Re: Is there Hope??/My Four Cents Worth

[Guest guest]

Your doctor’s schmuck. Hang in

there, girl.

I’m sorry about your sister. How old

is she, and what part of Arizona

does she live? Does she have family there?

Johanna

From: [mailto: ] On Behalf Of

Sent: Tuesday, January 03, 2006

7:17 PM

Subject: RE: [ ]

Re: Is there Hope??/My Four Cents Worth

Johanna,

So is thats whats making me

so tired and so sick to my stomach all the time?I have the worse taste in my

mouth. Nothing i mean nothing sounds good to eat.The water i drink even has a

sweet taste to it.Everything has a sweet taste to it.I only eat so i can take

my meds. And i might eat 2 maybeeee 3ozs. of food.i was prepared when i went

into see him. I had my list of questions and all my side effects. This Doc

doesn't have the best bedside manner. He's right to the point. Told me we could

stop if i wanted. I am sick as a dog most days, but i gotta hang in there

for my man and my kids and grandkids. But most of all for me.

My sisters WBC was so low

they made her stop the treatments ASAP!!!! There is no hope for her she is in

the final stages. I just got off the phone with her. She is so sad. It breaks

my heart.I love her so much, but she doesn't even care. She is just ready. I

don't know what will happen to me when that day comes.I lost my dad a brother

and my grand mother, and now her. I might take a trip tp Arizona soon just to be with her for

awhile.I wish she had acomp. so she could meet u all. You all have really

made me feel so much better. I know i haven't known you long ,but in the short

time you have made me feel welcomed and have been very supportive. Thanks

again. Hope you had a Great Day,

Johanna

<johanna@...> wrote:

Hey ,

He’s concerned, because at that low

of a point, you are more open to illness, as the WBC are the fighters! So take

care and do as the doc says!

Johanna

From:

[mailto: ]

On Behalf Of

Sent: Tuesday, January 03, 2006

4:08 PM

Subject: Re: [ ]

Re: Is there Hope??/My Four Cents Worth

Dave,

Not sure how long i have had it,But i too

believe i was Co-infected as well. But i do not dwell. I did at first blame

everyone but myself. Now i am fine. I have Hep C and i just have to deal with

it.

Did get some good news today. Went for my first Doc.

visit since i started the treatments. I'm going into my 6th week. Doc.

says my liver enzemes are normal, but my white blood count is low. It started

out low , so i go for blood tests every two weeks. It started out at 5.3 now

they are 2.8. He seems a little concerned. I just pray i can continue the

treatments. He say we will know in the 3rd month. I htte the treatments ,but if

they will prolong my life i will endure whatever it takes. Hope u have a great

day!!

Dave

<dhz920@...> wrote:

Yes, I guess I am very blessed. In hindsight, I figured pretty

certainly that I had it since 1982. I was still using and I was dx'd with

hepatitis, they didn't tell me the type. But my physicals started showing high

levels of alt & ast since I had a physical in 1983. Blood tests revealed

that I had both hepatitis A and C antibodies present. I believe I was

co-infected, I was incredibly ill at the time. Good luck and I look forward to

the day you announce your victory over this disease. -dz-

<royaltyjack@...>

wrote:

Hey Dave,

That is awesome . I am counting

down the days myself till i can give u all the same good news.Thanks again for

being so sweet.

Dave

<dhz920@...> wrote:

The treatment was successful, and it has been 4 years since I completed

it. I did 48 weeks of treatment and have been undetectable since 6 mos into it.

I am not doing anymore pcr tests, just watching the liver enzymes with my

physicals and in case of anything unusual, will test further. -dz-

<royaltyjack@...>

wrote:

Dave,

Thanks for your imput on the being sick part. I

really haven't missed any work. I left one day an hour early. It is sooooooo

hard for me to get out of bed. I have never felt this lazy in my life.I do not

speep well because i drink so much water. I get up 7or 8 times a night just to

go to the bathroom. The meds make my mouth so dry. I was told to suck on candy,

but i don't have any desire to eat any sweets at all. My man bought me a bunch

of different kinds and i tried a couple and i don't have the taste for them.So

i drink alot of water and i pee alotI do have alot

of bad headaches as well. And still very sick to my stomach.I'm lucky to keep

2ozs. of food down.

Well i'm hanging in there any all

of your imput is greatly appreciated!! Hope u had a Great New Year!!

How long did u do the treatments?And did

they work? I hope so. I love hearing sucessful stories!!

Dave <dhz920@...>

wrote:

I remember it well, too. It was like going to work with a hangover

every day. Though I used that as a motivation to make it to work. I don't drink

anymore, but I still remember all the days I worked suffering through a

hangover. I did miss more work than normal, through the treatment. I too found

that some light activity would help, but found it hard to motivate myself to do

it. Good luck, and keep your eye on that light at the end of the tunnel.

