Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi I am Jan and I also have Hep C...I am also on Paxil for depresssion and I too have just had a hysterectomy 4 months ago and they have changed my hormones 3 times..I a m on the shots right now and they can make you feel odd..I seeem to have trouble seeing well right after one but then they don't seem to last till the 30 days are up..I am going today to my GYN to talk to him about it..Now as far as affording treatment there are programs out there that can help yopu because I too was unable to afford it..There are alot of us in here that do understand your situation..Call your Dr. and have tests ran to see your ALTs and liver enzyme levels..That's the first place to start..Then they will help you from there..Someone in this group can help you more with advice but I am here to let you know I do understand the fear and confusion..PLEASE feel free to e-mail us anytime just to vent off any feelings or to ask any questions...By the way what is your name?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 You should be ok (relatively speaking ) Hep C usually progresses slowly and most don't die from it. Not to say that it is not a formidable foe it is. Sounds to me like they have your hormone balance all messed up there and you did not mention what the nature of your COPD is. Perhaps the most important thing for now for you to get your viral load and a liver biopsy done and see just where you are at. Treatment can be expensive and yes it does have its side effects however I wouldn't dismiss it totally as a possibility we have those in this list who have wonderful success on it. There is supposedly a way for those without resources to still qualify to receive treatment however I am not sure just how one does that . Right now you are in shock. The day my son called and gave us his diagnosis I thought the world had ended for sure. Now I see there is hope in abundance and the world has just changed not ended. Just know we are here for you.... [ ] WHERE DO I GO FROM HERE HELLO, Well I dont know where to begin.. But I will say that I just found out yesterday that I have tested HEPATITIS C positive, now what do I do. Some history, I have been taking Synthroid for Hypothyroidism for three years, and the Dr can never get my level right, I have COPD ( chronic obstructive pulmonary disease ), I was put on Ativan 1mg 3 times a day for panic disorder, I am now withdrawing off of that, Im now down to 1/2 mg daily, let me tell you thats been hell....lol I have had a Hysterectomy, so I take hormone replacement in the form of a shot every thirty days, well three months ago, my Dr. changed the medicine to straight ESTROGEN, AND LET ME TELL YOU THAT HAS REALLY MESSED ME UP, ITS BEEN CHANGED FOR THREE MONTHS, AND IN THAT THREE MONTHS i HAVE BEEN SO SICK, SEVERE DIZZINESS WHERE i CANT EVEN WALK, NAUSEA TO BEAT ALL , AND SEVERE MIGRAINES, AND NOW MY APPETITE IS GOING. I wonder if this new hormone injection has anything to do with my onset of new symptoms, this is why I got checked for the Hepatitis C. So now where do I go from here, am I dying, if so when, I have to go see some kind of liver specialist. Im new to this and Im so scared, Im 37, have four children....20,19,18,14 and 1 grandaughter age one. I hope anyone that reads this understands it. Any response would be greatly appreciated. Thank you, P.S. I in no way would ever be able to afford treatment, even if I could I dont think I could live through it with the side effects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 , rest assured hepc is not a death sentence. I am 42 weeks into treatment and I have 6 weeks to go. The virus has been undetectable since the 24th week. The sides are no picnic but they aren't as bad as I expected. I have 5 kids (4 at home) so if you were to do treatment at some point, I would make sure they know what to expect. Also, more people die with hepc than from it. It is a slow disease. You need to find out your viral load, genotype and have a liver biopsy (which sounds worse than it is). Then you can have enough facts to go from there. Welcome to the group and we will be here to talk to any time. Sharon --- kissaberry <kissaberry@...