first. >> It does not sound like you had a allergic reaction. Steph can >> possibly suggest what/how to approach the iodine issue at this point. >> Sorry you had to have this happen...Good Luck, I hope you feel better >> soon! > > > > > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 What is the recommended daily dose of selenium? > >> > >> Hi Joni, > >> Thanks for sharing, I agree with the other posters, sounds adrenal... > >> Are you getting treatment for hypo-T or adrenal Now? > >> Meanwhile you can support your adrenals by using herbs such as > >> Ashwangadha, Siberian ginseng...or dessicated adrenal or isocort. > >> The adrenals should be treated before taking Amour. Most Dr/Endo do > >> not know about treating adrenals. A Broda Dr./Naturopathic > >> Dr. would do this. Don't give up on the iodine also, but you > >> probably need adrenal support first. > >> It does not sound like you had a allergic reaction. Steph can > >> possibly suggest what/how to approach the iodine issue at this point. > >> Sorry you had to have this happen...Good Luck, I hope you feel better > >> soon! > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 " ladybugsandbees " <ladybugsandbees@...> wrote: > > I think it is hard to get your thyroid optimized > without taking iodine in some form along with selenium, > magnesium, and other thyroid supporting nutrients. I optimized thyroid with thyroid meds, and basic adrenal nutrition of B-50 complex and 1000-2000 mg Vit C. My Hashi-hypo is generally aggravated by iodine and selenium supps, which get the thyroid to " produce " , which is then in turn attacked by Hashi antibodies. Antibodies don't attack circulating thyroid from meds. This was first explained to me in 1994 by my MD at the time. (Have long taken 400-500 mg magnesium tho, to go with 800-1000 mg calcium.) Carol W. willis_protocols Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 200 - 400 mcgs / day is the recommended amount. Steph Re: My story > What is the recommended daily dose of selenium? > > > >> >> >> >> Hi Joni, >> >> Thanks for sharing, I agree with the other posters, sounds > adrenal... >> >> Are you getting treatment for hypo-T or adrenal Now? >> >> Meanwhile you can support your adrenals by using herbs such as >> >> Ashwangadha, Siberian ginseng...or dessicated adrenal or isocort. >> >> The adrenals should be treated before taking Amour. Most Dr/Endo > do >> >> not know about treating adrenals. A Broda Dr./Naturopathic >> >> Dr. would do this. Don't give up on the iodine also, but you >> >> probably need adrenal support first. >> >> It does not sound like you had a allergic reaction. Steph can >> >> possibly suggest what/how to approach the iodine issue at this > point. >> >> Sorry you had to have this happen...Good Luck, I hope you feel > better >> >> soon! >> > >> > >> > >> > >> > >> > ------------------------------------ >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 " ladybugsandbees " <ladybugsandbees@...> wrote: > > 200 - 400 mcgs / day is the recommended amount. > > Steph > > What is the recommended daily dose of selenium? > > The usual RDA of selenium is 70 mcg, and most people get this amount in their food eating just about any kind of diet. Selenium in foods: http://www.nal.usda.gov/fnic/foodcomp/Data/SR19/nutrlist/sr19w317.pdf or http://tinyurl.com/3rfn57 For a super food hit of selenium, brazil nuts, spirulina, and salmon are very high selenium. 200-400 mcg may be recommended in some special programs, and it's common to find 200 mcg selenium in many supplement products today, but this is higher than the usual RDA. Carol W. willis_protocols [see my Links>Nutrients folder for more on selenium] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 The RDA isn't there to help you achieve optimum health. It's the minimum you need to take of whatever nutrient to keep you from developing nutritional deficiencies such as rickets, scurvy, etc. RDA doesn't equal good health. ----- Original Message ----- > > > 200-400 mcg may be recommended in some special programs, > and it's common to find 200 mcg selenium in many > supplement products today, but this is higher than > the usual RDA. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 I don't think that the RDA is very valid. It is the bare minumum not optimum. When you are dealing with people who have thyroid issues more is probably needed. Selenium is another nutrient that is low in the food. If you have mercury amalgams your body will require more to combat that as well. Steph Re: My story > " ladybugsandbees " <ladybugsandbees@...