Re: The Lymering + My Story + Your Story

[Guest guest]

Hi,

In need of a little reassurance. My daughter aged 21 was infected in

Heidelberg, Germany in July of this year. She became ill about 2 weeks later:

vomiting, fever, fatigue, headache, rapid heart beat(160) now down to about 95

she usually runs about 75.

She's been on Doxycycline, 100mg 2X a day for about 3 weeks.

Her symptoms seem to come and go, mostly mild mental confusion, vision

problems, neck, head and jaw pain and significant fatique. Lately the pains

are gravitating to her joints and her fever is mild, 97.6 to 99.1. Some days

are better than others.

We have an appointment with a Lyme doc in the area, in

Ridgefield, CT, he came highly recommended. The infectious disease guy we saw

last week was a nightmare.

She is on a lot of supplements; acidopholis, B complex, CoEnzyme Q 10, St.

's Wort, EFA's and a good multi-vitamin.

My questions: Should she be feeling better by now?

Since her exposure was in Heidelberg should we be

looking at

anything else?

[Guest guest]

Hi,

I have email contact with a guy from France, who got Lyme in Africa while

doing contributary work there. He is on doxy. Also, a person from Holland

said they are even more Lyme illiterate there, he had to come to the states

to get treatment, again doxy.

[Guest guest]

Hi Cheryl,

You best not JUST sit back, relax and listen in, we need your comments,

advice and expertise....thanks for sending all the great info about the web

rings and your own web pages. I invite any subscribers who have web pages,

or pet Lyme projects to please share them here on the list.

Best to you,

Marta

-

Cheryl wrote:

>I am glad to be a part of this great new list. I tend to just sit back,

relax, and listen in. ;o)

[Guest guest]

Hi,

First off, let me tell you, you have an appointment with an excellent

Lyme doctor, so your daughter will be in excellent hands.

The Doxycycline your daughter is on right now is the drug of choice for

most Lyme and other tick infections, since she was bit in Germany, I am not

quite sure what strains or diseases ticks carry there, but again, Dr

will know how to cover all the bases.

Your daughter's symptoms sound pretty normal to me for recently treated

Lyme disease, the days she feels worse may be Herxheimer reactions. In case

you are unfamiliar with that term, here is a brief explanation:

The Short Definition:

Jarisch-Herxheimer reaction (“herxing”) is an exacerbation of symptoms in

people with Lyme disease (also syphilis) upon taking antibiotics. It is

thought to be due to the effects of toxins produced by the organism during

it’s

die-off and the resulting immune system response.

The supplements and acidophilus sound great too, looks like you have all

under control. I do hope the appointment with the doctor is soon, so you

can rest easier, in the meantime any further questions that we can try to

answer, please write.

Marta

>From: GRUNBE@...

>

>Hi,

>In need of a little reassurance. My daughter aged 21 was infected in

>Heidelberg, Germany in July of this year. She became ill about 2 weeks

later:

>vomiting, fever, fatigue, headache, rapid heart beat(160) now down to about

95

>she usually runs about 75.

>She's been on Doxycycline, 100mg 2X a day for about 3 weeks.

>Her symptoms seem to come and go, mostly mild mental confusion, vision

>problems, neck, head and jaw pain and significant fatique. Lately the pains

>are gravitating to her joints and her fever is mild, 97.6 to 99.1. Some

days

>are better than others.

>We have an appointment with a Lyme doc in the area, in

>Ridgefield, CT, he came highly recommended. The infectious disease guy we

saw

>last week was a nightmare.

>She is on a lot of supplements; acidopholis, B complex, CoEnzyme Q 10, St.

>'s Wort, EFA's and a good multi-vitamin.

>

>My questions: Should she be feeling better by now?

> Since her exposure was in Heidelberg should we be

>looking at

> anything else?

>

>

[Guest guest]

>Since her exposure was in Heidelberg should we be

>looking at anything else?

I asked my MD about differences between European Lyme and NE/US Lyme. He

told me he thinks we exported it. Sorry guys!!! Recommended treatment

regimes are the same.

A friend of mine caught Lyme's in Sweden. She came out promptly with a rash

all over her legs. She had seen a doctor in Britain who failed to diagnose

it (a problem here too) but when she told her Swedish contact on a return

trip 2 weeks later, she screamed out loud and rushed her to the local

hospital for immediate IV treatment.