> wrote: > HELLO, > Well I dont know where to begin.. But I will say > that I just found > out yesterday that I have tested HEPATITIS C > positive, now what do I > do. > Some history, I have been taking Synthroid for > Hypothyroidism for > three years, and the Dr can never get my level > right, I have COPD ( > chronic obstructive pulmonary disease ), I was put > on Ativan 1mg 3 > times a day for panic disorder, I am now withdrawing > off of that, Im > now down to 1/2 mg daily, let me tell you thats been > hell....lol > I have had a Hysterectomy, so I take hormone > replacement in the > form of a shot every thirty days, well three months > ago, my Dr. > changed the medicine to straight ESTROGEN, AND LET > ME TELL YOU THAT > HAS REALLY MESSED ME UP, ITS BEEN CHANGED FOR THREE > MONTHS, AND IN > THAT THREE MONTHS i HAVE BEEN SO SICK, SEVERE > DIZZINESS WHERE i CANT > EVEN WALK, NAUSEA TO BEAT ALL , AND SEVERE > MIGRAINES, AND NOW MY > APPETITE IS GOING. > I wonder if this new hormone injection has > anything to do with > my onset of new symptoms, this is why I got checked > for the Hepatitis > C. > So now where do I go from here, am I dying, if > so when, I have > to go see some kind of liver specialist. > Im new to this and Im so scared, Im 37, have > four > children....20,19,18,14 and 1 grandaughter age one. > I hope anyone that reads this understands it. > Any response would be greatly appreciated. > Thank you, > > P.S. I in no way would ever be able to afford > treatment, even if I > could I dont think I could live through it with the > side effects. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 welcome to the group. I found out that I had Hep C last year & started treatment this last January & have been undected for the virus saence 4 month's into treatment. Hep C is transmitted through the blood "a shared needle tatoo, IV drug use & blood transfuion. Try not to get depressed this is beatable. We will be praying for you. Terry kissaberry wrote: HELLO, Well I dont know where to begin.. But I will say that I just found out yesterday that I have tested HEPATITIS C positive, now what do I do. Some history, I have been taking Synthroid for Hypothyroidism for three years, and the Dr can never get my level right, I have COPD ( chronic obstructive pulmonary disease ), I was put on Ativan 1mg 3 times a day for panic disorder, I am now withdrawing off of that, Im now down to 1/2 mg daily, let me tell you thats been hell....lol I have had a Hysterectomy, so I take hormone replacement in the form of a shot every thirty days, well three months ago, my Dr. changed the medicine to straight ESTROGEN, AND LET ME TELL YOU THAT HAS REALLY MESSED ME UP, ITS BEEN CHANGED FOR THREE MONTHS, AND IN THAT THREE MONTHS i HAVE BEEN SO SICK, SEVERE DIZZINESS WHERE i CANT EVEN WALK, NAUSEA TO BEAT ALL , AND SEVERE MIGRAINES, AND NOW MY APPETITE IS GOING. I wonder if this new hormone injection has anything to do with my onset of new symptoms, this is why I got checked for the Hepatitis C. So now where do I go from here, am I dying, if so when, I have to go see some kind of liver specialist. Im new to this and Im so scared, Im 37, have four children....20,19,18,14 and 1 grandaughter age one. I hope anyone that reads this understands it. Any response would be greatly appreciated. Thank you, P.S. I in no way would ever be able to afford treatment, even if I could I dont think I could live through it with the side effects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Dear : I am 46 years old and have known that I have Hep-C, for about 6 years. I don't know if you read my letter to aniwodi2@... is my cousin. N-E-ways...my husband passed away july 27th,2001. He had cirrhosis of the liver, copd, hep-c, and when we went for a liver transplant they found Cancer of the liver. He was a very sick man. I have moved to Kennedale tx. and have not been treated as of yet. I take Milk Thistle and a bunch of vitamins. I haven't had any symptoms other than being tired. I work hard and try to stay as active as I can. Would love to know more about this illness. I have been through a lot with my husband and know what to look for. My sister just found out last month that she has it too. We have heard of some experimental testing. Do you know anything about it? Would love to hear something. Thanks, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Hi, I'm , 41, did the treatment 2 years ago, and have been in remission since Oct. 2000. This excerpt is from a newsletter that I put out for our support group. I hope it helps you. We have all been there in that initial panic stage. By the way, if you do the treatment, people who start it before age 40 tend to respond better that older folks. Take Care, Just Diagnosed... What Should I Do? The information you receive when you are first diagnosed with hepatitis C can indeed be overwhelming. You may not even know that much about the disease, much less what should you do next. Unfortunately, some doctors do not communicate clearly with their patients, and it is up to you to educate yourself and advocate for your health. If you are asking yourself " what next? " , these tips will be helpful to you. -Know your genotype. There are 31 different genotypes of hepatitis C. Your genotype may determine the length of treatment. -Get a liver biopsy. It sounds much scarier than