Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Totally distracted from the foucous of the group. Makes the delete button the biggest key on the computer. I hope everyone is have a grat Christmas week after! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board. Johanna > > Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer. > I hope everyone is have a grat Christmas week after! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board.Johanna>> Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer.> I hope everyone is have a grat Christmas week after!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 Yeah, there are quite a few people here who can relate to what you’re going through right now. I’ll send you a link to a board that can hold your hand through this. Johanna “When we fail to recognize the lives of those around us, we invariably diminish ourselves.” – Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@... Website: http://www.hepcmo.org From: [mailto: ] On Behalf Of Sent: Friday, December 30, 2005 4:09 PM Subject: Re: [ ] Re: Is there Hope??/My Four Cents Worth Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board. Johanna > > Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer. > I hope everyone is have a grat Christmas week after! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 I think the dr needs to understand you can't keep on like this. When do you do your shot? Do the sides get better a couple of days after your shot? See I told you this was masochistic enough. It's good your trying to keep your sense of humor. Keep taking it one day at a time and know I'm walking beside you every step of the way. Sharon <royaltyjack@...> wrote: Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board.Johanna>> Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer.> I hope everyone is have a grat Christmas week after!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 “When we fail to recognize the lives of those around us, we invariably diminish ourselves.” – Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@... Website: http://www.hepcmo.org From: [mailto: ] On Behalf Of Sharon Zeis Sent: Friday, December 30, 2005 4:20 PM Subject: Re: [ ] Re: Is there Hope??/My Four Cents Worth I think the dr needs to understand you can't keep on like this. When do you do your shot? Do the sides get better a couple of days after your shot? See I told you this was masochistic enough. It's good your trying to keep your sense of humor. Keep taking it one day at a time and know I'm walking beside you every step of the way. Sharon <royaltyjack@...> wrote: Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board. Johanna > > Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer. > I hope everyone is have a grat Christmas week after! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 I do my shots on Fri. nights. I start to feel a little better by Tue. But i don't know if it's the Rebetol or those anti depressants, but some days i won't eat because i am so afraid of getting sick. I am never hungry, i only eat so i can take my meds.But u r right i am tough and that darn dragon has got to go!! LOl Thanks for listening!!Sharon Zeis <szeis_1@...> wrote: I think the dr needs to understand you can't keep on like this. When do you do your shot? Do the sides get better a couple of days after your shot? See I told you this was masochistic enough. It's good your trying to keep your sense of humor. Keep taking it one day at a time and know I'm walking beside you every step of the way. Sharon <royaltyjack@...> wrote: Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board.Johanna>> Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer.> I hope everyone is have a grat Christmas week after!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie RE: [ ] Re: Is there Hope??/My Four Cents Worth [image removed] HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 Yeah, there are quite a few people here who can relate to what you're going through right now. I'll send you a link to a board that can hold your hand through this. Johanna "When we fail to recognize the lives of those around us, we invariably diminish ourselves." - Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@...Website: http://www.hepcmo.org From: [mailto: ] On Behalf Of Sent: Friday, December 30, 2005 4:09 PM Subject: Re: [ ] Re: Is there Hope??/My Four Cents Worth Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board.Johanna>> Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer.> I hope everyone is have a grat Christmas week after!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 , I owe you an apology. I didn’t think there was anyone here to see you through this, and I was wrong. The people are here, but they were waiting for the silliness to pass before making themselves known. Now look. They’re out and reaching out to let you know they are there for you. This is what the board is supposed to be about. We’re here for ya, hon. Johanna “When we fail to recognize the lives of those around us, we invariably diminish ourselves.” – Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@... Website: http://www.hepcmo.org From: [mailto: ] On Behalf Of Tubs46@... Sent: Friday, December 30, 2005 6:27 PM Subject: [Norton AntiSpam] Re: [ ] Re: Is there Hope??/My Four Cents Worth I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Re: [ ] Re: Is there Hope??/My Four Cents Worth Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board. Johanna > > Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer. > I hope everyone is have a grat Christmas week after! