Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 In a message dated 6/17/99 5:42:58 AM Eastern Daylight Time, mlmccoy@... writes: << but only when I am herxing >> I don't understand what " herxing " means. Would someone please explain? , New Bedford, MA. <A HREF= " http://members.tripod.com/LymeDizzez/ " >Lyme Disease and Me</A> ICQ # 26791014 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 Hi Kiana, That was one of my first symptoms after my tick bite, the whole left side of my face felt like Novocain wearing off. I complained to the jerky doctors I saw, and they told me that was impossible.....EEEEKKKKK! I still get that now, but only when I am herxing, and only for short duration, in the beginning it lasted for months, or until I got on decent abx. Let us know how you make out with your doctor appointment. Hugs, Marta >From: Kiana Rossi <bornfree@...> > >Anyone else have numb, numbs of head? My numbing is on the left side from >temporal area down to ear and to back of head and neck. Comes and goes. >But is now more here than gone. Also numb, numbs of whole head more and >more common. > >Creepy, freaky! > >Glad I am going to doctor tomorrow. > >Kiana M.Rossi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 In a message dated 6/17/99 12:30:27 AM Eastern Daylight Time, bornfree@... writes: > Anyone else have numb, numbs of head? My numbing is on the left side from > temporal area down to ear and to back of head and neck. Comes and goes. > But is now more here than gone. Also numb, numbs of whole head more and > more common. > > Creepy, freaky! > > Glad I am going to doctor tomorrow. > > Kiana M.Rossi > mailto:bornfree@... > ~ ~~ ~~~ ~~~~ ~~~~~ Hi Kiana I get that; if you ask your doctor, let us know what he says. thank you lea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 marta wrote: <<<I complained to the jerky doctors I saw, and they told me that was impossible.....EEEEKKKKK! <<< my response? " doctors, you gotta hate 'em. " kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 hi denise! Lyme Disease What is a Herxheimer Reaction? By Donna Herrell Founder, Lyme Disease Information Resource Overview: The herxheimer reaction, nicknamed " herx " , otherwise referred to as Jarisch-Herxheimer (J-H) is a phenomenon originally observed in the treatment of Syphilis, but later found in other illness [1]. In general terms, it is described as a temporary increase of symptoms when anti-syphilitic drugs (antibiotics) are administered. What is known or speculated about Lyme disease herxheimers are based heavily on the reactions seen in Syphilis. [2-3] This is due to the fact both diseases are caused by a bacteria known as a spirochete, the former being Treponema pallidum, the latter Borrelia burgdoferi (B.. However, the herxheimer reactions in Lyme disease are not identical to those seen in Syphilis, especially in terms of timing, frequency and duration as noted below. [1-5] In Lyme disease it is thought that the cause of herxheimers are the result of endotoxin release. [2,5] That is toxin(s) within the spirochete that are released as the B.b are killed or broken down. This may be a result of the toxin(s) itself or the body's immune response to such. Symptoms: As mentioned, the general description is a temporary increase in symptoms, but also included is the development of new ones. More specifically the most common events include: increased joint or muscle pain, headaches, chills, fever (usually low grade), hypotension, uticaria (hives) and rash. [1-5] A multitude of other symptoms have been described. Worth noting is that hives and rash are sometimes mistaken for an allergic reaction. [2] It is up to one's physician to determine this. However, with close observation and proper treatment (see Treatment) may prevent unnecessary cessation of therapy. In more severe cases of J-H, a reduction of the dosage or temporarily cessation of the treatment has been recommended [5]. Timing, Frequency and Duration: This is individualistic and herxheimers can occur within days to weeks after the institution of antibiotic therapy. In some patients they occur only once or twice (if at all) and with others continue throughout the course of treatment, usually lessening in severity. They can occur and are more often described in cycles (example: every 4 weeks) and have been reported to last from days to weeks. It can be very beneficial to document any exacerbation. Some physicians use this as a guideline for treatment. Further, it may help differentiate herxheimers from the normal symptoms or progression of Lyme disease. Treatment: Herxheimer reactions can be very difficult on patients and affect compliance with therapy so supportive measures should be sought or utilized to lessen discomfort if needed. The use of aspirin, NSAIDs (non-steroidal anti-inflammatory drugs), pain medication, muscle relaxers, hot baths or others remedies can be appropriate. Of note, some have found Benadryl helpful even in the absence of rash or hives. The good news is that the herxheimer is thought to indicate that the antibiotics are indeed working and that following each worsening may bring about more improvement. Though the lack of a herxheimer reaction should not cause anxiety if symptoms are improving. Other considerations: Something often overlooked but can present with similar symptoms is Candida (yeast) infection. Treatment with acidophilus and if needed prescription medications such as Nystatin or Diflucan can be utilized. Sources of Information: Lyme Disease 1991 - Patient/Physician Perspectives from the U.S. and Canada The Jarisch-Herxheimer Reaction H. Katzel M.D. Managing Lyme Disease 1996 ph J Burrascano M.D. Principles and Practice of Infectious Diseases 4th Ed. Mandell, and Seronegative chronic relapsing neuroborreliosis. Lawrence C, Lipton RB, Lowy FD, Coyle PK Eur Neurol 1995;35(2):113-117 The New Lyme Disease 1998 ph J Burrascano M.D. __________________________________________________________________________ This document is for informational purpose only. This article may be copied for personal use. For republication in any format Copyright Ó 1997 Lyme Disease Information Resource http://www.x-l.net/Lyme/HERX.html Copyright © 1995-1999 Lyme Disease Information Resource www.x-l.net/Lyme D. Herrell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 Marta, I don't know exactly when I was bit. I have had a weird