> wrote: >> >> 200 - 400 mcgs / day is the recommended amount. >> >> Steph > > >> > What is the recommended daily dose of selenium? >> > > > > The usual RDA of selenium is 70 mcg, and most people get > this amount in their food eating just about any kind of diet. > > Selenium in foods: > http://www.nal.usda.gov/fnic/foodcomp/Data/SR19/nutrlist/sr19w317.pdf > > or > > http://tinyurl.com/3rfn57 > > For a super food hit of selenium, brazil nuts, spirulina, and > salmon are very high selenium. > > > > 200-400 mcg may be recommended in some special programs, > and it's common to find 200 mcg selenium in many > supplement products today, but this is higher than > the usual RDA. > > Carol W. > willis_protocols > [see my Links>Nutrients folder for more on selenium] > > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 I don't have much experience yet with all these holistic approaches, I do believe it is the right route for me and what will finally give me back my health. I do however have a medical background, I have been a registered nurse for 16 years and truely believe that every " body " works differently. What works for one will not work for all. The best we can do is ask, read, learn and listen to our own bodies. Glean everything we can from our peers with similar health issues and from that and working with our doctors figure out by trial and sometimes error what our body needs and accepts. My best wishes to all, > > > > I think it is hard to get your thyroid optimized > > without taking iodine in some form along with selenium, > > magnesium, and other thyroid supporting nutrients. > > > I optimized thyroid with thyroid meds, and basic adrenal > nutrition of B-50 complex and 1000-2000 mg Vit C. > > My Hashi-hypo is generally aggravated by iodine and > selenium supps, which get the thyroid to " produce " , which > is then in turn attacked by Hashi antibodies. Antibodies > don't attack circulating thyroid from meds. This was > first explained to me in 1994 by my MD at the time. > > (Have long taken 400-500 mg magnesium tho, to go with > 800-1000 mg calcium.) > > Carol W. > willis_protocols > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Thanks , I was hoping that I was getting enough in my glucobalance (150mcg) so I didn't have to add another pill to the massive pile. Oh well, what one more, LOL. Soon I won't have to eat anything, I will just be full from all the supplements! Is this one I can get from the Vitamin Shoppe? > >> >> > >> >> Hi Joni, > >> >> Thanks for sharing, I agree with the other posters, sounds > > adrenal... > >> >> Are you getting treatment for hypo-T or adrenal Now? > >> >> Meanwhile you can support your adrenals by using herbs such as > >> >> Ashwangadha, Siberian ginseng...or dessicated adrenal or isocort. > >> >> The adrenals should be treated before taking Amour. Most Dr/Endo > > do > >> >> not know about treating adrenals. A Broda Dr./Naturopathic > >> >> Dr. would do this. Don't give up on the iodine also, but you > >> >> probably need adrenal support first. > >> >> It does not sound like you had a allergic reaction. Steph can > >> >> possibly suggest what/how to approach the iodine issue at this > > point. > >> >> Sorry you had to have this happen...Good Luck, I hope you feel > > better > >> >> soon! > >> > > >> > > >> > > >> > > >> > > >> > ------------------------------------ > >> > > >> > > >> > > >> > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 You are right . I have tried supplements for a while (usually takes 3 mos to know if you are going to feel different if not sooner) and have quit them unless I had a lab deficiency. There are some things like the ATP CoFactors that have worked well to increase energy in others and did nothing for me. I love my Mg oil and others say they don't feel different. Unfortunately there are no absolutes and you sometimes have to go the trial and error method. Re: My story >I don't have much experience yet with all these holistic approaches, > I do believe it is the right route for me and what will finally give > me back my health. I do however have a medical background, I have > been a registered nurse for 16 years and truely believe that > every " body " works differently. What works for one will not work for > all. The best we can do is ask, read, learn and listen to our own > bodies. Glean everything we can from our peers with similar health > issues and from that and working with our doctors figure out by trial > and sometimes error what our body needs and accepts. > > My best wishes to all, > > > >> > >> > I think it is hard to get your thyroid optimized >> > without taking iodine in some form along with selenium, >> > magnesium, and other thyroid supporting nutrients. >> >> >> I optimized thyroid with thyroid meds, and basic adrenal >> nutrition of B-50 complex and 1000-2000 mg Vit C. >> >> My Hashi-hypo is generally aggravated by iodine and >> selenium supps, which get the thyroid to " produce " , which >> is then in turn attacked by Hashi antibodies. Antibodies >> don't attack circulating thyroid from meds. This was >> first explained to me in 1994 by my MD at the time. >> >> (Have long taken 400-500 mg magnesium tho, to go with >> 800-1000 mg calcium.) >> >> Carol W. >> willis_protocols >> > > > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi all, Thank you for all of your posts and