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Johanna & Eddie, Thanks for the responses. It made me feel better. I know what u mean about getting out. I have been doing that ,but i can't go outside much it is below 0. I hate the cold . It seems like i am cold all the time. But i do go to work 3 days a week and its at a mall so i always go early so i can window shop. I love people and am a people person and i love to watch people rush around. I think its kind of funny. I use to be the same way, but now i try to stop and smell the coffee. Life is to shot and i don't want it to slip away to fast . I'm hitting 50 and i know i have a few more good yrs. God willing. I have never been one to complain about pain or much of anything for that matter, hell i had 6 kids.LOL Thats enough pain to last me a lifetime, plus they r still a pain in my butt!! Gotta love them. Anyway i'm gonna hang tough and u might hear me complain once in awhile, but its all good. U r all GREAT!!!! thanks again. I did my 5th shot on Fri.so maybe soon the sides will start getting better.Plus i am truely blessed to have my man Jack. I don't know how he does it, but i'm glad he does. I told him when this is all over we r gonna go crazy on each other.And i'm not being nasty either.LOL I've had enough sex talk for a while. LOL By the way she Dark Goddess wanted me to join her new Hep C group. Thank God for that delete button. Have A Great New Years, Johanna@...> wrote: HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 , I owe you an apology. I didn’t think there was anyone here to see you through this, and I was wrong. The people are here, but they were waiting for the silliness to pass before making themselves known. Now look. They’re out and reaching out to let you know they are there for you. This is what the board is supposed to be about. We’re here for ya, hon. Johanna “When we fail to recognize the lives of those around us, we invariably diminish ourselves.” – Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@...Website: http://www.hepcmo.org From: [mailto: ] On Behalf Of Tubs46@...Sent: Friday, December 30, 2005 6:27 PM Subject: [Norton AntiSpam] Re: [ ] Re: Is there Hope??/My Four Cents Worth I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie RE: [ ] Re: Is there Hope??/My Four Cents Worth [image removed] HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 Yeah, there are quite a few people here who can relate to what you're going through right now. I'll send you a link to a board that can hold your hand through this. Johanna "When we fail to recognize the lives of those around us, we invariably diminish ourselves." - Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@...Website: http://www.hepcmo.org From: [mailto: ] On Behalf Of Sent: Friday, December 30, 2005 4:09 PM Subject: Re: [ ] Re: Is there Hope??/My Four Cents Worth Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board.Johanna>> Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer.> I hope everyone is have a grat Christmas week after!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Hey Hon! Be good to yourself, that’s the main thing right now. Whatever little bit you can get to pamper “you” take it. Working and keeping active is always good, and many people will tell you it helps to take their mind off the side effects. 50? I’ll be 50 in February! Don’t worry about complaining. This is the place to do it. As a matter of fact, with everyone creating their own discussion board, I’ve decided to do the same. I’ll send you a link to it. It’ll be small and intimate, but the focus will be on support, care and info, and humor, always. The only thing that will be missing is the XXX rating.:smile: Gotta run. There are two lobsters with my name on it at the store, and I have to pick them up for tomorrow’s dinner~ I’ll be back later tonight, as we don’t do the New Years Eve thing anymore. Too much money, too much noise, and I’m (dare I say it?) too old for that silliness anymore. What have you got planned? Johanna From: [mailto: ] On Behalf Of Sent: Saturday, December 31, 2005 3:01 PM Subject: RE: Re: [ ] Re: Is there Hope??/My Four Cents Worth Johanna & Eddie, Thanks for the responses. It made me feel better. I know what u mean about getting out. I have been doing that ,but i can't go outside much it is below 0. I hate the cold . It seems like i am cold all the time. But i do go to work 3 days a week and its at a mall so i always go early so i can window shop. I love people and am a people person and i love to watch people rush around. I think its kind of funny. I use to be the same way, but now i try to stop and smell the coffee. Life is to shot and i don't want it to slip away to fast . I'm hitting 50 and i know i have a few more good yrs. God willing. I have never been one to complain about pain or much of anything for that matter, hell i had 6 kids.LOL Thats enough pain to last me a lifetime, plus they r still a pain in my butt!! Gotta love them. Anyway i'm gonna hang tough and u might hear me complain once in awhile, but its all good. U r all GREAT!!!! thanks again. I did my 5th shot on Fri.so maybe soon the sides will start getting better.Plus i am truely blessed to have my man Jack. I don't know how he does it, but i'm glad he does. I told him when this is all over we r gonna go crazy on each other.And i'm not being nasty either.LOL I've had enough sex talk for a while. LOL By the way she Dark Goddess wanted me to join her new Hep C group. Thank God for that delete button. Have A Great New Years, Johanna@...> wrote: HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 , I owe you an apology. I didn’t think there was anyone here to see you through this, and I was wrong. The people are here, but they were waiting for the silliness to pass before making themselves known. Now look. They’re out and reaching out to let you know they are there for you. This is what the board is supposed to be about. We’re here for ya, hon. Johanna “When we fail to recognize the lives of those around us, we invariably diminish ourselves.” – Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@... Website: http://www.hepcmo.org From: [mailto: ] On Behalf Of Tubs46@... Sent: Friday, December 30, 2005 6:27 PM Subject: [Norton AntiSpam] Re: [ ] Re: Is there Hope??