it is, but it is the only way to know exactly how much damage the virus has done to the liver. Biopsy results are given in stages and grades of 0-4; with 0 being little or no damage, and 4 being more severe. -Ask your doctor for a copy of your lab & biopsy results. Keep them in a folder and learn what the numbers mean. -Get vaccinated against Hep A & B. When you have hep C, your liver is under attack. An additional attack of hep A or B can speed up the damage to your liver, or even kill you quickly. Hep A is a series of 2 shots over 1 month, and Hep B is a series of 3 shots over a 6 month period. If you start the vaccinations and don't finish the regimen, you will not be protected against further liver damage. -Ask your doctor questions. If you are not happy with your medical care, get a new doctor! -EDUCATE YOURSELF ! Don't be afraid to ask questions, read articles, surf the web(although not everything on the internet is the truth). Remember: Knowledge is power! -Join a support group. You are not alone! Many other people are dealing with this illness, too. They can provide you with valuable information and a core of emotional support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Hi Pam, I'm so sorry to hear about your husband. You probably learned a lot helping him deal with his illnesses. I don't really have much information about clinical trials, but you can look that info up on clinicaltrials.gov . You sound like you're doing pretty well, except for that damn fatigue! I don't know how far you are from Houston, but in Nov. Hepatitis Magazine is hosting a hepatitis conference. Three people from our support group will be going there (myself included). I went to the Walk On Washington last year hosted by Hepatitis Foundation International. It was very interesting... workshops and seminars by doctors, nutritionists, etc., the latest research findings. Some of it was highly technical, but nontheless, it was great. I took lots of notes and made a couple of presentations to our support group members on the information I learned while there.You may want to check out the one in Houston. I guarantee it will be a learning experience. > Dear : > I am 46 years old and have known that I have Hep-C, for about 6 years. I > don't know if you read my letter to aniwodi2@y... is my cousin. > N-E-ways...my husband passed away july 27th,2001. He had cirrhosis of the > liver, copd, hep-c, and when we went for a liver transplant they found Cancer > of the liver. He was a very sick man. I have moved to Kennedale tx. and > have not been treated as of yet. I take Milk Thistle and a bunch of > vitamins. I haven't had any symptoms other than being tired. I work hard > and try to stay as active as I can. Would love to know more about this > illness. I have been through a lot with my husband and know what to look > for. My sister just found out last month that she has it too. We have heard > of some experimental testing. Do you know anything about it? Would love to > hear something. Thanks, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Good morning everyone..How are you all doing???? I am doing ok..The hubby is coming home today so I have a few things to do around here before he gets back..Last night I was just exhausted..Been really busy all week though so last night I went to bed early and feel pretty good so far but I know by the end of the day I'll be tired again..Hey if the Hep C Dr. said my Hep is unnoticable how come I still have pain in my right side and get worn out so quick?? I guess that means it's time for another blood test..I think I'll wait about a week or so though..I am so tired of Drs..Been seeing so much of them for the past 2 years...Hope everyone has a great weekend!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 . Sounds like a lot to deal with all at once! My name is Dave, I am 48 (for a few more days) and I was diagnosed with hepc a couple of years ago. I went on the treatment and have been undetectable for a year (I completed treatment 6 mos ago). The next step I would say would be a liver biopsy to determine what liver damage, if any has already occurred and a PCR to determine the amount of virus, they measure by units per ml. There is help available for people who cannot afford the treatment if you were interested in exploring that. The sides can be unpleasant, some people handle them better than others. I was sick for the first couple of weeks and then got a little better, suffering from fatigue most of the time and the "flulike" symptoms off and on. I was on a 48 week treatment. Good luck, whatever you decide and please keep us posted. Some of us have completed treatment, some have chosen no treatment, or cannot take the current treatment. So however you decide to handle this you will find