Re: stopped vitamins/feel better!!

[Guest guest]

Hi Dabs

glad to hear it, this is wonderful news. How did you decide to stop the

suppliments?

hugs,

lea ct

<<

I am not recommending this to anyone....just telling you my experience.

A week ago I stopped ALL meds except oral doxy and plaquenil. I stopped all

vitamins and suppliments.

Today I feel better than I have in months!!!! I drove the car, went

shopping, had my hair hilighted and feel full of energy !!!!

NO headache or dizziness and I feel as strong as a pro wrestler. On tues

I am supposed to start IV zith along with the oral doxy....I feel so good

today that I dont think I need it!!!!!

This is a huge change from being bedridden and housebound.....I AM SO HAPPY

I

FEEL WELL!!. YIPEEEEEEEEEEEEEEEEEEEEE!!!!!!!!!!!!!!

Dabs conn >>

[Guest guest]

Dabs,

Did your vitamins contain ANY iron? There was a good article out recently

about iron and bacteria and the two do not mix!! Also Erlichia was listed as

a pathogen known to LOVE iron (well it didn't say that exactly but you know

what I mean).

Love,

Kathleen (write me if you need more info)

[Guest guest]

>From: Dabret22@...

>

>This is a huge change from being bedridden and housebound.....I AM SO HAPPY

I

>FEEL WELL!!.

YIPEEEEEEEEEEEEEEEEEEEEE!!!!!!!!!!!!!!

> Dabs conn

Dabs,

I did the same exact thing about 7 yrs. ago and felt wonderful!!! (After

being on IV's and oral abx for two years.) I honestly think that we get so

much " stuff " in our systems that our natural healing ability can't over-ride

the meds, vitamins, supplements, etc.

I still get periods (flares) of feeling crappy .. .the arthritis will flare

up ... the headaches return with a vengence ... the fatigue and Lyme fog

return ... but it never lasts more than a week or so and then I feel great

again for months. (And I'm tougher than the symptoms are so I can handle

them for a week or so.) And for that reason, I won't go back on anything.

I take a daily multi-vitamin, a calcium supplement because I'm a 49 yr. old

female, and my daily Premarin because I had a hysterectomy. But no extras!!

I feel that I eat right and get all the other vitamins I need from my diet.

I would never in a million years advise anyone else to do what we have done

.... not at all. I know Marta went off everything and just couldn't handle

it ... many can't! Dabs, I think we're among the lucky few but it sure does

feel good to not be taking any abx. :-) I just wish everyone else could

be as lucky as we are!!!

Ann (TX)

[Guest guest]

In a message dated 9/30/99 6:07:39 PM, Fyikat@... writes:

<< Did your vitamins contain ANY iron? >>

Yes, lots...Hmmmmmmm also what I did without realizing it was take double

and triple doses of vitamin A and E for a really long time.

so stupid. Someone would mention a vitamin/suppliment to me and I have been

so desperate to feel better I would start to take it. I think it is really

bad to take too much A and E. I just didnt pay enough attention to the

labels.

Good advice about " bubble bursting " I am eststic today but will take it

one day at a time, I guess. I just want sooo much to be well....

xoxo Dabs conn

[Guest guest]

Dabs

I read you email about stopping the vitamins. My wife and I, in

contrast, and in our experience have felt much better since being on a

regimend of vitamins (6-8wks on vitamins so far), that hopefully, are

working towards the intention of helping to build up our immune system. My

wife and I both also are on IV Primaxin and Zithromax (oral). We don't know

the absolute reason, but both agree and feel that it is the combination of

our meds and vitamins , that have given us

additional and very much needed energy. In addtion, we have been working

on reducing (not eliminating) our carborhydrate(s) intake. Since we

too, don't know the answers, we are hoping and have a " goal " that with " an

improved immune system, " that we may someday at least be able " to live and be

able to work " while having Lyme disease.

Alan & Pat (from Southern NJ)

[Guest guest]

Dabs,

Congratulations, I could feel your excitement through my computer.

don't mean to burst your bubble, but be careful because when you are so

excited then fall back down, its a harder fall. I've had good days and felt

like you and then, boy when you get hit again, its so depressing. But at

least you feel great today - ENJOY while it last. I really hope it last a

while longer or forever for you.

Vicki

[Lyme-aid] stopped vitamins/feel better!!

>From: Dabret22@...

>

>I am not recommending this to anyone....just telling you my experience.

>

>A week ago I stopped ALL meds except oral doxy and plaquenil. I stopped

all

>vitamins and suppliments.

>

>Today I feel better than I have in months!!!! I drove the car, went

>shopping, had my hair hilighted and feel full of energy !!!!