/My Four Cents Worth I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Re: [ ] Re: Is there Hope??/My Four Cents Worth Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: ROFL! I hear ya, Tubs. It'll be nice to get back to the original intent of the board. Johanna > > Totally distracted from the foucous of the group. Makes the delete button the > biggest key on the computer. > I hope everyone is have a grat Christmas week after! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 50 in April. Sharon --- Johanna <johanna@...> wrote: > Hey Hon! > > > > Be good to yourself, that's the main thing right > now. Whatever little bit > you can get to pamper " you " take it. Working and > keeping active is always > good, and many people will tell you it helps to take > their mind off the side > effects. > > 50? I'll be 50 in February! > > Don't worry about complaining. This is the place to > do it. As a matter of > fact, with everyone creating their own discussion > board, I've decided to do > the same. I'll send you a link to it. It'll be small > and intimate, but the > focus will be on support, care and info, and humor, > always. The only thing > that will be missing is the XXX rating.:smile: > > > > Gotta run. There are two lobsters with my name on > it at the store, and I > have to pick them up for tomorrow's dinner~ > > I'll be back later tonight, as we don't do the New > Years Eve thing anymore. > Too much money, too much noise, and I'm (dare I say > it?) too old for that > silliness anymore. > > > > What have you got planned? > > > > Johanna > > > _____ > > From: > [mailto: ] On > Behalf Of > Sent: Saturday, December 31, 2005 3:01 PM > > Subject: RE: Re: [ ] Re: Is there > Hope??/My Four Cents > Worth > > > > Johanna & Eddie, > > Thanks for the responses. It made me feel > better. I know what u > mean about getting out. I have been doing that ,but > i can't go outside much > it is below 0. I hate the cold . It seems like i am > cold all the time. But i > do go to work 3 days a week and its at a mall so i > always go early so i can > window shop. I love people and am a people person > and i love to watch people > rush around. I think its kind of funny. I use to be > the same way, but now i > try to stop and smell the coffee. Life is to shot > and i don't want it to > slip away to fast . I'm hitting 50 and i know i have > a few more good yrs. > God willing. > > I have never been one to complain about pain > or much of anything for > that matter, hell i had 6 kids.LOL Thats enough pain > to last me a lifetime, > plus they r still a pain in my butt!! Gotta love > them. Anyway i'm gonna hang > tough and u might hear me complain once in awhile, > but its all good. U r all > GREAT!!!! thanks again. > > I did my 5th shot on Fri.so maybe soon the > sides will start getting > better.Plus i am truely blessed to have my man Jack. > I don't know how he > does it, but i'm glad he does. I told him when this > is all over we r gonna > go crazy on each other.And i'm not being nasty > either.LOL I've had enough > sex talk for a while. LOL > > By the way she Dark Goddess wanted me to join > her new Hep C group. > Thank God for that delete button. > > Have A Great New Years, J > <mailto:Johanna@...> ohanna@...> > wrote: > > > > > > > > > > HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 > Kansas City, Missouri > 64134 - OFFICE (816)763.4766 > > > > > > > , I owe you an apology. I didn't think there > was anyone here to see > you through this, and I was wrong. The people are > here, but they were > waiting for the silliness to pass before making > themselves known. Now look. > They're out and reaching out to let you know they > are there for you. > > > > This is what the board is supposed to be about. > > > > We're here for ya, hon. > > > > Johanna > > > > > > > > > " When we fail to recognize the lives of those around > us, we invariably > diminish ourselves. " - Ursula Copeland > > > Johanna Koskinen > Executive Director/Outreach Coordinator > > Email: johanna@... > Website: <http://www.hepcmo.org/Email> > http://www.hepcmo.org > > > > > > _____ > > > From: > [mailto: ] On > Behalf Of Tubs46@... > Sent: Friday, December 30, 2005 6:27 PM > > Subject: [Norton AntiSpam] Re: [ ] > Re: Is there Hope??/My > Four Cents Worth > > > > I can remember the sickness too. But I also remember > the more I sat around > and thought about how bad I felt, I would start to > feel even worse. I know > it's hard to do but if you just get up and go into > the yard or sit on the > back porch it will make you feel a little better. I > can remember days when I > couldn't get to work I felt so bad, but I would drag > myself out on the patio > and get my mind off how I felt. And the sunshine > will make you feel so much > better. I know thats easier said then done. Hope the > tx gets easier as time > goes by for some it does. > > > > Eddie > > === message truncated === __________________________________ for Good - Make a difference this year. http://brand./cybergivingweek2005/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz-Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Thank you. We do get off topic and fool around a little bit, the board could get a little bit dry otherwise. We are here for those with hepatitis and their loved ones and that remains our primary focus. -dz-Johanna <johanna@...