suggestions. I think most of you are in agreement with me that my particular problem in taking Iodoral is because of my adrenal fatigue. That’s why I haven’t started taking Iodoral again. There’s so much to learn and know about all of our glands and what may help them get well. I have been treating my adrenal’s myself with supplements and herbs, and the hardest of all….rest. Rest is the number one thing to do for adrenal fatigue but it’s the hardest for me. I lead a very busy life at home and I know that if I want to get well I have to slow down. For my adrenals I am trying to follow the advice of Dr. and his book “Adrenal Fatigue The 21st Century Stress Syndrome”. Vitamin C is very important, along with Pantothenic Acid, vitamin E, B Complex, Magnesium. Best herbs are Licorice Root, Ashwagandha Root, Siberian Ginseng Root, Ginkgo leaf, Ginger Root. I also take ½ teaspoon of Celtic sea salt twice a day, along with salting my foods at the table. I also drink at least two quarts of water a day. Salt is one of the most important things to help heal adrenals. If a person craves salty foods, they probably have adrenal fatigue. We have been told a huge lie when we’re told to not eat salt. Iodized salt yes…..that literally will kill you. It’s full of chemicals to make it pour and bleached to make it white. Sea salt such as Celtic is one of the best health foods we have. Sea salt by the way has very, very, little iodine in it. Sea salt has over 80 minerals which by the way are all removed in iodized salt. Carol, thank you for pointing out about the nausea I experienced could have been because of liver detox. I never thought of that before but I agree with you. I’ve been wanting to do a liver detox because I’ve been suspecting I’ve needed to, now I’m even more convinced. I’m not sure if I should now or not though. Maybe if I take it slow. Kalliopi, what is liver flushing? Anne, I am interested in the Bio Superfood you mentioned. I would appreciate it if you would send me the information on it. I learned several months ago I need to treat my adrenals before my thyroid, and I guess Iodoral is just going to have to wait a bit too. Healing is a slow process but I guess I’m always looking and hoping for that certain something to speed up the whole thing. Joni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi Joni, I want to start by saying that I'm not nearly the accomplished iodine user that many on the list are, however here's a thought: you said (feb '08) " I started two weeks ago taking one tablet a day of 12.5mg. That didn’t seem to do much for me so I have started taking two tablets a day for the last week. I think I see more energy in the afternoon but I’m thinking I should be feeling a lot better than I do." then you increased and had your incident. Just an idea here: if you were feeling ok or a bit better on one or two tablets, why not do just that as you work on the other issues. I was given a much weaker form of iodine back in the fall ('07) and took that daily - I didn't notice it one way or another but I believe it helped me in adjusting to the iodoral when I started it in Feb. I increased very slowly and only had very minimal detox symptoms. I am now up to 75 mg and holding. I'm not hypo but dealing with hyper, I don't know how I fare in the adrenals but I feel fine mostly. for what it's worth - RE: Re: My story Hi all, Thank you for all of your posts and suggestions. I think most of you are in agreement with me that my particular problem in taking Iodoral is because of my adrenal fatigue. That’s why I haven’t started taking Iodoral again. There’s so much to learn and know about all of our glands and what may help them get well. I have been treating my adrenal’s myself with supplements and herbs, and the hardest of all….rest.. Rest is the number one thing to do for adrenal fatigue but it’s the hardest for me. I lead a very busy life at home and I know that if I want to get well I have to slow down. For my adrenals I am trying to follow the advice of Dr. and his book “Adrenal Fatigue The 21st Century Stress Syndrome”. Vitamin C is very important, along with Pantothenic Acid, vitamin E, B Complex, Magnesium. Best herbs are Licorice Root, Ashwagandha Root, Siberian Ginseng Root, Ginkgo leaf, Ginger Root. I also take ½ teaspoon of Celtic sea salt twice a day, along with salting my foods at the table. I also drink at least two quarts of water a day. Salt is one of the most important things to help heal adrenals. If a person craves salty foods, they probably have adrenal fatigue. We have been told a huge lie when we’re told to not eat salt. Iodized salt yes…..that literally will kill you. It’s full of chemicals to make it pour and bleached to make it white.. Sea salt such as Celtic is one of the best health foods we have. Sea salt by the way has very, very, little iodine in it. Sea salt has over 80 minerals which by the way are all removed in iodized salt. Carol, thank you for pointing out about