kindred spirits here in the group. We support each other through the good and the bad. -dz- kissaberry wrote: HELLO, Well I dont know where to begin.. But I will say that I just found out yesterday that I have tested HEPATITIS C positive, now what do I do. Some history, I have been taking Synthroid for Hypothyroidism for three years, and the Dr can never get my level right, I have COPD ( chronic obstructive pulmonary disease ), I was put on Ativan 1mg 3 times a day for panic disorder, I am now withdrawing off of that, Im now down to 1/2 mg daily, let me tell you thats been hell....lol I have had a Hysterectomy, so I take hormone replacement in the form of a shot every thirty days, well three months ago, my Dr. changed the medicine to straight ESTROGEN, AND LET ME TELL YOU THAT HAS REALLY MESSED ME UP, ITS BEEN CHANGED FOR THREE MONTHS, AND IN THAT THREE MONTHS i HAVE BEEN SO SICK, SEVERE DIZZINESS WHERE i CANT EVEN WALK, NAUSEA TO BEAT ALL , AND SEVERE MIGRAINES, AND NOW MY APPETITE IS GOING. I wonder if this new hormone injection has anything to do with my onset of new symptoms, this is why I got checked for the Hepatitis C. So now where do I go from here, am I dying, if so when, I have to go see some kind of liver specialist. Im new to this and Im so scared, Im 37, have four children....20,19,18,14 and 1 grandaughter age one. I hope anyone that reads this understands it. Any response would be greatly appreciated. Thank you, P.S. I in no way would ever be able to afford treatment, even if I could I dont think I could live through it with the side effects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Sharon yes the temp does drop to the low 70's here too..I'm not lifting anything today..I did straighten up my house and spary off the dog poop outside in her pen..Then I thought I smelled like it so I had to take a bath.LOL...Sorry to hear you feel so bad but tx does do that at times..I never knew when it would hit me hard and when it wouldn't..Hey we haven't gotten any rain here in the past few days have you?? My mother-in-law lives near Beaumont and said the other day they got like 2 inches in an hour..Glad I wasn't there..Get you some rest today...I'll be in touch.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Hi Jan, don't lift anything today, OK. I did my shot last night and for some reason I feel like I was hit by a car. So I'm laying low today. Thank God I only have 5 more shots. Have you gotten a north wind there. It's getting down to the low 70's at night here and even when it's in the 90's there is actually a breeze. I think fall is coming. Sharon Jannewilms43@... wrote: Good morning everyone..How are you all doing???? I am doing ok..The hubby is coming home today so I have a few things to do around here before he gets back..Last night I was just exhausted..Been really busy all week though so last night I went to bed early and feel pretty good so far but I know by the end of the day I'll be tired again..Hey if the Hep C Dr. said my Hep is unnoticable how come I still have pain in my right side and get worn out so quick?? I guess that means it's time for another blood test..I think I'll wait about a week or so though..I am so tired of Drs..Been seeing so much of them for the past 2 years...Hope everyone has a great weekend!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Jan you said you going do what the Dr says & rest. House work will wait or do I have to go & kick in the butt. Terry Jannewilms43@... wrote: Good morning everyone..How are you all doing???? I am doing ok..The hubby is coming home today so I have a few things to do around here before he gets back..Last night I was just exhausted..Been really busy all week though so last night I went to bed early and feel pretty good so far but I know by the end of the day I'll be tired again..Hey if the Hep C Dr. said my Hep is unnoticable how come I still have pain in my right side and get worn out so quick?? I guess that means it's time for another blood test..I think I'll wait about a week or so though..I am so tired of Drs..Been seeing so much of them for the past 2 years...Hope everyone has a great weekend!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Terry I will put boots on my size 5 and be right there to join you.. Fluffy. Re: [ ] WHERE DO I GO FROM HERE Jan you said you going do what the Dr says & rest. House work will wait or do I have to go & kick in the butt. Terry Jannewilms43@... wrote: Good morning everyone..How are you all doing???? I am doing ok..The hubby is coming home today so I have a few things to do around here before he gets back..Last night I was just exhausted..Been really busy all week though so last night I went to bed early and feel pretty good so far but I know by the end of the day I'll be tired again..Hey if the Hep C Dr. said my Hep is unnoticable how come I still have pain in my right side and get worn out so quick?? I guess that means it's time for another blood test..I think I'll wait about a week or so though..I am so tired of Drs..Been seeing so much of them for the past 2 years...Hope everyone has a great weekend!