> wrote: HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 , I owe you an apology. I didn’t think there was anyone here to see you through this, and I was wrong. The people are here, but they were waiting for the silliness to pass before making themselves known. Now look. They’re out and reaching out to let you know they are there for you. This is what the board is supposed to be about. We’re here for ya, hon. Johanna “When we fail to recognize the lives of those around us, we invariably diminish ourselves.” – Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@...Website: http://www.hepcmo.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Dave, Thanks for your imput on the being sick part. I really haven't missed any work. I left one day an hour early. It is sooooooo hard for me to get out of bed. I have never felt this lazy in my life.I do not speep well because i drink so much water. I get up 7or 8 times a night just to go to the bathroom. The meds make my mouth so dry. I was told to suck on candy, but i don't have any desire to eat any sweets at all. My man bought me a bunch of different kinds and i tried a couple and i don't have the taste for them.So i drink alot of water and i pee alotI do have alot of bad headaches as well. And still very sick to my stomach.I'm lucky to keep 2ozs. of food down. Well i'm hanging in there any all of your imput is greatly appreciated!! Hope u had a Great New Year!! How long did u do the treatments?And did they work? I hope so. I love hearing sucessful stories!! Dave <dhz920@...> wrote: I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz-Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Hope you start feeling better. Forgetfullness, or difficulty concentrating are common with the treatment. We always called it the "brain fog". Unfortunately that still seems to be lingering... -dz- <royaltyjack@...> wrote: Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 The treatment was successful, and it has been 4 years since I completed it. I did 48 weeks of treatment and have been undetectable since 6 mos into it. I am not doing anymore pcr tests, just watching the liver enzymes with my physicals and in case of anything unusual, will test further. -dz- <royaltyjack@...> wrote: Dave, Thanks for your imput on the being sick part. I really haven't missed any work. I left one day an hour early. It is sooooooo hard for me to get out of bed. I have never felt this lazy in my life.I do not speep well because i drink so much water. I get up 7or 8 times a night just to go to the bathroom. The meds make my mouth so dry. I was told to suck on candy, but i don't have any desire to eat any sweets at all. My man bought me a bunch of different kinds and i tried a couple and i don't have the taste for them.So i drink alot of water and i pee alotI do have alot of bad headaches as well. And still very sick to my stomach.I'm lucky to keep 2ozs. of food down. Well i'm hanging in there any all of your imput is greatly appreciated!! Hope u had a Great New Year!! How long did u do the treatments?And did they work? I hope so. I love hearing sucessful stories!! Dave <dhz920@...> wrote: I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz-Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 I sure am glad that Forgetfulness and Not being able to concentrate well is part of the treatments . I thought i was getting early signs of old timers!! LOL I do forget alot and i am not as sharp as i use to be, but i was told that this would happen ,by my nurse. It really scared me at first, but i'm good with it now. I know what is causing it now.Thanks for the info. I am feeling a little better today. I got out for the New Year. Was home by 10. I don't drink. It was the first year without alcohol. it didn't bother me at all. I had a good time ,but i was still feeling sick from my shot on Fri.Spent the last two days on the couch. Dave <dhz920@...> wrote: Hope you start feeling better. Forgetfullness, or difficulty concentrating are common with the treatment. We always called it the "brain fog". Unfortunately that still seems to be lingering... -dz- <royaltyjack@...> wrote: Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l ..(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 I blame my forgetfulness on CRS!! I use to blame the TX but hey I've been off of it for a while and I still can't remember shit..LOL..Now I blame it on the hubby!! ..He has been a royal pain the past few days and then thinks I just forget how he acts..Well there are some things I can remember and that is one of them.. it is normal to forget alot while on TX..It was fo rme and others inhere..Dave put it politely but it really is called brain farts!! Yes makeup and Iwere best friends too..I always said you'd be surprised what a little blasting and painting can do..Dave <dhz920@...> wrote: Hope you start feeling better. Forgetfullness, or difficulty concentrating are common with the treatment. We always called it the "brain fog". Unfortunately that still seems to be lingering... -dz- <royaltyjack@...> wrote: Today i spent the day getting very sick. Praying to the porclean god.I have only been doing the treatments for a month and I still have 17 more months. I hope and pray i can keep this up. Is anyone going through this too?I'm so sick . I just want to cry. The Doc. says it comes with the treatments.I Forget sometimes if i vented about this before. I don't know if my forgetfulness is the treatments or old age. LOL Please bare with me. I get so sick it breaks the blood vessels in my face. I look aweful. Thank God for Lore'l .(makeup) LoL Just trying to keep my sense of humor here. sometimes its very hard. well i'm glad all tha mess is over and we can move on to better things. I don't know u all very well but i think u all seem very helpful and thats what i need. Please keep in touch!! Thanks ladies and gents. Have a great New Year!! Johanna@...