Glad to say all is well - complete recovery.

Ian

[Lyme-aid] Re: The Lymering + My Story + Your Story

>From: GRUNBE@...

>

>Hi,

>In need of a little reassurance. My daughter aged 21 was infected in

>Heidelberg, Germany in July of this year. She became ill about 2 weeks

later:

>vomiting, fever, fatigue, headache, rapid heart beat(160) now down to about

95

>she usually runs about 75.

>She's been on Doxycycline, 100mg 2X a day for about 3 weeks.

>Her symptoms seem to come and go, mostly mild mental confusion, vision

>problems, neck, head and jaw pain and significant fatique. Lately the pains

>are gravitating to her joints and her fever is mild, 97.6 to 99.1. Some

days

>are better than others.

>We have an appointment with a Lyme doc in the area, in

>Ridgefield, CT, he came highly recommended. The infectious disease guy we

saw

>last week was a nightmare.

>She is on a lot of supplements; acidopholis, B complex, CoEnzyme Q 10, St.

>'s Wort, EFA's and a good multi-vitamin.

>

>My questions: Should she be feeling better by now?

> Since her exposure was in Heidelberg should we be

>looking at

> anything else?

>

>

>

>------------------------------------------------------------------------

>

[Guest guest]

Doxy appears to be the universal drug of choice for treatment of Lyme, yet

Ceftin is the only approved drug for the treatment of Lyme according to the

FDA, in the US. I just started Ceftin a few weeks ago, do hope they are

right. I did over a year of doxy.

Marta

-

>From: PSpatches@...

>

>Hi,

> I have email contact with a guy from France, who got Lyme in Africa while

>doing contributary work there. He is on doxy. Also, a person from Holland

>said they are even more Lyme illiterate there, he had to come to the states

>to get treatment, again doxy.

[Guest guest]

GRUNBE@... wrote:

>

> From: GRUNBE@...

>

> Hi,

> In need of a little reassurance. My daughter aged 21 was infected in

> Heidelberg, Germany in July of this year. She became ill about 2 weeks later:

> vomiting, fever, fatigue, headache, rapid heart beat(160) now down to about 95

> she usually runs about 75.

> She's been on Doxycycline, 100mg 2X a day for about 3 weeks.

> Her symptoms seem to come and go, mostly mild mental confusion, vision

> problems, neck, head and jaw pain and significant fatique. Lately the pains

> are gravitating to her joints and her fever is mild, 97.6 to 99.1. Some days

> are better than others.

> We have an appointment with a Lyme doc in the area, in

> Ridgefield, CT, he came highly recommended. The infectious disease guy we saw

> last week was a nightmare.

> She is on a lot of supplements; acidopholis, B complex, CoEnzyme Q 10, St.

> 's Wort, EFA's and a good multi-vitamin.

>

> My questions: Should she be feeling better by now?

> Since her exposure was in Heidelberg should we be

> looking at

> anything else?

>

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

HI Marta,

I hope they are too..for your sake. I do know that my cousin (Lyme for 14

years)

is now out line-dancing. She was on zithromax for over 4 years. It worked

for

her. Not for me. My feeling is that unless they can find out what strain a

person

has (there are well over 140 strains) we just try this, that and the other

thing.

We are all different, but alike. So what may work for some, does not

necessiarly

work for another.

Wish you well ...

Pat

[Guest guest]

Hi, I have read that there are different strains of the spirochette . I don't

know how this effects treatment. Lyme has been documented in Europe for a

couple of centuries, although, obviousy, not called lyme. I would make sure

you get your daughter to the best, most lyme literate doctor you can find.,

I'm sure someone on this lisst can help with that, depending on the State you

live in. Short term therapy seems to cause more problems up the road than

overtreating. I haven't read anything ab0ut anyone complaining from any

problems with long term antiobitic use. Any one have any info on that?

Good luckl

Gail

[Guest guest]

Gail - We certainly call it Lyme disease in Britain now. I guess the

critical moment was making the connexion with the deer tick, and that

happened States-side. Treatment over here is standard - 2 weeks low-dose

antibiotic, increased to 4 weeks if sufferer presents with joint aches.

