ljswilley@... ( J. Swilley): [Lyme-aid] MAILER-DAEMON@onelist.com: failure notice

[Guest guest]

From: ljswilley@... ( J. Swilley)

Date: Mon, 23 Nov 1998 22:05:57 EST

Hi ,

I keep trying to e-mail you but it keeps bouncing back. I'm going to Dr.

Cichon, too, but I'm at my mother's in ville and that's 230 miles

one way and it's an awful trip. I don't know how long I can keep it up.

I have lots of insurance but his group wants to do things that aren't

covered. IGeneX accepts Medicare as payment in full but apparently their

lab isn't Medicare approved because I had to get my bllod drawn at

Kline and then take it to Fedex myself. My BlueCross pays for

whatever Medicare doesn't but Medicare has to pay first.

Was your Lyme positive? I've never had a positive Lyme but I've had

everything listed to not get a positive. I have high liver enzymes,

abnormal BUNs, positive typhoid test, positive brucelosis test, and

positive other stuff but not Lyme. I have all the symptoms, though, most

all on Dr. B's list.

Maybe, I'll get the advantage of his having read your information. My

appointment is tomorrow afternoon. How were you going to handle the IVs?

The last trip over wiped me out for a week. My sister is driving me

over this time in hopes I can recover enough for Thanksgiving.

He put me on acyclivir, diflucan, neurontin, and some supplements. My

ear stopped turning red and swelling but nothing much else changed. I

want to be able to walk at least enough to go around a little bit.

If this bounces I'll send it to the list.

LJSwilley@...

On Mon, 23 Nov 1998 21:31:16 EST FIG4159@... writes:

>Hi,

>Which dr. in Tampa are you going to? I am seeing Dr Cichon in Temple

>Terrace.

>We live in Port Charlotte so its a hike (2 hours each way) but I think

>(so

>far, at least, after 2 appointments with him) that it's worth it. I

>am

>currently on oral Biaxin, 500MG 2x/day (he wanted to put me on IV but

>since we

>have no insurance, I just can't afford the $350/day). Last week I

>gave him

>Dr. Burrascano's protocols (latest revision) and also a copy of the

>Columbia

>University Lyme/CFS seminar syllabus, both of which he promised to

>read. He

>tested me for erlichia and babeosis too but I was negative.

>

>

>You wrote:

><>

>

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