> wrote:Jan for Good - Make a difference this year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Yes, I guess I am very blessed. In hindsight, I figured pretty certainly that I had it since 1982. I was still using and I was dx'd with hepatitis, they didn't tell me the type. But my physicals started showing high levels of alt & ast since I had a physical in 1983. Blood tests revealed that I had both hepatitis A and C antibodies present. I believe I was co-infected, I was incredibly ill at the time. Good luck and I look forward to the day you announce your victory over this disease. -dz- <royaltyjack@...> wrote: Hey Dave, That is awesome . I am counting down the days myself till i can give u all the same good news.Thanks again for being so sweet. Dave <dhz920@...> wrote: The treatment was successful, and it has been 4 years since I completed it. I did 48 weeks of treatment and have been undetectable since 6 mos into it. I am not doing anymore pcr tests, just watching the liver enzymes with my physicals and in case of anything unusual, will test further. -dz- <royaltyjack@...> wrote: Dave, Thanks for your imput on the being sick part. I really haven't missed any work. I left one day an hour early. It is sooooooo hard for me to get out of bed. I have never felt this lazy in my life.I do not speep well because i drink so much water. I get up 7or 8 times a night just to go to the bathroom. The meds make my mouth so dry. I was told to suck on candy, but i don't have any desire to eat any sweets at all. My man bought me a bunch of different kinds and i tried a couple and i don't have the taste for them.So i drink alot of water and i pee alotI do have alot of bad headaches as well. And still very sick to my stomach.I'm lucky to keep 2ozs. of food down. Well i'm hanging in there any all of your imput is greatly appreciated!! Hope u had a Great New Year!! How long did u do the treatments?And did they work? I hope so. I love hearing sucessful stories!! Dave <dhz920@...> wrote: I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz-Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Dave, Not sure how long i have had it,But i too believe i was Co-infected as well. But i do not dwell. I did at first blame everyone but myself. Now i am fine. I have Hep C and i just have to deal with it. Did get some good news today. Went for my first Doc. visit since i started the treatments. I'm going into my 6th week. Doc. says my liver enzemes are normal, but my white blood count is low. It started out low , so i go for blood tests every two weeks. It started out at 5.3 now they are 2.8. He seems a little concerned. I just pray i can continue the treatments. He say we will know in the 3rd month. I htte the treatments ,but if they will prolong my life i will endure whatever it takes. Hope u have a great day!! Dave <dhz920@...> wrote: Yes, I guess I am very blessed. In hindsight, I figured pretty certainly that I had it since 1982. I was still using and I was dx'd with hepatitis, they didn't tell me the type. But my physicals started showing high levels of alt & ast since I had a physical in 1983. Blood tests revealed that I had both hepatitis A and C antibodies present. I believe I was co-infected, I was incredibly ill at the time. Good luck and I look forward to the day you announce your victory over this disease. -dz- <royaltyjack@...> wrote: Hey Dave, That is awesome . I am counting down the days myself till i can give u all the same good news.Thanks again for being so sweet. Dave <dhz920@...> wrote: The treatment was successful, and it has been 4 years since I completed it. I did 48 weeks of treatment and have been undetectable since 6 mos into it. I am not doing anymore pcr tests, just watching the liver enzymes with my physicals and in case of anything unusual, will test further. -dz- <royaltyjack@...> wrote: Dave, Thanks for your imput on the being sick part. I really haven't missed any work. I left one day an hour early. It is sooooooo hard for me to get out of bed. I have never felt this lazy in my life.I do not speep well because i drink so much water. I get up 7or 8 times a night just to go to the bathroom. The meds make my mouth so dry. I was told to suck on candy, but i don't have any desire to eat any sweets at all. My man bought me a bunch of different kinds and i tried a couple and i don't have the taste for them.So i drink alot of water and i pee alotI do have alot of bad headaches as well. And still very sick to my stomach.I'm lucky to keep 2ozs. of food down. Well i'm hanging in there any all of your imput is greatly appreciated!! Hope u had a Great New Year!! How long did u do the treatments?And did they work? I hope so. I love hearing sucessful stories!! Dave <dhz920@...> wrote: I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz-Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Hey , He’s concerned, because at that low of a point, you are more open to illness, as the WBC are the fighters! So take care and do as the doc says! Johanna From: [mailto: ] On Behalf Of Sent: Tuesday, January 03, 2006 4:08 PM Subject: Re: [ ] Re: Is there Hope??/My Four Cents Worth Dave, Not sure how long i have had it,But i too believe i was Co-infected as well. But i do not dwell. I did at first blame everyone but myself. Now i am fine. I have Hep C and i just have to deal with it. Did get some good news today. Went for my first Doc. visit since i started the treatments. I'm going into my 6th week. Doc. says my liver enzemes are normal, but my white blood count is low. It started out low , so i go for blood tests every two weeks. It started out at 5.3 now they are 2.8. He seems a little concerned. I just pray i can continue the treatments. He say we will know in the 3rd month. I htte the treatments ,but if they will prolong my life i will endure whatever it takes. Hope u have a great day!! Dave <dhz920@...