>

>NO headache or dizziness and I feel as strong as a pro wrestler. On tues

>I am supposed to start IV zith along with the oral doxy....I feel so good

>today that I dont think I need it!!!!!

>

>This is a huge change from being bedridden and housebound.....I AM SO HAPPY

I

>FEEL WELL!!.

YIPEEEEEEEEEEEEEEEEEEEEE!!!!!!!!!!!!!!

> Dabs conn

>

[Guest guest]

[This message contained attachments]

[Guest guest]

dabs....i hope it lasts//.....but thru experiqance.....it does not....enjoy

it and make the most out of it.......i heve been there and back....sometimes

the body needs a change.......hoping it stays taht way for u/.....

Reid

[Guest guest]

Hi Dabs,

I am THRILLED for you! Enjoy, but don't overdo...that's always been my

mistake. I would have a good day, and want to accomplish too many

things... and I'd feel lousy afterwards.

I am on Biaxin and Plaquenil now, and I am starting to feel stronger. I

don't want to jinx it, but I think my LLMD has found the combo that just

might help me. Because of the vitamin controversy, I am not taking

any...just Magnesium for the twitches. The vitamins weren't helping me,

although I know that others have had great success with them.

I wish you continued health!!! Joan LI NY

[Guest guest]

In a message dated 10/4/99 1:04:14 AM, Fyikat@... writes:

<<I remember hearing Dr. Donta speak at a conference. He said to not take

too

many supplements - we don't know what this thing eats yet!>>

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Hi

Okay, so we should feed the good bacteria (acidophilus) and starve the Lyme

bacteria! If only it was that simple!

I have a new question... I continue to experience frequent daily low grade

fevers.

My temp changes from 96.7 to 100.3 in a matter of minutes, mostly in the

afternoon and evening. This has been going on for about 5 weeks. Just

recently the fluctuations have started in the morning and happen through out

the day... The LLMD said try not to take anything for the fevers. That's

the weird thing, my temp will spike up despite the fact that I took Aleive or

Advil. I hope this means my body is fighting the Lyme buggers!

Here's the question... Has anyone else had this experience with daily

fluctuating temperatures? I feel weird enough with the parasthesias this

wipes me out and makes me extremely unbalanced!

Thanks and Take Care!

{{hugs}}

Jane

[Guest guest]

In a message dated 10/4/99 1:45:45 AM, lclott@... writes:

<<The only time my temp has not been 99 or above was

when I was off the abx. It instantly went down to 97.4

ans stayed there the week I was off the abx. Only to

go back up as soon as I restarted them.>>

Hi

That must be awful for you! My temp is like a roller coaster, but thankfully

it is usually normal most of the time. I feel lousy when my temp goes over

98 degrees! I too have been on abx since May. Lets hope we are killing the

darn buggers!!! Where are you from!

{{hugs}}

Jane (CT)

[Guest guest]

Jane-

I too have daily fevers. I have had a fever since

starting on abx. That was in May of this year. It runs

anywhere from 99 to 101. And I noticed that when I

feel the worst it is higher so I too am assuming that

it is helping to kill of the bugs.

The only time my temp has not been 99 or above was

when I was off the abx. It instantly went down to 97.4

ans stayed there the week I was off the abx. Only to

go back up as soon as I restarted them.

My doc also says not to treat it unless it goes to 102

or higher and then he also wants to be notified.

L

--- JVSPL@... wrote:

>

> In a message dated 10/4/99 1:04:14 AM,

> Fyikat@... writes:

>

> <<I remember hearing Dr. Donta speak at a

> conference. He said to not take

> too

> many supplements - we don't know what this thing

> eats yet!>>

>

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Hi

> Okay, so we should feed the good bacteria

> (acidophilus) and starve the Lyme

> bacteria! If only it was that simple!

>

> I have a new question... I continue to experience

> frequent daily low grade

> fevers.

> My temp changes from 96.7 to 100.3 in a matter of

> minutes, mostly in the

> afternoon and evening. This has been going on for

> about 5 weeks. Just

> recently the fluctuations have started in the

> morning and happen through out

> the day... The LLMD said try not to take anything

> for the fevers. That's

> the weird thing, my temp will spike up despite the

> fact that I took Aleive or

> Advil. I hope this means my body is fighting the

> Lyme buggers!

>

> Here's the question... Has anyone else had this

> experience with daily

> fluctuating temperatures? I feel weird enough with

> the parasthesias this

> wipes me out and makes me extremely unbalanced!

> Thanks and Take Care!