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 Terry and ..... I will put boots on my size 6 and be joining you guys. -dz- That was a sweet thing to do... I am sure she loved the surprise and the pup. ;o Jan here come 2 more cajun queens and one cajun King.. LOL.... Sharon. I am sorry to hear your shot beat you down. It happens like that.... Sometimes it just seems worse. Try to rest and drink lots of water. I'm thinking of you girl..... . Thanks for the info: you will be OK hon. It is terrible when you first get the diagnosis. I was diagnosed in 1994.. My LFT'S were always high and my Dr. just did the test to rule out hep c. He never thought I had it. When it came back that I did I had to have the Riba test. That is the one that confirms the diagnosis. I thought I was dying... I cried all the time and was embarrassed to tell any one. People looked at you back then as if you had the plague. My so called best friend backed away and to this day I don't hear from her.. Don't want to either. You will go thru a lot of mixed emotions . Thank God for the people in this group... They share a lot of very good info: that was not available to me at the time. I don't know if I got it in the 60's, 70's or 1981... I had transfusions way back when. I just had more transfusions in May when I was hospitalized. Take one day at a time and we and most people in a support group will help you cope.... I myself can never do any more interferon type of treatment. I didn't have luck with it because it messed my blood count up and I almost checked out because of my rare bleeding disorder. I can never have a transplant either because of my bleeding problem. That is why we kind of ham it up a bit out here.. To keep the mind off of it sometimes. When we need each other for support we are always here for each other. You came to the right place . Ask whatever it is that you need to and someone here will have an answer, or find one for you. Have a Super Week-End everyone!!!!!! Drive Careful and have a good holiday... Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Well I don't know if my butt don't feel sore already!!! LOL.Thanks you guys..I've been doing good now though..NO LIFTING!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Jan, if it is any consolation, I started my aldo blocker life on Inspra. It made me sick so I requested a change to spiro. Before endo got back to me (a week later) I was starting to tolerate Inspra a little better. Others here have been able to very gradually taper up on it. Perhaps a combo could be found for you where you could gradually taper onto Inspra? Sorry you're having all these problems. AVS would have been indicated before your surgery. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of ipscalifornia Dr. Grim and Group Members! I seem to have no treatment options left. I controlled by BP for 20 years with Maxide ( I also take topro xl for palpitations which works but never seemed to have any effect on BP). Two years ago my Bp went out of control suddenly,pain in arms, hands, legs and feet got worse and, potassium went down to 2.8 (potassium had been low for at least 15 years but not low enough to treat). I changed doctors as I didn't feel well in general. He did a CT and that resulted in the discovery of a 1.7 adenoma on the left adrenal gland. I was sent to an endo who ran more blood tests and urine. Tests showed slightly elevated Aldosterone/Renin and we decided to try to control the BP and potassium with meds. I tried several BP meds and maximum dose of potassium. Could only get potassium to 3.3-3.5 and BP remainded in the 180-195/90-96 range. I tried spiro but was unable to tolerate it. A salt loaded urine test finally showed elevated aldosterone and I scheduled a left adrenalectomy. Surgery went very well and all of the pain was gone immediately plus BP was about 100/80. However, by two months post surgery, the pain was back in arms, hands, legs, and feet. My BP started climbing and after trying several BP meds I ended back on Maxide. I was hoping this would last for a few years. I wasn't that lucky. Last July, I started having symptoms again, increased pain and facial flushing and sweats and not " feeling well " . In August, an Aldosterone/Renin test was 23.8 (1-16). BP was still in normal range but potassium was low - 3.1. I started on potassium (1meq a day) and tried spiro again. I still was unable to tolerate spiro and in November,2007, my Aldosterone/Renin was 23(1- 16) About 1 month ago, my BP started to climb again 160-170/80-90). Another Aldosterone/Renin test was 44 (1-16) and I started on Inspra, hoping that it would work. I'm on my 6th day of Inspra and I'm nauseous all day and having flushing off and on all day. I don't think I can stay on this drug. My question is where do I go from here? Both my endo and primary are talking about surgery and I don't know of any other options. A recent CT showed nothing on the right adrenal gland. My sodium has run low since at least 1990 so I'm afraid to cut more salt out of my diet. Is there anything else I might do? Has anyone else had a similar experience? