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Re: Abx combo question

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In a message dated 5/12/1999 4:59:32 PM Eastern Daylight Time,

SCSullivan@... writes:

<< Are mepron and Plaquinel in the same family of drugs? Are

they antimalarial drugs? >>

: I know Plaquenil is an antimalarial drug.....not familiar with mepron.

Mona

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,

While I have heard that the LP will not necessarily show Lyme, other

conclusions can be drawn from the testing. Yet, below is a study that shows

how it is not effective for the dx of Lyme.

Neuroborreliosis: Comparison of PCR, Culture, and a Bioassay Detection

of Active Infection in Nonhuman Primates with Lyme.

Ideally a diagnosis of infection of the central nervous system (CNS) is

made

by culture of the etiologic pathogen, but Borrelia burgdorferi, the

causative agent of Lyme neuroborreliosis (LNB), is rarely cultured from

the

cerebrospinal fluid (CSF). PCR and measurement of specific antibody in

the

CSF also have their limitations. The role of available assays for LNB

has

not been studied carefully in a comparative investigation. There is a

need

to assess the reliability of assays and to increase the ability to

document

active infection in the CNS. The recent development of the nonhuman

primate

(NHP) model of LNB allowed us to address this need in a faithful model

of

human LNB. In this study we compared the abilities of PCR and culture to

detect the presence of spirochetes in the CSF and brain tissue of

infected

NHPs and related these measures of infection to the development of

anti-B.

burgdorferi antibody. We also tested a bioassay, the mouse infectivity

test

(MIT), in this model. Fourteen of 16 CSFs from four NHPs were positive

by at

least one of these techniques. Detection of spirochetes in the CSF by

PCR,

the MIT, and culture was inversely related to the concomitant presence

of

anti-B. burgdorferi antibody intrathecally. The performance of any

particular test was associated with the strength of the host immune

response. In early CNS infection, when anti-B. burgdorferi antibody had

not

yet appeared, or in immunocompromised hosts, the MIT compared favorably

to

culture and PCR for infected NHPs; antibody in the CSF was the most

useful

assay for immunocompetent NHPs.

R. Pachner, Wei-Fen Zhang, Henry Schaefer, Schaefer, and

Tim

O'Neill.

Journal of Clinical Microbiology, November 1998;36:3243-3247.

>From: SCSullivan@...

>

>>Also, I finally caved in and told my LLMD and neurologist that I would

have a

>lumbar puncture -- I've been able to hold them off for 2 years. Needless

to

>say, I am very, very nervous about this procedure. I meet with the neuro

on

>Monday to discuss the procedure, and I'm scheduled for the LP on Weds

>morning. I think I'm looking for reassurance from the list that it is

worth

>going thru this horrible test. Is it really more accurate than the blood

>tests?

>Thanks for any insight you can provide,

>

>

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Hi I just read your post about the Lumbar Puncture. My personal opinion

is to stay away from it. The test is no more conclusive than the regular

blood tests and this was brought up at the lyme conference in April. I had

one done 6 years ago and I could not move for over two weeks. I was in the

worst pain in my back and the headaches are unbearabel. I mean the worst

headaches ever imagineable. I was flat on my back in pain for two weeks on

percocet. Couldn't even sit up to eat because of the headaches. the results

were also negative and I was denied treatment from the dr. who preformed it.

Had to find another doc to treat me three weeks later although the tap did

show a white blood cell in the fluid which shouldn't be there. I urge you to

re-think this. The doc who I had promised me IV treatment regardless of the

lresults and then told me no after. I had to have a back MRI because of my

back pain too. It is unessacery unless your doc trult speculates that yu have

menengitis or something else tht can be definitifly proven by a spinal tap.

Ihope you are feeling better -Val

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In a message dated 5/12/99 4:07:39 PM, WISHXXX@... writes:

<<<< Are mepron and Plaquinel in the same family of drugs? Are

they antimalarial drugs? >>>>

Hi susan, Mepron is an anti protazoan. i think babesia is some form of

protozoa (piroplasm) but i am not sure.feel better-Val

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,

I had a spinal tap before my diagnosis. It was neg. My doc told me

that , if you have had antiiotics prior to these test...they most likely be

neg......Now I have a spot on my lower spine that aches continuously from

it. Dr. B. told me I never should haven put through that....However it was

before I found a lyme literate doc......Hugs

[Lyme-aid] Abx combo question

>From: SCSullivan@...

>

>Hi everyone,

>I know a lot of you are on combinations of Biaxin and either Mepron or

>Plaquinel (sp?). Are mepron and Plaquinel in the same family of drugs?

Are

>they antimalarial drugs?

>

>Also, I finally caved in and told my LLMD and neurologist that I would have

a

>lumbar puncture -- I've been able to hold them off for 2 years. Needless

to

>say, I am very, very nervous about this procedure. I meet with the neuro

on

>Monday to discuss the procedure, and I'm scheduled for the LP on Weds

>morning. I think I'm looking for reassurance from the list that it is

worth

>going thru this horrible test. Is it really more accurate than the blood

>tests?

>Thanks for any insight you can provide,

>

>

>------------------------------------------------------------------------

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>

>Join a new list today!

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