the nausea I experienced could have been because of liver detox. I never thought of that before but I agree with you. I’ve been wanting to do a liver detox because I’ve been suspecting I’ve needed to, now I’m even more convinced. I’m not sure if I should now or not though. Maybe if I take it slow. Kalliopi, what is liver flushing? Anne, I am interested in the Bio Superfood you mentioned. I would appreciate it if you would send me the information on it. I learned several months ago I need to treat my adrenals before my thyroid, and I guess Iodoral is just going to have to wait a bit too. Healing is a slow process but I guess I’m always looking and hoping for that certain something to speed up the whole thing. Joni Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi , I’ve thought many times of doing just what you have suggested. But, I also wonder if I wouldn’t have had some kind of reaction eventually anyway, even keeping the Iodoral at a low dosage. I don’t really know what to do to tell you the truth. When I was going through my experience I told the Lord that I will be seeing Him soon. I thought I was dying. I’m thinking if I get through a liver detox and get that all cleaned out, I may be able to handle the Iodoral. Just something to try anyway. Joni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Thanks for the input on Adrenal Fatigue The 21st Century Stress Syndrome The Dallas library has four copies. Duke ---------------------------------> Hope your day goes well. 214-823-7070 iodine From: jeffnjoni@...Date: Sat, 3 May 2008 20:12:24 -0700Subject: RE: Re: My story .. Get Free (PRODUCT) RED™ Emoticons, Winks and Display Pics. Check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 I get so confused with this since I don't have a thyroid. Does jumpstarting the thyroid still apply? Improve receptors or ? Lynn > >> > >> Hi Joni, > >> Thanks for sharing, I agree with the other posters, sounds adrenal... > >> Are you getting treatment for hypo-T or adrenal Now? > >> Meanwhile you can support your adrenals by using herbs such as > >> Ashwangadha, Siberian ginseng...or dessicated adrenal or isocort. > >> The adrenals should be treated before taking Amour. Most Dr/Endo do > >> not know about treating adrenals. A Broda Dr./Naturopathic > >> Dr. would do this. Don't give up on the iodine also, but you > >> probably need adrenal support first. > >> It does not sound like you had a allergic reaction. Steph can > >> possibly suggest what/how to approach the iodine issue at this point. > >> Sorry you had to have this happen...Good Luck, I hope you feel better > >> soon! > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Selenium is something that could be cautiously experimented with if one has autoimmune hypothyroid or hyperthyroid. Non-autoimmune hypothyroid would not have the same potential problems with high selenium. As a Hashi-hypo person aggravated by selenium supplements, I will see a visible thyroid inflammation with even 25-50 mcg supplementation, so this tells me that selenium is a powerful supplement that needs judicious use. I probably get enough of the daily requirement in foods. Within the last year, longterm effects of high selenium are beginning to come out in the medical journals. In one study of 200 mcg used for several years, more than half of participants came down with Diabetes 2. Now some of them might have come down with it anyway in that amount of time, but a significant percentage would not have. Here's a summary on that: http://www.healthcentral.com/diabetes/news-37229-66.html If someone were obese (BMI 30+), over 50-55+ years old, and postmenopausal, or have higher cortisol at any time of day, the odds of insulin resistance and diabetes 2 go up further. Carol W. willis_protocols " ladybugsandbees " <ladybugsandbees@...> wrote: > > I don't think that the RDA is very valid. > It is the bare minumum not optimum. > When you are dealing with people who have > thyroid issues more is > probably needed. Selenium is another nutrient > that is low in the food. If > you have mercury amalgams your body will > require more to combat that as well. > > Steph > > > > Re: My story > > > > " ladybugsandbees " <ladybugsandbees@> wrote: > >> > >> 200 - 400 mcgs / day is the recommended amount. > >> > >> Steph > > > > > >> > What is the recommended daily dose of selenium? > >> > > > > > > > The usual RDA of selenium is 70 mcg, and most people get > > this amount in their food eating just about any kind of diet. > > > > Selenium in foods: > > http://www.nal.usda.gov/fnic/foodcomp/Data/SR19/nutrlist/sr19w317.pdf > > > > or > > > > http://tinyurl.com/3rfn57 > > > > For a super food hit of selenium, brazil nuts, spirulina, and > > salmon are very high selenium. > > > > > > > > 200-400 mcg may be recommended in some special programs, > > and it's common to find 200 mcg selenium in many > > supplement products today, but this is higher than > > the usual RDA. > > > > Carol W. > > willis_protocols > > [see my Links>Nutrients folder for more on selenium] > > > > > > ------------------------------------ > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 " DeCubellis Ranch " <decubellisranch@...