Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 Hi Helen , I read your post to Dabs abt Diamox & spects. I also had a spect at Columbia ( that could be a meeting place for all of us Lymies. Can you imagine how many of us have layed on the same table? ),it was abnormal and my doc wanted me to have another one with Diamox but I never did. Now I was listening to the tape that you sent me ( Thank you very much BTW) and Mr. talked abt taking Diamox either b4 or during ( I can't remember now) abx treatments because he said that if you can't get evnough blood flow to the brain then your antiobiotics are not gettin in and you might as well not take it . So after hearing that , I am all ready to go ask my doc to give me diamox. I am on IV doxy now, and have been herxing... was admitted to the hospitl a few days ago for a fainting episode due to sever dizziness, and now after reading your post abt the diamox making you so sick I am beginning to wonder if it is a good idea. Hmmmm Has anyone here ever been on Diamox? Either while on , or before abx treatments? I love to know abt it if anyone here has been on it b4 I mention it to my doc. Thanks in advance. I hope you all are doing well . I have been lurking and not writing much because I have been feeling so wiped out lately . Will be back in full force hopefully after IV. Hugs to Everyone, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 Hi I was on diamox and abx and got so dizzy that I fainted; I just thought that I could not tolerate the diamox. good luck to you with the IV best, Lea << Hi Helen , I read your post to Dabs abt Diamox & spects. I also had a spect at Columbia ( that could be a meeting place for all of us Lymies. Can you imagine how many of us have layed on the same table? ),it was abnormal and my doc wanted me to have another one with Diamox but I never did. Now I was listening to the tape that you sent me ( Thank you very much BTW) and Mr. talked abt taking Diamox either b4 or during ( I can't remember now) abx treatments because he said that if you can't get evnough blood flow to the brain then your antiobiotics are not gettin in and you might as well not take it . So after hearing that , I am all ready to go ask my doc to give me diamox. I am on IV doxy now, and have been herxing... was admitted to the hospitl a few days ago for a fainting episode due to sever dizziness, and now after reading your post abt the diamox making you so sick I am beginning to wonder if it is a good idea. Hmmmm Has anyone here ever been on Diamox? Either while on , or before abx treatments? I love to know abt it if anyone here has been on it b4 I mention it to my doc. Thanks in advance. I hope you all are doing well . I have been lurking and not writing much because I have been feeling so wiped out lately . Will be back in full force hopefully after IV. Hugs to Everyone, >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 In a message dated 9/27/99 11:06:09 PM EDT, Memyo@... writes: << Hi I was on diamox and abx and got so dizzy that I fainted; I just thought that I could not tolerate the diamox. good luck to you with the IV best, Lea >> WOw Lea, I was just hospitalized for fainting spells w/out Diamox. Can you imagine if I go on it????? Nevermind ! Thanks for responding Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 Hi Daina I have NMH so I am also prone to fainting without Diamox, but with the Diamox it was different. good luck to you best, Lea << WOw Lea, I was just hospitalized for fainting spells w/out Diamox. Can you imagine if I go on it????? Nevermind ! Thanks for responding >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 I was on Diamox for several months during my IV treatment. It didn't seem to do much for me except make be dehydrated [it's a diuretic], and go to the bathroom constantly. Mr. Simons does say that it works wonders for some people though, so it was worth a try. Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 In a message dated 9/28/99 9:10:37 AM Eastern Daylight Time, smott@... writes: << I was on Diamox for several months during my IV treatment. It didn't seem to do much for me except make be dehydrated [it's a diuretic], and go to the bathroom constantly. Mr. Simons does say that it works wonders for some people though, so it was worth a try. Lovette >> What is the story with damox? What is it supposed to do? And, why do some take it for a spect scan? thank you in advance lea ct Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 Memyo@... wrote: > > From: Memyo@... > > In a message dated 9/28/99 9:10:37 AM Eastern Daylight Time, smott@... > writes: > > << I was on Diamox for several months during my IV treatment. It didn't > seem to do much for me except make be dehydrated [it's a diuretic], and > go to the bathroom constantly. Mr. Simons does say that it works > wonders for some people though, so it was worth a try. > > Lovette > >> > What is the story with damox? What is it supposed to do? And, why do some > take it for a spect scan? > thank you in advance > lea ct > Dear Lea: Diamox is a diuretic, which makes you expel urine frequently. I think it opens up the blood vessels in your brain as well so that the antibiotics can enter. As for the spect scan, I wasn't given that for my spect scan, but I would assume it is to see whether the diamox would improve the situation for you. Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 1999 Report Share Posted September 29, 1999 Hi , I'm so sorry that you wound up in the hospital! Was the dizziness due to the IV Doxy causing a Herx? How are you doing now? Any improvement? I think I remember reading that your daughter has Lyme also...how is she doing? You're right about how many of us have laid on that Spect Scan table! I never thought of it that way! I hope for us all to meet one day, too...but not at Columbia! Feel better, Joan LI NY Quote Link to comment Share on other sites More sharing options...
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