Re: [Lyme-aid] Hi, I'm new...(kinda long)

[Guest guest]

hi dori welcome i think we are all asking the same question one little bug bite and your life is turned upside down i am new to this list to i am 40 live in mich has been a big nightmare for the last 2 years with this disease my son also has it cause IT DOES TRANSFER FROM MOTHER TO FETUS!!!!

i am not much help dont know much about this myself like the other test i have never had them done need to talk to my doc and i have only been on one abt at a time but have tolerated all abt therapy like near death experiences will always be a friend to try and help out tho

with much love and prayers cindy in mich

[Lyme-aid] Hi, I'm new...(kinda long)

Hi all,

I'm brand-spanking new to this list so I thought I'd hurl myself

in with both feet and introduce myself. Hope you don't mind

if it's a bit long.

My name is Dori, and I was diagnosed with Lyme three days

ago. Unlike most of the stories I've been reading on the net,

I didn't have to wait very long for a diagnosis -- the doctor took

one (rather horrified) glance at the EM rash on my butt and said,

"that's Lyme."

I had a hard time believing him, simply because he only looked

at the rash for about 5 seconds and never did any tests. That and

I never saw the damn tick. And also because for some reason, I

never before had a tick bite that was itchy -- and this foul thing on my

body was *torturing* me, both with itchiness and soreness. Even

after he asked me about other symptoms (I have a very stiff

neck, an ongoing headache, and strange little muscle twitches for

three or four days, but thought I was "sleeping funny"), I still didn't

take him seriously, or even consider the idea of LD. It wasn't

until I got home that night and started looking at the photos of

other people's EM rashes on the internet that I realized, hey, this

could actually be pretty serious. The ironic thing is, I've lived in

New Jersey all my 30 years, and for the last ten of them I've been

obsessed with preventing ticks on my body. We get it drilled into

our heads from a young age around here. And yet, even when I

saw the rash, it never occurred to me it might be Lyme.

Anyway...so there I was. I went into the "quick-care" clinic at the

emergency room of my local hospital on Thursday because I had

what I thought was an infected mosquito bite. The doctor gives me

the five-second diagnosis of LD and sends me home with a

prescription for 21 days of doxy and instructions to have a Lyme

titre done in six weeks. Oh, and call your family doctor, he says---

you'll want him to monitor your treatment. That's it.

So of course, I have a gazillion questions. How quickly I went from

being someone who paid little attention to Lyme in the papers or

on TV, to someone who now needs to know everything I can find out.

But before I start throwing out all my questions, I have just one....

how is that that one tiny little creature can have the power to

completely interrupt my life???

Looking forward to talking with you all.

~Dori

"Life breaks everyone - but some grow stronger at the broken part."

~~ Hemingway

is dedicated to Marta McCoy, the foundation behind what is today.Easy Reference:Send a blank email message to: -Subscribeegroups - Subscribe to the list through email -Unsubscribeegroups - Unsubscribe from the list -Digestegroups - Switch your subscription to a digest format -Normalegroups - Switch your subscription to normalPlease send messages not related to Lyme disease to -OfftopicegroupsArchives can be accessed at lyme-aidPlease visit the chat room at chat/lyme-aid

[Guest guest]

Welcome Dori. I don't have Lyme myself,but my sister has been battling it for

6yrs at this time with no treatment. Everyone here is wonderful and very much

educated on the subject. I don't write as much as i used,but i thank everyone

who has been helpful,and i continue to read all the mail that comes in.

Please feel free to jump in any time and read people stories. they will be

vey helpful to you,and e-mail as much as you can. You will always get a

response.Ask as many questions as u possibly can. Educate yourself. I hope

your doing well. Mail me anytime Dori.

hugs to you

pretty

peachezz(monica)

[Guest guest]

dori....welcome .....u r lucky ,,,,u had a bullseye and trhe doc knew what it

was.....i also live in nnj so if u need any help call me e mail me and i

will send u my #

Reid

[Guest guest]

Welcome Dori! I also am new to the group. You are lucky to

have caught it early. As you know many are not as fortunate as you.

You may want to look into getting tested for other tick related illnesses.

I have babesiosis. I never heard of it until I went to see a LLMD,

I would definatly go to a doctor that is very experienced with treating

lyme. I don't know if 21 days is enough! Find a knowledgable

dcotor! Good luck! By the way, this may sound weird, but everyone

tells me that if I am ever to ge another rash to take a picture of it for

proof. (insurance, etc.) I don't know if it is too late.

You may have to have someone else do it thought. I think my butt

would not fit in the picture frame! Just kidding! Take care!

nne

Dori wrote:

Hi

all,I'm

brand-spanking new to this list so I thought I'd hurl myselfin

with both feet and introduce myself. Hope you don't mindif

it's a bit long.My

name is Dori, and I was diagnosed with Lyme three daysago.

Unlike most of the stories I've been reading on the net,I

didn't have to wait very long for a diagnosis -- the doctor tookone

(rather horrified) glance at the EM rash on my butt and said,"that's

Lyme." I

had a hard time believing him, simply because he only lookedat

the rash for about 5 seconds and never did any tests. That andI

never saw the damn tick. And also because for some reason, Inever

before had a tick bite that was itchy -- and this foul thing on mybody

was *torturing* me, both with itchiness and soreness. Evenafter

he asked me about other symptoms (I have a

very stiff neck,

an ongoing headache, and strange little muscle twitches

forthree

or four days, but thought I was "sleeping funny"), I still didn'ttake

him seriously, or even consider the idea of LD. It wasn'tuntil

I got home that night and started

looking at the photos of other

people's EM rashes on the internet

that I realized, hey, this could

actually be pretty serious.

The ironic thing is, I've lived

in New

Jersey all my 30 years, and for

the last ten of them I've beenobsessed

with preventing ticks on my body. We get it drilled intoour

heads from a young age around here. And yet, even when Isaw

the rash, it never occurred to me it might be Lyme.Anyway...so

there I was. I went into the "quick-care" clinic at theemergency

room of my local hospital on Thursday because I hadwhat

I thought was an infected mosquito bite. The doctor gives methe

five-second diagnosis of LD and sends me home with aprescription

for 21 days of doxy and instructions to have a Lymetitre

done in six weeks. Oh, and call your family doctor, he says---you'll

want him to monitor your treatment. That's it. So

of course, I have a gazillion questions. How quickly I went frombeing

someone who paid little attention to Lyme in the papers oron

TV, to someone who now needs to know everything I can find out.But

before I start throwing out all my questions, I have just one....how

is that that one tiny little creature can have the power tocompletely

interrupt my life???Looking

forward to talking with you all.~Dori"Life

breaks everyone - but some grow stronger at the broken part."~~

Hemingway

is dedicated to Marta McCoy, the foundation behind what

is today.

Easy Reference:

Send a blank email message to:

-Subscribeegroups - Subscribe to the list through

email

-Unsubscribeegroups - Unsubscribe from the list

-Digestegroups - Switch your subscription to a digest

format

-Normalegroups - Switch your subscription to normal

Please send messages not related to Lyme disease to -Offtopicegroups

Archives can be accessed at lyme-aid

Please visit the chat room at chat/lyme-aid