> wrote: Yes, I guess I am very blessed. In hindsight, I figured pretty certainly that I had it since 1982. I was still using and I was dx'd with hepatitis, they didn't tell me the type. But my physicals started showing high levels of alt & ast since I had a physical in 1983. Blood tests revealed that I had both hepatitis A and C antibodies present. I believe I was co-infected, I was incredibly ill at the time. Good luck and I look forward to the day you announce your victory over this disease. -dz- <royaltyjack@...> wrote: Hey Dave, That is awesome . I am counting down the days myself till i can give u all the same good news.Thanks again for being so sweet. Dave <dhz920@...> wrote: The treatment was successful, and it has been 4 years since I completed it. I did 48 weeks of treatment and have been undetectable since 6 mos into it. I am not doing anymore pcr tests, just watching the liver enzymes with my physicals and in case of anything unusual, will test further. -dz- <royaltyjack@...> wrote: Dave, Thanks for your imput on the being sick part. I really haven't missed any work. I left one day an hour early. It is sooooooo hard for me to get out of bed. I have never felt this lazy in my life.I do not speep well because i drink so much water. I get up 7or 8 times a night just to go to the bathroom. The meds make my mouth so dry. I was told to suck on candy, but i don't have any desire to eat any sweets at all. My man bought me a bunch of different kinds and i tried a couple and i don't have the taste for them.So i drink alot of water and i pee alotI do have alot of bad headaches as well. And still very sick to my stomach.I'm lucky to keep 2ozs. of food down. Well i'm hanging in there any all of your imput is greatly appreciated!! Hope u had a Great New Year!! How long did u do the treatments?And did they work? I hope so. I love hearing sucessful stories!! Dave <dhz920@...> wrote: I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz- Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Find Great Deals on Holiday Gifts at Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Johanna, So is thats whats making me so tired and so sick to my stomach all the time?I have the worse taste in my mouth. Nothing i mean nothing sounds good to eat.The water i drink even has a sweet taste to it.Everything has a sweet taste to it.I only eat so i can take my meds. And i might eat 2 maybeeee 3ozs. of food.i was prepared when i went into see him. I had my list of questions and all my side effects. This Doc doesn't have the best bedside manner. He's right to the point. Told me we could stop if i wanted. I am sick as a dog most days, but i gotta hang in there for my man and my kids and grandkids. But most of all for me. My sisters WBC was so low they made her stop the treatments ASAP!!!! There is no hope for her she is in the final stages. I just got off the phone with her. She is so sad. It breaks my heart.I love her so much, but she doesn't even care. She is just ready. I don't know what will happen to me when that day comes.I lost my dad a brother and my grand mother, and now her. I might take a trip tp Arizona soon just to be with her for awhile.I wish she had acomp. so she could meet u all. You all have really made me feel so much better. I know i haven't known you long ,but in the short time you have made me feel welcomed and have been very supportive. Thanks again. Hope you had a Great Day, Johanna <johanna@...> wrote: Hey , He’s concerned, because at that low of a point, you are more open to illness, as the WBC are the fighters! So take care and do as the doc says! Johanna From: [mailto: ] On Behalf Of Sent: Tuesday, January 03, 2006 4:08 PM Subject: Re: [ ] Re: Is there Hope??/My Four Cents Worth Dave, Not sure how long i have had it,But i too believe i was Co-infected as well. But i do not dwell. I did at first blame everyone but myself. Now i am fine. I have Hep C and i just have to deal with it. Did get some good news today. Went for my first Doc. visit since i started the treatments. I'm going into my 6th week. Doc. says my liver enzemes are normal, but my white blood count is low. It started out low , so i go for blood tests every two weeks. It started out at 5.3 now they are 2.8. He seems a little concerned. I just pray i can continue the treatments. He say we will know in the 3rd month. I htte the treatments ,but if they will prolong my life i will endure whatever it takes. Hope u have a great day!! Dave <dhz920@...> wrote: Yes, I guess I am very blessed. In hindsight, I figured pretty certainly that I had it since 1982. I was still using and I was dx'd with hepatitis, they didn't tell me the type. But my physicals started showing high levels of alt & ast since I had a physical in 1983. Blood tests revealed that I had both hepatitis A and C antibodies present. I believe I was co-infected, I was incredibly ill at the time. Good luck and I look forward to the day you announce your victory over this disease. -dz- <royaltyjack@...> wrote: Hey Dave, That is awesome . I am counting down the days myself till i can give u all the same good news.Thanks again for being so sweet. Dave <dhz920@...> wrote: The treatment was successful, and it has been 4 years since I completed it. I did 48 weeks of treatment and have been undetectable since 6 mos into it. I am not doing anymore pcr tests, just watching the liver enzymes with my physicals and in case of anything unusual, will test further. -dz- <royaltyjack@...> wrote: Dave, Thanks for your imput on the being sick part. I really haven't missed any work. I left one day an hour early. It is sooooooo hard for me to get out of bed. I have never felt this lazy in my life.I do not speep well because i drink so much water. I get up 7or 8 times a night just to go to the bathroom. The meds make my mouth so dry. I was told to suck on candy, but i don't have any desire to eat any sweets at all. My man bought me a bunch of different kinds and i tried a couple and i don't have the taste for them.So i drink alot of water and i pee alotI do have alot of bad headaches as well. And still very sick to my stomach.I'm lucky to keep 2ozs. of food down. Well i'm hanging in there any all of your imput is greatly appreciated!! Hope u had a Great New Year!! How long did u do the treatments?And did they work? I hope so. I love hearing sucessful stories!! Dave <dhz920@...