-dz-

Tubs46@...

wrote:

I can remember the sickness too. But I also remember the

more I sat around and thought about how bad I felt, I would start to feel

even worse. I know it's hard to do but if you just get up and go into the yard

or sit on the back porch it will make you feel a little better. I can remember

days when I couldn't get to work I felt so bad, but I would drag myself

out on the patio and get my mind off how I felt. And the sunshine will make you

feel so much better. I know thats easier said then done. Hope the tx gets

easier as time goes by for some it does.

Eddie

Find Great Deals on Holiday

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[Guest guest]

Hey Sharon, How you doin' tonight?

Did you get my invite to the new board? Like we need another one?

johanna

---------------------------------------------------------------

Johanna Koskinen - Director/Outreach Coordinator

Toll-free hotline:1.888.436.HEP C (4372)

Local: 1.816.763.4766/ Email: johanna@...

Website: http://www.hepcmo.org

Re: [ ] Re: Is there Hope??/My Four Cents Worth

Stay away from sick people. Having such low WBC, makes

you less resistant to infection. Good news about the

enzymes. Seeing results makes treatment a little

easier.

Sharon

--- <royaltyjack@...> wrote:

> Dave,

> Not sure how long i have had it,But i too

> believe i was Co-infected as well. But i do not

> dwell. I did at first blame everyone but myself. Now

> i am fine. I have Hep C and i just have to deal with

> it.

> Did get some good news today. Went for my

> first Doc. visit since i started the treatments. I'm

> going into my 6th week. Doc. says my liver enzemes

> are normal, but my white blood count is low. It

> started out low , so i go for blood tests every two

> weeks. It started out at 5.3 now they are 2.8. He

> seems a little concerned. I just pray i can continue

> the treatments. He say we will know in the 3rd

> month. I htte the treatments ,but if they will

> prolong my life i will endure whatever it takes.

> Hope u have a great day!!

>

> Dave <dhz920@...> wrote:

> Yes, I guess I am very blessed. In hindsight, I

> figured pretty certainly that I had it since 1982. I

> was still using and I was dx'd with hepatitis, they

> didn't tell me the type. But my physicals started

> showing high levels of alt & ast since I had a

> physical in 1983. Blood tests revealed that I had

> both hepatitis A and C antibodies present. I believe

> I was co-infected, I was incredibly ill at the time.

> Good luck and I look forward to the day you announce

> your victory over this disease. -dz-

>

> <royaltyjack@...> wrote:

> Hey Dave,

> That is awesome . I am counting down the

> days myself till i can give u all the same good

> news.Thanks again for being so sweet.

>

>

> Dave <dhz920@...> wrote:

> The treatment was successful, and it has been 4

> years since I completed it. I did 48 weeks of

> treatment and have been undetectable since 6 mos

> into it. I am not doing anymore pcr tests, just

> watching the liver enzymes with my physicals and in

> case of anything unusual, will test further. -dz-

>

> <royaltyjack@...> wrote:

> Dave,

> Thanks for your imput on the being sick part.

> I really haven't missed any work. I left one day an

> hour early. It is sooooooo hard for me to get out of

> bed. I have never felt this lazy in my life.I do not

> speep well because i drink so much water. I get up

> 7or 8 times a night just to go to the bathroom. The

> meds make my mouth so dry. I was told to suck on

> candy, but i don't have any desire to eat any sweets

> at all. My man bought me a bunch of different kinds

> and i tried a couple and i don't have the taste for

> them.So i drink alot of water and i pee alotI do

> have alot of bad headaches as well. And still very

> sick to my stomach.I'm lucky to keep 2ozs. of food

> down.

> Well i'm hanging in there any all of your

> imput is greatly appreciated!! Hope u had a Great

> New Year!!

> How long did u do the treatments?And did

> they work? I hope so. I love hearing sucessful

> stories!!

>

> Dave <dhz920@...> wrote:

> I remember it well, too. It was like going to

> work with a hangover every day. Though I used that

> as a motivation to make it to work. I don't drink

> anymore, but I still remember all the days I worked

> suffering through a hangover. I did miss more work

> than normal, through the treatment. I too found that

> some light activity would help, but found it hard to

> motivate myself to do it. Good luck, and keep your

> eye on that light at the end of the tunnel. -dz-

>

> Tubs46@... wrote: I can remember the

> sickness too. But I also remember the more I sat

> around and thought about how bad I felt, I would

> start to feel even worse. I know it's hard to do but

> if you just get up and go into the yard or sit on

> the back porch it will make you feel a little

> better. I can remember days when I couldn't get to

> work I felt so bad, but I would drag myself out on

> the patio and get my mind off how I felt. And the

> sunshine will make you feel so much better. I know

> thats easier said then done. Hope the tx gets easier

> as time goes by for some it does.

