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Re: Hi....I'm still here

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Marta,

Sorry you're in a pit. I'm in one myself - pretty sure mine's a herx,

new depths of total body malaise. Haven't had much energy to post. Just

wanted to wish you and everyone else well.

beth

***************************

Iinfected in 1984, Western Sierras, California

undiagnosed rash

Dormant disease w/ low grade symptoms

Disease became active in late '98

Primarily neuro symptoms

ELISA - neg. Western Blot - equivocal

4 out 5 Bb specific bands positive or equivocal

suggestive of OLD infection

Abx so far: 6 wks Doxy, 4 wks IV Rocephin, Rocephin ongoing

Work with LLMD in San Francisco, R. Stricker

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Good Marta,

We are all praying for you and worried. But we certainly understand when you

aren't up to posting.

Extra hugs for you.

Vicki

[ ] Hi....I'm still here

>From: " J & M McCoy " <mlmccoy@...>

>

>Hi gang,

> So sorry I have not posted much on the list lately, having lots of pain,

>and both arms and legs totally numb. I had an appt. with the neurologist

>last Wednesday, I could have phoned that appt in. He wants to do an EMG,

>but demands a referral from Aetna first, last year when I saw him he

>performed an EMG without it, but guess something changed. So back I go for

>another referral and will get the EMG this coming Wednesday.

> Not looking forward to it, I know they hurt, but there has to be a

reason

>for the pain and increased tingling of my extremities, I highly suspect

>peripheral neuropathy, but need the doctor to confirm it. Not sure what

>they can do about it, if anything. The neuro did allow me to increase my

>Neurontin to 1200mg a day, that's up 300, must be making me tired as I

sleep

>quite a bit.

> I am in a bit of a funk, and that is another reason I haven't posted,

not

>good if the main list moderator is depressed and posts, soon as I crawl out

>of this hole I have dug, I will be back. Meantime, all of you are in my

>thoughts and prayers, I know I owe quite a few of you emails, I will get to

>them as soon as I can.

>Hugs to all,

>Marta NJ

>

>Tick found in scalp, August 1996. I live in South Jersey

>and my tick bite was from here. Tested positive for HME

> & Lyme disease in Feb 1997. Have had 6 weeks of IV,

>on oral meds for over 3 years now. Suffering from Peripheral

>Neuropathy, Herniated cervical discs. Still herx monthly.

>

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