> wrote: I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz-Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Find Great Deals on Holiday Gifts at DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Hey ! If you’re still here, run over to the Hepatitis Neighborhood board at: http://www.hepatitisneighborhood.com. There’s a great doctor there, dr. Herrera (I’ve talked with him on the phone many times). He’s doing a chat tonight, and if you can sign up on time, you may get to ask him a question or two. Either way, you now know there’s a place to get direct answers HURRY! Johanna From: [mailto: ] On Behalf Of Sent: Tuesday, January 03, 2006 7:17 PM Subject: RE: [ ] Re: Is there Hope??/My Four Cents Worth Johanna, So is thats whats making me so tired and so sick to my stomach all the time?I have the worse taste in my mouth. Nothing i mean nothing sounds good to eat.The water i drink even has a sweet taste to it.Everything has a sweet taste to it.I only eat so i can take my meds. And i might eat 2 maybeeee 3ozs. of food.i was prepared when i went into see him. I had my list of questions and all my side effects. This Doc doesn't have the best bedside manner. He's right to the point. Told me we could stop if i wanted. I am sick as a dog most days, but i gotta hang in there for my man and my kids and grandkids. But most of all for me. My sisters WBC was so low they made her stop the treatments ASAP!!!! There is no hope for her she is in the final stages. I just got off the phone with her. She is so sad. It breaks my heart.I love her so much, but she doesn't even care. She is just ready. I don't know what will happen to me when that day comes.I lost my dad a brother and my grand mother, and now her. I might take a trip tp Arizona soon just to be with her for awhile.I wish she had acomp. so she could meet u all. You all have really made me feel so much better. I know i haven't known you long ,but in the short time you have made me feel welcomed and have been very supportive. Thanks again. Hope you had a Great Day, Johanna <johanna@...> wrote: Hey , He’s concerned, because at that low of a point, you are more open to illness, as the WBC are the fighters! So take care and do as the doc says! Johanna From: [mailto: ] On Behalf Of Sent: Tuesday, January 03, 2006 4:08 PM Subject: Re: [ ] Re: Is there Hope??/My Four Cents Worth Dave, Not sure how long i have had it,But i too believe i was Co-infected as well. But i do not dwell. I did at first blame everyone but myself. Now i am fine. I have Hep C and i just have to deal with it. Did get some good news today. Went for my first Doc. visit since i started the treatments. I'm going into my 6th week. Doc. says my liver enzemes are normal, but my white blood count is low. It started out low , so i go for blood tests every two weeks. It started out at 5.3 now they are 2.8. He seems a little concerned. I just pray i can continue the treatments. He say we will know in the 3rd month. I htte the treatments ,but if they will prolong my life i will endure whatever it takes. Hope u have a great day!! Dave <dhz920@...> wrote: Yes, I guess I am very blessed. In hindsight, I figured pretty certainly that I had it since 1982. I was still using and I was dx'd with hepatitis, they didn't tell me the type. But my physicals started showing high levels of alt & ast since I had a physical in 1983. Blood tests revealed that I had both hepatitis A and C antibodies present. I believe I was co-infected, I was incredibly ill at the time. Good luck and I look forward to the day you announce your victory over this disease. -dz- <royaltyjack@...> wrote: Hey Dave, That is awesome . I am counting down the days myself till i can give u all the same good news.Thanks again for being so sweet. Dave <dhz920@...> wrote: The treatment was successful, and it has been 4 years since I completed it. I did 48 weeks of treatment and have been undetectable since 6 mos into it. I am not doing anymore pcr tests, just watching the liver enzymes with my physicals and in case of anything unusual, will test further. -dz- <royaltyjack@...> wrote: Dave, Thanks for your imput on the being sick part. I really haven't missed any work. I left one day an hour early. It is sooooooo hard for me to get out of bed. I have never felt this lazy in my life.I do not speep well because i drink so much water. I get up 7or 8 times a night just to go to the bathroom. The meds make my mouth so dry. I was told to suck on candy, but i don't have any desire to eat any sweets at all. My man bought me a bunch of different kinds and i tried a couple and i don't have the taste for them.So i drink alot of water and i pee alotI do have alot of bad headaches as well. And still very sick to my stomach.I'm lucky to keep 2ozs. of food down. Well i'm hanging in there any all of your imput is greatly appreciated!! Hope u had a Great New Year!! How long did u do the treatments?And did they work? I hope so. I love hearing sucessful stories!! Dave <dhz920@...