>

> Eddie

>

>

>

>

>

>

>

>

>

> ---------------------------------

> ! GROUPS LINKS

>

>

> Visit your group " " on the

> web.

>

>

[Guest guest]

Johanna, My sister is 53. she lives in Tucson , Az.I have 2 brothers that live there ,but they r real jerks. They r all about money. They have have very busy lives and don't care about anyone but themselves. They never ever call my sis. I do have my mom there and she calls her at least once a week. Its very sad they r like that.I just moved back here from Tucson. I live in Iowa. which stands for Idiots out wandering around!! LOL But i love it here except for the cold.I have a very disfunctional family.I call my sister almost every day. Thats when she will answer her phone. She's angry. I think my doc. is a jerk as well, but i got someone to pay for the treatments, well at least the meds. But i needed a doc. That would monitor me.So my family doc . recommended him. So i am just doing alot of praying and hope all will go good for me. All my life i have catered to everyone ,but

myself. Today its all about me. I raised 6 kids and now they r on there own.I know i am in good hands i have my God and my man Jack!! LOL Hope u Had a Great Day. Thanks for keeping in touch, Johanna <johanna@...> wrote: Your doctor’s schmuck. Hang in there, girl. I’m sorry about your sister. How old is she, and what part of Arizona does she live? Does she have family there? Johanna From: [mailto: ] On Behalf Of Sent: Tuesday, January 03, 2006 7:17 PM Subject: RE: [ ] Re: Is there Hope??/My Four Cents Worth Johanna, So is thats whats making me so tired and so sick to my stomach all the time?I have the worse taste in my mouth. Nothing i mean nothing sounds good to eat.The water i drink even has a sweet taste to it.Everything has a sweet taste to it.I only eat so i can take my meds. And i might eat 2 maybeeee 3ozs. of food.i was prepared when i went into see him. I had my list of questions and all my side effects. This Doc doesn't have the best bedside manner. He's right to the point. Told me we could stop if i wanted. I am sick as a dog most days, but i gotta hang in there for my man and my kids and grandkids. But most of all for me. My sisters WBC was so low they made her stop the treatments ASAP!!!! There is no hope for her she is in the final stages.

I just got off the phone with her. She is so sad. It breaks my heart.I love her so much, but she doesn't even care. She is just ready. I don't know what will happen to me when that day comes.I lost my dad a brother and my grand mother, and now her. I might take a trip tp Arizona soon just to be with her for awhile.I wish she had acomp. so she could meet u all. You all have really made me feel so much better. I know i haven't known you long ,but in the short time you have made me feel welcomed and have been very supportive. Thanks again. Hope you had a Great Day, Johanna <johanna@...> wrote: Hey , He’s concerned, because at that low of a point, you are more open to illness, as the WBC are the fighters! So take care and do as the doc says! Johanna From: [mailto: ] On Behalf Of Sent: Tuesday, January 03, 2006 4:08 PM Subject: Re: [ ] Re: Is there Hope??/My Four Cents

Worth Dave, Not sure how long i have had it,But i too believe i was Co-infected as well. But i do not dwell. I did at first blame everyone but myself. Now i am fine. I have Hep C and i just have to deal with it. Did get some good news today. Went for my first Doc. visit since i started the treatments. I'm going into my 6th week. Doc. says my liver enzemes are normal, but

my white blood count is low. It started out low , so i go for blood tests every two weeks. It started out at 5.3 now they are 2.8. He seems a little concerned. I just pray i can continue the treatments. He say we will know in the 3rd month. I htte the treatments ,but if they will prolong my life i will endure whatever it takes. Hope u have a great day!! Dave <dhz920@...>

wrote: Yes, I guess I am very blessed. In hindsight, I figured pretty certainly that I had it since 1982. I was still using and I was dx'd with hepatitis, they didn't tell me the type. But my physicals started showing high levels of alt & ast since I had a physical in 1983. Blood tests revealed that I had both hepatitis A and C antibodies present. I believe I was co-infected, I was incredibly ill at the time. Good luck and I look forward to the day you announce your victory over this disease. -dz- <royaltyjack@...> wrote: Hey Dave, That is awesome . I am counting down the days myself till i can give u all the same good news.Thanks again for being so sweet.