> wrote: > > Perhaps your body needs it and your thyroid is using it? The thyroid is using the selenium and " producing " thyroid, and the thyroid is then attacked by antibodies. See my msg #23579 from May 1 on degrees of functioning thyroid. > The study you mention is not definitive, > and it doesn't relate AT ALL to > hypo or Graves' patients. > > The selenium study cited did not exclude hypo, Hashi-hypo, or Graves patients. A bit more detail on the selenium/diabetes study, with original article cited in the footnotes: http://www.annals.org/cgi/content/full/0000605-200708210-00177v1 Carol willis_protocols > ----- Original Message ----- > > > As a Hashi-hypo person aggravated by selenium supplements, > > I will see a visible thyroid inflammation with even 25-50 mcg > > supplementation, so this tells me that selenium is a > > powerful supplement that needs judicious use. I probably > > get enough of the daily requirement in foods. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Hi ! Thanks for writing and thanks for telling me a bit about your story. I'm sorry to hear that you have got the same run around as I have. And no, you are by no means alone. Write me anytime. Genie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Joni, I had amalgam fillings for years, which built up a large mercury store in my body and brain. I used ala and dmsa for nearly two years, in order to remove mercury from my body. I had many mercury detox reactions, so I know what they feel like. I have had similar detox reactions during iodine therepy at 6-18 mg dosage. iodine mobilizes mercury. This may have been your problem. These lists are important, as we all learn from each others experiences, whether successes or setbacks. Thanks for posting what you did. If you check out www.dmpsbackfire.com, you will read about problems with IV chelation loosening up too much mercury and creating neurolgical problems. Your reaction is similar to what others have posted. Shay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 Hi Amy, Welcome to our group. You've come to the right place for sure. The reason your previous candida diet didn't help is because it still contained foods that feed candida, and didn't contain enough " good " fats like butter, coconut oil, lard and other natural fats from animals, birds and fish. Man-made vegetable oils, except olive oil, are only one molecule away from being totally plastic and they are extremely damaging to the body. There are many other damaging foods as well, i.e. soy, table salt, etc. We have many people join this group who have tried other candida programs without success, but they do great on this program. So please read " How to Successfully Overcome Candida " on this menu: http://www.healingnaturallybybee.com/articles/menu2_8.php Also read " Curing Candida, How to Get Started " on that same menu. Candida isn't cured by killing it off or trying to get rid of it. It doesn't work that way. The only way is to build up the immune system, which takes time, patience and persistence with mainly diet and supplements. It takes 1 month of natural healing for every year you've been unwell. We cannot expect to be healthy if we don't follow Nature's Laws regarding health. To give yourself a boost read the many Success Stories by members of this group: http://www.healingnaturallybybee.com/success/index.php Many of the symptoms you are experiencing are die-off symptoms, which are necessary to heal naturally. Some symptoms will get worse before they get better so there will be many ups and downs - see this article: http://www.healingnaturallybybee.com/articles/heal2.php So read and enjoy! You'll be happy you did! Get back to us afterward. We are here to help and support you to get healthy too! The best in health, Bee > > Hi all, > > After many years of searching for an answer to a chronic health > problem which has made a massive impact on my life, I am hopeful that > I may have finally landed in the right place. Having been to > countless medical professionals who can't help me, I have taken > matters into my own hands in the hope of finding some relief, and > even better, a cure. > > I am a 31-year-old female from Sydney, Australia suffering from a > long-term, chronic congestion issue around my throat area which > causes me to constantly clear my throat and swallow. I started > noticing the symptoms in 2002 when I returned to Sydney after living > in Europe for 18 months. Nothing drastic had changed in my life at > the time. > > Leading up to that point, I had always struggled with digestive > issues and had been diagnosed with Irritiable Bowel Syndrome in my > adolescent years. Additionally, I had a bad bout of glandular fever > before going overseas and got sick with virual