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Get the DASH diet book and use it like your life depended on it. I assume your health care team has already mentioned this. Get the pathology report on your adrenal that was removed for you and your family's records. Send a copy to us as well. I assume you did not have AVS studies before surgery? Read my article on the evolution of PA in our files and take to all in your health care team. You most likely have bilateral hyperplasia and further surgery will result in having Addision's which you want to avoid if at all possible. So work on the DASH and tell us all other meds you are taking. Where are you located? On Mar 25, 2008, at 8:02 PM, ipscalifornia wrote: > Dr. Grim and Group Members! > > I seem to have no treatment options left. I controlled by BP for 20 > years with Maxide ( I also take topro xl for palpitations which works > but never seemed to have any effect on BP). Two years ago my Bp went > out of control suddenly,pain in arms, hands, legs and feet got worse > and, potassium went down to 2.8 (potassium had been low for at least > 15 years but not low enough to treat). As you can see from other stories here you have had PA since before your K was low. > I changed doctors as I didn't > feel well in general. He did a CT and that resulted in the discovery > of a 1.7 adenoma on the left adrenal gland. I was sent to an endo > who ran more blood tests and urine. Tests showed slightly elevated > Aldosterone/Renin and we decided to try to control the BP and > potassium with meds. What meds were used? Most don't work in PA as you will note in my article. > I tried several BP meds and maximum dose of > potassium. Could only get potassium to 3.3-3.5 and BP remainded in > the 180-195/90-96 range. I tried spiro but was unable to tolerate it. How were you unable to tolerate it? > A salt loaded urine test finally showed elevated aldosterone and I > scheduled a left adrenalectomy. > > Surgery went very well and all of the pain was gone immediately plus > BP was about 100/80. However, by two months post surgery, the pain > was back in arms, hands, legs, and feet. My BP started climbing and > after trying several BP meds I ended back on Maxide. I was hoping > this would last for a few years. Maxizide will lower K esp if you still have PA which is the case from the results below. > > I wasn't that lucky. If you had AVS before surgery that documented that the the cause of the PA was the side of the tumor you were indeed unlucky. If you did not have AVS you were mismanaged in our group's (and most world class experts) opinion. > Last July, I started having symptoms again, > increased pain and facial flushing and sweats and not " feeling > well " . In August, an Aldosterone/Renin test was 23.8 (1-16). BP was > still in normal range but potassium was low - 3.1. I started on > potassium (1meq a day) and tried spiro again. I still was unable to > tolerate spiro and in November,2007, my Aldosterone/Renin was 23(1- > 16) About 1 month ago, my BP started to climb again 160-170/80-90). > Another Aldosterone/Renin test was 44 (1-16) and I started on Inspra, > hoping that it would work. I'm on my 6th day of Inspra and I'm > nauseous all day and having flushing off and on all day. I don't > think I can stay on this drug. > > My question is where do I go from here? Both my endo and primary are > talking about surgery and I don't know of any other options. A > recent CT showed nothing on the right adrenal gland. My sodium has > run low since at least 1990 so I'm afraid to cut more salt out of my > diet. Is there anything else I might do? Has anyone else had a > similar experience? You need to see someone who is an expert in PA. IF YOU CAN TELL ME WHERE YOU ARE I MAY BE ABLE TO FIND SUCH AN EXPERT. > > Jan > > May your pressure be low! CE Grim BS, MS, MD High Blood Pressure Consulting Specializing in Difficult to Manage High Blood Pressure Consult the following at for details bloodpressureline hyperaldosteronism Quote Link to comment Share on other sites More sharing options...
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