history of sorts. I worked in Waterford Conn. at the Milstone (I was born and raised in the west and was living in the bay area at the time) in the summer of 1985. About 3 years after the job my left side of my face went numb. I went to the neuro surgeon and he said " lets wait and see " . The numbness went away and I lived a very active and normal life. 3 years ago I had horrible asthma attacks brought under control only with steroids. My Lyme symptoms started shortly thereafter. I was originally diagnosed with MS. My neurologist did all the tests. Other than some artifacts on the original MRI all tests have been negative for MS. I also went to the Mayo in Arizona and the said no MS though both the Reno neurologist and the Mayo said no Lyme in spite of the bulls eye rash I had. I still get occasional numbness (Bell's Palsy) on the left side of my face. This started as part of the Lyme symptoms. It has just about disappeared since I started the abx. Has anyone else had delayed symptoms for this long. It is possible I got bit or bitten again in Reno, there is documented cases of Lyme at that location. Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 In a message dated 6/17/99 4:58:42 PM !!!First Boot!!!, Memyo@... writes: << Anyone else have numb, numbs of head? My numbing is on the left side from > temporal area down to ear and to back of head and neck. Comes and goes. > But is now more here than gone. Also numb, numbs of whole head more and > more common. > > Creepy, freaky! > > Glad I am going to doctor tomorrow. > > Kiana M.Rossi > mailto:bornfree@... > ~ ~~ ~~~ ~~~~ ~~~~~ Hi Kiana I get that; if you ask your doctor, let us know what he says. thank you lea >> " Ditto " - thanks - Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 Hi Marta, Wow! That's exactly how I described my left-sided facial numbness to my Drs. The looks that they gave me made me furious! I even glared at one Dr. and said " Why are you looking at me like that?!! " I had become so frustrated and defensive...if only they could learn the symptoms of LD.... Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 Hi Kianna, Yes, in addition to the left-side of my face, tongue, and the roof of my mouth. Good luck at the Dr. tomorrow. Let us know how it goes. Take Care, Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 Hi All, When I first got bit, my hands were paralized, the ER doc said it was nothing, may he get sent 1000 infected ticks!!! Connie, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 Hi Connie and all the other bitter people out there, LOL! I wonder what would happen if you force-fed infected ticks to some of these idiots, do you think they would bite internally???? Feeling mean, was sick all day yesterday, just woke up from awful nightmare and don't want to go back to bed for awhile. Hugs, Marta >From: Cslyme@... > >Hi All, >When I first got bit, my hands were paralized, the ER doc said it was >nothing, may he get sent 1000 infected ticks!!! >Connie, MI > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 >Hi Kianna, > >Yes, in addition to the left-side of my face, tongue, and the roof of my >mouth. Good luck at the Dr. tomorrow. Let us know how it goes. > Take Care, Joan Hi Joan, I get it on my face, tongue and roof of my mouth too. The worst is occasionally the back of my throat goes numb and I can't swallow. Very scary!!! Kiana M. Rossi mailto:bornfree@... I've been slimed with Lyme ... And now it is time To end this strife And take back my life! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 >From: Cslyme@... > >Hi All, >When I first got bit, my hands were paralized, the ER doc said it was >nothing, may he get sent 1000 infected ticks!!! >Connie, MI And a thousand cobras sleep with him ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 you need a big stack of biscotti!! >From: Kiana Rossi <bornfree@...> > >Anyone else have numb, numbs of head? My numbing is on the left side from >temporal area down to ear and to back of head and neck. Comes and goes. >But is now more here than gone. Also numb, numbs of whole head more and >more common. > >Creepy, freaky! > >Glad I am going to doctor tomorrow. > >Kiana M.Rossi >mailto:bornfree@... > ~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~ > " An idea forms into a collocation of colors and design. >My art is a documentary of my complex inner world, expressing > thoughts and feelings through colored pencils and collage. " > > > >------------------------------------------------------------------------ >Last chance to earn $5000 for your charity of choice! > >Deadline for " GROW TO GIVE " is June 19. See homepage for details. >------------------------------------------------------------------------ >Please send privately messages unrelated to lyme. >/archives.cgi/ >/archives.cgi/Lyme-Docs >Email: -subscribeonelist >You may substitute " unsubscribe " , " digest " , or " normal " for >the word " subscribe " ( " normal " is the opposite of " digest " ) > > MimiAnne's Specialty Coffee (540) 980-6464 93 W. Main Street Pulaski, VA 24301 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 >>>The worst is occasionally the back of my throat goes numb and I can't swallow. Very scary!!! Kiana M. Rossi<<< this happens to meredith too! especially when she is tired. it makes her choke if she is eating. peace, kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 Hi Kiana, Yes, the back of the throat numbness thing is very scary. I am very careful to try not to talk when I am eating, and to concentrate on swallowing. When I have the numbness, it is always on the left side. I'm hoping it stays there and doesn't spread! Good luck at the Dr.....Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 1999 Report Share Posted June 19, 1999 >From: mimianne@... > >you need a big stack of biscotti!! >MimiAnne's Specialty Coffee > (540) 980-6464 > 93 W. Main Street > Pulaski, VA 24301 >>From: Kiana Rossi <bornfree@...> >> >>Anyone else have numb, numbs of head? Yep, that will cure those numb, numbs for sure! Maybe some Lemon Tipped Biscotti. mmm mmm good. Kiana M.Rossi mailto:bornfree@... ~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~ " An idea forms into a collocation of colors and design. My art is a documentary of my complex inner world, expressing thoughts and feelings through colored pencils and collage. " Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.