infections quite a few > times whilst living abroad. To this day, I don't think the glandfular > has ever really left my body as I get rundown with viral type > symptoms every month or two. In an attempt to get well, I have seen > about 14 health practitioners over the past five years and tried > everything from rhinoplasty surgery to eliminiation diets to > acupuncture to herbal remedies to every test under the sun, but I > haven't released the blockage yet. > > The mucous build-up has a big impact on my life, affecting everything > from my immune system to my moods to my blood pressure, energy > levels, self-esteem and love life. I started having panic attacks > about a year ago and feel generally anxious on most days. I've been > taking anxiety medication for about a year now and see a psychologist > once a month to talk about anxiety management. I often notice my > pulse races for no reason. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Hello , I am sorry to hear that you have had such bad experiences. As far as the TORP goes, my son's otologist has told him that there are some new developments in the immediate future whereby a TORP can be adjusted after it is implanted at a later date. My son, having had 3 that all worked for only short periods of time is looking forward to this coming on the market. I wish you the best in the future. Audrey My Story Childhood: I had tubes in and out of my ears and my adnoids removed. Counted up a total of 17 surgeries before the age of 10. I learned the "hold nose and blow" method, which started with my mom putting a tube in my nose and blowing to depressurize my ears. So glad I learned to so it myself because the tube was just agonizing experience. circa sometime in 2004: 20 years free of ear problems. No pressure problems, etc. I moved into a house with gas heat with a dog and two cats. I started to come down with a cold and saw an ad many times for the drug Zicam which is still on the market today and decided to give it a try. They have nasal swabs now, but at the time it was a spray to be applied in the mouth. I'm not pointing blame at any one thing, but believe it could be any combination of environmental variables that caused what came next. When I sprayed the Zicam into my mouth, I felt what seemed like a sharpened pencil being jammed through my eardrum. It was the worst pain I have felt in my life. It was almost immediately after spraying. This happened twice and I discontinued use of the spray. Allergies maybe? Zinc overdose? who knows. I've told my theory that Zicam had something to do with my future problems and docs shoot it down every time. All I know is that from the time I used Zicam and when I was diagnosed with a c-toma that my ear remained constantly clogged and I had to depressurize often. Aug 06: Diagnosed with a cholesteatoma in my right ear. Received a tympanomastoidectomy which replaced my eardrum and removed c-toma, incus and malleus and severed my chorda tympani nerve in that ear (taste nerve). Scheduled to re-explore in a year to make sure all was removed and perform ossicular reconstruction. Of course, I had regular check-ups throughout the year. Just a sidenote that this was my last semester of college. Boy was that an experience. Graduated with honors still. It was a "If I can make it through that, I can make it through anything" kind of experience for sure. Aug 07: I had a titanium implant installed. A PORP to be exact. This created a bridge between my ear drum and the last remaining bone, the Stapes. Nov 07: We realized my left eardrum had collapsed and were laying like saran wrap on the ear bones. To prevent another choleaseatoma and destruction of the bones in my once "good" ear, we acted quickly and performed a tympanoplasty with cartilage reinforcement. This surgery again severed my remaining chorda tympani nerve, supossedly rendering my taste to nothing. The bones were luckily saved and unharmed. At this time, we installed a PET (tube) in my right ear because it seemed clogged and was not conducting sound as it should. Somehow, I can still taste. I'm pretty sure my brain is not playing tricks on me because I can still taste. Not sure why or how, but I can. I got a cold right after surgery. Left ear completely clogged and right ear not working as I had hoped with a PET in it. I had the worst hearing I have had in my life. I became so scared of hearing loss that my partner and I started sign language lessons to ensure we could communicate. I've never feared anything worse than being unable to communicate. April 08: We saw from the outside that the implant was protruding uncomfortably through the eardrum. We decided that we needed to put cartilage reinforement on the ear drum, and this would give him a chance to look into why the implant was not performing as we had hoped. During the surgery, he installed the cartilage and found that the implant had actually broken my stapes and was embedded in the flesh beside the