Re: [Lyme-aid] Larry-HNP's-sinuses

[Guest guest]

Hi Larry,

I feel really dumb but what does HNP stand for? I just call mine

Herniated discs, so just can't figure out how HNP comes in. I know I saw it

before, I must have known what it meant before, but forget. Larry, if you

did not have these disc problems prior to LD, it definitely has to be from

LD, caused by nerve damage, caused by the spirochetes. I doubt surgery

would really help you or me, until the chetes are gone, we will continue to

have these problems I think. Unless the HNP's prevent you from walking at

all, I would not consider it, you just never know what can happen. Just my

humble opinion though.

I too have the chronic sinus infection, dx'd by CT scan, also only since

LD came into my life, are illnesses are the same approximate age (3 1/2yrs)

incredible we have so many of the same problems in common. I know you have

been on IV longer than I, I am only on my third week, and herxing up a

storm, I remember your post about going to court and needing assistance as

you were so sick, can you tell me when you started to feel good on the

Rocephin, I am worried about still being so sick for the G-burg rally. Only

a few weeks away.

You don't have to tell me to stay on the abx, when I saw the results of

my PET scan it scared the hell out of me, and I definitely want to stay on

IV's as long as possible to prevent further brain damage. I am sorry you

see only small improvements on the IV, not very encouraging.

I still am unsure, did you begin to be sick 3+years ago as a result of a

known tick bite, or was it stress that brought out the disease from it's

dormant stage from a prior tick bite? I seem to recall you were going

through a divorce. Forgive me if I have my facts scrambled.

Hugs,

Marta

>From: " larryyenko " <larryy@...>

>

>Marta,

> Yes, I am still on IV Rocphin and yes, I had the MRI with the PICC line

>in (my line is all plastic). You can't have any metal in you with an MRI.

> I too have HNPs at T7-T8, T10-T11, L4-L5 and L5-S1. I have always

>wondered about the relationship with Lyme and the HNPs. I also wonder

about

>whether there is a relationship with my condition and chronic sinus

>infection (which once again showed up on MRI).

> Though the body remyelinites, you have to stop the disease process that

>is causing the demyelination. Stay on the abx.

> My IV hasn't made a major difference though I feel small improvements

(I

>am able to move my L leg almost all the time).

> Hang in there.

>Larry NV

>

[Guest guest]

Marta,

HNP stands for herniated nucleus pulpi (disc). I went to the new

neurologist yesterday. He opined no Lyme but MS even in light of the

positive Western Blot (band 31 & 41).

I have had sinus problems since or before the onset of symptoms. The

Mayo has come out with research that cronic sinus problems are caused by

fungus. I can't help but think that that may be part of the cause of the

immune reaction.

Yes, I'm still on IVs, however, not much improvement yet. I see Dr. J.

this Saturday, I'll keep you posted.

Larry NV

[Guest guest]

Marta,

I forgot to tell you, I worked in Lyme Conn and then in Peekskill, NY in

the summer of 1985. I had a Bells palsy in 1989 but it passed in about a

month. I found a tick on my dog in 1996 and a rash showed up on my leg in

late 1996, about the time the symptoms showed up.

Larry NV

[Guest guest]

Hi Larry,

No sooner had I sent out my query to you about HNP's definition, I came

across an old web page I printed out that defined the word. I was trying to

clean up and throw out the tons of paperwork I have generated while

researching my own disease, much of it was a waste to print.

I read the article about chronic sinus infections possibly are due to

fungal infections....sure makes sense to me too.

Sorry to hear that you are not making much improvement on the IV's, I was

hoping you would tell me you were, my first 28 days runs out on Monday, I

don't see the doctor till Saturday, getting an approval for more IV is going

to be tough due to lack of time, hope I don't have to miss any days of

infusing, or worst, get cut off before this 28 days can be of help.

Let us know how you make out on Saturday as well,

Hugs,

Marta

-

>From: " larryyenko " <larryy@...>

>

>Marta,

> HNP stands for herniated nucleus pulpi (disc). I went to the new

>neurologist yesterday. He opined no Lyme but MS even in light of the

>positive Western Blot (band 31 & 41).

> I have had sinus problems since or before the onset of symptoms. The

>Mayo has come out with research that cronic sinus problems are caused by

>fungus. I can't help but think that that may be part of the cause of the

>immune reaction.

> Yes, I'm still on IVs, however, not much improvement yet. I see Dr. J.

>this Saturday, I'll keep you posted.

>Larry NV