Dave <dhz920@...> wrote: The treatment was successful, and it has been 4 years since I completed it. I did 48 weeks of treatment and have been undetectable since 6 mos into it. I am not doing anymore pcr tests, just watching the liver enzymes with my physicals and in case of anything unusual, will test further. -dz- <royaltyjack@...> wrote: Dave, Thanks for your imput on the being sick part. I really haven't missed any work. I left one day an hour early. It is sooooooo hard for me to get out of bed. I have never felt this lazy in my life.I do not speep well because i drink so much water. I get up 7or 8 times a night just to go to the bathroom. The meds make my mouth so dry. I was told to suck on candy, but i don't have any desire to eat any sweets at all. My man bought me a bunch of different kinds and i tried a couple and i don't have the taste for them.So i drink alot of water and i pee alotI do have alot of bad headaches as well. And still very sick to my stomach.I'm lucky to keep 2ozs. of food down. Well i'm hanging in there any all of your imput is greatly appreciated!! Hope u had a Great New Year!! How long did u do the treatments?And did they work? I hope so. I love hearing sucessful stories!! Dave <dhz920@...> wrote: I remember it well, too. It was like going to work with a hangover every day. Though I used that as a motivation to

make it to work. I don't drink anymore, but I still remember all the days I worked suffering through a hangover. I did miss more work than normal, through the treatment. I too found that some light activity would help, but found it hard to motivate myself to do it. Good luck, and keep your eye on that light at the end of the tunnel. -dz-Tubs46@... wrote: I can remember the sickness too. But I also remember the more I sat around and thought about how bad I felt, I would start to feel even worse. I know it's hard to do but if you just get up and go into the yard or sit on the back porch it will make you feel a little better. I can remember days when I couldn't get to work I felt so bad, but I would drag myself out on the

patio and get my mind off how I felt. And the sunshine will make you feel so much better. I know thats easier said then done. Hope the tx gets easier as time goes by for some it does. Eddie Find Great Deals on Holiday Gifts at DSL Something to write home about. Just $16.99/mo. or less

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[Guest guest]

I like it best with butter.

Sharon

--- hepckitty <johanna@...> wrote:

> Popcorn? :homer drool:

>

> I'm a bit of a fanatic myself. I get right down to

> the popcorn

> without ANYTHING on it, which is nice, because I

> realize that I love

> the popcorn.Almost as much as the salt, butter and

> cheese!LOL

>

> Johanna

>

>

>

>

> > > > I remember it well, too. It was like going

> to

>

=== message truncated ===

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[Guest guest]

Blast of Butter is my favorite

Rhonda

Re: [ ] Re: Is there Hope??/My Four Cents Worth

I like it best with butter.

Sharon

--- hepckitty <johanna@...> wrote:

> Popcorn? :homer drool:

>

> I'm a bit of a fanatic myself. I get right down to

> the popcorn

> without ANYTHING on it, which is nice, because I

> realize that I love

> the popcorn.Almost as much as the salt, butter and

> cheese!LOL

>

> Johanna

>

>

>

>

> > > > I remember it well, too. It was like going

> to

>

=== message truncated ===

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DSL - Something to write home about.

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[Guest guest]

I like butter on mine too!! Ok so I am joining in this conversation even though it isn't meant fo rme!! I am just so bored..Hey the ASS was home with me all day today and I didn't say anything to him so I need someone to talk to..The kids are either on line..on the phone..or in their room!! Someone needs to talk to me!!!! RHudson <rhondahudson@...> wrote: Blast of Butter is my favorite :)Rhonda Re: [ ] Re: Is there Hope??/My Four Cents

WorthI like it best with butter. Sharon--- hepckitty <johanna@...> wrote:> Popcorn? :homer drool:> > I'm a bit of a fanatic myself. I get right down to> the popcorn > without ANYTHING on it, which is nice, because I> realize that I love > the popcorn.Almost as much as the salt, butter and> cheese!LOL> > Johanna> > > > > > > > I remember it well, too. It was like going> to> === message truncated ===__________________________________________ DSL - Something to write home about. Just $16.99/mo. or less. dsl.

[Guest guest]

I'll have to try that after these last few pounds

disappear.

Sharon

--- RHudson <rhondahudson@...> wrote:

> Blast of Butter is my favorite

> Rhonda

> Re: [ ] Re: Is there

> Hope??/My Four Cents Worth

>

>

> I like it best with butter.

> Sharon

>

> --- hepckitty <johanna@...> wrote:

>

> > Popcorn? :homer drool:

> >

> > I'm a bit of a fanatic myself. I get right down to

> > the popcorn

> > without ANYTHING on it, which is nice, because I

> > realize that I love

> > the popcorn.Almost as much as the salt, butter and

> > cheese!LOL

> >

> > Johanna

> >

> >

> >

> >

>

> > > > > Dave,

> > > > > Thanks for your imput on the being

> sick

> > > > part.

> > > > > I really haven't missed any work. I left one

> > day

> > > > an

> > > > > hour early. It is sooooooo hard for me to

> get

> > out

>

=== message truncated ===

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DSL – Something to write home about.

Just $16.99/mo. or less.

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