inner ear linkage. The current implant was useless because it was not long enough. We would need to be re-fitted with a TORP in the future if I indeed choose to do so. I luckily had a PET installed in the left ear which cleared the ear and finally, after 5 months, had one good ear. A few days after this last surgery I developed vertigo and spent a week immobilized in the hospital. I was quite surprised it took this many surgeries to actually develop a side-effect. It was the worst week of my life. I couldn't keep my eyes focused on anything. Couldn't walk straight and was the first time in my life that I looked in the mirror and actually looked green. I became well known for the guy that came into the doctor's office, and later to the hospital with my silver bathroom trashcan clutched in my arms. If I ever had to pick a personal hell, this experience would be it. Sept 08: Got another cold and my left ear PET fell out. CLOGGED. Replaced the PET. Today: My PET fell out about 2 weeks ago. I just woke up this morning with the feeling of fluid in my ear. Everyone knows the feeling. I lean my head back to take a drink and my hearing fades a bit. I've just moved to a new city and have been at my new job for about 3 months now. I have an appointment for a new ENT a week from today, but what I'm most fearful of is the hearing loss this will develop before a new PET is installed. Having one ear is tough and I need some advice. I'm trying to decide what I want to do with my right ear. I've looked into TORPS which have a lower success rate than PORPS because of the lack of stapes. Already having no luck with the first makes me hesitant to the alternative. If I don't have another implant installed, I will feel it has all been for nothing, but on the other hand I'm scared of having that ear cut on for a 4th time with the new risk of vertigo. I've looked into BAHAs which I feel would be a great outcome, but don't know if I can endure the procedures to have a plug in the side of my head. I'm feeling desperate at this point. I can't keep relying solely on just one ear. All I feel I can do at this point is throw my hands up in the air. I would love to hear from others who may have similar experiences. Thanks for letting me tell my story. I won't give up hope, but frustration is overpowering at times. A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Audrey - Do you have any more information on the new developments with a TORP? or where to look for information. I have identical twin daughters, one has had 3 cholesteatoma/tympanomastoidectomy surgeries. She has already had ossicular reconstruction, however, the prothesis has moved and is no longer working. The Dr. wants to redo it. The other twin just had her 2nd surger for the same thing. She will not have reconstruction for another 8-10 months. I was trying to do as much research as I could on the options available and to jsut make sure my Dr. was using the latest technology, etc. Thank you very much. > > > Hello , > I am sorry to hear that you have had such bad experiences. As far as the TORP goes, my son's otologist has told him that there are some new developments in the immediate future whereby a TORP can be adjusted after it is implanted at a later date. My son, having had 3 that all worked for only short periods of time is looking forward to this coming on the market. > > > I wish you the best in the future. > Audrey > > > > > My Story > > > > > > > > > > > > > > > > > > > > > > > > > > Childhood: I had tubes in and out of my ears and my adnoids removed. > > Counted up a total of 17 surgeries before the age of 10. I learned > > the " hold nose and blow " method, which started with my mom putting a > > tube in my nose and blowing to depressurize my ears. So glad I > > learned to so it myself because the tube was just agonizing > > experience. > > > > circa sometime in 2004: 20 years free of ear problems. No pressure > > problems, etc. I moved into a house with gas heat with a dog and two > > cats. I started to come down with a cold and saw an ad many times for > > the drug Zicam which is still on the market today and decided to give > > it a try. They have nasal swabs now, but at the time it was a spray > > to be applied in the mouth. I'm not pointing blame at any one thing, > > but believe it could be any combination of environmental variables > > that caused what came next. When I sprayed the Zicam into my mouth, I > > felt what seemed like a sharpened pencil being jammed through my > > eardrum. It was the worst pain I have felt in my life. It was almost > > immediately after spraying. This happened twice and I discontinued > > use of the spray. Allergies maybe? Zinc overdose? who knows. I've > > told my theory that Zicam had something to do with my future problems > > and docs shoot it down every time. All I know is that from the time I > > used Zicam and when I was diagnosed with a c-toma that my ear > > remained constantly clogged and I had to