> {{hugs}}

> Jane

>

>

>

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<HR>

=====

[Guest guest]

Jane-

The only time it has really bothered me is when it was

real hot outside or when it hits 101. That has been

about average for the last few weeks which is also

wwhen I have been feeling the worst so maybe it is the

fever and the toxins that are doing me in.

And I meant to mention that when I was taking Motrin

(800 mg 4-5 times a day) my temp still didnt come

down.

And Im from MI. Usually put that with my name but must

have forgotten to do it this time.

L (MI)

--- JVSPL@... wrote:

>

> In a message dated 10/4/99 1:45:45 AM,

> lclott@... writes:

>

> <<The only time my temp has not been 99 or above was

> when I was off the abx. It instantly went down to

> 97.4

> ans stayed there the week I was off the abx. Only to

> go back up as soon as I restarted them.>>

>

> Hi

> That must be awful for you! My temp is like a

> roller coaster, but thankfully

> it is usually normal most of the time. I feel lousy

> when my temp goes over

> 98 degrees! I too have been on abx since May. Lets

> hope we are killing the

> darn buggers!!! Where are you from!

> {{hugs}}

> Jane (CT)

>

>

------------------------------------------------------------------------

> Send to -Offtopiconelist messages

> unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to

> -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or

> " normal " for

> the word " unsubscribe " ( " normal " is the opposite of

> " digest " ). Leave blank both the message and subject

> header.

>

<HR>

=====

[Guest guest]

Jane,

I just started having the same thing again. When I first started treatment I

had the fevers on and off anytime during the day and night sweats. Just last

week I started the fevers in the afternoon, along with nausea. So far for

the last two days I haven't had them and most my other symptoms are milder

I'm currently off anbx's, for two months now, so I'm real confused. Felt

like I was herxing for an entire week, then got better. I can't figure it

out! But I do know fevers are a common symptom with Lyme, and of course when

you are feverish with all this new temperature stuff we are hearing, thats a

good thing because its killing the chetes. Hope you feel better. I know this

doesn't help you much, but at least you know others experience the same

thing.

Vicki

Re: [ ] stopped vitamins/feel better!!

>From: JVSPL@...

>

>

>In a message dated 10/4/99 1:04:14 AM, Fyikat@... writes:

>

><<I remember hearing Dr. Donta speak at a conference. He said to not take

>too

>many supplements - we don't know what this thing eats yet!>>

>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>Hi

>Okay, so we should feed the good bacteria (acidophilus) and starve the Lyme

>bacteria! If only it was that simple!

>

>I have a new question... I continue to experience frequent daily low grade

>fevers.

>My temp changes from 96.7 to 100.3 in a matter of minutes, mostly in the

>afternoon and evening. This has been going on for about 5 weeks. Just

>recently the fluctuations have started in the morning and happen through

out

>the day... The LLMD said try not to take anything for the fevers. That's

>the weird thing, my temp will spike up despite the fact that I took Aleive

or

>Advil. I hope this means my body is fighting the Lyme buggers!

>

>Here's the question... Has anyone else had this experience with daily

>fluctuating temperatures? I feel weird enough with the parasthesias this

>wipes me out and makes me extremely unbalanced!

>Thanks and Take Care!

>{{hugs}}

>Jane

>

[Guest guest]

Jayne, you need be tested for co=infections, babesiosis and

ehrolichiosis. your symptoms sound like these diseases. Lovey

On Sun, 3 Oct 1999 20:21:59 EDT JVSPL@... writes:

> From: JVSPL@...

>

>

> In a message dated 10/4/99 1:04:14 AM, Fyikat@... writes:

>

> <<I remember hearing Dr. Donta speak at a conference. He said to

> not take

> too

> many supplements - we don't know what this thing eats yet!>>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Hi

> Okay, so we should feed the good bacteria (acidophilus) and starve

> the Lyme

> bacteria! If only it was that simple!

>

> I have a new question... I continue to experience frequent daily

> low grade

> fevers.

> My temp changes from 96.7 to 100.3 in a matter of minutes, mostly in

> the

> afternoon and evening. This has been going on for about 5 weeks.

> Just

> recently the fluctuations have started in the morning and happen

> through out

> the day... The LLMD said try not to take anything for the fevers.

> That's

> the weird thing, my temp will spike up despite the fact that I took

> Aleive or

> Advil. I hope this means my body is fighting the Lyme buggers!

>

> Here's the question... Has anyone else had this experience with

> daily

> fluctuating temperatures? I feel weird enough with the parasthesias

> this

> wipes me out and makes me extremely unbalanced!

> Thanks and Take Care!

> {{hugs}}

> Jane

>

> ---------------------------