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Dear :

What are your symptoms for neurological lyme? How long have you had it

- did they find it early? I am now on the IV Rocephin for 6 weeks. Did

it do anything for you?

Peace,

Lovette

[Guest guest]

Jean:

It is my left side that is affected as well. The sciatica pain that is now

nearly constant is completely left-sided, often traveling down into the leg

and foot. The left side of my rib cage is extremely sensitive ... almost feels

black and blue, and there is a lump about the size of a golf ball protruding

from my left rib cage. My G.P. tells me it is nothing ... doesn't even feel

the need to test it, but it is very noticeable and when other symptoms are

bad, it itches, hurts, seems larger and scares me. My left breast is often

painful, although I don't feel lumps in it. The glands on the left side of my

neck are always worse, too. Could this have something to do with the placement

of the heart? Just a guess, but then isn't everything about Lyme just a guess?

[Guest guest]

Hello Lovette, Sue and all:

I started IV Rocephin Sept. 1, Had a reaction with the left eye a week

later that was weird. It felt like my lower eye lid was hanging down to my

check bone and my eye was bulging out. I was scared to look in the mirror,

but when I did everything was fine except for a white substance along the

lower lid. Three weeks into IV I started to herx. The first time made me

wonder, it made me feel like I was run through a meat grinder and really

made my butt muscles ache. Got better after three days then I started to

herx fairly regular every week to 10 days. The first one is the worst

because you don't know what's happening, for me after the first one it got

easier because I knew it would let off in a few days.

Went on oral Tetracycline 2000 mg for two weeks which seemed to do nothing,

now I am back on IV Rocephin 2 Grams per day. Was going to try pulse therapy

but the doc changed his mind for reasons which I do not know right now. I am

happy just getting Rocephin and am waiting for the next herx. I what to kill

all them little buggers. Sometimes its good to feel bad, I GUESS!!!!!!!!!! I

was getting intestinal heaving ,urinary shut down, and hard bowl movements

that would make you scream,

thought maybe candida but it wasn't, had to be all herx reactions. Make sure

you take lots of yogurt and acidophilus capsules with meals. I didn't do it

the first three weeks and I paid for it . DO IT.

I have neurological lyme and affected real bad in the arms and fingers,

spastic legs, weakness and the rest. O ya, when I started IVabx my strength

decreased rapidly but now has leveled off until a herx which makes me weaker

yet. Good luck o n your treatment and keep the faith.

Ps.. I just about have my story ready to send to the group which explains

all about what happened to me. I also have done all the IV treatments

without the Piic's line. I have good veins and just move the site every

week. So far no problems.

" F. Mott " wrote:

> From: " F. Mott " <smott@...>

>

> Dear :

>

> What are your symptoms for neurological lyme? How long have you had it

> - did they find it early? I am now on the IV Rocephin for 6 weeks. Did

> it do anything for you?

>

> Peace,

> Lovette

>

> ------------------------------------------------------------------------

>

[Guest guest]

hi brian nice to meet u. i am also on iv rocephin i am just coming off of

herxing just that i have a bad headche today. i have a probelm they had to pull

my picc friday due to a hole in it and i have a regular iv right now til tue and

they are going to reinsert it then theycouldnt get it in my lt arm they tried 3

times. hopefully they reg iv will last til tue. if u have icq or aol messager i

ahve both my number for icq is 11991090 and my aol mess is ssmufler if u have

neither u can email me at gizmo@... i will be gald to talk to u anytime. i

know it helps to talk to someone who is going thru what u are going thru it seem

like other people just dont understand even thou they try. nice to u meet u

sue smith

Pierson wrote:

> From: Pierson <Pierson5@...>

>

> Hello Lovette, Sue and all:

>

> I started IV Rocephin Sept. 1, Had a reaction with the left eye a week

> later that was weird. It felt like my lower eye lid was hanging down to my

> check bone and my eye was bulging out. I was scared to look in the mirror,

> but when I did everything was fine except for a white substance along the

> lower lid. Three weeks into IV I started to herx. The first time made me

> wonder, it made me feel like I was run through a meat grinder and really

> made my butt muscles ache. Got better after three days then I started to

> herx fairly regular every week to 10 days. The first one is the worst

> because you don't know what's happening, for me after the first one it got

> easier because I knew it would let off in a few days.

> Went on oral Tetracycline 2000 mg for two weeks which seemed to do nothing,

> now I am back on IV Rocephin 2 Grams per day. Was going to try pulse therapy

> but the doc changed his mind for reasons which I do not know right now. I am

> happy just getting Rocephin and am waiting for the next herx. I what to kill

> all them little buggers. Sometimes its good to feel bad, I GUESS!!!!!!!!!! I

> was getting intestinal heaving ,urinary shut down, and hard bowl movements

> that would make you scream,

> thought maybe candida but it wasn't, had to be all herx reactions. Make sure

> you take lots of yogurt and acidophilus capsules with meals. I didn't do it

> the first three weeks and I paid for it . DO IT.

> I have neurological lyme and affected real bad in the arms and fingers,

> spastic legs, weakness and the rest. O ya, when I started IVabx my strength

> decreased rapidly but now has leveled off until a herx which makes me weaker

> yet. Good luck o n your treatment and keep the faith.

>

>

>

> Ps.. I just about have my story ready to send to the group which explains

> all about what happened to me. I also have done all the IV treatments

> without the Piic's line. I have good veins and just move the site every

> week. So far no problems.

>

> " F. Mott " wrote:

>

> > From: " F. Mott " <smott@...>

> >

> > Dear :

> >

> > What are your symptoms for neurological lyme? How long have you had it

> > - did they find it early? I am now on the IV Rocephin for 6 weeks. Did

> > it do anything for you?

> >

> > Peace,

> > Lovette

> >

> > ------------------------------------------------------------------------

> >

[Guest guest]

Pierson wrote:

>

> From: Pierson <Pierson5@...>

>

> Hello Lovette, Sue and all:

>

> I started IV Rocephin Sept. 1, Had a reaction with the left eye a week

> later that was weird. It felt like my lower eye lid was hanging down to my

> check bone and my eye was bulging out.

Dear : My left eye, one week into the Rocephin IV, has turned

blurry/foggy. Hope it's just a herx...

Lovette

[Guest guest]

Folks --

Has anybody else noticed the great occurence of " left-side " symptoms? It

seems like almost everyone who posts to this group has stuff going on

with their left side -- pain, weird sensations, numbness, etc etc. I

know for me that my symptoms are almost exclusively left-sided, with the

exception of pain in my right shoulder and wrist. But all my neuro stuff

has been left-sided.

My left eye hasn't felt right since a transitory episode of facial

numbness (not paralysis) about a month ago. It just feels indefinably

odd, and it's more light sensitive.

I thought at first this could possibly be related to more people being

right-handed, and more active joints being less affected than

less-active ones, but that wouldn't apply to eyes. Another great theory

shot down....

Any thoughts, or am I just going a little nuts? (always a possibility,

even before being bitten by the Tick from Hell.)

Jean