depressurize often. > > > > Aug 06: Diagnosed with a cholesteatoma in my right ear. Received a > > tympanomastoidectomy which replaced my eardrum and removed c-toma, > > incus and malleus and severed my chorda tympani nerve in that ear > > (taste nerve). Scheduled to re-explore in a year to make sure all was > > removed and perform ossicular reconstruction. Of course, I had > > regular check-ups throughout the year. Just a sidenote that this was > > my last semester of college. Boy was that an experience. Graduated > > with honors still. It was a " If I can make it through that, I can > > make it through anything " kind of experience for sure. > > > > Aug 07: I had a titanium implant installed. A PORP to be exact. This > > created a bridge between my ear drum and the last remaining bone, the > > Stapes. > > > > Nov 07: We realized my left eardrum had collapsed and were laying > > like saran wrap on the ear bones. To prevent another choleaseatoma > > and destruction of the bones in my once " good " ear, we acted quickly > > and performed a tympanoplasty with cartilage reinforcement. This > > surgery again severed my remaining chorda tympani nerve, supossedly > > rendering my taste to nothing. The bones were luckily saved and > > unharmed. At this time, we installed a PET (tube) in my right ear > > because it seemed clogged and was not conducting sound as it should. > > Somehow, I can still taste. I'm pretty sure my brain is not playing > > tricks on me because I can still taste. Not sure why or how, but I > > can. > > > > I got a cold right after surgery. Left ear completely clogged and > > right ear not working as I had hoped with a PET in it. I had the > > worst hearing I have had in my life. I became so scared of hearing > > loss that my partner and I started sign language lessons to ensure we > > could communicate. I've never feared anything worse than being unable > > to communicate. > > > > April 08: We saw from the outside that the implant was protruding > > uncomfortably through the eardrum. We decided that we needed to put > > cartilage reinforement on the ear drum, and this would give him a > > chance to look into why the implant was not performing as we had > > hoped. During the surgery, he installed the cartilage and found that > > the implant had actually broken my stapes and was embedded in the > > flesh beside the inner ear linkage. The current implant was useless > > because it was not long enough. We would need to be re-fitted with a > > TORP in the future if I indeed choose to do so. I luckily had a PET > > installed in the left ear which cleared the ear and finally, after 5 > > months, had one good ear. > > > > A few days after this last surgery I developed vertigo and spent a > > week immobilized in the hospital. I was quite surprised it took this > > many surgeries to actually develop a side-effect. It was the worst > > week of my life. I couldn't keep my eyes focused on anything. > > Couldn't walk straight and was the first time in my life that I > > looked in the mirror and actually looked green. I became well known > > for the guy that came into the doctor's office, and later to the > > hospital with my silver bathroom trashcan clutched in my arms. If I > > ever had to pick a personal hell, this experience would be it. > > > > Sept 08: Got another cold and my left ear PET fell out. CLOGGED. > > Replaced the PET. > > > > Today: My PET fell out about 2 weeks ago. I just woke up this morning > > with the feeling of fluid in my ear. Everyone knows the feeling. I > > lean my head back to take a drink and my hearing fades a bit. I've > > just moved to a new city and have been at my new job for about 3 > > months now. I have an appointment for a new ENT a week from today, > > but what I'm most fearful of is the hearing loss this will develop > > before a new PET is installed. Having one ear is tough and I need > > some advice. > > > > I'm trying to decide what I want to do with my right ear. I've looked > > into TORPS which have a lower success rate than PORPS because of the > > lack of stapes. Already having no luck with the first makes me > > hesitant to the alternative. If I don't have another implant > > installed, I will feel it has all been for nothing, but on the other > > hand I'm scared of having that ear cut on for a 4th time with the new > > risk of vertigo. I've looked into BAHAs which I feel would be a great > > outcome, but don't know if I can endure the procedures to have a plug > > in the side of my head. I'm feeling desperate at this point. I can't > > keep relying solely on just one ear. All I feel I can do at this > > point is throw my hands up in the air. > > > > I would love to hear from others who may have similar experiences. > > Thanks for letting me tell my story. I won't give up hope, but > > frustration is overpowering at times. > Quote Link to comment Share on other sites More sharing options...
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