What I just cannot understand is that chronic late-stage Lyme does not seem

to be a problem over here. I wonder why? Do we run to the doctor faster

because we have a fully-funded health service, and so get treated earlier?

Thursday I am finishing my month course of antibiotic. Prayers please, all!

Ian

[Lyme-aid] Re: The Lymering + My Story + Your Story

>From: IAMAVIPTWO@...

>

>Hi, I have read that there are different strains of the spirochette . I

don't

>know how this effects treatment. Lyme has been documented in Europe for a

>couple of centuries, although, obviousy, not called lyme. I would make

sure

>you get your daughter to the best, most lyme literate doctor you can find.,

>I'm sure someone on this lisst can help with that, depending on the State

you

>live in. Short term therapy seems to cause more problems up the road than

>overtreating. I haven't read anything ab0ut anyone complaining from any

>problems with long term antiobitic use. Any one have any info on that?

>Good luckl

>Gail

>

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[Guest guest]

Salisbury family wrote:

> From: " Salisbury family " <salisbury.family@...>

>

> Gail - We certainly call it Lyme disease in Britain now. I guess the

> critical moment was making the connexion with the deer tick, and that

> happened States-side. Treatment over here is standard - 2 weeks

> low-dose

> antibiotic, increased to 4 weeks if sufferer presents with joint

> aches.

>

> What I just cannot understand is that chronic late-stage Lyme does not

> seem

> to be a problem over here. I wonder why? Do we run to the doctor

> faster

> because we have a fully-funded health service, and so get treated

> earlier?

>

The problem in Britain like many other countries is that many

doctors callit chronic fatigue syndrome or its related name. Then the

patient never gets the treatment

or the right diagnosis.. (this acccording to one doctor I spoke to).

Josh

> Thursday I am finishing my month course of antibiotic. Prayers

> please, all!

>

> Ian

> [Lyme-aid] Re: The Lymering + My Story + Your Story

>

> >From: IAMAVIPTWO@...

> >

> >Hi, I have read that there are different strains of the spirochette .

> I

> don't

> >know how this effects treatment. Lyme has been documented in Europe

> for a

> >couple of centuries, although, obviousy, not called lyme. I would

> make

> sure

> >you get your daughter to the best, most lyme literate doctor you can

> find.,

> >I'm sure someone on this lisst can help with that, depending on the

> State

> you

> >live in. Short term therapy seems to cause more problems up the road

> than

> >overtreating. I haven't read anything ab0ut anyone complaining from

> any

> >problems with long term antiobitic use. Any one have any info on

> that?

> >Good luckl

> >Gail

> >

> >

> -----------------------------------------------------------------------

>

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[Guest guest]

I just read in your message that you are from Brittain. I have been meaning to

find out if antibiotics are accessible over the counter there, and if so which

ones are available. If you get a chance please write me. Also before you go

off antibiotics, a good idea might be to self evaluate and make sure all of

your symtoms are gone. My prayers are with you for a continued recovery.

[Guest guest]

Hi ValP74(!)

Thanks for the prayers. One week later - and I'm fine.

No, antibiotics in Britain are prescription only, so you have to see a

doctor and s/he has to decide that they are warranted before you get them.

Other European countries are following suit, but I think you can still buy

them over the counter in Greece.

I was given Amoxycillin. A consultant at the Oxford teaching hospital (who

incidentally earlier this year won the Glazier Prize for her

research work on HIV) came to our house for prayers last night saying she

thought there may be aspects of Lyme that are entirely new - not just

overlooked through ignorance. One thing she said was that there had been 11

reported cases of Lyme mascerading as transverse myelitis - very similar to

the Gillain-Barré Syndrome that I had 3 going to 1 years ago. She too has

told me to be ultra alert to any repeat symptom either Lyme type or GBS

type.

She is going to give me some papers on Saturday when we are going to see

each other at a wedding in London. If they are interesting I'll scan them

and post them.

Ian

[Lyme-aid] Re: The Lymering + My Story + Your Story

>From: ValP74@...

>

>I just read in your message that you are from Brittain. I have been meaning

to

>find out if antibiotics are accessible over the counter there, and if so

which

>ones are available. If you get a chance please write me. Also before you go

>off antibiotics, a good idea might be to self evaluate and make sure all of

>your symtoms are gone. My prayers are with you for a continued recovery.

>

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