> wrote: I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz- Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Find Great Deals on Holiday Gifts at Shopping DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 Hey , Here’s a small bit on WBC’s. I grew interested in them after a blood test where my numbers were low 3.3. It turned out to be genetic for me, as African-americans tend to run low numbers in WBC’s. As long as the red blood cells and the platelets are normal (which they are), doctors don’t worry about it too much, but they do keep an eye on it. Johanna White blood cell (leukocyte) White blood cells are made in the bone marrow and protect the body against infection. If an infection develops, white blood cells attack and destroy the bacteria, virus, or other organism causing it. White blood cells are bigger than red blood cells and normally are fewer in number. When a person has a bacterial infection, the number of white cells can increase dramatically. The white blood cell count shows the number of white blood cells in a sample of blood. A normal white blood cell count is between 5,000 and 10,000 cells per cubic millimeter. The number of white blood cells is sometimes used to identify an infection or to monitor the body's response to treatment. There are five types of white blood cells: lymphocytes, monocytes, neutrophils, basophils, and eosinophils. “When we fail to recognize the lives of those around us, we invariably diminish ourselves.” – Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@... Website: http://www.hepcmo.org From: [mailto: ] On Behalf Of Sent: Tuesday, January 03, 2006 7:17 PM Subject: RE: [ ] Re: Is there Hope??/My Four Cents Worth Johanna, So is thats whats making me so tired and so sick to my stomach all the time?I have the worse taste in my mouth. Nothing i mean nothing sounds good to eat.The water i drink even has a sweet taste to it.Everything has a sweet taste to it.I only eat so i can take my meds. And i might eat 2 maybeeee 3ozs. of food.i was prepared when i went into see him. I had my list of questions and all my side effects. This Doc doesn't have the best bedside manner. He's right to the point. Told me we could stop if i wanted. I am sick as a dog most days, but i gotta hang in there for my man and my kids and grandkids. But most of all for me. My sisters WBC was so low they made her stop the treatments ASAP!!!! There is no hope for her she is in the final stages. I just got off the phone with her. She is so sad. It breaks my heart.I love her so much, but she doesn't even care. She is just ready. I don't know what will happen to me when that day comes.I lost my dad a brother and my grand mother, and now her. I might take a trip tp Arizona soon just to be with her for awhile.I wish she had acomp. so she could meet u all. You all have really made me feel so much better. I know i haven't known you long ,but in the short time you have made me feel welcomed and have been very supportive. Thanks again. Hope you had a Great Day, Johanna <johanna@...> wrote: Hey , He’s concerned, because at that low of a point, you are more open to illness, as the WBC are the fighters! So take care and do as the doc says! Johanna From: [mailto: ] On Behalf Of Sent: Tuesday, January 03, 2006 4:08 PM Subject: Re: [ ] Re: Is there Hope??/My Four Cents Worth Dave, Not sure how long i have had it,But i too believe i was Co-infected as well. But i do not dwell. I did at first blame everyone but myself. Now i am fine. I have Hep C and i just have to deal with it. Did get some good news today. Went for my first Doc. visit since i started the treatments. I'm going into my 6th week. Doc. says my liver enzemes are normal, but my white blood count is low. It started out low , so i go for blood tests every two weeks. It started out at 5.3 now they are 2.8. He seems a little concerned. I just pray i can continue the treatments. He say we will know in the 3rd month. I htte the treatments ,but if they will prolong my life i will endure whatever it takes. Hope u have a great day!! Dave <dhz920@...> wrote: Yes, I guess I am very blessed. In hindsight, I figured pretty certainly that I had it since 1982. I was still using and I was dx'd with hepatitis, they didn't tell me the type. But my physicals started showing high levels of alt & ast since I had a physical in 1983. Blood tests revealed that I had both hepatitis A and C antibodies present. I believe I was co-infected, I was incredibly ill at the time. Good luck and I look forward to the day you announce your victory over this disease. -dz- <royaltyjack@...> wrote: Hey Dave, That is awesome . I am counting down the days myself till i can give u all the same good news.Thanks again for being so sweet. Dave <dhz920@...> wrote: The treatment was successful, and it has been 4 years since I completed it. I did 48 weeks of treatment and have been undetectable since 6 mos into it. I am not doing anymore pcr tests, just watching the liver enzymes with my physicals and in case of anything unusual, will test further. -dz- <royaltyjack@...> wrote: Dave, Thanks for your imput on the being sick part. I really haven't missed any work. I left one day an hour early. It is sooooooo hard for me to get out of bed. I have never felt this lazy in my life.I do not speep well because i drink so much water. I get up 7or 8 times a night just to go to the bathroom. The meds make my mouth so dry. I was told to suck on candy, but i don't have any desire to eat any sweets at all. My man bought me a bunch of different kinds and i tried a couple and i don't have the taste for them.So i drink alot of water and i pee alotI do have alot of bad headaches as well. And still very sick to my stomach.I'm lucky to keep 2ozs. of food down. Well i'm hanging in there any all of your imput is greatly appreciated!! Hope u had a Great New Year!! How long did u do the treatments?And did they work? I hope so. I love hearing sucessful stories!! Dave <dhz920@...> wrote: I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz- Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Find Great Deals on Holiday Gifts at Shopping DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
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